iiinova — where your digital self keeps evolving

Reposted by Mish 🛌💙

Noelle @finallynoelle.bsky.social · 08/03/2025

Might save a life.

2222986714756

Reposted by Mish 🛌💙

Naomi Harvey PhD @naomidharvey.bsky.social · 04/03/2025

Neil Riley, Chairman of the M.E. Association has resigned t.co/SfzBRiZVPJ

t.co

https://meassociation.org.uk/kmzm

1113

Reposted by Mish 🛌💙

Hank Green @hankgreen.bsky.social · 02/03/2025

We are experiencing an assault on science unparalleled by anything I’ve seen in my life. It’s not one issue or another anymore, the entire institution is under attack by the most powerful individuals in the country. This Friday, where will you be? standupforscience2025.org

standupforscience2025.org

STAND UP FOR SCIENCE

March 7, 2025. Washington DC and nationwide. Because science is for everyone.

6404400612016

Reposted by Mish 🛌💙

Missing The Point @missingthept.bsky.social · 28/02/2025

Turns out Zelenskyy is good at standing up against dictators.

262220023373

Reposted by Mish 🛌💙

John Green @johngreensbluesky.bsky.social · 25/02/2025

This is a gut-wrenching, beautifully written essay. A doctor must watch helplessly as children die because USAID's freeze on aid has limited access to nutritional supplements. time.com/7258248/us-f...

time.com

What Gutting USAID Means for My Young Patients in Burundi

“To my patients and their mothers, I offered apologies from the American people,” writes Dr. Jennifer Furin.

412133737

Reposted by Mish 🛌💙

Hank Green @hankgreen.bsky.social · 13/02/2025

FYI: You might know me as any number of things, but one of the things I am is a YouTuber who has been running a yearly charity event since 2007. That’s going to become apparent on my bsky feed over the next four or five days. You can learn more about it at projectforawesome.com.

projectforawesome.com

Project For Awesome 2025

477193546

Reposted by Mish 🛌💙

Mx. Robbie Bobbie Berta Boeing @captainbobbie.bsky.social · 02/02/2025

A gay guy, a Black man, and a woman walk into a flight deck— that’s not the beginning of a joke, but just a regular day at work! There was so much DEI on this plane that we could hardly get in the air. Luckily my limp wrists were able to wrestle the heavy jet back to the ground 💅🏼

A diverse flight crew of a gay guy, a Black man, and a woman

873513326313

Reposted by Mish 🛌💙

George Takei @georgetakei.bsky.social · 22/01/2025

This is the face of courage and compassion. Thank you Bishop Mariann Edgar Budde for speaking truth to power on behalf of the marginalized.

13358015612500

Reposted by Mish 🛌💙

Andrew Gifford @andrewgiffordphoto.bsky.social · 21/01/2025

Disability benefits need at least doubling, not cutting, if Labour wants more people back in work any time soon - because NHS is not there for us and we're having to self fund and treat ourselves. www.bigissue.com/news/social-... #DWP #Benefits #UKLabour

bigissue.com

Disability benefits cuts will be 'devastating' and 'increase poverty', Labour told

Labour has pledged to slash to cut the disability benefits bill, even after a High Court ruling found a consultation to be unlawful.

78719

Reposted by Mish 🛌💙

A Darkened Room @adarkenedroom.bsky.social · 20/01/2025

Petition: Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark ”Doctors have told Line that if she does not get out of bed during the next 2 weeks, she will be forcibly committed to a psychiatric hospital.” www.change.org/p/prevent-fo...

change.org

Sign the Petition

Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark

02218

Reposted by Mish 🛌💙

Matthew Hahn @matthewhahn.com · 15/01/2025

I am a former incarcerated firefighter. I served in a California fire camp from 2009 to 2012. Misinformation is afire on the internet, so here are facts about the prison firefighter program, all in one place. A thread.

362141436394

Reposted by Mish 🛌💙

ME Foggy Dog @mefoggydog.bsky.social · 11/01/2025

Myalgic Encephalomyelitis. Life altering and heavily stigmatised. #Health #PwME

0134

Reposted by Mish 🛌💙

Jonathan Edward Durham @thisone0verhere.bsky.social · 03/01/2025

January is not the month for resolutions. We’re all sick, exhausted, cold, broke, depressed and back at work against our will. January *is* the month for outrageous Victorian self-care rituals, because who needs a new gym membership when you can just take a good turn about the room for your agonies.

