iiinova — where your digital self keeps evolving

Wolfydoc @spoonydoc.bsky.social · 04/03/2025

Many are arguing this highlights the need for better diagnosis and treatment of #autism. While true it also highlights the horrendous and dehumanising treatment of people in some #MentalHealth hospitals. This urgently needs investigating. #Disability www.bbc.co.uk/news/article...

bbc.co.uk

Autistic woman wrongly locked up in mental health hospital for 45 years

“Kasibba”, who is non-verbal and had no family to speak for her, was one of hundreds wrongly detained.

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Wolfydoc @spoonydoc.bsky.social · 09/02/2025

The court case win is pretty old news, so I'm wondering what ulterior motive the Telegraph has for publishing this now, particularly after weeks of telling us benefit cuts are coming.

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Wolfydoc @spoonydoc.bsky.social · 18/01/2025

I must have made a terrible mistake. My "discover" feed is full of cat photos but not a single dog photo. Going to lie down to recover.

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Wolfydoc @spoonydoc.bsky.social · 16/01/2025

Hmmmm. Mostly true, but I would be able to afford hydrotherapy, massage therapy and things like that. Heck, I'd get my own hydrotherapy pool and open it for free to other disabled people when I'm not using it. Oooh! With a cafe! For free! Oh well. Back to reality.

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Wolfydoc @spoonydoc.bsky.social · 16/01/2025

otoh, what is anyone going to do if they catch me in a bike lane? Take away my licence? :P

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Wolfydoc @spoonydoc.bsky.social · 16/01/2025

In the UK power chairs are currently allowed to use cycle paths but it is illegal for us to use bike lanes. I get shouted at a lot for saying this, but it is true. Anyone can check. But because no one knows about this silly legislation, no one is trying to change it. www.gov.uk/mobility-sco....

gov.uk

Using mobility scooters and powered wheelchairs

The rules for driving mobility scooters and powered wheelchairs on roads, pavements and footpaths.

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Wolfydoc @spoonydoc.bsky.social · 10/01/2025

Google Street View is a big help to plan journeys because of the following issues with Google maps: Google maps doesn't show steps on pedestrian routes. Pedestrian route designated as "mostly level" can include steps. No option to show paths/routes which include drop kerbs.

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Wolfydoc @spoonydoc.bsky.social · 10/01/2025

This has to be a wind up. If it isn't, go away and read about screen readers and how they use alt text.

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Wolfydoc @spoonydoc.bsky.social · 20/12/2024

I would categorise this issue as the same one that has affected mobility scooters and outdoor electric wheelchair users for years/decades. Secure parking for cars is provided, but very rarely for mobility scooters or powerchairs.

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Wolfydoc @spoonydoc.bsky.social · 18/12/2024

Oh no! Sometimes you don't want to be proved "right" and this is definitely one of them. I'd have been delighted for you to keep telling me all your NHS experiences were absolutely fantastic forever. Hope you get lots of rest and feel better soon.

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Zachary Weeks | Disability Advocate ♿️ @zacharyweeks.bsky.social · 14/12/2024

🎁 Accessible Wrapping Hack for the Holidays! Gift-opening joy is for everyone! 💚 Make presents easier to open for loved ones with disabilities: 1️⃣ Add a ribbon handle. 2️⃣ Wrap lightly with minimal tape. 🎥 Watch the video for the full hack! #AccessibleWrapping #HolidayHack #CerebralPalsy #yeg

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Wolfydoc @spoonydoc.bsky.social · 15/12/2024

Happily replaying the Outer Worlds, having upgraded to the new edition. Looking forward to a bunch of new games after that. New Year is always a difficult time for me and I am already starting to feel the effects. Video games and my dog are a lifeline.

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Chronic Illness Humor @chronicillness.bsky.social · 13/12/2024

Doctor: How are you? Me: I'm good. Doctor: What brings you here today? Me: I'm doing bad.

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Wolfydoc @spoonydoc.bsky.social · 14/12/2024

You're secretly a satire account, right? Right?

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Wolfydoc @spoonydoc.bsky.social · 14/12/2024

The use of #AI in government bureaucracy is problematic. You only need look at the Horizon scandal to see the dangers when computers get it wrong. Now it is being deployed against welfare claimants in the UK despite knowing it is biased. #disability www.bigissue.com/opinion/dwp-...

bigissue.com

AI has brought bias and hunger to the DWP benefits system

AI should be ensuring the benefits system is supporting claimants from the start – but leaves them fighting for support they deserve.

