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Pete Caruso

@petecaruso.bsky.social
1.2K followers 1.4K following 118 posts

Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme. Pfp: A man wearing a green face mask Banner: Colorful MEmes from patient-led Long COVID and ME awareness

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Pete Caruso @petecaruso.bsky.social · 18/08/2025
A Sjogrens trial of ianalumab (in Phase III) announced reaching primary endpoints. Ianalumab is a B-cell depletion and BAFF-R inhibition treatment. Ianalumab has the potential to become the first and only targeted treatment for Sjogrens, once its approved. www.novartis.com/news/media-r...
novartis.com
Novartis announces both ianalumab Phase III clinical trials met primary endpoint in patients with Sjögren’s disease
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Jon Douglas @atranscendedman.bsky.social · 28/05/2025
At the University of Washington and University of Victoria, researchers used DNA from 852 people to train a new AI model that distinguishes ME/CFS from Long COVID with 97% accuracy, offering a potential blood test for these misunderstood illnesses. www.biorxiv.org/content/10.1...
biorxiv.org
Mobius: Mixture-Of-Experts Transformer Model in Epigenetics of ME/CFS and Long COVID
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID are chronic debilitating post-infectious illnesses that collectively affect up to 470 million individuals. Unlike illnesses o...
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PhillyPhile215 @phillyphile215.bsky.social · 23/05/2025
@davidfajgenbaum.bsky.social ME is exactly the type of challenge you are good at unraveling. Please help us fight #GreatestMEdicalScandal and find effective cures/treatments for #pwME! 🙏
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Billy Hanlon @bhanlon15.bsky.social · 23/05/2025
The Sick Times: 'Colorado art exhibition showcases creative expressions of Long COVID, advocates for research and treatment' 'The gallery is both a stark witness to people’s lived truth with Long COVID and a bright space of creativity and community.' thesicktimes.org/2025/05/23/c...
thesicktimes.org
Colorado art exhibition showcases creative expressions of Long COVID, advocates for research and treatment - The Sick Times
A new exhibition at the Artworks Center for Contemporary Art in Loveland, Colorado, showcases 24 pieces of visual art by 15 artists who live with or are impacted by Long COVID. Within a dynamic galler...
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PhillyPhile215 @phillyphile215.bsky.social · 23/05/2025
Please help us @latenightseth.bsky.social 🙏
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Billy Hanlon @bhanlon15.bsky.social · 23/05/2025
NL Times: 'Muscles of long Covid patients respond differently to inactivity than healthy people' 'Researchers also saw issues when it came to energy production. This came as a result of malfunctioning mitochondria, which are the energy factories...' nltimes.nl/2025/05/23/m...
nltimes.nl
Muscles of long Covid patients respond differently to inactivity than healthy people
The muscles of people who suffer from long Covid or the chronic illness ME/CVS respond differently to a workout after a period of inactivity than the muscles of people with a clean bill of health, a s...
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PhillyPhile215 @phillyphile215.bsky.social · 23/05/2025
Help us out @saquonbarkley.bsky.social! 🙏 #GoBirds
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Billy Hanlon @bhanlon15.bsky.social · 16/05/2025
Health Rising: “Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID” www.healthrising.org/blog/2025/05...
healthrising.org
Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID - Health Rising
Researchers assessing T-cell exhaustion in ME/CFS and long COVID could ultimately identify what caused these diseases.
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Billy Hanlon @bhanlon15.bsky.social · 13/05/2025
The Sick Times: ““Millions Missing” protest at the Capitol demands myalgic encephalomyelitis funding, social support thesicktimes.org/2025/05/12/m...
thesicktimes.org
“Millions Missing” protest at the Capitol demands myalgic encephalomyelitis funding, social support - The Sick Times
Myalgic encephalomyelitis (ME), Long COVID, and other chronic disease advocates demonstrated outside the Capitol Building in Washington, D.C., this afternoon. Organized by the advocacy group #MEAction...
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Katharina 🦋🍋🍀 @katha1970.bsky.social · 12/05/2025
Reminder: On May 12-13, the “International ME/CFS Conference 2025” will take place. Speakers include Carmen Scheibenbogen, David Putrino, Michael Peluso, Michael Stingl, Klaus Wirth and many more. Registration for the livestream is still possible at events.mecfs-research.org/de/events
events.mecfs-research.org
ME/CFS Research Foundation
ME/CFS Research Foundation is a non-profit organization dedicated to advancing research and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome.
