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Dr Simon Stones

@simonrstones.bsky.social
425 followers 622 following 158 posts

🏳️‍🌈 he/him • Global Patient Engagement Leader & Medical Communications Specialist • EULAR PARE Committee Chair • ✈️ • 🎭 • 📸

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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 06/06/2026
Thank you for attending #EULAR2026! We hope our London Congress sparked new ideas and meaningful insights in rheumatology. Download your Certificate of Attendance & claim CME credits here 👉https://pulse.ly/illxfsa6bh See you at #EULAR2027 in Berlin!
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 06/06/2026
🎥Join us LIVE at 09:00 BST on EULAR TV for Next-Gen Treatments: CAR-based Therapies and Beyond in RMDs at #EULAR2026. Explore the future of CAR-T, precision medicine & innovative therapies in rheumatology. 📺 Watch live 👉 pulse.ly/di1ckyreij #eularTV #eularCONGRESS
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 06/06/2026
☕It’s Day 4, the final day of #EULAR2026! Join the Breakfast at EULAR livestream at 08:00 BST for the final Congress updates. Watch live👉 pulse.ly/x5budxakbq 🎧 Prefer to listen on the go? Apple Podcasts👉https://pulse.ly/xeqpxt9eje Spotify👉https://pulse.ly/qglhyi4goy
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 05/06/2026
☕Welcome to Day 3 of #EULAR2026! Join the Breakfast at EULAR livestream at 08:00 BST Watch live here 👉 pulse.ly/ap9go41nk8 🎧 On the move? Listen to the podcast version instead: Listen on Apple Podcasts👉https://pulse.ly/tnou17fxxc Listen on Spotify👉https://pulse.ly/mupv2plckl
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Dr Simon Stones @simonrstones.bsky.social · 03/06/2026
Our opening plenary has begun! Following online if you’re not here in London. #eular2026
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 03/06/2026
☕Join the Breakfast at EULAR livestream at 08:00 BST for live highlights from the #EULAR2026 Programme from day one.!! Watch live 👉 pulse.ly/xk5go6xpao 🎧On the go? Tune in to the podcast version: Apple Podcasts 👉https://pulse.ly/nxgwxqjigh Spotify 👉https://pulse.ly/lwci3n4xnr
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 23/05/2026
📢The full-text abstracts for #EULAR2026 are now published! Get an early look at the latest scientific discoveries and research that will be presented this June at the EULAR 2026 Congress. Explore the abstracts and see you in London soon👉https://pulse.ly/e9vzvgrot2 #ScientificProgramme
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 27/05/2026
Be part of the #EULAR2026 Opening Plenary Ceremony! Join the global rheumatology community as we officially open the Congress and celebrate outstanding achievements in the field. 📅Wednesday, 3 June 2026 🕐13:00-14:00 BST 📍Excel London / Plenary, ICC Auditorium, Level 0 #AwardsCeremony
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 28/05/2026
Your essential companion for #EULAR2026 is here 📱 Navigate the Congress with ease using the official App on iOS & Android. Discover: 🗓️Scientific programme 🏛️Exhibition highlights 📍Venue info ⭐Personalised agenda & live updates 🎮New EULAR Quest #EULAR #Rheumatology #eularCONGRESS
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Reposted by Dr Simon Stones
AutoPiX project @autopix.bsky.social · 09/05/2026
Where are these AutoPiXers?? 🤔 Of course! At the Digital Rheumatology Days!! A forum to seriously discuss how to develop, validate, and implement #AI in #rheumatology Work hard, Dream high 🧠
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 26/02/2026
🌍 Our 2026 #WORDDay2026 webinar brings the theme: “Children Are Not Small Adults: Why Young People Need Dedicated Paediatric Rheumatology Care”. We are pleased to have Caroline Kirsten from EULAR Young PARE as one of our speakers. Join us 👉https://pulse.ly/3npd35i5ur #eularPARE #eularPAED
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 13/02/2026
EULAR PARE is offering up to 10 World Arthritis Day (WAD) bursaries of up to EUR 5,000 each to support national activities that raise awareness of #RMDs. 📅 Open until 31 March 2026 ✅ Open to EULAR member organisations and scientific affiliates Apply now 🔗 pulse.ly/k6znsqnhz2
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 25/01/2026
Apply for a travel bursary to support your attendance at the EULAR European Congress of Rheumatology. ✔️ Free EULAR 2026 registration (+On-Demand access) ✔️ 3 nights’ hotel accommodation (3–6 June 2026) ✔️ €350 towards travel & living expenses Apply here: pulse.ly/m2cokv4vzp
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Reposted by Dr Simon Stones
Olga Nesterova @onestpress.onestnetwork.com · 23/01/2026
Sky News: Danish PM Mette Freideriksen’s note in the visitors book when she visited UK today
