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Eden Dora Trust

@edendoratrust.bsky.social
49 followers 55 following 70 posts

Helping children & families affected by childhood Encephalitis & Acquired Brain Injury, feel less misunderstood & alone, through dedicated support, research & more. For more info: Www.edendoratrust.org

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Reposted by Eden Dora Trust
Child Brain Injury Trust UK @cbituk.bsky.social · 02/09/2026
Join us online on Tuesday 29 September, from 9.15am–4pm, for our free, accredited Understanding Childhood Acquired Brain Injury workshop. We’re incredibly grateful to @edendoratrust.bsky.social, whose generous funding allows us to offer this workshop completely free of charge: buff.ly/yCgMRXd
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Eden Dora Trust @edendoratrust.bsky.social · 18/05/2026
We are now in full planning mode for the exciting return of our winter ball this year at Cutlers Hall, Sheffield🎉 It's set to be a night of unforgettable moments, celebrating & bringing together the incredible community that supports our work💙 Find out more: edendoratrust.org/winter-ball-...
edendoratrust.org
Eden Dora Trust Winter Ball 2026 | Eden Dora Trust
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Reposted by Eden Dora Trust
Child Brain Injury Trust UK @cbituk.bsky.social · 04/05/2026
When professionals are equipped with the right knowledge, they are better able to recognise the signs of ABI, respond with confidence, and put the right support in place early. Our workshops are kindly funded by @edendoratrust.bsky.social. Learn more and book a space here: buff.ly/VatfFbs
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Eden Dora Trust @edendoratrust.bsky.social · 04/05/2026
It's not too late if you'd like to join our 50 miles in May challenge💙 This is YOUR 50 miles for EDT-do it your way! 🫶 Run, hop, skip, wheel, swim - or mix of all 🏃‍♀️🤸🏻‍♀️👨‍🦽‍➡️🏊‍♂️ edendoratrust.org/50-miles-in-... Huge thanks as always for everyone that has already signed up #Encephalitis #ABI #50Miles4EDT
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Eden Dora Trust @edendoratrust.bsky.social · 24/03/2026
💙We need your help 🧠 Have you/your child had Encephalitis? We’re carrying out important research & need your lived experience - your voice can make a difference!📢 ⏰ It only takes a few mins - get involved today & help shape real change 📩 Email: contact@edendoratrust.org Thank you #Encephalitis #ABI
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Reposted by Eden Dora Trust
National Acquired Brain Injury In Learning & Education Syndicate @n-ables.bsky.social · 24/03/2026
Following the publication of the government’s consultation on SEND reform, @ukabif.bsky.social has called for a commitment to ensure every school can meet the needs of children and young people with acquired brain injury (ABI). 🔗 Read the full article here: www.educatemagazine.com/send-reforms...
educatemagazine.com
SEND reforms must help young people with acquired brain injuries - Educate magazine
The UK Acquired Brain Injury Form calls for a commitment to ensure every school can meet the needs of young people with acquired brain injury.
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Eden Dora Trust @edendoratrust.bsky.social · 24/03/2026
Proud to support @cbituk.bsky.social by funding all the ‘UCABI’ workshops, with all attendees taking part at no additional cost to themselves 🧠 Ensuring everyone can become more informed about ABI & a YP’s needs after an ABI, enabling correct support for all 🙏 #ABI #Encephalitis #childhoodABI
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Eden Dora Trust @edendoratrust.bsky.social · 22/02/2026
Thank you so much @cbituk.bsky.social for your birthday wishes 🫶 We love our relationship with you. Making a difference together is key 💙 #ABI #Encephalitis #ChildhoodEncephalitis #WorldEncephalitisDay #edtbirthday #12years #collaboration #TeamWork
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Reposted by Eden Dora Trust
Child Brain Injury Trust UK @cbituk.bsky.social · 18/02/2026
Join our free, CPD-accredited Understanding Childhood Acquired Brain Injury (UCABI) workshops! 💙 Free to attend, thanks to the generous funding of @edendoratrust.bsky.social Learn more and secure your space now: buff.ly/tXJJ2C4
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Eden Dora Trust @edendoratrust.bsky.social · 09/01/2026
We’re incredibly grateful to Brain Injury Group for choosing us as a charity partner at their conference next week💙 We can't wait to see everyone😀 This support means so much to us, not only to raise vital funds, but also to spread awareness #ABI #Encephalitis #ThankYou #CharityPartner
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Eden Dora Trust @edendoratrust.bsky.social · 02/01/2026
Learning about childhood ABI is vital to ensure YP receive the best support, care & future - we know this 1st hand! We’re so proud that this is just 1 of the things we are able to do as a charity, because of YOU our fantastic supporters Thank you, we couldn’t do it without you💙 #ABI #Encephalitis
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Eden Dora Trust @edendoratrust.bsky.social · 30/12/2025
There's still time to support us with our appeal, any donation you’re able to give will do so much to ensure children affected by #Encephalitis and #ABI have the support they need when they need it 💙 Thank you, every single penny WILL make a difference! www.justgiving.com/campaign/edt...
