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Paula

@paula890590.bsky.social
1.3K followers 5.7K following 264 posts

@encephalitisint & @ocdaction supporter/advocate epil volunteer. an OCD Advocate Advocate OCDAdvocate & I support @encephalitisint.bsk..

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Reposted by Paula
Prof Benedict D Michael FRCP PhD @benedictneuro.bsky.social · 29/08/2025
@livuninews.bsky.social @liverpooluni.bsky.social @livuniresearch.bsky.social @liverpoolecho.co.uk @lincneurosci.bsky.social @meningitisnow.bsky.social @thewaltoncentre.bsky.social @nihrarcs.bsky.social @ukhsa.bsky.social
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Prof Benedict D Michael FRCP PhD @benedictneuro.bsky.social · 29/08/2025
After years of campaigning by PATIENT groups & @brainiigroup.bsky.social, the #chickenpox #vaccine is going to be offered on the #NHS. No longer will this only be accessible to those able to afford it. This will save lives from #Brain #Infection #Encephalitis @encephalitisint.bsky.social
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Prof Benedict D Michael FRCP PhD @benedictneuro.bsky.social · 16/09/2025
Tragic fatal case of encephalitis from 'flu. Medical & scientific context from us: www.dailymail.co.uk/health/artic... @brainiigroup.bsky.social @lincneurosci.bsky.social @liverpooluni.bsky.social @livuninews.bsky.social @livuni-ives.bsky.social @abn-info.bsky.social @thewaltoncentre.bsky.social
dailymail.co.uk
Hours after getting flu, little Lorelei succumbed to brain condition
A healthy girl who doted on her cuddly Winnie-the-Pooh bear, Lorelei Cowmeadow seemed 'a bit under the weather' last November. She died a few days later - just before her second birthday.
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Paula @paula890590.bsky.social · 29/01/2026
Everyone has equal human rights. We always has them and always has had them.
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Paula @paula890590.bsky.social · 29/01/2026
Everyone deserves equal human rights.
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Paula @paula890590.bsky.social · 29/01/2026
up all my day and evening right through till bedtime due to my contamination OCD, nonstop showering and disinfecting everything that has been outside and anything associated with or touched it. Tomorrow I will find out when my first ERP session starts. #OCDTalkHour
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Paula @paula890590.bsky.social · 29/01/2026
I missed #OCDTalkHour tonight because I was preoccupied with physical medical stuff arranging various medical appointments but next Wednesday I will be free for OCDTalkHour and I will try and join #NotAloneTalk on the nights when I haven't got any appointments because they take
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Paula @paula890590.bsky.social · 24/01/2026
I have been on here (Bluesky) a long time now. I detest that platform X/Twitter.
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Reposted by Paula
Prof Tom Solomon CBE @runningmadprof.bsky.social · 19/01/2026
Honoured to be speaking at the launch of the new @fphuk.bsky.social Pandemic Preparedness & Response SIG with such an exceptional panel of colleagues. Book your place on the link below. www.fph.org.uk/events-courses-exams/launch-of-the-pandemic-preparedness-and-response-sig/ #pandemicpreparedness
fph.org.uk
Launch of the Pandemic Preparedness and Response SIG
Launch event for the Pandemic Preparedness and Response SIG with high profile speakers from across the UK, setting out their views for the big questions in this space.
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Paula @paula890590.bsky.social · 23/01/2026
Nobody's rights should be taken away from them, it's not on.
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Paula @paula890590.bsky.social · 23/01/2026
Every human in the world should have equal human rights.
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Reposted by Paula
OCD-UK @ocdukcharity.bsky.social · 13/01/2026
Join Us for the next Teen's (12-17) Online Support Group! You can register for the upcoming online support group happening this week on Thursday 15th January. The group will be led by Mia and Laura. Remember to sign up for Zoom! 😊 www.ocduk.org/support-groups/online…
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Human Rights Campaign @hrc.org · 13/01/2026
Let’s be clear: Young trans people play school sports for the same reason as anyone: to make friends, have fun, and challenge themselves through practice and teamwork.
