iiinova — where your digital self keeps evolving

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Matthew Hodson @matthewhodson.bsky.social · 16/10/2025

We’ve got over 1,500 participants in Ask Us Europe but need more so that we can produce country-level and demographic specific reports. I have flyers in many languages and business cards. If you, or anyone you know, is eligible and interested, come find me at #EACS2025. @shareeastlondon.bsky.social

Flyers and business cards for the Ask Us Europe study.

Me, so you’ll recognise me if you see me. 50-something bloke with a moustache.

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Matthew Hodson @matthewhodson.bsky.social · 16/10/2025

#EACS2025 At 15.35 today there’s a poster presentation of the early findings from the Ask Us Europe study, looking at discussions between people with HIV and their healthcare providers related to optimising treatment. @shareeastlondon.bsky.social NB Not me presenting - just posing there.

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Matthew Hodson @matthewhodson.bsky.social · 17/10/2025

The Ask Us Europe team at #EACS2025 following Megan’s poster presentation. If you’re on HIV treatment and live in Europe, please take part - it takes 10 minutes and the results should help improve treatments for us. @shareeastlondon.bsky.social @profchloeorkin.bsky.social bit.ly/4oqzvCG

Me, Angelina, Megan, Chloe and Chloe of SHARE Research Collaborative at EACS. We’re all smiling.

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SHARE Collaborative @shareeastlondon.bsky.social · 11/09/2025

This is a SHARE collaborative project. We are conducting a national survey to improve PrEP access for communities facing the greatest barriers, including racially minoritised women & men, queer men of colour, trans/non-binary people, sex workers, and recent migrants. 🔗 tinyurl.com/4a2kh54n

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SHARE Collaborative @shareeastlondon.bsky.social · 10/09/2025

🗣️SURVEY on HIV PrEP! National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users, homeless, and recent migrants. LINK: shareresearch.qualtrics.com/jfe/form/SV_...

shareresearch.qualtrics.com

Qualtrics Survey | Qualtrics Experience Management

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

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Susan Cole-Haley @susancolehaley.bsky.social · 04/09/2025

Positive Health broadcast on HIV & Black communities is on Mon 8 Sept. Co-host Denis Onyango & I are joined by HIV advocate & researcher Rebecca Mbewe & @drrageshri.bsky.social. Watch live 5-5.30pm on @phoenixhealthm.bsky.social YouTube youtube.com/@phoenixheal... @shareeastlondon.bsky.social

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Matthew Hodson @matthewhodson.bsky.social · 20/08/2025

Are you HIV+? Living in Europe? Currently on HIV treatment? Please fill in the Ask Us Europe survey that I’ve been working on with @shareeastlondon.bsky.social. We aim to ensure people with HIV have access to the best treatment and care. Survey at: bit.ly/4m5ktRm

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UK-CAB @ukcab.bsky.social · 06/08/2025

We encourage all people living with HIV in Europe to join this short study run by @shareeastlondon.bsky.social & @profchloeorkin.bsky.social to share their experiences with new HIV treatments & conversations with the clinical teams about treatment choices. Visit the page & complete the survey below

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SHARE Collaborative @shareeastlondon.bsky.social · 23/07/2025

Are you: ✅working in a UK sexual health service that provides #PrEP, AND ✅willing to take part in a 15 minute survey? We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants

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BK. Titanji @boghuma.bsky.social · 05/08/2025

Long-acting CAB+RPV for HIV is here but what counts as virological failure or treatment discontinuation? Turns out, there's no consensus in real-world use. Our Lancet HIV study set out to fix that. What was found? 15 different failure definitions in practice. www.sciencedirect.com/science/arti...

sciencedirect.com

Establishing shared definitions of virological failure and discontinuation for long-acting injectable cabotegravir and rilpivirine therapy (the CONSENSUS-LAI Study): an international survey and Delphi...

Definitions of virological failure and treatment discontinuation for long-acting injectable (LAI) cabotegravir and rilpivirine antiretroviral therapy …

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Tristan J Barber @tristanjbarber.bsky.social · 23/07/2025

if you are in Europe (inc the UK!), living with HIV in a country where injectable ART is available, please fill in this short survey from *brilliant* @shareeastlondon.bsky.social, and circ through your networks! #AskUs shareresearch.org.uk/ask-us-study/ shareresearch.qualtrics.com/jfe/form/SV_...