511764340

Reposted by Mish 🛌💙

Frances Ryan @francesryan.bsky.social · 02/01/2025

Writing about Errol Graham - who starved to death in 2018 - always stayed with me. That the Tories spent £50,000 trying to stop the release of a review into his death is sickening. There’s money to hide the truth but none to help a disabled man eat. www.theguardian.com/politics/202...

theguardian.com

DWP spent £50,000 trying to stop release of review into disabled man’s death

Previous government spent almost £1m trying to prevent release of documents in 56 legal cases

7241115

Reposted by Mish 🛌💙

sarah boothby @swastrosarah.bsky.social · 01/01/2025

To everyone with #ME who has been unwell since long before the pandemic, knows they not getting any better, and feels as if they have been forgotten: I may not know you by name but I think of you every single day. 2025 is going to be different. Hopefully better. With love and respect from me to you.

95611

Reposted by Mish 🛌💙

tern @1goodtern.bsky.social · 31/12/2024

Her: "<cough> I've dragged myself out of bed so as not to let you down. <cough> I've left all the rest of the <cough> family really ill at home, but don't <cough> worry, I've not touched anything. <cough>" Folks... she's a *critical care nurse*

32794111

Reposted by Mish 🛌💙

Jeanine 💙 @madammaleficent.bsky.social · 30/12/2024

If you ever share / repost anything, please let it be this

5055145263

Reposted by Mish 🛌💙

Dr 🫥 @draevans.bsky.social · 28/12/2024

Apparently HM Government appears to think autism & ADHD are “light” SEN conditions. (FT interview). I wonder if they have read the NHS long term plan, the suicide prevention plan, the suicide rate, the SEN exclusion rate, the prison population… Asking for someone to explain!

173

Reposted by Mish 🛌💙

Aaron Weiss (no relation) @aweiss.bsky.social · 27/12/2024

After nearly three decades, a Minnesota summer camp for kids with HIV/AIDS is closing and up for sale... because retroviral drugs are so effective that there aren't enough campers. Science works, y'all. www.startribune.com/closure-of-n...

startribune.com

Closure of northern Minnesota camp is ‘the greatest story.’ Here’s why.

Willow River, Minn., camp One Heartland is for sale after serving kids there for nearly three decades.

320265655272

Reposted by Mish 🛌💙

Kelly @broadwaybabyto.bsky.social · 20/12/2024

The Mayor of Mazan (the French town where Gisele Pelicot was assaulted) said that it could have been worse and “at least no one was killed & she wasn’t conscious” I don’t understand why men continue to downplay the horrors that happened Do NOT tell the victim of mass rape it “could be worse”

bbc.com

French village of Mazan torn apart by horror of mass rape trial

Fifty-one men are on trial in France for raping a woman drugged by her husband in the village of Mazan.

1320242

Reposted by Mish 🛌💙

Katharina 🦋🍋🍀 @katha1970.bsky.social · 14/12/2024

Mila Hermisson turned 22 last month. She has been lying in the exact same position in a dark room with extremely severe ME for over 4 years. Over 1400 days! In darkness. In silence. In loneliness. With no prospect of medical help. Please watch Mila's short message to the world: youtu.be/hc9m6BJdvJY

youtu.be

Mila Hermisson's message to the world: "Learn About ME"

YouTube video by For chronically ill and their loved ones

59950

Reposted by Mish 🛌💙

Frances Ryan @francesryan.bsky.social · 08/12/2024

A few days ago, Accessorize refused to pierce @lucywebster.bsky.social’s ear unless she provided a GP note. Why? Because she’s disabled. And now she’s in the Sunday Times calling it out because it turns out, disabled women are not 5 years old - they are leaders. www.thetimes.com/uk/society/a...

thetimes.com

I wanted a piercing at Accessorize. What I got was pure ableism

Employees ignored me, spoke only to my friend then demanded a doctor’s note because they had ‘doubts’ I could look after myself

216250

Reposted by Mish 🛌💙

Led By Donkeys @ledbydonkeys.org · 04/12/2024

"And once you come to this conclusion you cannot remain silent." Location: Parliament Square, London (sound on) youtu.be/WMwqhdVV5as

youtu.be

Yes, it's a genocide

YouTube video by Led By Donkeys

6538511967

Reposted by Mish 🛌💙

Brent Toderian @brenttoderian.bsky.social · 26/11/2024

Denver gave people experiencing homelessness $1k/month. A year later, nearly half had housing. They also had fewer ER visits, nights spent in a hospital, and jail stays. The report estimates that this reduction in public service use SAVED the city $589k. www.businessinsider.com/denver-basic...

businessinsider.com

Denver gave people experiencing homelessness $1,000 a month. A year later, nearly half of participants said they had housing.

