iiinova — where your digital self keeps evolving

Daniel Moore @talmandaniel.bsky.social · 05/05/2025

New episode of Post-Exertional Mayonnaise podcast out today. We talk about managing fluctuations while living with ME and Chronic illness. Why not join us?

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Daniel Moore @talmandaniel.bsky.social · 05/05/2025

Hi there! Have been going through a difficult time 😞. Sorry, only just seen this! Hope you're surviving.

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Reposted by Daniel Moore

Carole Bruce @cabruce.bsky.social · 25/03/2025

Just because we can’t be on the streets doesn’t mean we’re invisible. Take part in online actions if you can. #ME #Disabled #BenefitCuts

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Daniel Moore @talmandaniel.bsky.social · 25/03/2025

When you write lyrics to a song about PEM and desperately want to find melodies and hooks but you have PEM so can't pick up the guitar.

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Reposted by Daniel Moore

Frances Daily @fdaily.bsky.social · 15/03/2025

More need to know how bad it is for so many. Lives up ended yet few beneficial treatments. Prevention is key. Improve air quality, N95 and stay home if unwell. More money for research needed

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Daniel Moore @talmandaniel.bsky.social · 14/03/2025

New episode of Post-Exertional Mayonnaise podcast out now! We talk about toxic religion and spirituality in relation to #MyalgicE and chronic illness. Join us on YouTube or wherever you get podcasts!

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Daniel Moore @talmandaniel.bsky.social · 28/02/2025

Nice one! This would work well in monochrome too.

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Daniel Moore @talmandaniel.bsky.social · 25/02/2025

Last night my son went to watch the GB basketball match and danced on camera like his life depended on it to win a basketball signed by the team. Wish I could have been there. FU ME.

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Reposted by Daniel Moore

ThereForME @thereforme.bsky.social · 25/02/2025

New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day. Read more and learn how you can get involved 👇 www.thereforme.uk/p/campaign-u...

Community campaigning together. Campaign update #14. Concerns about lack of funding for the Delivery Plan for ME. How to join #FundThePlan. Long Covid awareness day. New #ThereForME Substack post. A phone displays on its screen: Get involved! #FundThePlan.

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Daniel Moore @talmandaniel.bsky.social · 19/02/2025

New ME/chronic illness podcast episode out now! Join myself, @litsadremousis.bsky.social and @dovsz.bsky.social as we discuss life online with a chronic illness.

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Daniel Moore @talmandaniel.bsky.social · 17/02/2025

Recently watched The Traitors New Zealand. It's like the traitors on the cheap. No helicopters or speedboats and the competitors have to drive themselves places. Still, not bad!

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Didier @medidier.bsky.social · 09/02/2025

Worth repeating: there is NOT an ounce of exaggeration in this. This illness is out of the charts. #GreatestMEdicalScandal

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Reposted by Daniel Moore

Bobbins.bsky.social @bobbinsu.bsky.social · 08/02/2025

@talmandaniel.bsky.social you might be interested in sharing this in your ME community?

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Reposted by Daniel Moore

Tom Kindlon @tomkindlon.bsky.social · 06/02/2025

Jeremy Jeffs is a filmmaker and photographer whose experience of living with ME/CFS inspired him to talk to and photograph others with the same illness. wellcomecollection.org/stories/livi... Image is from free AMMES February 2025 e-newsletter #MEcfs #PwME @talmandaniel.bsky.social

Photo of Daniel
with the text:
Living with ME
Jeremy Jeffs is a filmmaker and photographer whose experience of living with ME/CFS inspired him to talk to and photograph others with the same illness. Here nine people reveal the devastating difficulties the condition brings – including their struggles to be believed by medics, to get a diagnosis, to access support, and simply to keep going.
Read more here>>

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Daniel Moore @talmandaniel.bsky.social · 01/02/2025

Dov and I both started the pod together and I still don't remember which of us even came up with the idea!

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Daniel Moore @talmandaniel.bsky.social · 01/02/2025

It's 12 years today since I did drag, at work. I'm kind of gutted that no photos exist but so pleased that I did it. Looking back it played a small part in my much needed faith deconstruction. It was such a surreal experience but so much fun, even if the high heels were two sizes too small. 😂👠

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Reposted by Daniel Moore

Mads @blueforpwme.bsky.social · 31/01/2025

My latest article which is Part 2 On The Subject of Wintering This article was inspired by the book ‘Wintering’ by Katherine May (2020) and studies the term in relation to those with the disease, MyalgicEncephalomyelitis, or M.E. #MyalgicEncephalomyelitis www.thriftvip.co.uk/articles/on-...

thriftvip.co.uk

On The Subject of Wintering P2 — ThriftVIP®

This article was inspired by the book ‘Wintering’ by Katherine May (2020) and studies the term in relation to those with the disease, MyalgicEncephalomyelitis, or M.E. for short.

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Reposted by Daniel Moore

Janet Dafoe @janetdafoe.bsky.social · 31/01/2025

I can’t wait for this cookbook! I’ve been talking with Rachel all along the way and I know the recipes are going to be so amazing. I just pre-ordered two copies so I can give one to my daughter. It would help Rachel if you pre-ordered a copy. www.healthrising.org/blog/2025/01...

healthrising.org

Rachel Riggs' "In Good Health: Uncomplicated, Allergen-Aware Recipes for a Nourished Life" for People with Complex Chronic Illnesses is now Available for Pre-order - Health Rising

"In Good Health: Uncomplicated, Allergen-Aware Recipes for a Nourished Life" provides 75 recipes for those with dietary restrictions or anyone looking to fuel their body with nutrient-dense food.

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Reposted by Daniel Moore

Mads @blueforpwme.bsky.social · 17/01/2025

For those of us living on the edges of society, #pwME & other marginalised conditions), I’m feeling slightly less alone and slightly less in a minority of the ‘Missing In Action’ from life, as sadly & as expected, the cases of Long Covid / M.E. rise. My article: www.thriftvip.co.uk/articles/on-...

thriftvip.co.uk

On The Subject Of Wintering P1 — ThriftVIP®

For those of us living on the edges of society, as we have been for decades now (people with MyalgicEncephalomyelitis and other marginalised conditions), I am coming to feel slightly less alone and sl...

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Daniel Moore @talmandaniel.bsky.social · 27/01/2025

Latest episode of Post-Exertional Mayonnaise podcast out now! @litsadremousis.bsky.social, @dovsz.bsky.social and I talk about living with ME in a world of change youtu.be/Sc9GRzktRws?...

youtu.be

Living with ME in a world of change

YouTube video by Post-Exertional Mayonnaise

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Daniel Moore @talmandaniel.bsky.social · 27/01/2025

Read a Facebook post today which mentioned ME and memory loss. It struck a chord with me as my memory has been terrible recently. If you have ME, has your memory become really poor over the years? I get head tremors so sometimes wonder if it's linked to them!

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Daniel Moore @talmandaniel.bsky.social · 26/01/2025

New episode of our ME and Chronic illness podcast, Post-Exertional Mayonnaise is out soon. We consider how change impacts us as people with ME. Out soon! Search for us on YouTube and your podcast provider. Also find us at pempod.com

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Daniel Moore @talmandaniel.bsky.social · 22/01/2025

I sometimes think that ME is as just as much about dealing with the mindf#@k that the condition and PEM places you in, as the physical symptoms. It feels like you can forget how bad it can get until it happens again. A fresh hell each time.

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