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Rosalie Hayes @rahayes92.bsky.social · 23/07/2025

This is a study I'm working on for @shareeastlondon.bsky.social - please share, and if you're a sexual health clinician - please fill it out! There's more info about the study here: shareresearch.org.uk/beyond-the-c... #beyondtheclinic

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SHARE Collaborative @shareeastlondon.bsky.social · 23/07/2025

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Prof Chloe Orkin @profchloeorkin.bsky.social · 22/07/2025

Our latest study to understand the perspective of people living with HIV in Europe is now live! We created it together with an amazing steering group of community members from 17 countries. Please do the survey if you are living with HIV in UK and Europe and SHARE widely !! 🙏🙏🙏🙏

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Matthew Hodson @matthewhodson.bsky.social · 22/07/2025

Do you live with HIV? Are you in Europe and currently on treatment? Please take part in the Ask Us Europe survey, which aims to improve treatment and care for people with HIV. I am proud to have worked on it with @shareeastlondon.bsky.social and a powerful group of people with HIV. Please share. 🙏

Flyer for the Ask Us Europe study, including a QR code. I will add the link to the survey in a post that I will thread to this one.

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SHARE Collaborative @shareeastlondon.bsky.social · 22/07/2025

Our latest study 'ASK US Europe' is live and open to recruitment for people living with HIV in Europe who are on ART! Please share widely across your networks in Europe and the UK. bit.ly/4m5ktRm /1

bit.ly

Ask Us Europe

This survey aims to gather insights from the perspective of people living with HIV on discussions with HIV healthcare provider about new HIV treatments.

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SHARE Collaborative @shareeastlondon.bsky.social · 27/06/2025

We’re pleased to be collaborating with @thelovetankcic.bsky.social on the Queer Health Survey, and they are currently recruiting! 📌 Role: Programme Coordinator 🕒 17.5 hours/week | 12-month contract 📅 Deadline: Midday, 9 July 2025 🔗 Full details: www.thelovetank.info/vacancies/qhs

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Barts Charity @bartscharity.bsky.social · 05/06/2025

Happy #Pride Month! 🏳️‍🌈🏳️‍⚧️ We're committed to making healthcare in East London more inclusive. And according to @england.nhs.uk LGBTQ+ people face disproportionately worse health outcomes. See how we're making healthcare more inclusive with the help of @shareeastlondon.bsky.social bit.ly/4dMDJ38

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Dr Rageshri Dhairyawan @drrageshri.bsky.social · 26/05/2025

Thank you @susancolehaley.bsky.social for your barnstorming talk at the start of the #AIDSImpact conference and for shouting out @shareeastlondon.bsky.social and my book #Unheard!

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SHARE Collaborative @shareeastlondon.bsky.social · 28/04/2025

Hear @sarapaparini.bsky.social and Dr Renee West talk about the power of collaboration and community research in reducing inequitable health outcomes. @shareeastlondon.bsky.social have been fortunate to work with @positiveeast.bsky.social on many projects. www.youtube.com/watch?v=ti0p...

youtube.com

Queen Mary research partnerships in East London - Positive East

YouTube video by QMULOfficial

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Phoenix Health Movement @phoenixhealthm.bsky.social · 10/04/2025

Welcome to Phoenix Health Movement! We're dedicated to addressing health inequities affecting Black women & other marginalized communities. Out Co-Founders @susancolehaley.bsky.social & Dr Vanessa Apea from @shareeastlondon.bsky.social share more about us in our first video on Bluesky!

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Prof Chloe Orkin @profchloeorkin.bsky.social · 27/02/2025

Here is a blog by Vanessa Apea and I describing the story behind most recent SHARE-net manuscript on the healthcare provider perspective during the 2022/23 #mpox outbreak. The paper has been published in PLOS Global Public Health eur01.safelinks.protection.outlook.com?url=https%3A...

eur01.safelinks.protection.outlook.com

Behind the Paper: International Healthcare Workers’ Experiences and Perceptions of the 2022 Mpox Outbreak

PLOS Global Public Health was a natural home for our study due to its commitment to open-access publishing and its focus on amplifying research from diverse and resource-limited settings. Given the gl...

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Prof Chloe Orkin @profchloeorkin.bsky.social · 16/02/2025

In these unthinkably dark days for global public health I’m proud to share the results of this international survey which describes the challenging and distressing experiences of clinicians in 12 countries during the 2022/23 #mpox pandemic. eur01.safelinks.protection.outlook.com?url=https%3A...

eur01.safelinks.protection.outlook.com

International healthcare workers’ experiences and perceptions of the 2022 multi-country mpox outbreak

In May 2022, the most widespread outbreak of sustained transmission of mpox outside of countries historically affected countries in Western and Central Africa occurred. We aimed to examine the persona...