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Putrino Lab @putrinolab.bsky.social · 07/05/2025
Great to see this paper out, showing persistent heart and lung inflammation in people with #LongCOVID, but also highlighting once again that SARS-CoV-2 is a virus that profoundly affects vascular health and that every new infection can do damage. www.mountsinai.org/about/newsro...
mountsinai.org
Long COVID May Cause Long-Term Changes in the Heart and Lungs and May Lead to Cardiac and Pulmonary Diseases
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Tom Kindlon @tomkindlon.bsky.social · 04/05/2025
Thousands demand withdrawal of review article recommending exercise therapy for chronic fatigue syndrome Links in image: www.cochranelibrary.com/cdsr/doi/10.... retractionwatch.com/2025/01/23/t... Screenshot from the AMMES May email newsletter #MEcfs #CFS
Image of a woman running
Thousands demand withdrawal of review article recommending exercise therapy for chronic fatigue syndrome
The decision to abandon a process to re-evaluate a review recommending exercise therapy for chronic fatigue syndrome (ME/CFS) has reignited calls for the article to be withdrawn. 
The 2019 version of the Cochrane Library review, “Exercise therapy for chronic fatigue syndrome,” has accumulated 67 citations, according to Clarivate’s Web of Science.
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Sus Scrofa @susscrofa.bsky.social · 02/05/2025
Rory Preston: Our analysis suggests Long COVID, inc. COVID-triggered ME/CFS, now ranks among the most burdensome diseases in the US — ahead of stroke, diabetes & COPD It’s a rough estimate, but the message is clear: this crisis can’t be ignored. We need to scale research, funding & support
Rory Preston: Our analysis suggests Long COVID, inc. COVID-triggered ME/CFS, now ranks among the most burdensome diseases in the US — ahead of stroke, diabetes & COPD

It’s a rough estimate, but the message is clear: this crisis can’t be ignored.

We need to scale research, funding & support
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Dr. Carla, neuropsychiater, post-COVID researcher @carlarus.bsky.social · 05/04/2025
One of my recent articles published in Frontiers in Neurology just reached a new impact milestone. Here is the link if you would like to read our study Mijn Laatste artikel over post COVID bereikte een mijlpaal! doi.org/10.3389/fneu...
doi.org
Frontiers | Disruptions in serotonin- and kynurenine pathway metabolism in post-COVID: biomarkers and treatment
This opinion article attempts to connect knowledge about post-Covid syndrome (PCS) gained in neuropsychiatry and immunology. It discusses some misunderstandi...
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Tom Kindlon @tomkindlon.bsky.social · 24/04/2025
Toward a Disease Module for ME/CFS: A Network-Based Gene Prioritization www.medrxiv.org/content/10.1... Screenshot is from the latest Science for ME weekly update #MEcfs #CFS
Preprint: MedRxiv
Toward a Disease Module for ME/CFS: A Network-Based Gene Prioritization — Paolo Maccallini
"Enrichment analysis identified significant overlaps with sphingolipid metabolism and signaling, and energy-related pathways. Heme degradation, TP53-regulated metabolic genes, and thermogenesis were also identified as possibly contributing to the pathogenesis of ME/CFS."
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Riemerville @riemerville.bsky.social · 07/04/2025
To the vaxx-and-relax crowd: you’re not out of the woods. There are 200+ symptoms of Long Covid. Vaccines help reduce some risks but not neurological or vascular damage. A paper on this was published in January and It was buried.
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Riemerville @riemerville.bsky.social · 05/04/2025
“We put men on the moon decades ago, but women are still dying from severe nausea and vomiting during pregnancy,”
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PhillyPhile215 @phillyphile215.bsky.social · 01/04/2025
@lastweektonight.com @thedailyshow.com @weeklyshowpodcast.bsky.social 👀 What would Jo(h)n do?