justgiving.com
Building Brighter Days – Christmas Appeal for Eden Dora Trust
Support our Building Brighter Days Christmas Appeal and help children and families affected by Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future...
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Eden Dora Trust @edendoratrust.bsky.social · 19/12/2025
Thank you to all our supporters, families, and companies who make our work possible. Your generosity & support helps children and families affected by encephalitis and acquired brain injuries. We couldn’t do it without you 💙 Merry Christmas from all at Eden Dora Trust 🎄
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Reposted by Eden Dora Trust
Child Brain Injury Trust UK @cbituk.bsky.social · 14/12/2025
Through CPD workshops + tailored sessions, we share practical tools, real experiences + evidence-based strategies. Our Understanding Childhood Acquired Brain Injury Workshop equips professionals with insight and practical tools. We are grateful to the @edendoratrust.bsky.social for funding these.
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Reposted by Eden Dora Trust
Child Brain Injury Trust UK @cbituk.bsky.social · 15/12/2025
A huge thank you to everyone who joined our recent Understanding Childhood Acquired Brain Injury workshop at Bolt Burdon and Kemp in London. These workshops are kindly funded by @edendoratrust.bsky.social, whose generosity makes it possible for professionals across the UK to access them for free!
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Eden Dora Trust @edendoratrust.bsky.social · 11/12/2025
We had a great day recording this podcast with The Brain Injury Group, discussing all things Eden Dora Trust, how we got here & why we do what we do, thank you B.I.G!💙 Please have a listen here 👇 open.spotify.com/show/1dwrExT... #Encephalitis #ABI #Teamwork #Collaboration
open.spotify.com
Charity Partner Spotlight - The Eden Dora Trust
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Eden Dora Trust @edendoratrust.bsky.social · 08/12/2025
We're so proud to fund the vital 'UCABI' workshops, making it free for anyone working with a child that has an ABI to attend 💙 Huge thanks to @cbituk.bsky.social for running this incredible workshop, we know 1st hand how important this workshop and ABI training is! 🫶 #Encephalitis #ABI #Teamwork
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Eden Dora Trust @edendoratrust.bsky.social · 04/12/2025
Festive Fundraising Challenge 🎄 Take on a xmas challenge & help us support families affected by Encephalitis & ABI You could do a - 🎅 Santa run 🧦 Jumper challenge 🍰 Festive bake sale or anything you'd like! Start your fundraiser here 👉 www.justgiving.com/campaign/edt... Thank you 🫶
justgiving.com
Building Brighter Days – Christmas Appeal for Eden Dora Trust
Support our Building Brighter Days Christmas Appeal and help children and families affected by Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future...
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Eden Dora Trust @edendoratrust.bsky.social · 01/12/2025
✨ Our Christmas Appeal is LIVE! ✨🎄 “When our child got Encephalitis, our world turned upside down, EDT was there for us, I don't know how we'd have coped without them.” You can help us reach more families like theirs Please support our Christmas Appeal🎄💙 www.justgiving.com/campaign/edt...
justgiving.com
Building Brighter Days – Christmas Appeal for Eden Dora Trust
Support our Building Brighter Days Christmas Appeal and help children and families living Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future, ens...
