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Sophia Forum

@sophiaforum.bsky.social
112 followers 168 following 15 posts

We exist to empower all women & trans women living with & at risk of HIV to reach their full potential, ensure their voices are heard and needs prioritized within the health sector www.sophiaforum.net www.womenandprep.org.uk

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Robin Moira White @robinmoirawhite.bsky.social · 08/12/2025
Great Britain, banana republic.
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Decrim Now @decrimnow.bsky.social · 03/12/2025
The briefing was co-signed by the following organisations @nat.org.uk @bhiva.bsky.social @positivelyuk.bsky.social @sophiaforum.bsky.social @positiveeast.bsky.social @nazprojectlondon.bsky.social @phoenixhealthm.bsky.social
The briefing was co-signed by the following organisations: National AIDs trust, BHIVA, The Love Tank CIC, St Georges House Trust, Blue Sky Trust, African Advocacy Foundation, Naz Project London, Sophia Forum, Phoenix Health Movement, Embrace UK, Positively UK, Positive East, One Voice Network
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Darren Brown OBE @darrenabrown.bsky.social · 04/11/2025
Pre-Print available during peer-review “Evaluation of the psychometric properties of the Episodic #Disability Questionnaire (EDQ) among women living with #HIV in the United Kingdom: a self-reported repeated measure study” www.medrxiv.org/content/10.1... @bhiva.bsky.social @sophiaforum.bsky.social
medrxiv.org
Evaluation of the psychometric properties of the Episodic Disability Questionnaire (EDQ) among women living with HIV in the United Kingdom: a self-reported repeated measure study
Background Disability is an increasingly common health outcome as women age with HIV and multimorbidity. The Episodic Disability Questionnaire (EDQ) measures the presence, severity, and episodic natur...
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Women’s Health Under the Microscope @whum-camuni.bsky.social · 01/12/2025
This post is general information, not medical advice. For more in-depth, evidence-based resources on these topics: 👉 thewellproject.org 👉 pwn-usa.org 👉 icwglobal.org 👉 hiv.gov US based service locator 👉 locator.hiv.gov (UK) @tht.org.uk (UK) @sophiaforum.bsky.social
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Sophie Strachan @stracs.bsky.social · 29/10/2025
Participation Link: shareresearch.qualtrics.com/jfe/form/SV_...
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Sophia Forum @sophiaforum.bsky.social · 27/10/2025
Let’s reframe risk and focus on informed choices that reflect our desires and respect our lives. Find them here 👉  Risk to Reasons UK Website
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Sophia Forum @sophiaforum.bsky.social · 10/09/2025
Great to see our recent Systematically excluded and ignored report mentioned in this article sophiaforum.net/women-and-hi...
sophiaforum.net
Women and HIV Policy – Sophia Forum
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The New Statesman @newstatesman1913.bsky.social · 09/09/2025
New modelling by Gilead Sciences shows we're off-track to meet current targets - but hope is not lost.
newstatesman.com
Ending the HIV epidemic by 2030
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Sophia Forum @sophiaforum.bsky.social · 09/09/2025
National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users, homeless, and recent migrants. LINK: shareresearch.qualtrics.com/jfe/form/SV _ dmuIcB6Lxi79qPs
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Sophia Forum @sophiaforum.bsky.social · 09/09/2025
National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users, homeless, and recent migrants. LINK: shareresearch.qualtrics.com/jfe/form/SV _ dmuIcB6Lxi79qPs
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Sophia Forum @sophiaforum.bsky.social · 17/07/2025
Sophia Forum is excited to launch a new series of blogs platforming women living with HIV to share their experiences. The first in the series is by Rebecca Mbewe & explores her journey from diagnosis to living well with HIV - please read,Share widely: sophiaforum.net/2025/07/17/a...
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Unitaid @unitaid.bsky.social · 14/07/2025
Florence Anam (GNP+) reminds us at #IAS2025: “We’re in a difficult time for science in the HIV response, but these new WHO guidelines show we’re still moving forward, for women, for children, for all of us.”
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Sophia Forum @sophiaforum.bsky.social · 10/07/2025
@linkedin.com I have been hacked and trying to contact someone at LinkedIn to speak to v unsuccessfully for over 10 days. Who can I speak to please. I cannot access my account which ever way I try
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National AIDS Trust @nat.org.uk · 30/06/2025