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Wolfydoc @spoonydoc.bsky.social · 13/12/2024

Part of the problem is that social care is on its knees. People can't be safely discharged, so there are is a bottleneck. There are other reasons for lack of beds but this remains a large one. But no one in government, this or last one is willing to even begin to address the issue.

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Wolfydoc @spoonydoc.bsky.social · 13/12/2024

National target from 2000 is 95% of people seen and treated/admitted within 4 hours. That target used to be met but now only 73% in all A&E and 58% in hospital A&E. Since the pandemic 12 hour waits have rocketed. 1 in 10 last winter, large variations locally. Eg: www.bbc.co.uk/news/health-...

bbc.co.uk

12-hour A&E waits in winter 'becoming normalised'

Experts warn long waits becoming normalised as NHS winter waits show little sign of improvement.

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Wolfydoc @spoonydoc.bsky.social · 13/12/2024

I saw marshmallows at the supermarket the other day proudly advertised as "100% fat free". Yep. Practically a health food! Like vegan leather, it's not false advertising as such, but certainly misleading.

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Wolfydoc @spoonydoc.bsky.social · 13/12/2024

This is not the usual experience for an NHS patient. I will only go if unconscious, seriously injured, or severe pain not explained by my normal symptoms. This is why it took 5 days to go with a blocked kidney stone. Similar pain to usual back pain, so eventually called GP, who sent me to A&E (ER).

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Wolfydoc @spoonydoc.bsky.social · 12/12/2024

I do similar. I use a combination of a huge U shaped maternity pillow, a V shaped pillow and an ordinary pillow. Took a while to discover this combination, but I sleep ok now. I usually sleep on my side, but can support my legs up at will and also prop myself up when on my back.

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Wolfydoc @spoonydoc.bsky.social · 11/12/2024

There are definitely some games which I think are "far more fun than they have any right to be"! Generally they are the ones with a vast array of interesting and diverse loot. Borderlands plays on this to a point but has other fun features. Some games don't.

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Wolfydoc @spoonydoc.bsky.social · 10/12/2024

Have logged on to discover that playing video games and having chronic pain will apparently turn me into an assassin. Will now go away and reflect on my life. Nah. Just kidding. Will now go away and play some more video games. #disability #ChronicIllness

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Wolfydoc @spoonydoc.bsky.social · 10/12/2024

I restarted a Cyberpunk mission because I accidentally ran over some civilians. Had much better luck with the motorbikes and stuck to them after a while!

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Jen Gentleman @jenmsft.bsky.social · 10/12/2024

"Video games cause violence" Meanwhile, me reloading my save because I accidentally made one of the characters sad

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Aevee Bee @mammonmachine.bsky.social · 10/12/2024

Many people do not understand game design. Let me explain: game design is when attacking with your primary attack builds stacks of zorp, and your secondary consumes zorp stacks to add additional slow and lifesteal when you plurk

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Wolfydoc @spoonydoc.bsky.social · 08/12/2024

Currently watching a TV Korean drama "Descendents of the Sun". It has a secondary character who is a wheelchair using doctor. No mention has been made of her wheelchair whatsoever so far. She just happens to be a disabled doctor.

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Wolfydoc @spoonydoc.bsky.social · 08/12/2024

I'd only ever seen it in the context of being scared, well, "shitless". Which is a thing that happens in extreme situations to anyone, disabled or not. Is it being used as an insult in other contexts?

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Wolfydoc @spoonydoc.bsky.social · 08/12/2024

Sometimes it's nice to just sit back and enjoy not being in pain! Unless you're literally wandering around in frustration wondering what to do. In which case I hope you settle on something soon.

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Wolfydoc @spoonydoc.bsky.social · 08/12/2024

I always wrote off part of my rental deposit in advance for that sort of thing. Some people semi jokingly call it the "disability tax", ie all the extra costs, big and small you pay that non disabled people don't.

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Wolfydoc @spoonydoc.bsky.social · 07/12/2024

So I think there are some individual tasks that can definitely be automated and helped with. These are things that would be viewed as luxuries for a non disabled person, but are essential when you can't do it for yourself. But I can't yet see anything doing a job from start to finish.

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Wolfydoc @spoonydoc.bsky.social · 07/12/2024

I agree to a point. As a disabled person living alone with a care package I am always looking for ways to be more independent. My robot mopper/vaccum reduced my cleaner hours, and thus eventually paid for itself. I'd happily take a hair washing robot too! But who would clean up the wetroom after?

