iiinova — where your digital self keeps evolving

PxP (For Patients, By Patients) @pxphub.bsky.social · 17/03/2026

Reposted by PxP (For Patients, By Patients)

1/ We’re undertaking an informal scan of the current status of patient engagement across the globe. This will help us shape the next phase of PxP and determine new goals. 💭Thoughts can be shared directly with our team by emailing: contact@pxphub.org

How has patient engagement changed in your region over the last 3-12 months?

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PxP (For Patients, By Patients) @pxphub.bsky.social · 17/03/2026

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PxP (For Patients, By Patients) @pxphub.bsky.social · 02/12/2025

🚂How do you get research to the people who can learn or use something from it? Get some ideas here: www.youtube.com/watch?v=gwde...

More than a paper: ways to share research

PxP (For Patients, By Patients) @pxphub.bsky.social · 02/12/2025

🌎How are research teams engaging patients as partners in different parts of the world? ☑️Check out case studies from Brazil and Australia in this session recording from the #PxP25 conference in September: www.youtube.com/watch?v=LBW8...

At the cutting edge: innovations in patient engagement

PxP (For Patients, By Patients) @pxphub.bsky.social · 01/12/2025

Learn more about evidence-based advocacy and using justice-informed, trauma-informed approaches to patient engagement in health research. 🎥Check out this webinar recording from the #PxP25 conference: www.youtube.com/watch?v=-xoH...

Stronger together: building capacity on research teams

PxP (For Patients, By Patients) @pxphub.bsky.social · 01/12/2025

At #PxP25, we hosted three unique sessions that weren’t recorded for our YouTube channel to create a safe space for open dialogue. Check out the anonymized illustrations from these sessions here, along with other artwork from this year’s conference: pxphub.org/pxp-2025-art...

pxphub.org

PxP 2025 Artworks - PxP

PxP 2025 artworks created by visual alchemist Candace Ramjohn during the annual conference, including impactful quotes...

PxP (For Patients, By Patients) @pxphub.bsky.social · 18/11/2025

How can you lay the groundwork for successful patient partnership? #PxP25 speakers shared practical strategies for building research teams where patient partners feel prepared and supported—no matter their experience or role. 🎥 Watch back: www.youtube.com/watch?v=EnJ6...

Laying the groundwork: setting up for success in patient partnership

PxP (For Patients, By Patients) @pxphub.bsky.social · 03/11/2025

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Do you feel like an "accidental advocate"? During #PxP25, speakers and attendees spoke about how their personal health journeys led them to advocacy and research in ways they had never imagined. 🎥Check out this session recording to learn about pathways of patient partners: youtu.be/2Rht0OAVSR8

youtu.be

Journeys of impact: pathways of patient partners

PxP (For Patients, By Patients) @pxphub.bsky.social · 29/10/2025

What are some unique challenges and opportunities for patient engagement in research in different parts of the world? 👀Watch back this session from day 1 of #PxP25 youtu.be/xJwAKSoHGNs #PPI #PatientEngagement #ConsumerInvolvement

youtu.be

Global voices, local impact: Patient Engagement in research around the world

PxP (For Patients, By Patients) @pxphub.bsky.social · 22/10/2025

Looking for a case study on co-design? PxP Australia featured an insightful presentation by Joan Carlini and Letisha Living, facilitated by Janelle Bowden. Their #ConsumerInvolvement project used Lego! Intrigued? Watch the session back here: www.youtube.com/watch?si=UQV...

PxP Australia 2025

Anntics #difficultwoman @anntics.bsky.social · 12/09/2025

Reposted by PxP (For Patients, By Patients)

Having a great international chat with patients and researchers at #PxP25. Bold, daring, brave and powerful voices in health research

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Brett Scholz @wingspan.bsky.social · 12/09/2025

I haven't managed to catch up with Days 1 and 2 of #PXP25 just yet...but it sounds like I'll need to go through some interesting conversations. This quote from Michelle particularly reminds me of some of our earlier work on pushing back on institutional barriers: doi.org/10.1111/inm....

doi.org

‘There's just no flexibility’: How space and time impact mental health consumer research

Non-consumer researchers collaborating with consumer researchers can benefit from greater relevance of research and improved congruence between research processes and health policy. As with all resea...