#HIV organisations have come together to call for the guidelines to be withdrawn. , We believe they will not reduce inequality or protect everyone’s right to fairness, dignity, and respect. Read the full statement on our website: nat.org.uk/news/hiv-...
Logos of the H.I.V. organisations calling for the E.H.R.C. guidelines to be withdrawn
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Sophia Forum @sophiaforum.bsky.social · 11/06/2025
The 2024 Sophia Forum WISE-UP+ workshop on HIV and bone health was designed and led by women living with HIV and allies with the primary aim to improve knowledge about bone health for women ageing with HIV. sophiaforum.net/wise-up/wise... for more information and links to the report and poetry book.
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The Food Chain Charity @thefoodchain.bsky.social · 03/06/2025
Eating Together isn’t just about food — it’s about connection, conversation, and community 💛 And it wouldn’t happen without our wonderful volunteers. Thank you 🙏🏼 #VolunteersWeek #TheFoodChain #CommunityMatters #HIVSupport
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Tristan J Barber @tristanjbarber.bsky.social · 29/05/2025
important editorial from @thelancet.com HIV: 'Adapting the UK's HIV response to a changing epidemic' www.thelancet.com/journals/lan... @bhiva.bsky.social @sophiaforum.bsky.social @nat.org.uk
thelancet.com
Adapting the UK's HIV response to a changing epidemic
2025 could be a pivotal year for HIV in the UK. The national HIV Action Plan, published in 2021, will conclude, and a new Action Plan will be launched later this year. The UK has a smaller HIV epidemi...
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Dr Richard Ma PhD 🏳️‍🌈🏳️‍⚧️🍉🕺⚕️🩺🎓 @richard-ma.bsky.social · 30/04/2025
Are you living with #HIV & aged over 50 in the UK or a carer for someone who is? What are your health and care concerns about HIV and ageing? Please help to create a "bank" of research questions to improve the health and care of older adults with HIV app.onlinesurveys.jisc.ac.uk/s/socs/have-...
app.onlinesurveys.jisc.ac.uk
Have your say to improve the care of people aged over 50 living with HIV in the UK
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National AIDS Trust @nat.org.uk · 20/05/2025
Juddy Otti, reflecting on the work of Africa Advocacy Foundation, @sophiaforum.bsky.social‬ and @onevoicenetwork.bsky.social, highlighted the urgent need to partner and sustainably fund community-led organisations to tackle inequalities faced by women and Black communities.
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Dr Rageshri Dhairyawan @drrageshri.bsky.social · 26/04/2025
I wrote this while at the @bhiva.bsky.social conference so suitably inspired! #BHIVA25 @bashhuk.bsky.social @iasociety.bsky.social @tht.org.uk @nationalaidstrust.bsky.social @eltonjohnaidsfoundation.org @unaids.org @appghiv.bsky.social @sophiaforum.bsky.social @hiv-i-base.bsky.social
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Kylie Noble @ksen12.bsky.social · 16/04/2025
Today the UK supreme court ruled that trans women aren't women. I strongly disagree. Gender like most aspects of the self and society is a construct. Trans Femme Futures by Nat Raha and Mijke van der Drift has been made free to access by Pluto Press. www.plutobooks.com/978074534941...
plutobooks.com
Trans Femme Futures
'A brilliant, useful, and immensely moving book that deals a critical blow to the epistemic austerity of our times' - Jordy Rosenberg 'Femme' describes a ...
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Paula Barker MP @paulabarkermp.bsky.social · 15/04/2025
Today we remember the 97, their families & survivors. Along with other Merseyside MPs I will be doing all I can to get a Hillsborough Law delivered. Anything less is unacceptable. #JFT97 #YNWA
Image of Justice for the 97. Never forgotten.
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Sophia Forum @sophiaforum.bsky.social · 16/04/2025
Our GROWS peer support project supports women living and ageing with HIV. We have just trained 16 new peer mentors who are available to provide 1-1 or remote peer support. If you’re an HIV clinic, Advocate, Peer Mentor, Caseworker, Allied Health Professional, pharmacist etc please email Juddy below
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Aditi Sharma @aditicampaigns.bsky.social · 28/03/2025
❤️ Much needed recognition of women's contribution to the #HIV movement @sophiaforum.bsky.social @positivelyuk.bsky.social @icwglobal.bsky.social
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Juan Michael Porter II @juanmichaelii.bsky.social · 27/03/2025
2 years ago, for Women's History Month, Tim Murphy wrote about 15 women who were #HIV activists. I have a lot of faves from my time leading coverage at TheBody. This piece is one of the top 10 articles I commissioned. Say their names & fight to preserve their work. www.thebody.com/article/wome...
