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Paula

@paula890590.bsky.social
1.3K followers 5.7K following 264 posts

@encephalitisint & @ocdaction supporter/advocate epil volunteer. an OCD Advocate Advocate OCDAdvocate & I support @encephalitisint.bsk..

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Reposted by Paula
Prof Benedict D Michael FRCP PhD @benedictneuro.bsky.social · 29/08/2025
@livuninews.bsky.social @liverpooluni.bsky.social @livuniresearch.bsky.social @liverpoolecho.co.uk @lincneurosci.bsky.social @meningitisnow.bsky.social @thewaltoncentre.bsky.social @nihrarcs.bsky.social @ukhsa.bsky.social
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Prof Benedict D Michael FRCP PhD @benedictneuro.bsky.social · 29/08/2025
After years of campaigning by PATIENT groups & @brainiigroup.bsky.social, the #chickenpox #vaccine is going to be offered on the #NHS. No longer will this only be accessible to those able to afford it. This will save lives from #Brain #Infection #Encephalitis @encephalitisint.bsky.social
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Prof Benedict D Michael FRCP PhD @benedictneuro.bsky.social · 16/09/2025
Tragic fatal case of encephalitis from 'flu. Medical & scientific context from us: www.dailymail.co.uk/health/artic... @brainiigroup.bsky.social @lincneurosci.bsky.social @liverpooluni.bsky.social @livuninews.bsky.social @livuni-ives.bsky.social @abn-info.bsky.social @thewaltoncentre.bsky.social
dailymail.co.uk
Hours after getting flu, little Lorelei succumbed to brain condition
A healthy girl who doted on her cuddly Winnie-the-Pooh bear, Lorelei Cowmeadow seemed 'a bit under the weather' last November. She died a few days later - just before her second birthday.
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Prof Tom Solomon CBE @runningmadprof.bsky.social · 19/01/2026
Honoured to be speaking at the launch of the new @fphuk.bsky.social Pandemic Preparedness & Response SIG with such an exceptional panel of colleagues. Book your place on the link below. www.fph.org.uk/events-courses-exams/launch-of-the-pandemic-preparedness-and-response-sig/ #pandemicpreparedness
fph.org.uk
Launch of the Pandemic Preparedness and Response SIG
Launch event for the Pandemic Preparedness and Response SIG with high profile speakers from across the UK, setting out their views for the big questions in this space.
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OCD-UK @ocdukcharity.bsky.social · 13/01/2026
Join Us for the next Teen's (12-17) Online Support Group! You can register for the upcoming online support group happening this week on Thursday 15th January. The group will be led by Mia and Laura. Remember to sign up for Zoom! 😊 www.ocduk.org/support-groups/online…
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Human Rights Campaign @hrc.org · 13/01/2026
Let’s be clear: Young trans people play school sports for the same reason as anyone: to make friends, have fun, and challenge themselves through practice and teamwork.
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Human Rights Campaign @hrc.org · 13/01/2026
Everyone needs to speak up, confront the lies, reject the scapegoating of transgender people, and loudly support trans youth. Start by sending a comment to HHS to demand access to care without government overreach: hrc.im/Comment
hrc.im
Submit Public Comments
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Child Brain Injury Trust UK @cbituk.bsky.social · 13/01/2026
Our workshops equip professionals with practical knowledge, real-world examples, and a deeper understanding of how ABI affects attention, executive function, emotional regulation, and learning. 🔗 Book your place now: buff.ly/zO9syVP These workshops are kindly funded by @edendoratrust.bsky.social 💙
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Prof Tom Solomon CBE @runningmadprof.bsky.social · 13/01/2026
Encephalitis International are inviting clinicians and healthcare professionals to complete a short survey to help review and improve patient information resources for autoimmune encephalitis. Can you help? ls.uc.pt/index.php/65... #encephalitis @encephalitisint.bsky.social
ls.uc.pt
Your opinion about the leaflet “What is Autoimmune Encephalitis?” — healthcare professionals
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EpilepsyExplained.com @epilepsyexplained.com · 21/12/2025
New on EpilepsyExplained: The National Plan for Epilepsy Act (S. 494) in plain English. What it does and why it matters for families. Also added a simple “contact your reps” section with copy-paste scripts so you can help. 💜 #Epilepsy #EpilepsyAwareness #Seizures #Disability #HealthPolicy
epilepsyexplained.com
National Plan for Epilepsy Act (S. 494): Plain-English Summary - Epilepsy Explained 💜
National Plan for Epilepsy Act (S. 494): What It Means in Plain English Epilepsy affects millions of people in the U.S., yet research, care, and data are still fragmented across many federal agencies....