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PxP (For Patients, By Patients) @pxphub.bsky.social · 11/09/2025

💜Thank you so much to Kwanele Asante for guiding our second day of PxP 2025 as the conference host, and to the incredible speakers for today’s sessions. 👏. Thank you for everything you shared – for your wisdom, honesty and practical examples for doing better research.

Day 2: Setting up for success and inspiring others. Grid of photos of Day 2 speakers at PxP 2025.

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PxP (For Patients, By Patients) @pxphub.bsky.social · 10/09/2025

For Patients, By Patients Day 2 - Discussing all things #PatientEngagement #PPI #PatientPartners and more is in session! If you want to join, it's free! Sign-up here ➡️ pxphub.org/event/ And if you missed day 1, head to the #Rewatch parties 🥳

pxphub.org

Event - PxP

Save the dates! Our free, virtual conference will be September 12-14 (for those in Europe, Africa or North and South America), or 13-15 (Asia and Oceania).

PxP (For Patients, By Patients) @pxphub.bsky.social · 10/09/2025

The #PxP25 re-watch parties will be starting in a little under an hour. There are three sessions - and the timings should work well for people in parts of Asia and Oceania, or people joining us after work in West Coast Americas. Looking forward to seeing some of you there!

PxP (For Patients, By Patients) @pxphub.bsky.social · 09/09/2025

What did you learn at #PxP25 today? Did particular words resonate with you? We would love to hear your reflections in the comments below ⬇️

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PxP (For Patients, By Patients) @pxphub.bsky.social · 24/07/2025

PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP. Learn more about PxP 2025 here: pxphub.org/event/ #PxP25 #PatientEngagement

I'm honoured to serve on the international steering committee for the PxP Conference 2025, a virtual global event championing the leadership of patient experts in healthcare transformation. The time has come to unleash the full power of lived experience... patients are no longer passive participants, but active drivers of research and care that truly reflect the needs of our diverse society. This is the democratisation of healthcare: bold, inclusive, and guided by those with the deepest expertise - people living with health conditions every day. Together, we're redefining what meaningful, equitable, and person-led health systems look like."

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PxP (For Patients, By Patients) @pxphub.bsky.social · 07/08/2025

PxP Steering Committee Member Patrícia de Luca shares a quote highlighting the value of diverse, global perspectives, especially from individuals living with chronic conditions. Learn more about PxP 2025 here: pxphub.org/event/ #PxP25 #PatientEngagement

"Participating as a steering committee member in 2025 has been a great honor. I'm so glad to be here and hear different perspectives from various parts of the world, showing the roots of the real engagement of people living with chronic conditions. PxP is an opportunity to be part of a safe space with exchangeable learning. I hope to see all of you there!" Patrícia de Luca PxP Steering Committee Member 2025

PxP (For Patients, By Patients) @pxphub.bsky.social · 13/08/2025

Reposted by PxP (For Patients, By Patients)

PxP Steering Committee Member Maalvika Bhuvansunder shares a video on why PxP 2025 is meaningful to her and why you should join as well. Learn more about PxP 2025 here: pxphub.org/event/ #PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch

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PxP (For Patients, By Patients) @pxphub.bsky.social · 08/09/2025

#PxP25 starts tomorrow! A huge thank you to our incredible 2025 steering committee for their guidance at every step of the way. 💜💚💜 We are excited to learn from this amazing line-up of speakers! ✅Still time to register: bit.ly/PxP-2025

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PxP (For Patients, By Patients) @pxphub.bsky.social · 29/08/2025

PxP India is taking place on August 30th 7 pm IST. The session is geared towards those based in India, but open to people from across the globe with an interest in patient engagement (PPI) in health research. 👉More info and register: pxphub.org/event/pxp-in...

pxphub.org

PxP India 2025 - PxP

We are grateful to the 2024 PxP Steering Committee for their guidance and expertise. All members of the Steering Committee identify as patient partners.