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The Sick Times @thesicktimes.org · 01/04/2025
In a crisis-filled world, breaking through the noise requires creativity, strategy — and, occasionally, a really good meme. This is why the #JohnVsJonVsME campaign began. bit.ly/4hTwUxa
A black background with neon purple and turquoise gaming-esque framing features photos of John Oliver and Jon Stewart facing off. White text reads, “The Sick Times. The history of ME deserves a late-night spotlight. That’s why we started the #JohnVsJonVsME campaign. by Eliza Charley, Emily Fraser, Julie, Katie Klocksin, Melissa Mazur, María Richardson.”White text inside a neon colored speech bubble reads, "Medical professionals don’t just neglect people with ME but often only offer them harmful treatments like cognitive behavioral therapy or graded exercise therapy. COVID-19 has added millions of new people with ME to the millions already sick, making coverage of this scandal imperative now more than ever." - #JohnVsJonVsME Core Planning Group: 
Eliza Charley, Emily Fraser, Julie, Katie Klocksin, Melissa Mazur, and María Richardson
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Billy Hanlon @bhanlon15.bsky.social · 29/03/2025
Yahoo News Canada: 'The pandemic didn't end for this P.E.I. woman, who wants more support for those with long COVID' "It's like you're a battery that doesn't charge all the way," the Summerside resident said. ca.news.yahoo.com/pandemic-did...
ca.news.yahoo.com
The pandemic didn't end for this P.E.I. woman, who wants more support for those with long COVID
Just over two years ago, Nikkie Gallant never would have imagined that simply sitting up in bed would be an exhausting task for her. That's been the P.E.I. musician's reality since the fall of 2022, w...
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Miles W. Griffis @mileswgriffis.bsky.social · 28/03/2025
🚨 BREAKING: Long COVID research grants rescinded earlier this week have been restored, according to researchers & patient reps. Advocates organized quickly yesterday in response to the news, helping reverse the decision. Exclusive in @thesicktimes.bsky.social thesicktimes.org/2025/03/28/u...
thesicktimes.org
UPDATE: RECOVER Long COVID pathobiology grants restored - The Sick Times
Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, accord...
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Pete Caruso @petecaruso.bsky.social · 28/03/2025
#NotLongCOVIDCuts
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Pete Caruso @petecaruso.bsky.social · 28/03/2025
“We already have a division at NIH devoted to study Long COVID and figure out cures...creating a CDC agency for vaccine injuries and also Lyme disease…more and more people are suffering from these diseases” - RFK Jr. Chris Cuomo didn't ask about the Long COVID Recover cuts announced this week.
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Pete Caruso @petecaruso.bsky.social · 24/03/2025
❤️
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Pete Caruso @petecaruso.bsky.social · 23/03/2025
Sjogren's Disease News: Nipocalimab investigational treatment has been granted FDA breakthrough therapy designation and Fast Track designation. Nipocalimab is a fully human mAb that targets the neonatal crystallizable fragment receptor (FcRn). #Sjogrens www.jnj.com/media-center...
jnj.com
Nipocalimab, the first and only investigational treatment to be granted U.S. FDA Breakthrough Therapy designation for the treatment of adults with moderate-to-severe Sjögren’s disease, has now receive...
Sjögren’s disease (SjD) is a prevalent, debilitating autoantibody disease with no FDA-approved advanced treatments The Company is actively enrolling patients in the Phase 3 DAFFODIL study This marks t...
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Pete Caruso @petecaruso.bsky.social · 19/03/2025
#LongCovidMadness
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Riemerville @riemerville.bsky.social · 16/03/2025
What if something as simple as walking across the room became impossible? That’s was reality for years. Once healthy& active,I’m now housebound, struggling with fatigue, brain fog, pain, heart palpitations, and breathlessness. We need research & awareness. #LongCovidAwarenessDay
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Riemerville @riemerville.bsky.social · 15/03/2025
Post-viral illness is real. Long COVID isn’t just “taking longer to recover”-it can permanently disable people. Ask around- how many people do you know experiencing a “mysterious illness”? We need research, treatments & support. #LongCovidAwarenessDay
media.tenor.com
a scooby doo cartoon with the caption looks like we got ourselves a mystery !!
ALT: a scooby doo cartoon with the caption looks like we got ourselves a mystery !!