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Human Rights Campaign @hrc.org · 13/01/2026
Everyone needs to speak up, confront the lies, reject the scapegoating of transgender people, and loudly support trans youth. Start by sending a comment to HHS to demand access to care without government overreach: hrc.im/Comment
hrc.im
Submit Public Comments
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Reposted by Paula
Child Brain Injury Trust UK @cbituk.bsky.social · 13/01/2026
Our workshops equip professionals with practical knowledge, real-world examples, and a deeper understanding of how ABI affects attention, executive function, emotional regulation, and learning. 🔗 Book your place now: buff.ly/zO9syVP These workshops are kindly funded by @edendoratrust.bsky.social 💙
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Prof Tom Solomon CBE @runningmadprof.bsky.social · 13/01/2026
Encephalitis International are inviting clinicians and healthcare professionals to complete a short survey to help review and improve patient information resources for autoimmune encephalitis. Can you help? ls.uc.pt/index.php/65... #encephalitis @encephalitisint.bsky.social
ls.uc.pt
Your opinion about the leaflet “What is Autoimmune Encephalitis?” — healthcare professionals
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EpilepsyExplained.com @epilepsyexplained.com · 21/12/2025
New on EpilepsyExplained: The National Plan for Epilepsy Act (S. 494) in plain English. What it does and why it matters for families. Also added a simple “contact your reps” section with copy-paste scripts so you can help. 💜 #Epilepsy #EpilepsyAwareness #Seizures #Disability #HealthPolicy
epilepsyexplained.com
National Plan for Epilepsy Act (S. 494): Plain-English Summary - Epilepsy Explained 💜
National Plan for Epilepsy Act (S. 494): What It Means in Plain English Epilepsy affects millions of people in the U.S., yet research, care, and data are still fragmented across many federal agencies....
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University of Liverpool @liverpooluni.bsky.social · 10/11/2025
1 in 5 people are experiencing pain, and in the UK over 34% of adults regularly experience chronic pain. @benedictneuro.bsky.social and Prof. Michelle Briggs @lincneurosci.bsky.social discuss on the latest episode of Original Ideas 🧠💡🎙️▶️ liverpool.ac.uk/research/original-ideas/neuroscienceandpain/
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Brain Infection & Inflammation Group @brainiigroup.bsky.social · 20/11/2025
James O'Reilly, a sixth form student and aspiring medical student, joined us on a work placement. He gained experience of clinical practice with @benedictneuro.bsky.social as well as lab skills with @immunecord.bsky.social. Read his blog: tinyurl.com/4usrzdvc @lincneurosci.bsky.social
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LINC @lincneurosci.bsky.social · 21/11/2025
💫 LINC Synapse Award: ‘How do signals from brain tumour disrupt brain activity?’💫 a project linking neuro-inflammation with neuro-oncology. Congratulations to ECRs @clairehetherington.bsky.social & Ali Bakhsh @thewaltoncentre.bsky.social ➡️ www.liverpool.ac.uk/liverpool-in...
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Prof Benedict D Michael FRCP PhD @benedictneuro.bsky.social · 03/12/2025
Fantastic to be chairing another sell out @encephalitisint.bsky.social conference! >500 people from 78 countries! THE go to conference for clinicians, academics and policy makers! @brainiigroup.bsky.social @lincneurosci.bsky.social @liverpooluni.bsky.social
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Paula @paula890590.bsky.social · 10/01/2026
I'm proud of you and all the marvellous Encephalitis International team.
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Brain Infection & Inflammation Group @brainiigroup.bsky.social · 05/12/2025
Thrilled to have our team highlighting important advances in #encephalitis, #braininfection and #neuroinflammation at the @encephalitisint.bsky.social International Conference 🧠🌍 @benedictneuro.bsky.social @immunecord.bsky.social @sarahaimeeb.bsky.social @clairehetherington.bsky.social
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LINC @lincneurosci.bsky.social · 15/12/2025
"Liverpool City Region is emerging as a powerhouse for health and life sciences" LINC's Director @benedictneuro.bsky.social joined other senior leaders from the life sciences sector at a recent North West Business Insider Roundtable ➡️ www.insidermedia.com/roundtables/...
insidermedia.com
Liverpool City Region Life Sciences Roundtable 2025
Discover how Liverpool City Region is emerging as a powerhouse for health and life sciences. Read the coverage of the roundtable, where industry leaders, investors and policymakers explored…
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Reposted by Paula
LINC @lincneurosci.bsky.social · 19/12/2025
We closed the year with an interdisciplinary Epilepsy Workshop Thanks to everyone who joined, especially Rosemarie Pardington from @epilepsyinst.bsky.social, & Rebekah Smith from Epilepsy Action for insight on patient perspectives & priorities .