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PxP (For Patients, By Patients) @pxphub.bsky.social · 29/08/2025

🤩We are so grateful to these incredible people who will be speaking during the virtual conference in September (9th-12th). Check out their speaker biographies here: pxphub.org/event/speake... #PxP25 #PatientEngagement #PPI #ConsumerInvolvement

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PxP (For Patients, By Patients) @pxphub.bsky.social · 25/08/2025

🎥Recording is now available to watch PxP Africa if you missed joining us live, or want to watch the session back to reflect on all the valuable insights from our speakers: youtu.be/ol0bavw8psA #PxP25 #PatientEngagement #PPI

youtu.be

PxP Africa 2025

PxP (For Patients, By Patients) @pxphub.bsky.social · 13/08/2025

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PxP (For Patients, By Patients) @pxphub.bsky.social · 08/08/2025

📢We are very excited to announce that the speakers for PxP Africa will be Action Amos, Mbali Ngobese, and Rosebud Ombura. We are looking forward to connecting with everybody on August 13th! There is still time to register here: pxphub.org/event/pxp-af... #PxP25 #PxPAfrica

PxP Africa. Virtual Meeting. From Research Participants to Patient Partners in Research: Centering African Patients Voices. With Joab Wako, Kwanele Asante, Action Amos, Mbali Ngobese, and Rosebud Ombura.

PxP (For Patients, By Patients) @pxphub.bsky.social · 07/08/2025

PASSERELLE @passerelle-hub.bsky.social · 31/07/2025

Reposted by PxP (For Patients, By Patients)

EVENT 🌟 Registration is open for PxP25! Sept 9–12 | Free, fully virtual conference for patient partners, researchers & clinicians to connect & learn. ✔️ Live sessions ✔️ Watch parties for all time zones ✔️ Recordings after event Register 👉 events.zoom.us/ev/Asr1pT76o...

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Reposted by PxP (For Patients, By Patients)

PASSERELLE @passerelle-hub.bsky.social · 31/07/2025

ÉVÉNEMENT 🌟 Les inscriptions sont ouvertes pour PxP25 ! Du 9 au 12 sept | Conférence gratuite et virtuelle pour patient·e·s, chercheur·euse·s & clinicien·ne·s. ✔️ Séances en direct ✔️ Rediffusions selon fuseaux horaires ✔️ Enregistrements disponibles Inscription 👉 events.zoom.us/ev/Asr1pT76o...

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PxP (For Patients, By Patients) @pxphub.bsky.social · 02/08/2025

📢Introducing PxP Australia! - a regional PxP webinar, led by Janelle Bowden and Letisha Living (2025 PXP Steering Cttee members). Learn about “working well together" with Janelle, Letisha and Dr. Joan Carlini - pxphub.org/event/pxp-au... #ForPatientsByPatients #PxP25 #PPI #ConsumerInvolvement

PxP (For Patients, By Patients) @pxphub.bsky.social · 30/07/2025

Calling Patient Partners who do their own research! With all the information online, it can be difficult to know what is trustworthy or credible content. So, we created the resource "Fact vs. Fiction: Helping you sift through online information." 👉 bit.ly/4lTe781

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PxP (For Patients, By Patients) @pxphub.bsky.social · 24/07/2025

Need to write a Letter of Support but don’t know where to get started? We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team. Link: pxphub.org/a-resource-f...

Letter of Support. PxP Resource. Need to write a Letter of Support but don’t know where to get started? We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.