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Wolfydoc @spoonydoc.bsky.social · 06/12/2024

In the UK the government is using AI in areas ranging from tax to welfare. A story which broke yesterday is that it is being used to detect welfare fraud but an internal assessment reveals bias based on age, nationality and disability. I'm willing to bet the UK isn't alone in this.

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Wolfydoc @spoonydoc.bsky.social · 05/12/2024

I understand that. Point is that I feel there is no point calling the ambulance and wasting their time when I know I won't get in it. I'll argue and want to get a taxi or call a friend instead. This isn't a scenario the first aid course has even thought of. I'm suggesting that perhaps it should be.

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Wolfydoc @spoonydoc.bsky.social · 05/12/2024

I'd class that as "seriously injured"

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Wolfydoc @spoonydoc.bsky.social · 05/12/2024

Ambulances don't take wheelchairs. Unless I'm unconscious or seriously injured, I absolutely do not want an ambulance. My wheelchair is more important, near impossible to get/incredibly expensive, would take months to replace. Which tells you all you need to know about NHS wheelchair services.

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florgoth @florgoth.bsky.social · 05/12/2024

I wanted to check again, but altometer.atdev.pro is down right now. From what I'm seeing right now, however, the ratio can't be all that great. I'd like to again ask people to use alt text: 👇 1/4

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Wolfydoc @spoonydoc.bsky.social · 03/12/2024

One of the first things my sister said when she had kids was that they would be allowed chocolate advent calendars if they wanted them! It's a bit of a family joke now. Sometimes it's the small things that matter in childhood.

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Wolfydoc @spoonydoc.bsky.social · 03/12/2024

Drat. I forgot to buy an advent calendar again. On that note, shout out to all those people who weren't allowed a chocolate advent calendar when they were kids. Double shout out to those who had to reuse the same advent calendar each year with the same pictures.

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Wolfydoc @spoonydoc.bsky.social · 03/12/2024

That's no longer a compromise issue. That's a school not doing their job issue. Every disabled student should get their needs met, whether they go all the way up to 1-1 assistant, occasional support here and there or a one off bit of equipment. Sorry you weren't supported as you deserved.

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Naomi L. Jacobs @naomijacobs.bsky.social · 03/12/2024

Happy International Day of Disabled People. Let’s keep fighting for a society where disabled people’s lives are valued. #Disability

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Wolfydoc @spoonydoc.bsky.social · 03/12/2024

Not sure it's about "more important". It's a judgment call about "most necessary". For example tactile pavement is difficult for wheelchair users. But without it visually impaired/blind people are in danger. So I accept it is necessary even though it can cause me pain and can be slippery.

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Wolfydoc @spoonydoc.bsky.social · 02/12/2024

I raise you Being a child in the eighties/nineties and hearing "bed time" just as you finally reach the last level for the very first time. Save points? What are those? I think there's a reason I am now a save fiend.

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Wolfydoc @spoonydoc.bsky.social · 02/12/2024

I'll see in the Spring. No one will be more delighted than me if you're right.

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Wolfydoc @spoonydoc.bsky.social · 02/12/2024

I have 2 electric wheelchairs, Penguin (black and white) and Bumble Bee (black and yellow). Penguin is small for whizzing around indoors, and BB bigger for outdoors. I have 2 retired ones, Rascal and Roadrunner which are 20 years old and live at my parents so I can use them when I visit (no WAV).

An empty black and yellow electric wheelchair sits in a hallway. A black and yellow rucksack hangs on the back.

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Wolfydoc @spoonydoc.bsky.social · 02/12/2024

I won't fully argue the point yet. As I said, I need to wait until the Spring announcement. But as it currently stands we have an Access to Work system with a 9 month waiting list, Disabled Student Allowance on the same track and a government promising £3billion of sickness welfare cuts.

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Wolfydoc @spoonydoc.bsky.social · 02/12/2024

The policies for the long term sick and disabled people won't be announced until Spring. That's when we will find out where the cuts will fall. I'm reserving judgment until then, but what I've heard so far hasn't reassured me. All about savings, nothing about fixing access to work or employers.

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Wolfydoc @spoonydoc.bsky.social · 02/12/2024

I notice you're not mentioning their commitment to £3billion worth of cuts by restricting access to sickness benefits. It is hard to trust good intent when the government's starting point is to save money, not help disabled people find work.

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Wolfydoc @spoonydoc.bsky.social · 02/12/2024

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