Visit of the
Prime Minister of Denmark
22nd Jawary 2026
We'll get by with a little help from our friends
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 31/12/2025
As we wrap up another year of progress and collaboration in rheumatology, we extend our heartfelt thanks to our incredible community of patients, healthcare professionals, researchers, and partners. 🙌 Here’s to continued progress together in 2026! 🔬 #StrongerTogether
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Dr Simon Stones @simonrstones.bsky.social · 20/11/2025
Our incredible @eular.org International PARE Working Group! Uniting the voices of the global patient community with RMDs beyond Europe. #pare2025
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Dr Simon Stones @simonrstones.bsky.social · 20/11/2025
Opportunities like this week are critical for bringing together patient organisation CEOs to learn, listen, and grow together! #pare2025 @eular.org
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Dr Simon Stones @simonrstones.bsky.social · 20/11/2025
Our wonderful @eular.org PARE Committee and Young PARE Working Group! Proud to know and work with everyone. 💙 #pare2025
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Dr Simon Stones @simonrstones.bsky.social · 20/11/2025
Wrapping up and summarising our key reflections on managing multiple priorities as volunteers - be kind to yourself, and clear with boundaries #pare2025
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Dr Simon Stones @simonrstones.bsky.social · 20/11/2025
We must not underestimate the importance of stepping back and reflecting, which is why our @eular.org PARE training programme is so critical for our volunteers. So much self-reflection taking place! #pare2025
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Dr Simon Stones @simonrstones.bsky.social · 19/11/2025
Time for coffee and networking! LOVE hearing so many ideas and experiences being shared. #pare2025
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Dr Simon Stones @simonrstones.bsky.social · 19/11/2025
A productive morning for our new volunteers in their ‘communicating impactful messages’ training! #pare2025
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Dr Simon Stones @simonrstones.bsky.social · 19/11/2025
We see the importance of investing in all members of our @eular.org PARE community, which is why our annual training programme is vital so no volunteer is left behind! #pare2025
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Dr Simon Stones @simonrstones.bsky.social · 19/11/2025
Stay tuned across platforms this week for updates from @eular.org #pare2025!
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Reposted by Dr Simon Stones
PxP (For Patients, By Patients) @pxphub.bsky.social · 24/07/2025
PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP. Learn more about PxP 2025 here: pxphub.org/event/ #PxP25 #PatientEngagement
I'm honoured to serve on the international steering committee for the PxP Conference 2025, a virtual global event championing the leadership of patient experts in healthcare transformation. The time has come to unleash the full power of lived experience... patients are no longer passive participants, but active drivers of research and care that truly reflect the needs of our diverse society. This is the democratisation of healthcare: bold, inclusive, and guided by those with the deepest expertise - people living with health conditions every day. Together, we're redefining what meaningful, equitable, and person-led health systems look like."
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Dr Simon Stones @simonrstones.bsky.social · 27/06/2025
The fabulous @lynnlaidlaw.bsky.social showcasing how patient-led research is possible! The system forces people to choose their silo, which is crazy - time to move towards an expertise and interest-led model I say!
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Dr Simon Stones @simonrstones.bsky.social · 27/06/2025
Delighted to be at the British Society for Rheumatology ‘Patient Voices in Rheumatology’ conference in London! #rheumatology
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Reposted by Dr Simon Stones
Brain Health Mission @brainhealthmission.org · 21/06/2025
You’ve already had a sneak peek at what’s happening at this year’s Brain Health & Sustainability booth — now it’s your turn to get involved! 🧠🪴 Collect stamps on your Brain Health Bingo card for a chance to win a prize! #BrainHealthMission #ean2025 #Neurology @EANeurology
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Dr Simon Stones @simonrstones.bsky.social · 21/06/2025
Excited to be in Helsinki for the next few days at @ean.org #ean2025! Please say hello if you’re attending!
