iiinova — where your digital self keeps evolving

CAPA @capa-aca.bsky.social · 15/07/2026

Missed the webinar? Our Menopause and Bone Health webinar recording is now available. Learn about the impact of menopause on bone health and arthritis, hear the latest research, and explore practical strategies for managing this stage of life. 🎥 Watch now on our YouTube channel: buff.ly/h7lURMf

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CAPA @capa-aca.bsky.social · 13/07/2026

Votre avis compte! 💜 Vous avez participé à notre webinaire sur la ménopause et la santé osseuse? Prenez 3 minutes pour répondre à notre court sondage. Vos réponses aideront l’ACA à orienter ses futurs travaux et ressources. 🔗 Sondage :

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Menopause and Bone Health Post-Webinar Survey

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CAPA @capa-aca.bsky.social · 13/07/2026

Your feedback matters! 💜 If you attended our Menopause and Bone Health webinar, we'd appreciate it if you could complete our short 3-minute survey. Your confidential feedback will help CAPA identify priorities, barriers, and practical resources for future work. 🔗 Survey: buff.ly/pAaCT8t

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CAPA @capa-aca.bsky.social · 13/07/2026

In a recent article from the Global Autoimmune Institute, experts discuss the differences between autoimmune and immune-mediated diseases, why these distinctions matter, and how ongoing research is helping improve our understanding of immune-related conditions. Read more: buff.ly/2L5ONCE

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CAPA @capa-aca.bsky.social · 09/07/2026

‼️ Health Canada reviewing concerns about TAVNEOS (avacopan) To learn more and see Health Canada’s full guidance, head to our website: buff.ly/ccVo9Ar

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CAPA @capa-aca.bsky.social · 09/07/2026

⏳ Just 1 day to go! Last chance to register for our free webinar “Menopause and Bone Health.” 👉 Save your spot: buff.ly/s4VpL6T

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CAPA @capa-aca.bsky.social · 03/07/2026

⏳ 1 week to go! Upcoming Webinar: Menopause and Bone Health Join us for an informative webinar exploring the connection between menopause, bone health and autoimmune conditions. 🗓️ July 10 | 12:00 PM EDT 🔗 Save your spot: buff.ly/s4VpL6T

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CAPA @capa-aca.bsky.social · 26/06/2026

🎥 Upcoming Webinar: Menopause and Bone Health Join us for an informative webinar exploring the connection between menopause, bone health and autoimmune conditions. 🗓️ July 10 | 12:00 PM EDT 💻 Online | Free & open to everyone 🔗 Save your spot: buff.ly/s4VpL6T

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CAPA @capa-aca.bsky.social · 23/06/2026

Le partage de l’information sur la santé améliore la qualité des tests et traitements, ainsi que la sécurité, la rapidité et la coordination des soins. Dites à votre députée ou député d’appuyer les #SoinsConnectés pour toute la population : amc.ca/agir.

Image avec le texte « Soutenez le projet de loi S-5 » et une femme utilisant son téléphone pour accéder à son dossier médical.

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CAPA @capa-aca.bsky.social · 23/06/2026

When health information follows patients, tests and treatments are better, care is safer, faster and more coordinated. Tell your MP to support #ConnectedCare for all Canadians: bit.ly/445Xgrk

Image with text "Support Bill S-5" and a woman using her phone to access her health records.

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CAPA @capa-aca.bsky.social · 21/06/2026

June 21st is National Indigenous Peoples day 🗓️ We're proud to highlight the work of Dr. Cheryl Barnabe, a Calgary-based rheumatologist, health services researcher, and member of the Otipemisiwak Metis Government. Read our blog to learn more about Dr. Barnabe's work. 🔗 buff.ly/s90h8UB #NIHM2026

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CAPA @capa-aca.bsky.social · 14/06/2026

Happy Pride Month! 🌈 CAPA celebrates Pride Month and stands with 2SLGBTQIA+ people living with arthritis. Did you know that arthritis affects 2SLGBTQIA+ communities at disproportionately high rates? Learn more here: 🔗 buff.ly/atYKLMa

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CAPA @capa-aca.bsky.social · 12/06/2026

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CAPA @capa-aca.bsky.social · 10/06/2026

🔬 A team of researchers based at The University of British Columbia is conducting a survey to set research priorities about building safer access to healthcare in British Columbia. Survey link: 🔗 buff.ly/wFLENeD

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CAPA @capa-aca.bsky.social · 09/06/2026