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University of Liverpool @liverpooluni.bsky.social · 10/11/2025
1 in 5 people are experiencing pain, and in the UK over 34% of adults regularly experience chronic pain. @benedictneuro.bsky.social and Prof. Michelle Briggs @lincneurosci.bsky.social discuss on the latest episode of Original Ideas 🧠💡🎙️▶️ liverpool.ac.uk/research/original-ideas/neuroscienceandpain/
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Brain Infection & Inflammation Group @brainiigroup.bsky.social · 20/11/2025
James O'Reilly, a sixth form student and aspiring medical student, joined us on a work placement. He gained experience of clinical practice with @benedictneuro.bsky.social as well as lab skills with @immunecord.bsky.social. Read his blog: tinyurl.com/4usrzdvc @lincneurosci.bsky.social
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LINC @lincneurosci.bsky.social · 21/11/2025
💫 LINC Synapse Award: ‘How do signals from brain tumour disrupt brain activity?’💫 a project linking neuro-inflammation with neuro-oncology. Congratulations to ECRs @clairehetherington.bsky.social & Ali Bakhsh @thewaltoncentre.bsky.social ➡️ www.liverpool.ac.uk/liverpool-in...
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Prof Benedict D Michael FRCP PhD @benedictneuro.bsky.social · 03/12/2025
Fantastic to be chairing another sell out @encephalitisint.bsky.social conference! >500 people from 78 countries! THE go to conference for clinicians, academics and policy makers! @brainiigroup.bsky.social @lincneurosci.bsky.social @liverpooluni.bsky.social
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Brain Infection & Inflammation Group @brainiigroup.bsky.social · 05/12/2025
Thrilled to have our team highlighting important advances in #encephalitis, #braininfection and #neuroinflammation at the @encephalitisint.bsky.social International Conference 🧠🌍 @benedictneuro.bsky.social @immunecord.bsky.social @sarahaimeeb.bsky.social @clairehetherington.bsky.social
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LINC @lincneurosci.bsky.social · 15/12/2025
"Liverpool City Region is emerging as a powerhouse for health and life sciences" LINC's Director @benedictneuro.bsky.social joined other senior leaders from the life sciences sector at a recent North West Business Insider Roundtable ➡️ www.insidermedia.com/roundtables/...
insidermedia.com
Liverpool City Region Life Sciences Roundtable 2025
Discover how Liverpool City Region is emerging as a powerhouse for health and life sciences. Read the coverage of the roundtable, where industry leaders, investors and policymakers explored…
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LINC @lincneurosci.bsky.social · 19/12/2025
We closed the year with an interdisciplinary Epilepsy Workshop Thanks to everyone who joined, especially Rosemarie Pardington from @epilepsyinst.bsky.social, & Rebekah Smith from Epilepsy Action for insight on patient perspectives & priorities .
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LINC @lincneurosci.bsky.social · 06/01/2026
As the vaccine against chickenpox is added to the MMR jab in 2026, Roman's story highlights why we urge parents to protect their children. Professor @benedictneuro.bsky.social contributed to today's article in @dailymail.co.uk Full story: www.dailymail.co.uk/health/artic...
dailymail.co.uk
The chickenpox complication that left Roman in a wheelchair aged four
Sociable, confident and football-mad, Roman settled in quickly when he started in reception at primary school. But all this changed after Roman contracted chickenpox, aged four, in 2022.
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Our Common Defense @ourcommondefense.bsky.social · 05/01/2026
Before the measles vaccine in 1963, measles killed 400–500 Americans each year and millions worldwide. It caused 48,000 U.S. hospitalizations and 4,000 cases of encephalitis annually—often leading to severe or permanent brain damage.