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Eden Dora Trust @edendoratrust.bsky.social · 18/11/2025
🎄✨ Skipping the Christmas Cards This Year? ✨🎄 If you’re thinking about sending fewer Christmas cards - Pls consider supporting our charity instead 💙 Help us to continue supporting children living with the effects of childhood Encephalitis & ABI. 🧠 Thank you 🎅🎄💙 #Encephalitis #ABI
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Eden Dora Trust @edendoratrust.bsky.social · 13/11/2025
The fabulous team we work with @nables.bsky.social have a new resource: An editable ABI Passport, designed by our incredible Young Experts By Experience in ABI A way to emphasise the YP's voice & help teachers understand more about their specific ABI #ABI #Encephalitis ukabif.org.uk/page/NABLESA...
ukabif.org.uk
NABLES Patient Passport - United Kingdom Acquired Brain Injury Forum
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Reposted by Eden Dora Trust
National Acquired Brain Injury In Learning & Education Syndicate @n-ables.bsky.social · 05/11/2025
"We need to bring the best of the NHS, to the rest of the NHS" At the #UKABIFSummit2025, Ashley Dalton, MP and Under-Secretary of State for Public Health and Prevention DHSC delivered an outstanding presentation. Listening to her motivational stories was truly inspiring! (1/2)
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Reposted by Eden Dora Trust
National Acquired Brain Injury In Learning & Education Syndicate @n-ables.bsky.social · 06/11/2025
Dr. Hope Kent delivered an exceptional talk at the @ukabif.bsky.social #Summit2025. She shared her ongoing research, highlighting the lack of SEN support for young people with #ABI, as they aren't listed on the school census. #BrainInjuryAwareness #EducationMatters #Inclusivity
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Reposted by Eden Dora Trust
National Acquired Brain Injury In Learning & Education Syndicate @n-ables.bsky.social · 12/11/2025
On #AntiBullyingWeek, it's vital to highlight the importance of creating nurturing, respectful environments, particularly in schools. If you have a student with an #AcquiredBrainInjury (ABI), understanding and empathy are crucial! 🔗 More information:
ukabif.org.uk
National Acquired Brain Injury In Learning And Education Syndicate help make educators aware of abi
The National ABI Education and Learning Syndicate (N-ABLES) was set up to identify ways to support all education professionals in gaining a minimum level of awareness and understanding about acquired…
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Reposted by Eden Dora Trust
National Acquired Brain Injury In Learning & Education Syndicate @n-ables.bsky.social · 13/11/2025
"Teachers have the professional skills to support these children, but don’t have the knowledge... there is a lack of consistent training for #ABI" Joanna Woodhouse from N-ABLES shared insights from the Educators' Perspective at the #UKABIFSummit2025 symposium.
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Eden Dora Trust @edendoratrust.bsky.social · 05/11/2025
So many incredible, passionate people wanting to make a difference @ukabif.bsky.social summit & @n-ables.bsky.social speakers were amazing. So proud (bursting!) of our very own young expert by experience (Eden 🌟) speaking with Baroness Estelle Morris🧠 The day really was superb 💙 #ABI #Encephalitis
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Reposted by Eden Dora Trust
National Acquired Brain Injury In Learning & Education Syndicate @n-ables.bsky.social · 28/10/2025
📧 Join our mailing list! 🔗 Subscribe for regular updates about our resources and upcoming events by clicking on the following link buff.ly/mvMZSSk or email us at: NABLES@UKABIF.org.uk. Thank you for your continued support! #BrainInjuryAwareness #EducationMatters
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Eden Dora Trust @edendoratrust.bsky.social · 27/10/2025
🧠TOPS-UK supports young people (13–19) with an ABI to manage everyday challenges Struggling with planning, organisation, or feeling overwhelmed? 💡 Learn simple strategies 📱Online & accessible (with coach support) 🌐tops-uk.org 📧topsuk@exeter.ac.uk #ABI #Encephalitis
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Eden Dora Trust @edendoratrust.bsky.social · 24/10/2025
Half term is approaching, with lots of activities planned 🎃 We understand that for some families of children after Encephalitis & with an ABI, school holidays can be a tough time 🫶 We are here to support you via our helpline, email, or through our online resources 💙 #ABI #encephalitis #halfterm
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Eden Dora Trust @edendoratrust.bsky.social · 18/10/2025
Incredible opportunity for someone to take advantage of our NEW funded 3 year PhD project🧠 👉 www.exeter.ac.uk/study/fundin... Please get in touch if you/candidates have questions #Encephalitis #ABI @annaadlam.bsky.social @emilytalbot.bsky.social
exeter.ac.uk
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Reposted by Eden Dora Trust
National Acquired Brain Injury In Learning & Education Syndicate @n-ables.bsky.social · 06/10/2025
Last chance to sign-up to our @twinklresources.bsky.social Teachmeet tomorrow. The key areas of focus include... 📚 Inclusion 🧠 Fatigue Management 🌟 Peers and Participation 🔗 Sign-up here: www.eventbrite.co.uk/e/improve-in...