Join CAPA President Linda Wilhelm and Luyanda Majija, Director of the Partnership for Women's Wellness, for a discussion on protecting healthy and active aging for women with chronic inflammatory conditions. 📅 June 30 9:00–9:30 AM EDT 🔗 Register today: buff.ly/xaPwIzJ

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CAPA @capa-aca.bsky.social · 08/06/2026

✨ NEW REPORT: Medical Cannabis and Arthritis: Insights from the CAPA Project This community-informed report shares the lived experiences of Canadians using medical cannabis for arthritis care. Read it now! 🔗 buff.ly/gXnPyaG

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CAPA @capa-aca.bsky.social · 06/06/2026

This week, the Canadian Arthritis Patient Alliance is presenting two posters at the EULAR 2026 Congress (European Congress of Rheumatology), which is taking place June 3–6 in London, UK 🇬🇧 🔗 View the posters on our website: buff.ly/MQmxcRM

Image of a conference poster presented: “Patient Partnership to Enhance Independent Living for People with Arthritis."

Image of a conference poster presented: “Building Patient Partner Leadership Through Community, Training, and Mentorship."

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CAPA @capa-aca.bsky.social · 28/05/2026

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CAPA @capa-aca.bsky.social · 24/05/2026

🗓️ World Autoimmune & Autoinflammatory Arthritis Day (World AiArthritis Day) is May 20th! 🎉 To keep the celebration going, we are sharing a spotlight on Jenna Kedy, a member of the CAPA community.

Image of Jenna Kedy holding a marathon badge. Text on image says "Spotlight: Jenna Kedy"

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CAPA @capa-aca.bsky.social · 22/05/2026

We're late to the party, but World Autoimmune & Autoinflammatory Arthritis Day (World AiArthritis Day) is May 20th! 🗓️ To celebrate, CAPA is sharing a spotlight on our president, Linda Wilhelm 🎉

Image of Linda Wilhelm on a red motorcycle with overlay text: "Autoimmune Arthritis Day Spotlight: Linda Wilhelm"

Image of Linda Wilhelm on a red motorcycle with overlay text from post caption.

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CAPA @capa-aca.bsky.social · 19/05/2026

Living with chronic pain or caring for someone who is? Share your experience to help shape PEI’s new 5-year Chronic Pain Strategy. Small-group sessions + online survey available. 🔗 For more information and to register please visit: buff.ly/3L7cG0A

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CAPA @capa-aca.bsky.social · 14/05/2026

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CAPA @capa-aca.bsky.social · 12/05/2026

⏳ Last chance to register! Hear from patients with lived experience, a pharmacist and researcher, and a representative from Health Canada about the real impact of drug shortages—and what needs to change. 🗓️ May 13 | 2:00 PM EDT 🔗 Save your spot: buff.ly/04ShQkY #DrugShortages #ChronicIllness

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CAPA @capa-aca.bsky.social · 11/05/2026

PFAS - also known as “forever chemicals” - persist in the environment and may affect immune function and overall health. Join REACT Rheum on May 19, 2026, 2 PM ET for a webinar with Harvard environmental scientist Elsie M. Sunderland, PhD. 🔗 Register at: buff.ly/mF0WxtF #PFAS #EnvironmentalHealth

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CAPA @capa-aca.bsky.social · 06/05/2026

What happens when the medication you rely on suddenly isn’t available? We’re bringing together patients and experts to talk about drug shortages—and what they mean in real life. Join us on May 13 at 2:00 PM EDT. 🔗 Save your spot: buff.ly/04ShQkY #DrugShortages #Arthritis

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CAPA @capa-aca.bsky.social · 30/04/2026

FINAL CHANCE!!!! Coffee for CAPA is here for one more day! In partnership with Canadian Arthritis Patient Alliance and Sparkplug Coffee, you can support people living with arthritis just by enjoying your daily coffee. 👉 Shop here: buff.ly/QwFROup

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CAPA @capa-aca.bsky.social · 28/04/2026

Arthritis is Canada’s most common chronic disease — yet it continues to be overlooked and underfunded. Millions of people are living with pain, disability, and barriers to care that don’t have to exist. Take action today: buff.ly/WaLtUyE

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CAPA @capa-aca.bsky.social · 24/04/2026

Patients shouldn’t have to feel like a burden for advocating for the care they need — but too often, gaps in our health system make them feel exactly that. When access, communication, and support fall short, the weight is pushed onto patients to fight for their own well-being. 🔗 buff.ly/FrAqfcC

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CAPA @capa-aca.bsky.social · 23/04/2026

