iiinova — where your digital self keeps evolving

Juvenile Arthritis Research @jarproject.bsky.social · 29/09/2026

Before the month of September is out, we thought it is a good chance to give another shout out to the British Society for Rheumatology (BSR) and the new "Pain management in people with inflammatory arthritis" guideline. We've created a handy FAQ to find out more: bit.ly/BSRpainFAQ #ThinkJIA #Pain

100

Juvenile Arthritis Research @jarproject.bsky.social · 26/09/2026

Don't miss it! The fantastic awareness-raising news piece on ITV is live for 24 hours after it was initially broadcast last night and you can watch it at bit.ly/ITVJAR And you can find out more about just why improved awareness of JIA is vital in our latest news post. Images from ITV Meridian.

000

Juvenile Arthritis Research @jarproject.bsky.social · 25/09/2026

Last October, Sam began an absolutely mind-blowing awe-inspiring challenge. She set herself the target of running 12 marathons in 12 months to fundraise for Juvenile Arthritis Research. Please join us in wishing her the best of luck for her final marathon of the challenge this weekend at Loch Ness.

000

Juvenile Arthritis Research @jarproject.bsky.social · 24/09/2026

A reminder that our next Joint Voices session for those aged 18-30 is happening next week. Sign-up will be closing soon so if you are aged 18-30 and have JIA, please do register now. Topic: "Work and working life with JIA" as well as a general catch-up too. www.jarproject.org/jointvoices

000

Juvenile Arthritis Research @jarproject.bsky.social · 22/09/2026

We will be taking part in The Big Mile next September and we'd love you to join us! It'll be full of fun, and great way to meet other families affected by #JIA in a supportive and encouraging environment. Registration is free but essential. Find out more and sign up at www.jarproject.org/bigmile

000

Juvenile Arthritis Research @jarproject.bsky.social · 21/09/2026

You may have heard of our JIA VIP research panel. It is a way of hearing about upcoming research and patient involvement opportunities. This autumn, we have several exciting opportunities coming up on the JIA VIP Panel so do make sure you've signed up to hear about them. www.jarproject.org/vip

010

Juvenile Arthritis Research @jarproject.bsky.social · 19/09/2026

Last weekend, Lee took on the AJ Bell Great North Run. Running a half-marathon is a huge commitment and we are so proud of Lee who ran in support of his amazing nephew Tobyn. Lee raised over £400 to support our vital work as we push forward towards a world where no child has to suffer from arthritis

011

Juvenile Arthritis Research @jarproject.bsky.social · 18/09/2026

Have you had a chance to look around our new-look website yet? We've been busy making some updates over the summer to make it easier to navigate and find the information and resources you need to help you on your JIA journey. Check it out now at www.jarproject.org #JIA #JIAUK #Arthritis

110

Juvenile Arthritis Research @jarproject.bsky.social · 17/09/2026

We are so proud of Zehra and the whole family for their brilliant fundraising. Thank you for making such a big difference. The Big Mile will be happening again next September and sign-up is now open at www.letsdothis.com/gb/e/2027-bi... where you can choose to run for JAR.

000

Juvenile Arthritis Research @jarproject.bsky.social · 15/09/2026

It was fantastic to see all the children and young people attending our indoor climbing event on Sunday having lots of fun and building their confidence. Thank you to all the families that came along. A HUGE thank you to our amazing volunteer Selma who planned and organised everything.

000

Juvenile Arthritis Research @jarproject.bsky.social · 13/09/2026

We are delighted to announce that the incredible film that young filmmaker Alicia made for Juvenile Arthritis Research "Arthritis isn't just for adults" has been shortlisted in The Saltways Charity Film Awards. Read more at www.jarproject.org/news/2026/al...