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The Sick Times @thesicktimes.org · 04/03/2025
Join The Sick Times editors @betsyladyzhets.bsky.social and @heatherhogan.bsky.social for an evening commemorating Long COVID Awareness Day 2025 and the five-year anniversary of the COVID-19 pandemic landing in New York City. RSVP in-person: bit.ly/43nVjHO RSVP virtual: bit.ly/4kqYqVu
A purple flyer with black text reads, “Commemorating Long COVID Awareness Day with The Sick Times. Panel discussion: The Sick Times editors Betsy Ladyzhets + Heather Hogan. Local Long COVID and COVID-19 organizers. Essay readings from The Sick Times contributors. Audience Q&A. Nonbinarian Bookstore. 1130 President St, Brooklyn NY. 7 pm - 9 PM. March 18. All in-person attendees are required to wear high-quality masks (KN95/N95 or better), no exceptions. Testing beforehand is encouraged. If you don’t feel well, please stay home!” Betsy Ladyzhets and Heather Hogan are featured in rectangle photos on the left of the page. They’re both holding microphones and wearing KN95 masks at different events.
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The Sick Times @thesicktimes.org · 12/03/2025
Come hang out with us! 😷
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Pete Caruso @petecaruso.bsky.social · 12/03/2025
#LongCOVIDAwareness2025
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Billy Hanlon @bhanlon15.bsky.social · 10/03/2025
New York Times: “30 Charts That Show How Everything Changed…in March 2020” “The number of people reporting a disability soared. Many Americans struggled with long Covid and reported cognitive issues like “brain fog” www.nytimes.com/interactive/...
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Pete Caruso @petecaruso.bsky.social · 09/02/2025
Calling on chronic illness friends to join the #JohnVsJonVsME #ValentinesDay edition! Which Jo(h)n will be the first to win our hearts & cover the #GreatestMEdicalScandal? Keep a lookout for a @johnvsjonvsme.bsky.social toolkit shared soon w/ ways to join the LoveFest depending on 🥄 level.
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Billy Hanlon @bhanlon15.bsky.social · 08/02/2025
ScienceAlert: COVID-19 May Be Linked With Higher Alzheimer's Risk, Study Finds Aside from the potential curse of long COVID, people who've had SARS-CoV-2 may be more likely to develop high levels of biomarkers for brain proteins linked to Alzheimer's.. www.sciencealert.com/covid-19-may...
sciencealert.com
COVID-19 May Be Linked With Higher Alzheimer's Risk, Study Finds
Aside from the potential curse of long COVID, people who've had the SARS-CoV-2 virus may be more likely to develop high levels of biomarkers for brain proteins linked to Alzheimer's disease, scientist...
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Billy Hanlon @bhanlon15.bsky.social · 05/02/2025
Economic Times: “Long COVID costs countries billions of dollars” Long COVID is costing countries billions of dollars in lost productivity and increased health and social welfare costs, economists say. m.economictimes.com/news/interna...
m.economictimes.com
Long COVID costs countries billions of dollars
Long COVID is causing significant economic damage, with estimates suggesting that millions globally face persistent health issues impacting productivity and increasing healthcare costs. Countries like...
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sibylle dahrendorf @sibylledahrendorf.bsky.social · 29/01/2025
#SaveTheDate 25. Februar 2025 - 22.40 Uhr, ARTE TV, Dokumentation, 90 Minuten #ChronischKrank #ChronischIgnoriert #ME #MEcfs #LongCovid #LongLyme #CCI #POTS #SmallFiber #MCAS #CCI #FQToxicity #PostVac #LongList www.prisma.de/tv-programm/...
prisma.de
Chronisch krank, chronisch ignoriert - arte - TV-Programm
Obwohl die Myalgische Enzephalomyelitis, das Chronisches Fatigue-Syndrom (ME/CFS), seit Jahrzehnten als neurologische Erkrankung anerkannt ist, wird sie dennoch von weiten Teilen der Ärzteschaft nach ...