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The Lancet @thelancet.com · 14/02/2025

When patients are not heard by their doctors there can be devastating consequences. So why does this happen & what can be done to address it? On the cover, Dr Rageshri Dhairyawan explores this question. Read her full essay & more: tinyurl.com/5c7xwj2e ‪@drrageshri.bsky.social‬

Cover of The Lancet's Feb 15, 2025 issue. Quote on cover reads "At the core of patients not being heard is the unequal power dynamic between doctor and patient. Each holds a different form of expertise...It is vital that we combine this expertise and collaborate."

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SHARE Collaborative @shareeastlondon.bsky.social · 01/02/2025

We're looking for a Research Fellow in Sexual Health to join us! The post holder would be the lead resident doctor assigned to ongoing NIHR and commercial HIV prevention and long-acting antiretroviral treatment trials. 🔗 shorturl.at/U4CFz Please share! Submission deadline is now 3rd February

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SHARE Collaborative @shareeastlondon.bsky.social · 24/01/2025

✨New paper✨ Congratulations to @drhamzahfarooq.bsky.social @drjand.bsky.social, John Thornhill and colleagues on their new paper in HIV Medicine! “Virtual care pathways for people living with HIV: A mixed-methods systematic review” #HIVSky #medsky www.scienceopen.com/document_fil...

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SHARE Collaborative @shareeastlondon.bsky.social · 24/01/2025

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SHARE Collaborative @shareeastlondon.bsky.social · 22/01/2025

We highlight key factors influencing the acceptability of tecovirimat as treatment for mpox and highlight some potential ways that clinicians could increase acceptability, in particular through the provision of non-stigmatising care. #mpox #TPOXX #sexualhealth

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Dr Rageshri Dhairyawan @drrageshri.bsky.social · 14/12/2024

Amazing afternoon workshopping the results of our research with @londonftci.bsky.social peer support workers @positivelyuk.bsky.social! The SHIELD study looks at engagement in HIV clinical care. Great to do this with @shareeastlondon.bsky.social @sarapaparini.bsky.social Rebecca Mbewe Shiraaz Sidat!

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Charlie Witzel @tcwitzel.bsky.social · 25/11/2024

Really exciting post doing mixed-methods research on HIV and mpox with @sarapaparini.bsky.social. Details here: qmul-jobs.tal.net/vx/mobile-0/...

qmul-jobs.tal.net

Postdoctoral Research Associate - QMUL Jobs

ID: 4324. Title: Postdoctoral Research Associate. Application Deadline:

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Prof Chloe Orkin @profchloeorkin.bsky.social · 21/11/2024

Wonderful to see this incredibly important work foregrounded. Delighted to see @shareeastlondon.bsky.social Dr’s Vanessa Apea and Rebecca Mbewe playing a leading role.

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SHARE Collaborative @shareeastlondon.bsky.social · 21/11/2024

Delighted to be in the Houses of Parliament at the @onevoicenetwork.bsky.social Ending Health Inequalities for Black Communities Living with HIV event. Proud our researchers Dr Vanessa Apea & Rebecca Mbewe are on the panel with @florenceeshalomi.bsky.social Juddy Otti & Oluwakemi Agunbiade

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SHARE Collaborative @shareeastlondon.bsky.social · 18/11/2024

✨WE ARE HIRING✨ an 18 month Postdoctoral Research Associate to work with Dr Sara Paparini @profchloeorkin.bsky.social & Sophia Forum on a project to improve access to HIV PrEP in undeserved populations. Qualitative skills essential, together with a passion for community engagement & health equity!

media.tenor.com

a sign that says we 're hiring in orange on a white background

ALT: a sign that says we 're hiring in orange on a white background

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SHARE Collaborative @shareeastlondon.bsky.social · 18/11/2024

media.tenor.com

a sign that says we 're hiring in orange on a white background

ALT: a sign that says we 're hiring in orange on a white background

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SHARE Collaborative @shareeastlondon.bsky.social · 13/11/2024

Our Director @profchloeorkin.bsky.social was honoured to host Her Royal Highness the Princess Royal in her role as Co-Chair of the #HIVGlasgow international conference. They discussed equity issues in the global HIV response and the Mpox outbreaks. #hivglasgow2024

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Matthew Hodson @matthewhodson.bsky.social · 12/11/2024

Please welcome to BlueSky the incredible Professor Chloe Orkin. I have the great pleasure of working alongside Chloe as part of the SHARE Collaborative (@shareeastlondon.bsky.social). Her passion for inclusion and equity is wonderful. She’s also currently co-chairing #HIVGlasgow.

Me and Chloe on the Fighting HIV Stigma march in 2023. She is carrying ‘Can’t Pass It On’ placards.

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