Silvia Aguilera @silvia-aps.bsky.social · 20/11/2025🇪🇺Today, as part of the @eular.org #PARE conference, we are visiting the European Parliament! 💪🏼 Proud to be representing ERN ReCONNET and @afosfolipido.bsky.social 010
Silvia Aguilera @silvia-aps.bsky.social · 13/11/2025In Ljubljana attending the ERN ReCONNET #Transition training workshop! Looking forward to 2 days of exchanges and brainstorming together. Thank you to Drs. Tadej Avcin and Mojca Zajc for the invitation 😊 000
Silvia Aguilera @silvia-aps.bsky.social · 12/07/2025In Munich 🇩🇪 today with the @eular.org #PARE committee, working already on topics like the November Conference or 2026 EULAR Congress! 011
Silvia Aguilera @silvia-aps.bsky.social · 14/06/2025Very happy to see again #PARE highlights in the closing session of #EULAR2025. Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵 173
Reposted by Silvia AguileraDr Simon Stones @simonrstones.bsky.social · 13/06/2025Wonderful to hear from our @eular.org 2025 Edgar Stene Prize winner, Yvonne Balvers, who focused on the challenges of everyday activities that able bodied individuals may dismiss, and the persistence of trauma from childhood-onset RMDs into adulthood #eular2025 062
Reposted by Silvia AguileraDr Simon Stones @simonrstones.bsky.social · 13/06/2025Fantastic to see Sladjana, a STRATA-FIT patient research partner, presenting about the project and the evaluation of PRP involvement - partnership, communication, and support are critical #eular2025 052
Reposted by Silvia AguileraMrinalini Dey @drminidey.bsky.social · 13/06/2025Day 3 of #EULAR2025! 😴 We’ll discuss all things related to sleep & fatigue in this fascinating #PARE session 📍 C3 🕰️ 15:45-17:00 🗓️ Today! 👋🏼 See you there! 062
Reposted by Silvia AguileraDr Simon Stones @simonrstones.bsky.social · 13/06/2025The disconnect between patient and HCP priorities in Sjogren’s Disease endpoint priorities, specifically for pain, fatigue, and QoL is evident #eular2025 052
Reposted by Silvia AguileraDr Simon Stones @simonrstones.bsky.social · 13/06/2025Co-creation in practice: creating new clinical endpoints for primary Sjogren’s Disease between patient organisations, healthcare professionals, and industry professionals #eular2025 041
Reposted by Silvia AguileraDr Simon Stones @simonrstones.bsky.social · 13/06/2025Support requests for patient organisations regarding roll-out of electronic health records… again highlights the need for integrated collaborative approaches between healthcare providers/payers and patient organisations #eular2025 052
Silvia Aguilera @silvia-aps.bsky.social · 13/06/2025At the #EULAR2025 #PARE Poster tour, full room! 131
Reposted by Silvia AguileraDr Simon Stones @simonrstones.bsky.social · 11/06/2025Daniel Aletaha, President of EULAR, always knows how to make an entrance! #EULAR2025 is officially underway! 👏 @eular.org 021
Reposted by Silvia AguileraRhePro @rheproat.bsky.social · 09/05/2025IMPACT Trial Certolizumab in high-risk pregnancies (APS + LAC): • Complications: ↓ from 80% to 20% • Gestational age: ↑ from 24 to 36.5 weeks • Live births: ↑ from 38% to 93% Huge congratulations to Jane Salmon & team – truly transformative results! 045
Silvia Aguilera @silvia-aps.bsky.social · 10/05/2025🤔Missed any #RheumaPreg25 sessions? No worries! Join the highlights webinar on May 26. Contact @karenschreiber.bsky.social or @lauraandreoli.bsky.social to join the #ReHFaP mailing list 📩 084
Silvia Aguilera @silvia-aps.bsky.social · 09/05/2025@karenschreiber.bsky.social has presented "Quo vadis" obstetric #APS 👇 #RheumaPreg25 162
Silvia Aguilera @silvia-aps.bsky.social · 09/05/2025Prof. Angela Tincani (Brescia, Italy) talks about "Implications of New Classification Criteria of APS" #RheumaPreg25 120
Silvia Aguilera @silvia-aps.bsky.social · 09/05/20252️⃣ Second session "Beyond the clot: challenges in obstetric antiphospholipid syndrome", chaired by Nathalie Costedoat-Chalumeau and Karoline Mayer-Pickel! #RheumaPreg25 #APS #APSmatters #oAPS 020
Silvia Aguilera @silvia-aps.bsky.social · 09/05/2025Day 2 of #RheumaPreg25, we kickoff talking about including pregnant patients in clinical trials. Laura Andreoli kicks off @lauraandreoli.bsky.social by talking about pregnancy, medication, and the Future of Medical Research 👇 121
Silvia Aguilera @silvia-aps.bsky.social · 09/05/2025It was a pleasure to participate in the session "Inclusion of pregnant patients with chronic conditions in research and clinical trials" in #RheumaPreg25 Such an honor to exchange with these wonderful women and incredible experts! 😍 020
Reposted by Silvia AguileraRhePro @rheproat.bsky.social · 09/05/2025Day 2 of RheumaPreg 2025 is underway! Today’s sessions focus on clinical research in pregnancy, obstetric APS, neonatal lupus, immunosuppression during pregnancy, and hormonal influences in rheumatic diseases. Stay tuned for more insights and discussion. 073
Silvia Aguilera @silvia-aps.bsky.social · 08/05/2025Dr. Kazem Nouri: presents "Fertility Preservation in Rheumatic Diseases" #RheumaPreg25 130
Silvia Aguilera @silvia-aps.bsky.social · 08/05/2025Dr. Klara Rosta: "How to approach infertility in rheumatic diseases" #RheumaPreg25 @rheproat.bsky.social Reproductive Trends: - Women having children later (avg. 31 years) - Fertility peak: 20-35 years - Reproductive potential declines after 35 - Biotechnology expanding fertility options 📊 143
Silvia Aguilera @silvia-aps.bsky.social · 08/05/2025Bettina Toth from Med Uni Innsbruck @i-med.ac.at talks about “Ovarian reserve: current diagnostic and therapeutic options” #RheumaPreg25 131
Silvia Aguilera @silvia-aps.bsky.social · 08/05/2025Already in Vienna 🇦🇹 ready for #RheumaPreg25! 140