041

Juvenile Arthritis Research @jarproject.bsky.social · 12/09/2026

Our next Joint Voices group for those aged 18-30 and living with JIA is happening on Tuesday 29th September at 7pm. You can also suggest a discussion topic when you sign up. If you are aged 18-30 and have a diagnosis of JIA, you can sign up to join the session at www.jarproject.org/jointvoices

000

Juvenile Arthritis Research @jarproject.bsky.social · 11/09/2026

This weekend is a very special weekend for Ellie and Lee. Ellie will be taking part in the AJ Bell Junior Great North Run in support of Juvenile Arthritis Research for the second year in a row and Lee is running the AJ Bell Great North Run on Sunday. Ellie and Lee, good luck to you both! #ThinkJIA

000

Juvenile Arthritis Research @jarproject.bsky.social · 09/09/2026

We are so proud of this partnership with Shropshire Lions FC Under 9s football club. Don't they all look fabulous in their football shirts? Wishing the team lots of luck for the season and thank you for raising awareness through your fantastic football club. #JIA #ThinkJIA #Football

000

Juvenile Arthritis Research @jarproject.bsky.social · 07/09/2026

This week is "Remember a charity" week and it is a chance to make an impact by leaving a gift to charity in your Will. After your family and friends are taken care of, a gift left in a Will can make a lasting impact for a small charity like ours. Find out more at www.jarproject.org/wills

000

Juvenile Arthritis Research @jarproject.bsky.social · 05/09/2026

LAST CHANCE to sign up for next Wednesday's ParentZoom session. The booking form will be closing soon to enable our volunteers to do the final preparations. It's a really friendly, welcoming group, so even if you've never been along before, please do come along and say hi. www.jarproject.org/join

000

Juvenile Arthritis Research @jarproject.bsky.social · 04/09/2026

It's free UK P&P in the JAR shop this weekend. We have so many incredible designs created by those with JIA and chronic conditions. Here are just a couple of them. Do you have a favourite? Shop now at www.jarproject.org/shop Free UK P&P ends at midnight Sunday. #JIA #ThinkJIA #EthicalClothing

000

Juvenile Arthritis Research @jarproject.bsky.social · 29/08/2026

"Always remember when you are struggling you are not alone. It is not easy - trust me, I know. Stay strong and never give up." Olivia is 10 years old and wanted to share her #JIA story written in her own words. Read Olivia's story at www.jarproject.org/stories/olivia #ChildrenGetArthritisToo

000

Juvenile Arthritis Research @jarproject.bsky.social · 28/08/2026

Bookings for September's in-person event in Cambridge will be closing soon. There are a few places remaining for this fun indoor climbing event for those with JIA and their siblings. More information and full booking details can be found at www.jarproject.org/event #charity #JIA #ThinkJIA #JIAUK

000

Juvenile Arthritis Research @jarproject.bsky.social · 27/08/2026

Last weekend, our incredible ambassador Daniella Sutton was racing at Donington Park in the Wera Tools British F4 championship. Clare and Oli from our volunteer team went along to cheer for Daniella and show our support. Photo credit: Rachel Sutton #ThinkJIA #Arthritis #JIA #JIAUK #WomenInMotorsport

000

Juvenile Arthritis Research @jarproject.bsky.social · 24/08/2026

Our next ParentZoom session is happening on Wednesday 9th September at 7pm. These online sessions are the perfect way to meet other parents / carers who understand what life with JIA is like. Sign-up is now open at www.jarproject.org/join #JIA #JIAUK #ThinkJIA #ChildrenGetArthritisToo

000

Juvenile Arthritis Research @jarproject.bsky.social · 18/08/2026

“Magnus was excited getting a parcel through the post. Grateful for all the information that you’ve provided... Thank you.” Our support packs are made possible by the kind support of donors and fundraisers. More information on our Little Box of Hope packs available at www.jarproject.org/hope

000

Juvenile Arthritis Research @jarproject.bsky.social · 14/08/2026

"Despite the challenges, I have always tried joining in every sports activity...JIA is like running your own race." Alina has had JIA since the age of 2. Read Alina's story at www.jarproject.org/stories/alina #JIA #ThinkJIA #arthritis #ArthritisAwareness #JIAUK

000

Juvenile Arthritis Research @jarproject.bsky.social · 12/08/2026

NEW EVENT IN CAMBRIDGE! The date for our next in-person event has been confirmed for Sunday 13th September and booking is now open. Suitable for children with #JIA and their siblings aged 4+ Spaces are limited and must be booked in advance. Book now at: www.jarproject.org/event

000

Juvenile Arthritis Research @jarproject.bsky.social · 11/08/2026

HUGE thanks to Sophia, Ella, Mia, Aimee, Alyssa and Alfie who took part in our recent video project to ensure that the patient voices of those with #JIA are heard at the PReS Congress this September. Hear about future opportunities at www.jarproject.org/vip #ThinkJIA #JIAUK #ChildrenGetArthritisToo