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Reposted by Dr Simon Stones
The European Alliance of Associations for Rheumatology @eular.org · 17/06/2025
🙌Thank you for attending the #EULAR2025 Congress! We hope you had a memorable experience! 📺Access the On-demand Congress Platform until 31 December 2025 👉 pulse.ly/vl0sg17x4k ✈️We Look forward to seeing you at #EULAR2026 in London! #EULAR #EULAR2025 #Rheumatology
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Reposted by Dr Simon Stones
Lupus Europe @lupuseurope.bsky.social · 17/06/2025
🦋Impossible to summarise all #EULAR2025 has meant for us. While we prepare more content to share scientific highlights, here’s a short video with some special, human moments. From this energy & passion come projects like #LupusGPT  🙏 Thanks to all who make all this possible
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
Best picture of the entire Congress 🤣 #eular2025
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Reposted by Dr Simon Stones
Thomas Davergne @thomasdavergne.bsky.social · 14/06/2025
💥 The 3 “Move Together” sessions were a great success at #EULAR2025! Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs. A huge thank you to all who joined us! posted by thomasdavergne.bsky.social
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Reposted by Dr Simon Stones
Silvia Aguilera @silvia-aps.bsky.social · 14/06/2025
#EULAR2025 #PARE #Highlights: Fishbowl session - From exclusion to empowerment: Engaging marginalised groups, chaired beautifully by @simonrstones.bsky.social
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Reposted by Dr Simon Stones
Lupus Europe @lupuseurope.bsky.social · 14/06/2025
😃 #LupusGPT has been highlighted once again at @eular_org PARE Highlights session, recognising its value as a patient-driven, multilingual tool that makes reliable lupus info accessible worldwide. A great example of how co-creation with patients leads to🔝innovation! #EULAR2025
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Reposted by Dr Simon Stones
Silvia Aguilera @silvia-aps.bsky.social · 14/06/2025
Very happy to see again #PARE highlights in the closing session of #EULAR2025. Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
Peter and Michael representing PARE in the @eular.org 2025 Highlights Session #eular2025
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Reposted by Dr Simon Stones
Juvenile Arthritis Research @jarproject.bsky.social · 14/06/2025
"This congress as a living example of what meaningful collaboration looks like" Simon Stones at #eular2025 @eular.org
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
Some nice recommendations and useful toolkit to help young people with RMDs to navigate the workplace! Find out more here: arthritispatient.ca/en/arthritis... #eular2025
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
Natasha Trehan @capa-aca.bsky.social highlights the worries young people have about getting into employment with an RMD #eular2025
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
Young people with RMDs find it difficult to access school accommodations - they want the education system to make it easier for them to get the support they need - something @raiiseuk.bsky.social takes seriously #eular2025
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
Having an RMD can disrupt financial planning, increase debt risk, and cause uncertainty about retirement #eular2025
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
The cost of living with an RMD is often hidden beneath the surface #eular2025
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
Important research from Arthritis Ireland - arthritis costs an average of €3500 per person per year, when thinking about all the additional needs due to an RMD diagnosis #eular2025
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
We need to be thinking of early adopters, early/late majority, and laggards when it comes to digital health technology, AND those who are off bounds and require alternative methods of engagement #eular2025
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
We have a great opportunity here to influence organisational health literacy, leveraging the expertise of patient organisations to inform and guide healthcare systems to make healthcare more accessible #eular2025
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
The health literacy dilemma - the disconnect between risk factors and development of disease is evident #eular2025
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
We really need to get better at proactive strategies to prevent disease / worsening symptoms within this ‘window of opportunity’ #eular2025
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Dr Simon Stones @simonrstones.bsky.social · 14/06/2025
Health literacy is a shared responsibility - small steps to improving accessibility can have an enormous impact on health and wellbeing outcomes #eular2025
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