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Sophia Forum @sophiaforum.bsky.social · 02/04/2025
Very excited to be in parliament this morning to launch our new Womens HIV Policy report with Gilead and @appghiv.bsky.social 18 months of essential work to ensure women are centered in the HIV response @stracs.bsky.social
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HIV i-Base @hiv-i-base.bsky.social · 13/03/2025
Exciting early riotrial.bsky.social‬ results at #CROI2025:i-base.info/htb/50530 New #bNABs so far successful in keeping viral load undetectable in some participants off #HIVtreatment. Also the first time we’ve seen bNABs cause vaccine-like immune response. #RIOtrial #teropavimab #zinlirvimab
i-Base graphic. The main text in red and dark blue, on a light blue blue background, reads: CROI 2025. RIO study early results. Viral load remains undetectable off-ART, plus possible vaccine-like HIV cure. Below, in white on a burnt orange background, text reads, San Francisco, California. 9th to 12th March. On top of this is a faint image of the Golden Gate Bridge. In the top left corner is a URL: I hyphen base dot info. In the top right corner is a box made of blue, yellow and red blocks. White text on it reads, HTB news. 2025.
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British Association for Sexual Health and HIV (BASHH) @bashhuk.bsky.social · 07/03/2025
We’re joining the RCOG and 48 other organisations in a joint letter calling for concrete commitment to ensure women receive the quality healthcare they need throughout their lives. Read and share the letter: buff.ly/Ao9PazF #PrioritiseWomensHealth
buff.ly
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Sophia Forum @sophiaforum.bsky.social · 08/03/2025
On International Women's Day, join us in celebrating women living with HIV. Watch this space as we soon relaunch our We Are Still Here campaign, share new research, policy reports & poetry! please support us with a donation www.paypal.com/donate/?host...
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Aditi Sharma @aditicampaigns.bsky.social · 28/02/2025
Thanks for a moving & inspiring evening in these difficult times. #HIV decriminalisation NOW! @hivjustice.net @sophiaforum.bsky.social @nationalaidstrust.bsky.social @appghiv.bsky.social @frontlineaids.bsky.social @thtorguk.bsky.social
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Yvonne Gilleece @profygilleece.bsky.social · 15/02/2025
Case conference submission closed now but it would be great to see you at our BHIVA conference in my (other) home town of Brighton @bhiva.bsky.social @tristanjbarber.bsky.social @hivmedicine.bsky.social @thtorguk.bsky.social @sophiaforum.bsky.social @drlaurajwaters.bsky.social
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Dr Lady Phyll @ladyphyll.bsky.social · 10/02/2025
20 years of UK Black Pride. 20 years of joy, resilience, and community. 🖤🏳️‍🌈 Mark your calendars: 10th August 2025 at Queen Elizabeth Olympic Park, this will be our biggest celebration yet. A space for us, by us. 🌍🏳️‍⚧️ I can’t wait to see you all there. #UKBlackPride
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Jo Palmer @josephinepalmer.bsky.social · 08/02/2025
The Moral Injuries of Witnessing Genocide in Gaza | “Activism is also necessary to keep moral injuries from becoming disabling”.
commondreams.org
The Moral Injuries of Witnessing Genocide in Gaza | Common Dreams
To see what is being done to the people of Gaza is to witness the kind of genocidal action we have said must never be allowed to happen again.
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WHO @who.int · 06/02/2025
Female genital mutilation (FGM) is a harmful practice that is widely performed in around 30 countries in Africa, the Middle East & Asia. It is often considered a cultural rite of passage for girls. Evidence shows FGM can be prevented, incl. by advancing health, rights & gender equality. #EndFGM
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WIRED @wired.com · 04/02/2025
NEW: Elon Musk’s attack on USAID has cut HIV/AIDS workers off from medicine and money. The Trump Administration claims it is allowing “lifesaving” foreign aid to continue, but in reality, DOGE is preventing vital work on HIV and AIDS from saving lives. Read our scoop here:
wrd.cm
Elon Musk's DOGE Is Still Blocking HIV/AIDS Relief Exempted From Foreign Aid Cuts
The Trump Administration claims it is allowing "lifesaving" foreign aid to continue, but in reality, DOGE is preventing vital work on HIV and AIDS from saving lives.
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Miriam Rabkin @miriam2024.bsky.social · 04/02/2025
Malawi's Ministry of Health has issued a formal contingency plan in response to the "temporary suspension of support from #PEPFAR", triaging #HIV services and noting that routine viral load testing, early infant diagnosis, and pre-exposure prophylaxis (PrEP) may need to be reduced or discontinued.
03rd February 2025