A recent NTV news report highlights a difficult reality: Newfoundland and Labrador has received a failing grade in arthritis care. CAPA’s President, Linda Wilhelm, was featured, speaking to the real-world impact in arthritis patient care gaps. 🔗 Watch the full story: buff.ly/T0I8WwD

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CAPA @capa-aca.bsky.social · 17/04/2026

Patient voices matter and they are shaping the future of care. CAPA will be at the 2026 Canadian Rheumatology Association Annual Scientific Meeting in Halifax, presenting two posters on Friday, April 17 at 5:30 PM AT. To learn more, check out our website post: buff.ly/oPav6Xv

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CAPA @capa-aca.bsky.social · 15/04/2026

Lupus Canada is creating a new national peer support program and wants input from people living with lupus. A short survey asks what support would help most and whether you’d like to help shape the program. Please share through clinics and community networks. EN: buff.ly/dyzbyhJ FR: buff.ly/GSQMOvS

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CAPA @capa-aca.bsky.social · 10/04/2026

Drug shortages aren’t logistical challenges, they're deeply human experiences that leave patients feeling overlooked and unsupported. When access to essential medications is disrupted, the consequences go far beyond inconvenience. 🔗 Read the full report: buff.ly/OQE48sA

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CAPA @capa-aca.bsky.social · 07/04/2026

Continue to fuel your day ☕ and make a real impact 💛 Coffee for CAPA is here! In partnership with Canadian Arthritis Patient Alliance and Sparkplug Coffee, you can support people living with arthritis just by enjoying your daily coffee. 👉 Shop here: buff.ly/3wVFTWd

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CAPA @capa-aca.bsky.social · 01/04/2026

Fuel your day ☕ and make a real impact 💛 Coffee for CAPA is here! In partnership with Canadian Arthritis Patient Alliance and Sparkplug Coffee, you can support people living with arthritis just by enjoying your daily coffee. 👉 Shop here: buff.ly/3wVFTWd

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CAPA @capa-aca.bsky.social · 30/03/2026

⏳ Just 1 day to go! Last chance to register for our free webinar “Getting on a Biologic Medication.” 👉 Save your spot: buff.ly/VY9Dl7R #Biologics #PatientSupportPrograms #InflammatoryArthritis #RareDisease

Promotional graphic from the Canadian Arthritis Patient Alliance (CAPA) for a webinar titled “Getting on a Biologic Medication” as part of the Lived Experience Series. The webinar takes place March 31, 2026 at 6:00 PM EDT and lasts 1 hour. Speakers include Megan Friedman (Educator and Disability Advocate), Dr. Quinn Grundy (Registered Nurse), and Dr. Alexandra Legge (Rheumatologist), shown with headshots. A QR code is included for registration.

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CAPA @capa-aca.bsky.social · 27/03/2026

Après 20 ans d’engagement avec les patients… ceux-ci occupent-ils vraiment une place centrale aujourd’hui ? Une réflexion percutante de Dawn Richards sur l’expérience vécue, la défense des droits et les lacunes qui subsistent. 👉 buff.ly/ilXRYnF

Graphique de citation avec des bordures latérales violettes et des guillemets bleus. Le texte dit : « Il y a tellement de personnes qui donnent de leur temps ou travaillent au sein de la communauté de l’arthrite. Il existe de très petites organisations dirigées par des patients dévoués, passionnés, souvent épuisés et disposant de ressources limitées. Je dirais que ce sont ces organisations qui connaissent le mieux ce que signifie réellement vivre avec l’arthrite, à travers un prisme très personnel. » Attribution : Dawn Richards.

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CAPA @capa-aca.bsky.social · 27/03/2026

The Lupus Canada Scholarship Program helps students living with lupus continue their post-secondary education 🎓 More details, eligibility & application: buff.ly/8yI0AuI

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Lupus Scholarship for Canadian Students | Lupus Canada 2026 | Lupus Canada

Apply for the 2026 Lupus Scholarship from Lupus Canada. $2,500 awarded to students in Canada living with lupus.

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CAPA @capa-aca.bsky.social · 25/03/2026

Drug shortages are often framed as supply chain issues — but patients experience them as system failures. Our latest report shows how gaps in communication, coordination, and policy amplify the impact. 🔗 Read the full report: buff.ly/rcXaor7

Social media graphic with a quote from Dr. Mina Tadrous stating that drug shortages are not just supply issues but reflect how the health system is organized, emphasizing the need for patient experience to inform policy and system improvements.