010

Juvenile Arthritis Research @jarproject.bsky.social · 10/08/2026

We often receive compliments about our website with people being astounded at the breadth and depth of information on there. If you haven't visited for a while, take a look around and you'll find lots of helpful information, videos, and resources. www.jarproject.org #JIA #ThinkJIA #arthritis

032

Juvenile Arthritis Research @jarproject.bsky.social · 07/08/2026

This time next month, it will be "Remember a charity week" from the 7th - 13th September. By remembering us in your Will, you will have a lasting impact on helping us support children and families affected by JIA and our pursuit of finding a cure. Find out more at www.jarproject.org/wills

000

Juvenile Arthritis Research @jarproject.bsky.social · 06/08/2026

Today we are saying a big well done to Dixie-Amiyah who organised an own clothes day at her school in aid of Juvenile Arthritis Research. They raised over £50 and her school governors have kindly matched the amount raised too! Find out more about fundraising at www.jarproject.org/fundraising

000

Juvenile Arthritis Research @jarproject.bsky.social · 03/08/2026

“Thank you so much for the little box of hope for Ruby! She was so happy and got her big brother Harper to read the whole of Kipo straight away. Thanks for all you do- you make a huge difference." Support for #JIA at www.jarproject.org/hope #ThinkJIA #JIAUK #ChildrenGetArthritisToo #arthritis

010

Juvenile Arthritis Research @jarproject.bsky.social · 01/08/2026

Here is Anne-Lise brilliantly modelling our "My daughter is a JIA warrior" awareness-raising t-shirt. It's available in the JAR shop with free P&P this weekend until midnight Sunday. Shop now at www.jarproject.org/shop #JIA #ethicalFashion #ChronicIllness #JIAWarrior #ThinkJIA

020

Juvenile Arthritis Research @jarproject.bsky.social · 23/07/2026

Here is 4 year-old Olivia receiving her Little Box of Hope. Thank you to Olivia's family for sending this photo in. These Little Box of Hope packs are available to those in the UK with a diagnosis of #JIA. Please see our website for more information at www.jarproject.org/hope #ThinkJIA #arthritis

010

Juvenile Arthritis Research @jarproject.bsky.social · 21/07/2026

Today is the launch of the new British Society for Rheumatology Pain in Inflammatory Arthritis Guideline. We are very proud to have been involved in such an important guideline. Read more at www.jarproject.org/news/2026/bs... #ThinkJIA #JIA #JIAUK #arthritis

010

Juvenile Arthritis Research @jarproject.bsky.social · 16/07/2026

Today we are saying a very big well done to Ariella-Mae who organised an own clothes day at school recently in support of Juvenile Arthritis Research. Together they raised an incredible £188. Wow! Thank you for all your support! #thinkJIA #JIA #JIAUK #arthritis #ChildrenGetArthritisToo

010

Juvenile Arthritis Research @jarproject.bsky.social · 15/07/2026

From completing a marathon in Seville to conquering a 50km ultramarathon and an arduous 55km Lakeland trail ultra, Lindsay pushed herself to the limit in support of Juvenile Arthritis Research. Read more in our latest news post at www.jarproject.org/news/2026/li... #ThinkJIA #JIA #JIAUK #marathon

010

Juvenile Arthritis Research @jarproject.bsky.social · 14/07/2026

Thank you to everyone who came along to our Leeds Clip n Climb family event on Sunday. It was really great to meet you all. With huge thanks to our volunteer Clare who organised the event and many thanks to all who helped on the day. Samia very kindly donated the items for the goody bags. #JIA

000

Juvenile Arthritis Research @jarproject.bsky.social · 13/07/2026

Boots Grantham store held a bake sale for JAR. Rachel and her colleagues raised an incredible £170 which was then doubled by Boots' matched giving scheme meaning that the total amount is £341. On the same day, Sophia and Henry were raising awareness of JIA at school. Well done to you all! #ThinkJIA

000

Juvenile Arthritis Research @jarproject.bsky.social · 09/07/2026

Those of you who have been following Luke Belfield's journey, were thrilled to hear the most amazing news yesterday. On behalf of the whole JAR community, thank you Luke! Please take a moment to read the full letter at www.jarproject.org/news/2026/de... #ThinkJIA #JIA #arthritis #swimming #swim