From: THE SECRETARY FOR HEALTH, MINISTRY OF HEALTH,
P.O. BOX 30377, LILONGWE 3

To: DISTRICT COMMISSIONERS
Attention:	Directors of Health Services, DIRECTOR GENERAL, ALL CENTRAL HOSPITALS
 
RE:	PROVISION	OF	UNINTERRUPTED	HIV	SERVICES	ACROSS	ALL HEALTHFACILITIES
In reference to the circular dated 28th January 2025 and issued with the same subject as above, the Ministry of Health wishes to communicate the following measures as part of the contingency plan to respond to the temporary suspension of support by PEPFAR and its implementing partners.
The ministry instructs that these measures be implemented without delay. The measures are as follows:
•	Redeployment of trained Ministry of Health (MOH) staff for HIV testing, ART dispensing, and targeted viral load monitoring to fill gaps left by PEPFAR-funded personnel.
•	Optimize 6-month ART dispensation to reduce clinic visits and ease the burden on health facilities.
•	Train and utilise community health workers (Health Surveillance Assistants and community midwives' assistants) for ART refills targeting stable and eligible clients.
•	Train and utilise community structures like Community ART Groups (CAGS} in the high burden districts in the Southern region for ART refills targeting stable and eligible clients.
•	Stock redistribution in case of over-stock/understock to avert expiries and stock outs.
•	Facility-level task shifting, leveraging Health Surveillance Assistants (HSAs) and hospital attendants to assume responsibilities previously managed by PEPFAR-supported staff.
•	Leverage private sector and CHAM/IHAM facilities to absorb ART patients (from high-volume ART clinics) if necessary.
[continued on p2]•	Strengthen telemedicine and digital health platforms for ART patient follow-up and remote clinical consultations.
•	Expand the role of Community Health Workers for patient follow-up, defaulter tracing, and condom distribution.
•	Nationwide site-level quarterly data validation and supervision of HIV services shall now be conducted bi-annually by district teams with technical and logistical support from the central government.


Further to that, ALL health facilities offering HIV care must adopt the following measures:
Category A:	The	following	services	are	considered	as  lifesaving
(immediate priority) and therefore must be continued at all costs.
•	ART Initiation and Continuation (Facility-based).
•	HIV Rapid Testing for:
o	Pregnant women, sick children, and HIV-exposed infants (at 12 and 24 months).
o	In-patients, STI patients, TB clients, suspected HIV cases, and blood donors.
•	Targeted HIV Viral Load Testing (for patients suspected of treatment failure).
•	TB Screening for ART patients.
•	Facility-Based Condom Distribution.
•	ART Dispensation (Optimizing 6-month ARV supply for stable patients).
•	Infant	HIV	Prophylaxis	(Nevirapine	[NVP],	2P [Zidovudine/Lamivudine/Nevirapine], Cotrimoxazole [CPT]}.
•	Electronic Medical Records System (EMRSJ Support (Data security, ART patient registration, and facility-based data capturing}.


Category B:	The following services are considered as essential (high priority) and therefore must be continued but requiring adjustments.
[continued on p 3]•	DNA-PCR Testing for HEI will continue only in sites with point-of-care (POC) testing capacity. All other infants will get their first test at 12 months and 24 months of age using RDT.
•	Hepatitis B testing will continue for ANC women only.
•	HMIS officers trained in electronic medical records (EMR) system management must manage infrastructure and maintenance.


Category C:	The following services are considered as of moderate/low priority and therefore may need to be reduced or discontinued if staffing/logistics dictate.
•	Suspend dispensing of ARV emergency refills.
•	Suspend sample transportation for HIV viral load, Early infant diagnosis (EID) and other related samples. When it is highly necessary to do so, ambulances and any other available means must be used (prioritizing critical cases).
•	Suspend routine HIV viral load testing. Only targeted HIV Viral Load Testing (for patients suspected of treatment failure) must continue in sites with capacity for point-of-care testing.
•	Suspend provision of Oral & injectable PrEP.