eventbrite.co.uk
Improve Inclusion, Attendance and Engagement for Pupils with an ABI
Create a brain injury-aware school to boost inclusion, attendance & engagement for students with acquired brain injuries (ABI).
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Eden Dora Trust @edendoratrust.bsky.social · 09/09/2025
We know 1st hand just how important it is to understand a young person with an ABI & how helpful, informative & necessary the 'UCABI' workshop is🧠 Which is why we fund it completely, so ANYONE working with a child that has an ABI can attend at no cost to themselves! Link below 💙 #ABI #Encephalitis
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Eden Dora Trust @edendoratrust.bsky.social · 07/09/2025
Thank you to all the amazing people who chose to take part in the Great North Run for us today. You are amazing & we couldn’t do what we do with out you! Thank you 💙 #ABB #encephalitis #support #marathon #GreatNorthRun
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Eden Dora Trust @edendoratrust.bsky.social · 04/09/2025
Please help us while you shop...👇🏼 Sign up to @easyfundraising.bsky.social & when you shop online, they’ll donate to us👏 It's free & your shopping won't cost you any extra - the retailers you shop with will donate, not you! join.easyfundraising.org.uk/theedendorat...
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Eden Dora Trust @edendoratrust.bsky.social · 12/08/2025
*** LONDON MARATHON 2026 PLACE AVAILABLE*** Would you like to run the @LondonMarathon '26 We have 1 place left - register interest here 👉 edendoratrust.org/london-marat... Do something legendary & apply to be part of #TeamEdenDoraTrust 💙 Please Share 🤗 #londonmarathon #Run4EDT #Encephalitis #ABI
edendoratrust.org
Run the London Marathon for EDT | Eden Dora Trust
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Eden Dora Trust @edendoratrust.bsky.social · 23/07/2025
Would you like to run the @londonmarathon.bsky.social 2026🏃🏃‍♀️ We have one place left - register your interest here 👇 edendoratrust.org/london-marat... Do something legendary this year and apply to be part of #TeamEdenDoraTrust 💪💙 Please Share 🙏 #londonmarathon #Run4EDT #Encephalitis #ABI
edendoratrust.org
Run the London Marathon for EDT | Eden Dora Trust
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Eden Dora Trust @edendoratrust.bsky.social · 21/07/2025
Most schools have now broken up for the summer, however school holidays can be a challenging time for families when a young person's routine changes. We understand how difficult it can be 💙 We also have some key tips that may help during the school holidays #ABI #encephalitis
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Eden Dora Trust @edendoratrust.bsky.social · 19/07/2025
What a great day at the Parliamentary reception for ABI. 4 amazing young people spoke on behalf of @nables.bsky.social So brave, insightful & giving. The only way to make the right change is to listen to the experts by experience💙 #YEBEABI #ABI #Encephalitis #TimeForChange @ukabif.bsky.social
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Eden Dora Trust @edendoratrust.bsky.social · 16/07/2025
Really looking forward to attending the @ukabif.bsky.social ABI Parliamentary APPG Reception at Portcullis House this afternoon 🧠 I’ll be wearing many hats today,CEO of @edendoratrust.bsky.social , as Mummy to Eden & as part of the steering committee for @nables.bsky.social #ABI #Encephalitis
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Eden Dora Trust @edendoratrust.bsky.social · 12/07/2025
Great catch up with one of our amazing Patrons @djwilliamsact whilst he’s on tour with the fantastic @thelastlaughplay (an amazing show that we definitely recommend seeing if you get chance!) catching up with all things EDT 💙 Thank you Damian for all your continued support! ❤️💙 #encephalitis #ABI
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Eden Dora Trust @edendoratrust.bsky.social · 26/06/2025
We are so proud to share some pictures we received from some of our amazing supporters that took on our #50MilesinMay challenge! Raising vital funds & awareness, allowing us to continue being a lifeline for children & families across the UK - THANK YOU! 💙🧠 #Encephalitis #ABI #50Miles4EDT #Support
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Reposted by Eden Dora Trust
National Acquired Brain Injury In Learning & Education Syndicate @n-ables.bsky.social · 24/06/2025
The wonderful Jo Woodhouse will represent N-ABLES at the Northern Acquired Brain Injury Conference to deliver an update on N-ABLES and discuss the responsibilities of a SENCO in supporting children and young people with #AcquiredBrainInjuries Stay tuned to our accounts for an update!