020

Juvenile Arthritis Research @jarproject.bsky.social · 07/07/2026

With the ballot results for next year's London Marathon spaces due out in July, Ruby-May told us "It was an absolute honour to be a part of the London Marathon 2026 - the work you guys do is utterly unmatched!" You can read more at www.jarproject.org/news/2026/re... #LondonMarathon2027

000

Juvenile Arthritis Research @jarproject.bsky.social · 04/07/2026

It's free UK P&P in the JAR clothing shop this weekend. We have so many incredible designs created by those with #JIA and chronic conditions. Here are just a few. Do you have a favourite? All clothing in the JAR shop is made from ethically produced organic cotton. Shop now at www.jarproject.org/shop

001

Juvenile Arthritis Research @jarproject.bsky.social · 03/07/2026

As the end of the academic year approaches and new class teachers are allocated for the year ahead, please do remind your schools of the resources we have available to support them as they support children and young people with JIA in education. Our school resources are at www.jarproject.org/schools

000

Juvenile Arthritis Research @jarproject.bsky.social · 02/07/2026

It was an honour to have attended the All Party Parliamentary Group (APPG) for life sciences as part of our work with the Connect Immune Research Partnership. We heard an update of the progress that has been made within the first year & a discussion about challenges & hopes for the future. #JIAUK

000

Juvenile Arthritis Research @jarproject.bsky.social · 30/06/2026

Well that's a wrap for #SmallCharityWeek 2026 and what an incredible week we have had culminating in the launch of our amazing new #JIA awareness video: #Arthritis isn't just for adults. We may be small in size, but together with your help, we are definitely big in impact! #ThinkJIA #SmallCharity

010

Juvenile Arthritis Research @jarproject.bsky.social · 27/06/2026

It's here! Our new film: Arthritis isn't just for adults. We couldn't wait any longer to share this with you. All the amazing people involved have pulled out all the stops to launch this video this weekend. Watch it now: bit.ly/JARvideo We'd love to hear what you think. And please share it too!

001

Juvenile Arthritis Research @jarproject.bsky.social · 27/06/2026

We gave a sneak peak about something new and we just can't wait any longer to share it with you. So amidst the excitement, we have made the decision to bring the launch date forward and we will be sharing it with you this weekend! Keep an eye on our social channels and e-news. It's coming very soon.

000

Juvenile Arthritis Research @jarproject.bsky.social · 26/06/2026

"I left with even greater hope for all our JIA warriors, that one day we will live in a world where no child has to suffer from arthritis." Our #EULAR2026 news post is now live www.jarproject.org/news/2026/eu... It was an amazing congress and incredible to have it held in London. #ThinkJIA

jarproject.org

Juvenile Arthritis Research - EULAR2026

Team JAR at EULAR 2026

000

Juvenile Arthritis Research @jarproject.bsky.social · 26/06/2026

A very big well done to Tobyn, Simon and their school for holding a fantastic fundraiser recently in aid of Juvenile Arthritis Research. They raised over £170 which is incredible! Well done to all involved. You can find out more about fundraising at www.jarproject.org/fundraising #ThinkJIA #JIA

000

Juvenile Arthritis Research @jarproject.bsky.social · 25/06/2026

This #SmallCharityWeek, our founder Richard shares a few words about how Juvenile Arthritis Research began and our journey over the past 8 years. As a small, agile charity, we are continually moving forward, but it's important to take a moment to reflect on just how far we have come together. #JIA

000

Juvenile Arthritis Research @jarproject.bsky.social · 24/06/2026

Next week, on 1st July, we will be launching something new. Can you guess what it might be?

000

Juvenile Arthritis Research @jarproject.bsky.social · 23/06/2026

With the current heatwave, remember to ensure that your medications are being stored properly in accordance with the instructions. Speak to your healthcare team or pharmacist for advice. Some medications can also make you more prone to sunburn so ensure you protect yourself from the sun too! #JIA

000

Juvenile Arthritis Research @jarproject.bsky.social · 22/06/2026

This week is #SmallCharityWeek and we wanted to share these words from Mike Zywina who works closely with small charities like ours and has a real understanding of the challenges we face. This week, if you can do one thing to support our small charity, please do it. #JIA #ThinkJIA #arthritis

000