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Eden Dora Trust @edendoratrust.bsky.social · 09/01/2026
We’re incredibly grateful to Brain Injury Group for choosing us as a charity partner at their conference next week💙 We can't wait to see everyone😀 This support means so much to us, not only to raise vital funds, but also to spread awareness #ABI #Encephalitis #ThankYou #CharityPartner
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London School of Hygiene & Tropical Medicine @lshtm.bsky.social · 09/01/2026
Transforming #GlobalHealth ecosystem for a healthier world Peter Piot co-authors piece in @thinkglobalhealth.org discussing maintaining progress on global health & addressing funding cuts amid disease outbreaks, demographic shifts & climate stress. www.thinkglobalhealth.org/article/tran...
thinkglobalhealth.org
Transforming the Global Health Ecosystem for a Healthier World in 2026 | Think Global Health
African health and finance officials, along with the former executive director of UNAIDS, offer 10 considerations for global health reform initiatives
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Society for Acute Medicine @acutemedicine.bsky.social · 06/01/2026
Neurology in the Acute Take Head injury pathways, headache diagnostics, and encephalitis guidelines — three vital topics, three expert speakers. Be part of the discussion on 6 Feb 2026. Register www.eventsforce.net/eventage/277... #Neurology #AcuteMedicine #FOAMed
eventsforce.net
The Society for Acute Medicine and Fellowship of Postgraduate Medicine Joint Meeting
The Society for Acute Medicine (SAM) and the Fellowship of Postgraduate Medicine (FPM) will co-host a joint one-day conference, The Acute Medical Take: Tackling Difficult Cases. This focused conference brings together leading clinicians to address complex challenges in acute medical care across four key specialties: cardiology, neurology, respiratory, and toxicology. The programme features expert-led, case-based sessions on pressing topics such as cardiovascular emergencies in pregnancy, decision-making in head injury, acute respiratory failure, and substance misuse in the acute setting. Attendees will benefit from high-level clinical insights, practical decision-making guidance, and opportunities to engage with experts and peers. This conference promises to be a high-impact learning event for all clinicians involved in acute care. We look forward to seeing you in London on 6 February 2026!
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EpilepsyExplained.com @epilepsyexplained.com · 06/01/2026
Learn about the risks of epilepsy after post-viral encephalitis and find effective management strategies to stay healthy. #EpilepsyExplained #Epilepsy 💜.
epilepsyexplained.com
Understanding Post-Viral Encephalitis Epilepsy Risks and Management - Epilepsy Explained 💜
Discover the Post-Viral Encephalitis Epilepsy Risks and learn effective management strategies to protect your health after a viral infection.
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Science X / Phys.org @sciencex.bsky.social · 06/01/2026
Pteropine orthoreoviruses, bat-borne viruses, have been identified as the cause of acute respiratory illness and encephalitis in patients in Bangladesh linked to raw date-palm sap consumption.
medicalxpress.com
Bats identified as origin of unexplained acute respiratory illness and encephalitis in Bangladesh
Infectious disease researchers have identified Pteropine orthoreoviruses (PRVs), a group of newly emergent bat-borne viruses, as the culprit for previously unexplained illness in five Bangladeshi patients, one of whom eventually died with unexplained illness.
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Institute of Infection, Veterinary and Ecological Sciences @livuni-ives.bsky.social · 08/01/2026
Congratulations to Dr Ava Easton, Chief Executive of Encephalitis International (@encephalitisint.bsky.social) and Honorary Senior Fellow, who has been awarded an MBE in the King’s New Year Honours List for services to people affected by encephalitis. 🔗 bit.ly/49dFjuw #TeamLivUni
A navy blue social card that reads 'New Year Honours for Dr Ava Easton' in white text with Dr Ava Easton pictured in the top right.
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Sarah of Cleveland @sb68a.bsky.social · 08/01/2026
Please vaccinate your children. #NEOhio #measles A child can recover from measles and seven to 10 years later, develop encephalitis, which is an inflammation of the brain that can be deadly. baynews9.com/fl/tampa/new...
baynews9.com
Measles outbreak reaches northeast Ohio
Cuyahoga County confirmed one case, presumed two cases of measles.