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LINC @lincneurosci.bsky.social · 06/01/2026
As the vaccine against chickenpox is added to the MMR jab in 2026, Roman's story highlights why we urge parents to protect their children. Professor @benedictneuro.bsky.social contributed to today's article in @dailymail.co.uk Full story: www.dailymail.co.uk/health/artic...
dailymail.co.uk
The chickenpox complication that left Roman in a wheelchair aged four
Sociable, confident and football-mad, Roman settled in quickly when he started in reception at primary school. But all this changed after Roman contracted chickenpox, aged four, in 2022.
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Our Common Defense @ourcommondefense.bsky.social · 05/01/2026
Before the measles vaccine in 1963, measles killed 400–500 Americans each year and millions worldwide. It caused 48,000 U.S. hospitalizations and 4,000 cases of encephalitis annually—often leading to severe or permanent brain damage.
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Paula @paula890590.bsky.social · 10/01/2026
Good luck on Wednesday with your GP.
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Paula @paula890590.bsky.social · 10/01/2026
I just saw it.
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Paula @paula890590.bsky.social · 10/01/2026
Hi Catherine, I have a brain injury and chronic OCD. I'm a part of the disability community. Welcome to Bluesky.
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Paula @paula890590.bsky.social · 10/01/2026
Good luck with your eye appointments tomorrow Catherine.
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Paula @paula890590.bsky.social · 10/01/2026
Lucy, look for a better gastroenterologist.
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Paula @paula890590.bsky.social · 10/01/2026
@anarchyorigional.bsky.social Thank you. I will try. #NotAloneTalk
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Paula @paula890590.bsky.social · 10/01/2026
My favourite species? I like elephants, rhinos, tigers but I think elephants would my favourite. #NotAloneTalk
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Paula @paula890590.bsky.social · 10/01/2026
Hi all. I hope everyone is well. I just realised it's coming to the end of #NotAloneTalk chat. I had a stressful day today .
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Paula @paula890590.bsky.social · 10/01/2026
It can definitely make the problem worse and cause more stress .
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Paula @paula890590.bsky.social · 10/01/2026
Well, I find mints and I have a drink of water with me do help my laryngopharyngeal reflux shortened to LPR . Have you seen a specialist Lucy? Some fruits like bananas or pears can help. Smaller meals. If I have a flare up while I'm eating I stop eating and rest my throat.
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Reposted by Paula
Eden Dora Trust @edendoratrust.bsky.social · 09/01/2026
We’re incredibly grateful to Brain Injury Group for choosing us as a charity partner at their conference next week💙 We can't wait to see everyone😀 This support means so much to us, not only to raise vital funds, but also to spread awareness #ABI #Encephalitis #ThankYou #CharityPartner
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London School of Hygiene & Tropical Medicine @lshtm.bsky.social · 09/01/2026
Transforming #GlobalHealth ecosystem for a healthier world Peter Piot co-authors piece in @thinkglobalhealth.org discussing maintaining progress on global health & addressing funding cuts amid disease outbreaks, demographic shifts & climate stress. www.thinkglobalhealth.org/article/tran...
thinkglobalhealth.org
Transforming the Global Health Ecosystem for a Healthier World in 2026 | Think Global Health
African health and finance officials, along with the former executive director of UNAIDS, offer 10 considerations for global health reform initiatives
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Society for Acute Medicine @acutemedicine.bsky.social · 06/01/2026
Neurology in the Acute Take Head injury pathways, headache diagnostics, and encephalitis guidelines — three vital topics, three expert speakers. Be part of the discussion on 6 Feb 2026. Register www.eventsforce.net/eventage/277... #Neurology #AcuteMedicine #FOAMed
eventsforce.net
The Society for Acute Medicine and Fellowship of Postgraduate Medicine Joint Meeting
The Society for Acute Medicine (SAM) and the Fellowship of Postgraduate Medicine (FPM) will co-host a joint one-day conference, The Acute Medical Take: Tackling Difficult Cases. This focused conference brings together leading clinicians to address complex challenges in acute medical care across four key specialties: cardiology, neurology, respiratory, and toxicology. The programme features expert-led, case-based sessions on pressing topics such as cardiovascular emergencies in pregnancy, decision-making in head injury, acute respiratory failure, and substance misuse in the acute setting. Attendees will benefit from high-level clinical insights, practical decision-making guidance, and opportunities to engage with experts and peers. This conference promises to be a high-impact learning event for all clinicians involved in acute care. We look forward to seeing you in London on 6 February 2026!
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Reposted by Paula
EpilepsyExplained.com @epilepsyexplained.com · 06/01/2026
Learn about the risks of epilepsy after post-viral encephalitis and find effective management strategies to stay healthy. #EpilepsyExplained #Epilepsy 💜.
epilepsyexplained.com
Understanding Post-Viral Encephalitis Epilepsy Risks and Management - Epilepsy Explained 💜
Discover the Post-Viral Encephalitis Epilepsy Risks and learn effective management strategies to protect your health after a viral infection.