The Ministry will continue to communicate any new developments as they unfold.
For more information contact the HIV, STls and Hepatitis directorate
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Peter Tatchell Foundation @petertatchellfdn.bsky.social · 04/02/2025
😡 And so it begins… Idaho Republicans just passed a resolution urging the Supreme Court to end marriage equality. They won’t stop until our rights are gone. We must fight back. 🏳️‍🌈✊ #MarriageEquality One Supreme Court justice at least wants it gone! 🔗 tinyurl.com/3p3fhpjw
tinyurl.com
Idaho Republicans pass resolution urging Supreme Court to end marriage equality - LGBTQ Nation
They say the Supreme Court should let them return to the "natural definition of marriage, a union of one man and one woman."
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Sophia Forum @sophiaforum.bsky.social · 03/02/2025
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HIV i-Base @hiv-i-base.bsky.social · 02/02/2025
Impact of Trump's executive orders on #GlobalHealth: i-base.info/htb/50142 The stop-work order for PEPFAR put 20 million #PLWH at risk, with 1 million already denied ART #HIV #AIDS #PEPFAR #ARVs #Africa #EndAIDS
Trump’s new White House logo. White line drawing of the White House on a dark blue background. The US flag flies on top of the building.
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Sophia Forum @sophiaforum.bsky.social · 03/02/2025
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Sophia Forum @sophiaforum.bsky.social · 01/02/2025
www.theatlantic.com/health/archi...
theatlantic.com
CDC Data Are Disappearing
The agency has already removed scientific data from public view. More could follow.
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SHARE Collaborative @shareeastlondon.bsky.social · 31/01/2025
We are very proud of our Director @profchloeorkin.bsky.social profile in the @thelancet.bsky.social today!
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Matthew Hodson @matthewhodson.bsky.social · 30/01/2025
An emergency waiver will allow the continuation of PEPFAR to continue providing lifesaving HIV treatment to 20 million people worldwide. We are at a key moment in the struggle, with new tools to treat and prevent HIV. Now is not the time to halt efforts, now is the time to end the HIV epidemic.
The world with a red ribbon added to it and the text: 

Keep the goal in sight
No new HIV infections
No AIDS deaths 
No HIV stigma
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Adam R Houston @healthlawadamh.bsky.social · 30/01/2025
Not ideal timing, Switzerland. "Switzerland to slash funding for UN agencies" genevasolutions.news/global-news/...
genevasolutions.news
Switzerland to slash funding for UN agencies - Geneva Solutions
The Swiss government is pulling the plug on funding for several UN agencies while cutting back on others in 2025, with UNAids and Unesco among the biggest losers. The move comes just days after the US...
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Garry Brough @garrybrough.bsky.social · 31/01/2025
We're in Bristol today for the UK & Ireland Fast-Track Cities Unconference, bringing everyone together to find common approaches and solutions to ending #HIV transmissions and improving quality of life fir people living with #HIV. @londonftci
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WHO @who.int · 30/01/2025
🧵 The situation in Goma, #DRCongo is deeply worrying with the escalating violence. Hospitals are saturated, with over 2,000 wounded people in health facilities & temporary care points, as of 29 January Hear more from WHO Assistant Director-General Dr Chikwe Ihekweazu who was in Goma last week 1/3
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WHO @who.int · 28/01/2025
🧵 STATEMENT: WHO expresses deep concern on the implications of the immediate funding pause for #HIV programmes in low- and middle-income countries. These programmes provide access to life-saving HIV therapy to more than 30 million people worldwide. Read more bit.ly/42yxxIz 1/5
WHO statement on potential global threat to people living with HIV
18481582490
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Colleen Dockerty @colleendockerty.bsky.social · 28/01/2025
Trump’s assault on #humanrights, bodily autonomy and democracy via @ipas.org www.ipas.org/news/trumps-... #reprorights #GlobalGagRule
ipas.org
Trump’s assault on human rights, bodily autonomy and democracy
Trump’s assault on human rights, bodily autonomy and democracy
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National AIDS Trust @nat.org.uk · 26/01/2025
The HIV Confident charter mark aims to reduce HIV stigma in member organisations. Those who enrol must respect and welcome people living with #HIV who work for them, or access their services. Learn more here hivconfident.... Photo: Mareike Günsche
H.I.V. Confident aims to reduce H.I.V. stigma in members organisations

Picture of a young man smiling. 

H.I.V Confident 

national aids trust logo. Positively U.K. logo, aidsmap logo
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