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Prof Tom Solomon CBE @runningmadprof.bsky.social · 08/01/2026
Our sincere thanks to the hospitals, clinicians, researchers, and patients who contributed data to this study - an international, collaborative effort! #encephalitis #healthresearch #neurology
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Brain Infection & Inflammation Group @brainiigroup.bsky.social · 08/01/2026
New paper out! Over 1300 patients from 13 countries were analysed using the SEIZURE (SEIZUre Risk in Encephalitis) score to identify those at greatest risk of acute seizures on a global scale. Read the full article: tinyurl.com/4ntypyky @encephalitisint.bsky.social @lincneurosci.bsky.social
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Animal Disease Insights @diseaseinsights.bsky.social · 09/01/2026
Japanese encephalitis update Read more: animaldiseaseinsights.com/japanese-… Follow for daily updates. Share to spread awareness. #AnimalHealth #DiseaseOutbreak #OneHealth
Stock news image
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Society for Acute Medicine @acutemedicine.bsky.social · 09/01/2026
Neurology in the Acute Take Head injury pathways, headache diagnostics, and encephalitis guidelines — three vital topics, three expert speakers. Be part of the discussion on 6 Feb 2026. Register www.eventsforce.net/eventage/277... #Neurology #AcuteMedicine #FOAMed
eventsforce.net
The Society for Acute Medicine and Fellowship of Postgraduate Medicine Joint Meeting
The Society for Acute Medicine (SAM) and the Fellowship of Postgraduate Medicine (FPM) will co-host a joint one-day conference, The Acute Medical Take: Tackling Difficult Cases. This focused conference brings together leading clinicians to address complex challenges in acute medical care across four key specialties: cardiology, neurology, respiratory, and toxicology. The programme features expert-led, case-based sessions on pressing topics such as cardiovascular emergencies in pregnancy, decision-making in head injury, acute respiratory failure, and substance misuse in the acute setting. Attendees will benefit from high-level clinical insights, practical decision-making guidance, and opportunities to engage with experts and peers. This conference promises to be a high-impact learning event for all clinicians involved in acute care. We look forward to seeing you in London on 6 February 2026!
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Child Brain Injury Trust UK @cbituk.bsky.social · 26/12/2025
Wishing you a gentle + restful Boxing Day. For many families living with childhood-acquired brain injury, today is about rest, recovery and choosing what feels manageable. To all families living with childhood-acquired brain injury, we are thinking of you and hoping the day brings calm and comfort.
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American Brain Foundation @abfbrain.bsky.social · 26/12/2025
Brain diseases can strike without warning, and they can change life substantially. Our best hope is to invest in research to find better treatments, preventions, and cures. You can help keep research moving forward ➡️ buff.ly/mppVYyc 💓
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🐧 april Ⓥ 🌱 @harmlesslife.bsky.social · 26/12/2025
Tonight’s #NotAloneTalk will be hosted by @mspclashman.bsky.social. Search the # or check his profile (refresh regularly) from 8pm UK It’s a daily chat run by volunteers to help us feel less lonely & everyone’s welcome 🥰 Anyone know if #JoinIn is continuing over the next week as in previous years?
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Rhiannon 🌼 @missunderstood89.bsky.social · 24/12/2025
How well do you know your Christmas films? Answers will be posted at the end of the chat! #NotAloneTalk
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Paula @paula890590.bsky.social · 03/12/2025
www.instagram.com/p/DRxcmKZljQ...
instagram.com
Encephalitis International on Instagram: "💙 #GivingTuesday – Every Act of Giving Matters #GivingTuesday is a global movement all about giving back — through kindness, support, compassion, and communi...
14 likes, 0 comments - encephalitisinternational on December 2, 2025: "💙 #GivingTuesday – Every Act of Giving Matters #GivingTuesday is a global movement all about giving back — through kindness, sup...
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Eden Dora Trust @edendoratrust.bsky.social · 01/12/2025
✨ Our Christmas Appeal is LIVE! ✨🎄 “When our child got Encephalitis, our world turned upside down, EDT was there for us, I don't know how we'd have coped without them.” You can help us reach more families like theirs Please support our Christmas Appeal🎄💙 www.justgiving.com/campaign/edt...
justgiving.com
Building Brighter Days – Christmas Appeal for Eden Dora Trust
Support our Building Brighter Days Christmas Appeal and help children and families living Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future, ens...
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Child Brain Injury Trust UK @cbituk.bsky.social · 30/11/2025
Giving Tuesday is the global day of generosity when communities come together to support causes they care about. Every gift helps provide therapy, counselling, information packs, and guidance for families navigating the challenges of acquired brain injury. buff.ly/lQVC7Gz
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Paula @paula890590.bsky.social · 27/11/2025
www.epilepsy.org.uk/news/free-ch...
epilepsy.org.uk
Free children’s books ‘My mum has epilepsy’ and ‘My dad has epilepsy’ updated - Epilepsy Action
Epilepsy Action’s books for children have received an update in story and illustration and are now available to order or download for free.