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Reposted by Paula
Science X / Phys.org @sciencex.bsky.social · 06/01/2026
Pteropine orthoreoviruses, bat-borne viruses, have been identified as the cause of acute respiratory illness and encephalitis in patients in Bangladesh linked to raw date-palm sap consumption.
medicalxpress.com
Bats identified as origin of unexplained acute respiratory illness and encephalitis in Bangladesh
Infectious disease researchers have identified Pteropine orthoreoviruses (PRVs), a group of newly emergent bat-borne viruses, as the culprit for previously unexplained illness in five Bangladeshi patients, one of whom eventually died with unexplained illness.
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Institute of Infection, Veterinary and Ecological Sciences @livuni-ives.bsky.social · 08/01/2026
Congratulations to Dr Ava Easton, Chief Executive of Encephalitis International (@encephalitisint.bsky.social) and Honorary Senior Fellow, who has been awarded an MBE in the King’s New Year Honours List for services to people affected by encephalitis. 🔗 bit.ly/49dFjuw #TeamLivUni
A navy blue social card that reads 'New Year Honours for Dr Ava Easton' in white text with Dr Ava Easton pictured in the top right.
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Reposted by Paula
Sarah of Cleveland @sb68a.bsky.social · 08/01/2026
Please vaccinate your children. #NEOhio #measles A child can recover from measles and seven to 10 years later, develop encephalitis, which is an inflammation of the brain that can be deadly. baynews9.com/fl/tampa/new...
baynews9.com
Measles outbreak reaches northeast Ohio
Cuyahoga County confirmed one case, presumed two cases of measles.
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Reposted by Paula
Prof Tom Solomon CBE @runningmadprof.bsky.social · 08/01/2026
Our sincere thanks to the hospitals, clinicians, researchers, and patients who contributed data to this study - an international, collaborative effort! #encephalitis #healthresearch #neurology
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Brain Infection & Inflammation Group @brainiigroup.bsky.social · 08/01/2026
New paper out! Over 1300 patients from 13 countries were analysed using the SEIZURE (SEIZUre Risk in Encephalitis) score to identify those at greatest risk of acute seizures on a global scale. Read the full article: tinyurl.com/4ntypyky @encephalitisint.bsky.social @lincneurosci.bsky.social
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Animal Disease Insights @diseaseinsights.bsky.social · 09/01/2026
Japanese encephalitis update Read more: animaldiseaseinsights.com/japanese-… Follow for daily updates. Share to spread awareness. #AnimalHealth #DiseaseOutbreak #OneHealth
Stock news image
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Reposted by Paula
Society for Acute Medicine @acutemedicine.bsky.social · 09/01/2026
Neurology in the Acute Take Head injury pathways, headache diagnostics, and encephalitis guidelines — three vital topics, three expert speakers. Be part of the discussion on 6 Feb 2026. Register www.eventsforce.net/eventage/277... #Neurology #AcuteMedicine #FOAMed
eventsforce.net
The Society for Acute Medicine and Fellowship of Postgraduate Medicine Joint Meeting
The Society for Acute Medicine (SAM) and the Fellowship of Postgraduate Medicine (FPM) will co-host a joint one-day conference, The Acute Medical Take: Tackling Difficult Cases. This focused conference brings together leading clinicians to address complex challenges in acute medical care across four key specialties: cardiology, neurology, respiratory, and toxicology. The programme features expert-led, case-based sessions on pressing topics such as cardiovascular emergencies in pregnancy, decision-making in head injury, acute respiratory failure, and substance misuse in the acute setting. Attendees will benefit from high-level clinical insights, practical decision-making guidance, and opportunities to engage with experts and peers. This conference promises to be a high-impact learning event for all clinicians involved in acute care. We look forward to seeing you in London on 6 February 2026!
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Paula @paula890590.bsky.social · 09/01/2026
Hi Andrew, I haven't had anything good going on for a while now. It's been a stressful day today. I had to have a rest to take time out. #NotAloneTalk. .
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Paula @paula890590.bsky.social · 09/01/2026
I don't really eat biscuits much these days because I have a diagnosis of a certain type of acid reflux so I have to have more fruit than sugary or fatty foods unless it's something like a special occasion then I treat myself to chocolate mints or say Christmas cake. #NotAloneTalk
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