Participants in Denver's basic-income program reported having more-secure housing, though results were similar in the trial and control groups.

7153691912492

Reposted by Mish 🛌💙

Lucinda Crimson @elsiemagenta.bsky.social · 23/11/2024

One of Millions Missing 2024 finds me disabled and exhausted with crippling fatigue from ME/CFS. I used to be bright and extroverted, with a colourful wardrobe, home, and art & design practice. Now, I’m fading. #millionsmissing #mecfs #oilpainting #chronicillness

Painting of a woman laying down looking exhausted. The background of the painting is patterned in yellow, orange and pink. The woman rests on a pink gingham pillow and her glasses are on the ground near her.

48322

Reposted by Mish 🛌💙

John Green @johngreensbluesky.bsky.social · 22/11/2024

My new book, Everything Is Tuberculosis, explores the history of our deadliest infectious disease. It's also about our horrifying present: TB still kills kills over a million people per year, even though it's been curable since the 1950s. Signed copies can be ordered at everythingistb.com

yellow book cover reading Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection Signed Edition

1654047453

Reposted by Mish 🛌💙

Erin Reed @erininthemorning.com · 22/11/2024

Imagine if we just had a ton of really queer people, butch dykes, trans men and women, etc queue up to use the bathroom outside of Nancy Mace’s office and make them tell us which one we are allowed to use. Absolute gender fuckery.

1223122382

Reposted by Mish 🛌💙

ME/CFS Science @mecfsscience.org · 21/11/2024

The examples in Germany, the Netherlands and Austria also show that if you provide ring-fenced funding for ME/CFS, high quality research proposals will follow. Governments and funders should provide incentives for scientists to focus on ME/CFS.

02111

Reposted by Mish 🛌💙

Asha Ence 🔜 PAX Unplugged @ashaence.bsky.social · 22/11/2024

*whispers* Glasses are a disability and accessibility aid. They've just been normalized so people don't generally think of them as such. Now, imagine if all other aids were just as destigmatized and normalized.

10590175

Reposted by Mish 🛌💙

Katy B @katybrc.bsky.social · 21/11/2024

"#ME Scandal Explainer" It doesn't matter how well you know the facts which @abrokenbattery.bsky.social has shared in this powerful film the devastating truth of "The Greatest Medical Scandal" isnt diminished #MEDSky #Journalists watch, learn & share #pwME #MEcfs www.youtube.com/watch?v=RiwX...

youtube.com

ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)

YouTube video by Broken Battery

24124

Reposted by Mish 🛌💙

Otto English @ottoenglish.bsky.social · 20/11/2024

Important context here: ● over half of farms are less than 49 acres (20 hectares) ● "a big farm" is 217 acres. Now let's see who's angry: ● Clarkson farm is 1,000 acres ● Lloyd Webber farms 4,000 acres ● Viscount Rothermere (Mail owner) 4,700 acres ● Dyson owns 36,000 acres

21265912903

Reposted by Mish 🛌💙

Nuwuzoho @nuwuzoho.bsky.social · 19/11/2024

I feel like the treatment of ME/CFS patients for decades and now Long Covid patients should be considered a human rights violation @amnestyusa.bsky.social

2278

Reposted by Mish 🛌💙

Emma Gore-Lloyd @emmagl.bsky.social · 18/11/2024

We're sad to announce that #ThereForME has suspended its collaboration with the ME Association. We truly hope that we can collaborate again when the concerns raised by the community have been adequately addressed.

We are very sad to announce that the #ThereForME campaign has suspended our
collaboration with the ME Association.

Like others in the ME community, we have deep concerns about a recent editorial published
by the ME Association and authored by the ME Association’s Chairman (‘Animals need to
move’). We wrote to the ME Association today expressing concerns about the editorial and
asking for an update on the actions that the ME Association would be taking to address them. We did not feel that the response we received was adequate and so we have taken the decision to suspend our collaboration with immediate effect.

We are very proud of how we have managed to bring the ME and Long Covid communities together under a shared advocacy message since launching the campaign four months ago. We believe our community is strongest when we can work together and so this is not a decision that we have taken lightly. However, we are also very grateful for the trust we have
built with the ME community. We therefore feel that we cannot in good conscience continue our collaboration with the ME Association until the very valid concerns from the community
have been sufficiently addressed.