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Pete Caruso @petecaruso.bsky.social · 03/02/2025
A good mask protects you from catching airborne viruses. #wearamask
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Ror Preston @rorpreston.bsky.social · 01/02/2025
This visual shows UK gov funding levels for different diseases over time - analysis by @mediumwhite.bsky.social 💸 It shows how paltry funding for ME has been, especially considering that data from the US suggests the ME disease burden is larger than for the other 3 *combined* 😅 #MECFS #LongCovid
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Dr. Bel @drbelkr.bsky.social · 29/01/2025
90s ME/CFS cognitive behavioural hypothesis: patients falsely believe they're sick = activity avoidance = deconditioning = symptoms CBT & graded exercise therapy: fix false belief & return to activity = reconditioning = recovery BUT they don't work ME/CFS patients ARE sick #MECFS #organicillness
frontiersin.org
Frontiers | CBT and graded exercise therapy studies have proven that ME/CFS and long COVID are physical diseases, yet no one is aware of that
The cognitive behavioral model (CBmodel) (1,2) has dominated the world of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since the 1990s. Accord...
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Thelonevirologist @thelonevirologist.bsky.social · 28/01/2025
SARS-CoV-2 S-protein expression drives syncytia formation in endothelial cells www.nature.com/articles/s41...
nature.com
SARS-CoV-2 S-protein expression drives syncytia formation in endothelial cells - Scientific Reports
Scientific Reports - SARS-CoV-2 S-protein expression drives syncytia formation in endothelial cells
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Pete Caruso @petecaruso.bsky.social · 29/01/2025
The @wecrunchme report shows that #LongCovid has the same disease burden of Type I and Type II diabetes, yet it's considerably underfunded. Download and share "The Future is a Policy Choice" in the drive.google.com/file/d/17fgU...
Figure 4 from the @wecrunchme first report titled "The Future is a Policy Choice".   The figure is titled: "Figure 4: US Disease burden of selected diseases [36].   The left y-axis is titled "DALYS".   The x-axis has the names of selected diseases, Multiple Sclerosis, IBD, Rheumatoid Arthritis, Parkinson's Disease, ME/CFS, Asthma, Kidney Disease, Diabetes, Long COVID".   Inset in the figure, "The estimated disease burden of Long Covid is comparable to diabetes".    Above each disease is a vertical bar that indicates the number of DALYS, with diabetes and Long COVID having the same number of DALYS, which are greater than any other listed disease.
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Pete Caruso @petecaruso.bsky.social · 27/01/2025
“Intensity of the CD45-PET signal correlates robustly with the severity of disease in models of inflammatory lung and bowel diseases”
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María Richardson @diatoma.bsky.social · 25/01/2025
Anybody in the #ME tech/app field looking for an ME and #LongCovid informed (though not #pwME themselves ) full stack web developer to join the team? @rorpreston.bsky.social
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Pete Caruso @petecaruso.bsky.social · 20/01/2025
SF Bay area recruiting controls that have recovered from at least one Covid infection. Help researchers understand controls Vs. Long COVID.
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Rebecca Pompano @pompanolab.bsky.social · 15/01/2025
My whole team is excited to share our preprint with you, on an #OrganOnChip model of T cell-B cell interactions in the human lymph node! This is a model of antibody production starting from naive T cells and B cells, in a 3D microenvironment. #immunoengineering www.biorxiv.org/content/10.1...
Figure from paper. (a)  Immunofluorescence images of human tonsil, showing adjacent zones for T cells and B cells. (b) Schematic of T and B cell differentiation and interaction, leading to IgM production. (c) Schematic of a planar microfluidic chip with three adjacent lanes for cell-laden hydrogel, in which T cells and B cells can be loaded separately or mixed together.
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Binita Kane @binitakane.bsky.social · 15/01/2025
Brilliant again from @theguardian.com Thank you to Darren for bravely sharing his story 🙏🏽
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Hank Green @hankgreen.bsky.social · 12/01/2025
Any chance someone has screenshots of my deleted tweets from last night?
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Pete Caruso @petecaruso.bsky.social · 05/01/2025
#GreatestMEdicalScandal #JohnVsJonVsME
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Pete Caruso @petecaruso.bsky.social · 05/01/2025
#GreatestMEdicalScandal #JohnVsJonVsME
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Maxwell Smith, PhD @maxwellsmith.bsky.social · 02/01/2025
Some rudimentary ethics: if surging respiratory illnesses risk overwhelming hospitals, you ought to take reasonable steps to avoid contributing to the problem. www.theguardian.com/society/2024...
theguardian.com
Surge in flu cases risks overwhelming hospitals in England, says NHS chief
Health service concerned that early ‘flood’ of infections will be made worse by family gatherings at Christmas
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