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PxP (For Patients, By Patients) @pxphub.bsky.social · 24/07/2025

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IMPaCT @impactrials.bsky.social · 22/07/2025

@pxphub.bsky.social is hosting a FREE virtual conference this September - your chance to connect, learn, and share resources with an amazing community dedicated to patient engagement. 🤝 🔗 Register here: events.zoom.us/ev/Asr1pT76o...

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PxP (For Patients, By Patients) @pxphub.bsky.social · 09/06/2025

📢Sign up now for #PxP25! September 9-12, depending where you are based in the world. Our conference is virtual and free to attend. bit.ly/3HwYxQg #PPI #ConsumerInvolvement #ForPatientsByPatients

PxP For Patients, By Patients. Register now! PxP 2025 is a free, virtual conference for anyone with an interest in health research. September 9-12 2025.

Dawn Richards, PhD @dawnrichards.bsky.social · 28/05/2025

Reposted by PxP (For Patients, By Patients)

📢 Hope you’ll join this conference about #PatientEngagement in research. It’s open to everyone and completely designed by patient partners👇

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PxP (For Patients, By Patients) @pxphub.bsky.social · 27/05/2025

📢 Save the date! PxP (For Patients, By Patients) is coming back September 9-12, 2025! 🎉 A free, virtual event focused on #PatientEngagement — created by patients, for patients. 💌Stay in the loop: sign up for the PxP newsletter (link in bio). #PxP25 #ForPatientsByPatients

PxP For Patients, By Patients. Virtual Conference. September 9-12 2025.

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trudyfl.bsky.social @trudyfl.bsky.social · 11/05/2025

Thrilled to join fellow patient partners in this upcoming #webinar on growing your influence in patient engagement! 📆 May 12, 2026 ⏰ 12 PM PDT Let’s keep pushing the boundaries of #PatientPartnership The work is far from finished Sign up lnkd.in/eiRyWdFR #PatientVoice #PXP @pxphub.bsky.social

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Dawn Richards, PhD @dawnrichards.bsky.social · 11/05/2025

@pxphub.bsky.social - a virtual conference by and for patients all about #PatientEngagement in research has a LinkTree! bit.ly/m/PxPHub. Everything in one easy spot about PxP webinars, the annual conference and its recordings, and resources. Enjoy!

bit.ly

PxP - Landing Page

For Patients, By Patients

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PxP (For Patients, By Patients) @pxphub.bsky.social · 01/04/2025

Curious about why it is important to provide input on a research team’s draft manuscript, and how to do it? Read PXP’s new blog and checklist for patient partners/people with lived experience: bit.ly/43p0vLt.

Providing input on a research team's draft manuscript: Why is this important and some guidance.

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André Picard @picardonhealth @picardonhealth.bsky.social · 15/03/2025

Patient partner research has a compensation crisis. Lived experience is central to meaningful research, but participants face a labyrinth of institutional barriers to fair payment -- if it's offered at all, by @amyprice.bsky.social @dawnrichards.bsky.social www.bmj.com/content/388/... via @bmj.com

bmj.com

The BMJ: browse by volume/issue, medical specialty or clinical topic

Full archive, searchable by print issue, specialty, clinical & non-clinical topic. See also for podcasts, videos, infographics, blogs, reader comments, print cover images

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PxP (For Patients, By Patients) @pxphub.bsky.social · 11/03/2025

A new PXP (for patients, by patients) webinar is now available on Youtube: bit.ly/4hek4ZY! Patient partners Francine Buchanan, Linda Niksic , Jim Mann and Alex Haagaard share perspectives on Barriers and Facilitators to Patient Engagement in Research.

The patient perspective: Barriers and Facilitators to Patient Engagement in Research.

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PxP (For Patients, By Patients) @pxphub.bsky.social · 05/02/2025

🤩Happening today! Still time to register (for free). We are looking forward to connecting with lots of you virtually. Not able to attend live? Please send any questions for our panelists to contact@pxphub.org and we can ask those (anonymously) on your behalf. Recording will be available after.