We have made clear to the ME Association the actions we believe are necessary from their side in order to resume our collaboration. The door remains open to continue working together once we feel sufficient action has been taken. We very much hope that this will be the case.

In the meantime, we will be focusing our time and energy on what we feel our campaign does best: speaking up for people with ME and Long Covid, who will always be at the heart of our campaign.

Karen, Emma and Oonagh

27616

Reposted by Mish 🛌💙

María Richardson @diatoma.bsky.social · 18/11/2024

1/9 Continuing on my (almost-housebound w moderate #ME in CDMX) quest to try to get #GreatestMEdicalScandal, the ongoing story of neglect & abuse of people with #MyalgicEncephalomyelitis worldwide, on the radars of @hankgreen.bsky.social @johngreensbluesky.bsky.social 🧵 Share if you co-sign ❤️!

1. Line tracing of two photos of John and Hank from their onstage presentation at VidCon. They're both speaking into the microphone. The letter says: "I really appreciate your minds, hearts, and communication skills and invite you to look into #GreatestMEdicalScandal, the story of ME/CFS (and its relation to other infection-associated chronic illnesses)."

46023

Reposted by Mish 🛌💙

Katy B @katybrc.bsky.social · 18/11/2024

🔗 below to sign the letter asking for an apology & retraction of this comment I do feel that given his incredibly ill informed harmful comment he's not suitable for the role of Chairman of the @MEAssociation & he should step down There's too much at stake for #pwME docs.google.com/document/d/1...

127424

Reposted by Mish 🛌💙

Yann (ME/LC) @me-cfs.bsky.social · 17/11/2024

The We&Me foundation is funding a large healthcare study in people with #MECFS and #PAIS (including #LongCOVID). The larger the sample size, the better, so fill it in if energy permits and share. s2survey.net/pais/index.p... [It’s quite long but it lets you pause; better to open in browser]

s2survey.net

Questionnaire | page 1

34625

Reposted by Mish 🛌💙

Dr. Lucky Tran @luckytran.com · 15/11/2024

Vaccines are one of the most important inventions humans have ever made. Period.

Chart: Number of lives saved by vaccination from 1974 to 2004
Data source: Shattock et al. (2024). Contribution of vaccination to improved child survival: modelling 50 years of the Expanded Programme on Immunization.
Credit: Gavi Alliance

7442411126

Reposted by Mish 🛌💙

Sammie McFarland @sammiemc.bsky.social · 12/11/2024

👋 Looking for tips on flying with an electric wheelchair… my first attempt is coming up this week. What do I need to think about? 🙏 all tips for #Pacing also appreciated #Disability #Disabled #WheelChair #Travel #ThisGirlCan #LongCovid

194

Reposted by Mish 🛌💙

ME Foggy Dog @mefoggydog.bsky.social · 08/11/2024

💙 #SevereME impacts lives in ways many can’t imagine. Join #BedForSevereME to shine a light on those whose lives are often lived in bed. Let's bring their stories to the world. 🌍 Check it out! - buff.ly/4bD72md #SevereME #pwME

0166

Reposted by Mish 🛌💙

cate @buny.bsky.social · 06/11/2024

i’m gonna just watch this at least once a day and i recommend everyone do the same

5763916019162

Reposted by Mish 🛌💙

María Richardson @diatoma.bsky.social · 07/11/2024

Friends, can you read and help share this broadly? Nevra has #SevereME & septad comorbidities & currently urgently needs an in-person #ME knowledgeable advocate in Pakistan. Donations to her GFM also greatly needed & appreciated. #GreatestMEdicalScandal #MECFS www.thecanary.co/global/world...

thecanary.co

A young woman with severe ME/CFS in Pakistan needs an in-person advocate - can you help?

A young woman, Nevra, living with severe ME/CFS in Pakistan is issuing an urgent call-out for an in-person advocate

12735

Reposted by Mish 🛌💙

Shepherd @neolithicsheep.bsky.social · 28/09/2024

Please note where Asheville, NC is on this map. Please note that it is at 3000+ feet elevation. Please explain to me where the fuck is far enough inland that you'll care. @luxalptraum.com you put this on my timeline so same question.

381548295

Mish 🛌💙 @shelmish.bsky.social · 27/08/2024

I have a new favourite 🌱 Dahlia Lake Tahoe has much brighter colours than I expected.

Dahlia flower almost fully open. Very bright (almost neon) orange, yellow and pink petals, surrounded by green foliage with a white wall in the background.

050