iiinova — where your digital self keeps evolving

Reposted by SammyJo Wilkinson

Solve M.E. @solveme.bsky.social · 14/05/2025

💙 Huge THANK YOU to Senator Bill Cassidy for prioritizing ME/CFS & Long COVID in today's HELP Committee Hearing. His first question was dedicated to the urgent need for research & federal support for these conditions. 🙌 #MECFS #LongCOVID

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SammyJo Wilkinson @sammyjoebv.bsky.social · 22/04/2025

Atlantic magazine editor-in-chief Jeffrey Goldberg exposed what is being called “Signalgate” after reporting on the group chat with Pete Hegseth he got added to.

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SammyJo Wilkinson @sammyjoebv.bsky.social · 28/02/2025

Just sent to my reps, and posted in Solving MS where many have the double whammy of MS+LC. I used this to quickly email all my reps. They have told me email is better that call right now because so many people are contacting them. democracy.io

Trump commands the HHS to terminate a committee on Long COVID

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Reposted by SammyJo Wilkinson

GregoryAi @gregoryai.bsky.social · 08/11/2024

gregory-ms.com/articles/288792 Non-invasive brain stimulation enhances the effect of physiotherapy for balance and mobility impairment in people with Multiple Sclerosis. #MSchat #MS #Neurology #MultipleSclerosis #NeuroSky #NeuroSkyence

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Reposted by SammyJo Wilkinson

Bruno Amaral @brunoamaral.eu · 09/11/2024

Journalists - is Twitter actually your community? It is long past time for journalism to abandon Twitter. We ourselves have torn down the wall between editorial and business interests if as journalists, our calculation here is not va #damon-kiesow #elon-musk #journalism #social-media #twitter #x

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Reposted by SammyJo Wilkinson

Bruno Amaral @brunoamaral.eu · 11/11/2024

Science Integrity Digest, September 2024 An overview of general news and articles about science integrity and some cases that I have worked on. Science sleuths The Rise of the Science Sleuths – When an Alzheimer’s paper came under s… #elisabet-bik #open-science #papers #research #science

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SammyJo Wilkinson @sammyjoebv.bsky.social · 11/03/2024

Very hopeful about IMU-838! They say it is the next generation DHODH inhibitor, and is 2.6 times more potent in inhibiting DHO oxidation by human DHODH compared to first generation DHODH inhibitor, teriflunomide (Aubagio).

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SammyJo Wilkinson @sammyjoebv.bsky.social · 15/02/2024

Ooooh Thank you Bruno! This will save me time in writing research profiles for the Solving MS Database.

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SammyJo Wilkinson @sammyjoebv.bsky.social · 15/02/2024

Search ALL clinical trial databases at once for #MultipleSclerosis? Now you can at gregory-ms.com! "Relevant Papers" pulls MS studies from every journal. "Observatory" see # of papers on every MS therapy. Get email delivery of the latest MS studies & trials. #AI #BigData #KnowledgeIsPower

gregory-ms.com

Multiple Sclerosis Research by Gregory AI

An index engine for articles and clinical trials around Multiple Sclerosis

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Reposted by SammyJo Wilkinson

Bruno Amaral @brunoamaral.eu · 14/02/2024

Beautiful Free Images & Pictures | Unsplash Images and photos that you can download and use for any project. Better than any royalty free or stock photos. #photos #stock-photos

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SammyJo Wilkinson @sammyjoebv.bsky.social · 09/01/2024

Some animal and human studies have shown it has neuroprotective effects. "A limited number of clinical trials showed that hesperidin-enriched dietary supplements can significantly improve cerebral blood flow, cognition, and memory performance." www.mdpi.com/1420-3049/24...

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SammyJo Wilkinson @sammyjoebv.bsky.social · 07/12/2023

@gregory-ms.com Is a fantastic resource for keeping up with MS research and clinical trials! Don't miss the Observatory at their website. gregory-ms.com

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SammyJo Wilkinson @sammyjoebv.bsky.social · 10/11/2023

Great to see this saffron preparation being studied for MS! I've been putting 20 fronds of saffron (crocin) in my tea for years. It has positive studies for vision as well. Optic neuritis left my right eye blind, but so far the left one still works!

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SammyJo Wilkinson @sammyjoebv.bsky.social · 09/11/2023

The C-19 Longhauler Advocacy Project has brought several disease groups together, calling it the IACCPAC Initiative. #SolvingMS members attended their incredible webinar @thekm.bsky.social @klstenhouse.bsky.social youtu.be/nyhWbRMrQcc?...

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SammyJo Wilkinson @sammyjoebv.bsky.social · 09/11/2023

Or a pie chart showing # papers for each pathogen associated with MS (EBV HSV1,2 CMV VZV HHV-6 Lyme)? Or a way to show all IACC X pathogens. Infection-Associated Chronic Conditions -IACC Patient Advocacy Coalition - PAC #IACCPAC Initiative @patientled.bsky.social

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SammyJo Wilkinson @sammyjoebv.bsky.social · 09/11/2023

You guys are data wizards! To see how many papers are being published on MS by country! Does Metabase let you query up any kind of chart from pubmed? I made this pic from the pubmed chart. Could Metabase chart showing # of papers for each disease associated with EBV (SLE. RA, LongCovid, CAEBV ect.)

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