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American Epilepsy Society @amepilepsysoc.bsky.social · 24/11/2025
A gift to AES during #epilepsyawareness month helps to fuel discovery, advance care, and inspire hope for people with epilepsy and their families. Donate today to fund critical #epilepsyresearch: aesnet.org/give/give #epilepsy #neurology
aesnet.org
Make a Gift
Your gift helps us expand the epilepsy knowledge base and provide grants/fellowships that attract scientists and clinicians to the epilepsy field.
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Child Brain Injury Trust UK @cbituk.bsky.social · 25/11/2025
Just 1 week until Giving Tuesday! 💜 From hospital stays to rehabilitation, every milestone — like placing the star on the Christmas tree — is made possible through guidance, care, and generosity. Your support on 2nd December can help families thrive. 💛 🌐 Donate now: buff.ly/lQVC7Gz
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The Pandemic Institute @thepandemicinst.bsky.social · 21/11/2025
We recently funded 'Mpox: What’s Your Story' which brings together @lstmnews.bsky.social, @wowfest.bsky.social, @sahirhouse.bsky.social & @lpoolcouncil.bsky.social Public Health to use community storytelling to raise Mpox awareness & tackle stigma: www.thepandemicinstitute.org/news/creativ...
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Child Brain Injury Trust UK @cbituk.bsky.social · 21/11/2025
Every child’s journey with acquired brain injury is different; some may face challenges with memory, learning, or behaviour, while others might experience physical or emotional changes. Together, we can navigate this journey, one step at a time. Because every child deserves the chance to thrive.
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Prof Tom Solomon CBE @runningmadprof.bsky.social · 21/11/2025
Research built the NHS and without protected time, proper pathways, and real accountability, we risk dismantling the very engine that drives better care. www.linkedin.com/pulse/why-re... #NHS #AOMRC #ClinicalResearch #HealthResearch
linkedin.com
Why research must stay at the heart of the NHS
When I was a medical student in Mozambique studying hypoglycaemia in children with malaria, I saw how every sample and observation could make a difference. That experience set me on a path investigati...
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The BIS Services @thebisservices.bsky.social · 20/11/2025
Fascinating start to the day at #CCM2025 Tackling challenging topics in #BrainInjurySupport @abisolutions.bsky.social #ABI #CaseManagement
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Lucy 🌘✨🍃🌷🌖 @enoughofthis4.bsky.social · 19/11/2025
Speaking of avoidance, I've been struggling a lot lately with just not wanting to be around people. I'm in danger of turning into a misanthrope. This is a long-standing tendency, exacerbated greatly by OCD. Does anyone else find OCD dims your desire to be around people? #OCDTalkHour
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Lucy 🌘✨🍃🌷🌖 @enoughofthis4.bsky.social · 19/11/2025
Besides familiarity with OCD, what other traits to look for in a therapist? Also has anyone ever done existential therapy? Apparently, it's about finding meaning in life, and it sounds interesting. So far, the only therapist I've seen offering it doesn't take my insurance 😠 #OCDTalkHour
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Child Brain Injury Trust UK @cbituk.bsky.social · 15/11/2025
“But we don’t have any children with a brain injury in our school…” 📚 The truth is, you might. Even if you can’t see it. Our dedicated ABI coordinators help schools recognise and support these hidden needs. And together, we can make sure no child is left behind. 🙏 Learn more at buff.ly/9XQEPaL
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eerie dickgirl @eigenvectrix.northsky.social · 11/11/2025
I think it’d be helpful for more leftists to know about moral OCD because I suspect that the things that make us leftists lend themselves to both a greater incidence of moral OCD, greater severity, and less ability to know you have it even from the same baseline of self awareness
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Brain Ablaze @brainablaze.bsky.social · 09/10/2025
While diagnosis of #epilepsy is common in children, it is NOT just a childhood disease. It can affect anyone of any age. #EpilepsyAwareness
In a black-and-white world, a mature woman holds a kid in her lap. Both are smiling to the camera while wearing purple dresses.
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Brain Ablaze @brainablaze.bsky.social · 17/10/2025
We often see comments on dashcam videos blaming the crash on a seizure, but the percentage of accidents caused by #epilepsy is dwarfed by drunk, distracted, or drowsy driving. Unfair assumptions fuel stigma and distract from the real biggest threats on the road. #EpilepsyAwareness
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