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CAPA @capa-aca.bsky.social · 25/03/2026

As global supply chains face increasing pressure from geopolitical tensions and trade disruptions, the impacts are being felt by people living with arthritis in Canada. 🔗 Read the report: buff.ly/rcXaor7

Graphic featuring a quote from Linda Wilhelm, President of the Canadian Arthritis Patient Alliance, stating that drug shortages are not minor inconveniences for people with chronic conditions, as disruptions to stable treatment plans can impact health, work, and daily life.

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CAPA @capa-aca.bsky.social · 24/03/2026

⏳ 1 week to go! Join our free webinar “Getting on a Biologic Medication” to learn what to expect—from treatment decisions to navigating Patient Support Programs. The webinar features patient/lived experience, a nurse-researcher, and rheumatologist perspectives! 👉 Register: buff.ly/VY9Dl7R

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CAPA @capa-aca.bsky.social · 23/03/2026

After 20 years of patient engagement… are patients really at the centre yet? A powerful reflection by Dawn Richards (former Vice-President with CAPA) on lived experience, advocacy, and the gaps that still exist. 👉 Read more: buff.ly/XuEFWJb #PatientEngagement #HealthPolicy #Arthritis

Quote graphic with purple side borders and blue quotation marks. Text reads: “There are so many people who give time to or work in the arthritis community. There are very small organizations run by dedicated, passionate, and often exhausted and barely resourced patients. I’d argue these are the organizations that know the most about what it’s really like to live with arthritis – through a very personal lens.” Attribution: Dawn Richards.

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CAPA @capa-aca.bsky.social · 11/03/2026

🎥 Upcoming Webinar: Getting on a Biologic Medication Starting a biologic medication can feel like a big step. Join us on Tuesday, March 31, 2026 at 6:00 PM EDT for a free webinar exploring the journey of beginning biologic therapy for arthritis. We hope you’ll join us!

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CAPA @capa-aca.bsky.social · 06/03/2026

March is Juvenile Arthritis Awareness Month in Canada 💙 Juvenile arthritis affects thousands of children and youth across the country. It’s more than joint pain — it can impact mobility, school, mental health, and everyday childhood experiences.

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CAPA @capa-aca.bsky.social · 04/03/2026

🌟 IMPACT & LOOKING AHEAD: We’re pleased to share CAPA’s 2025 Impact Report Together, these documents highlight where we’re headed and the meaningful progress we’ve made as a community. 📄 Read the 2025 Impact Report here: buff.ly/euPMLd6

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CAPA @capa-aca.bsky.social · 02/03/2026

💡 Get Involved with CAPA! 📩 Reach out directly to CAPA’s Managing Director to share your ideas. ➡️ Contact details available on our website (link in bio and QR code). Let’s build this resource together.

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CAPA @capa-aca.bsky.social · 28/02/2026

February 28th is Rare Disease Day Join us in revisiting our Rare Rheumatic Disease Drop-In Event: 👉 Rare Rheumatic Disease Drop-In – Event Recording 🗓️ February 28 – Rare Disease Day 📝 A recording is available to watch anytime 🎥 Access it through the QR code in the post

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CAPA @capa-aca.bsky.social · 23/02/2026

SURVEY OPPORTUNITY! Researchers with SHAPE Plus Pain are inviting 2S/LGBTQQIA+ people living with chronic pain across Canada to share their experiences through a short, anonymous survey. 👉 Learn more at buff.ly/LmyTSlB

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CAPA @capa-aca.bsky.social · 20/02/2026

🌟 MEMBER SPOTLIGHT: CAPA member Jenny Lorca is featured on Action on Pain! In this episode, Jenny shares their personal journey and reflects on the importance of peer connection, community support, and protecting personhood within patienthood. Check out the episode! buff.ly/HAjariV

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CAPA @capa-aca.bsky.social · 18/02/2026

Climate change affects people living with rheumatic diseases. Dr. Sasha Bernatsky (McGill- EBOH; RI-MUHC-IDIGH) is part of REACT Rheum: buff.ly/Ur9dz77. A member Dr. Tom Bush will present a Climate Health Society webinar on climate change and rheumatic conditions on Mar 25, 12–1 PM: buff.ly/cBlSmBL

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CAPA @capa-aca.bsky.social · 16/02/2026

Sexual and Reproductive Health Awareness Week 💜 Sexual and reproductive health is an important part of overall well-being, including for people living with chronic and autoimmune conditions. It impacts physical health, mental health, relationships, and quality of life.

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