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Eden Dora Trust @edendoratrust.bsky.social · 23/06/2025
Got a TCS @londonmarathon.bsky.social '26 ballot place? It would mean the world if you ran for us! As a small charity, every supporter makes a HUGE difference💙🏃🏼‍♀️🏃🏼‍♂️ If you didn't get a ballot place, applications are still open for our EDT LM26 place! 👉 edendoratrust.org/london-marat... Thank you💙
edendoratrust.org
Run the London Marathon for EDT | Eden Dora Trust
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Eden Dora Trust @edendoratrust.bsky.social · 10/06/2025
Places available for the ‘#UCABI’ workshop on 26/6 🧠 This workshop is vital if you are professionally supporting a young person with an Acquired Brain Injury! We are so proud to fund the workshop, enabling any professional to attend for free! #ABI #encephalitis #teamwork #makingadifference
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Eden Dora Trust @edendoratrust.bsky.social · 10/06/2025
Wanting to take part in the London Marathon in 2026?🏃‍♂️ Wanting to run for Eden Dora Trust? 🏅 We have one place left 🥳! Please register your interest NOW 👇 edendoratrust.org/london-marat... Good Luck 👏🤞 #ABI #Encephalitis #londonmarathon #Run4EDT #Support #Marathon
edendoratrust.org
Run the London Marathon for EDT | Eden Dora Trust
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Eden Dora Trust @edendoratrust.bsky.social · 02/06/2025
Thank you so much to GallifordTry & @cardfactory.bsky.social for your generous and continued support, as a small charity the support of businesses makes such a huge difference for us in continuing the work we do 🌟💙 #ABI #Encephalitis #support
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Eden Dora Trust @edendoratrust.bsky.social · 23/05/2025
Today for the final day of Action for Brain Injury Week 2025, we’re sharing some more of the achievements that make a “Good Day” when living with a brain injury. We think this will resonate with so many! 💙 #ActionForBrainInjuryWeek #ABIWeek #Encephalitis #BrainInjury #ABI
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Eden Dora Trust @edendoratrust.bsky.social · 21/05/2025
Some more of the achievements that make a “Good Day” when living with a brain injury, this Action for Brain Injury Week 2025 💙 #ABIWeek #ActionForBrainInjuryWeek #BrainInjury #Encephalitis #ABI
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Eden Dora Trust @edendoratrust.bsky.social · 20/05/2025
We love working with like minded people and @cbituk.bsky.social being one of the wonderful charities we partner with, having the same goals 🫶 Working together to make a difference 💙🧠 #ABI #encephalitis #ActionForBrainInjuryWeek #childhoodAcquiredBrainInjury
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Eden Dora Trust @edendoratrust.bsky.social · 20/05/2025
This week we’re celebrating the achievements that make a “Good Day” when living with a brain injury 💙 #ActionForBrainInjuryWeek #BrainInjury #ABI #Encephalitis #ABIWeek #onagoodday
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