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Parkinson Canada

@parkinsoncanada.bsky.social
145 followers 176 following 84 posts

Empowering people living with Parkinson’s and care partners to live courageously through support, advocacy, research, and community. www.parkinson.ca

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Parkinson Canada @parkinsoncanada.bsky.social · 29/06/2026
David is showing what's possible through research, movement, and determination. We're also grateful that he'll be fundraising for Parkinson Canada as he takes on the T100 Triathlon this August! Learn more about the T100 & support David's journey: donate.parkinson.ca/goto/davidwa...
donate.parkinson.ca
Fundraising Your Way: T100 By David Walker - Parkinson Canada
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Parkinson Canada @parkinsoncanada.bsky.social · 30/04/2026
Encouraging proposals from the federal government could improve access to the #DisabilityTaxCredit for people in Canada living with #Parkinson’s. Read more on our blog 👉 www.parkinson.ca/disability-tax-cre…
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James Boxall 🇨🇦🍁 @jamesgis.bsky.social · 11/04/2026
2024 report: The Economic Burden of Parkinson's in Canada @parkinsoncanada.bsky.social (with pwc). Parkinson's Awareness Day #LimitlessParkinsonsCare www.parkinson.ca/wp-content/u...
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Parkinson Canada @parkinsoncanada.bsky.social · 11/04/2026
Today is #WorldParkinsonsDay Across Canada, people w/ #Parkinson’s face long waits, uneven support & barriers affecting daily life. By raising your voice, you help bring these realities to light and push for better care. Help us raise awareness by using #LimitlessParkinsonsCare 🌷 parkinson.ca/pam
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Parkinson Canada @parkinsoncanada.bsky.social · 04/04/2026
Dr. Sarah Lidstone sees the realities of #Parkinson’s care every day. Across Canada, specialists witness the same challenges far too often: long waits for diagnosis, fragmented systems, and uneven access to the supports people rely on. parkinson.ca/PAM #ParkinsonsAwarenessMonth
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Parkinson Canada @parkinsoncanada.bsky.social · 03/04/2026
We're proud to partner with Dystonia Medical Research Foundation Canada & @huntingtonsc.bsky.social to support the next generation of #MovementDisorder specialists. We’re funding a 2026–2027 fellowship to improve access to person-centred care in Canada. Learn more 👉 bit.ly/4sg1V3N
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Parkinson Canada @parkinsoncanada.bsky.social · 01/04/2026
April is #ParkinsonsAwarenessMonth 💙 Too many people in Canada living with Parkinson’s face barriers to care — from long wait times to limited support. It doesn’t have to be this way. Learn more at parkinson.ca/pam and share your story to help us advocate for #LimitlessParkinsonsCare
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James Boxall 🇨🇦🍁 @jamesgis.bsky.social · 31/03/2026
April is Parkinson's Awareness Month. #LimitlessParkinsonsCare You can expect a few posts from me with brutal honesty about the science, facts and my journey. @parkinsoncanada.bsky.social @parkinsondotorg.bsky.social @parkinsonseurope.bsky.social @mjfoxfoundation.bsky.social www.parkinson.ca/pam/
parkinson.ca
Parkinson’s Awareness Month - Parkinson Canada
Together, we can break down barriers to Parkinson’s care. #LimitlessParkinsonsCare Raise your voice Add your perspective and help shape the future of Parkinson’s care in Canada. Join a roundtable disc...
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uoftmedicalimaging.bsky.social @uoftmedicalimaging.bsky.social · 10/03/2026
Congrats to Pascal Tyrrell, PhD, Assoc Prof & Data, Director Science, who was selected as a winner in @parkinsoncanada.bsky.social & @braincanada.bsky.social’s Canadian Open Parkinson Network (C-OPN) Data Challenge! Great work!
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Parkinson Canada @parkinsoncanada.bsky.social · 05/03/2026
Women living with #Parkinsons can experience different symptoms, barriers, and delays in diagnosis. Read about @alliesiggy.bsky.social, one of the women helping raise awareness this month and challenging misconceptions about Parkinson’s 👉 ca.style.yahoo.com/at-47-she-wa...
ca.style.yahoo.com
At 47, she was diagnosed with early-onset Parkinson's disease. Now, she's raising awareness for women everywhere: 'Many people still think of as an old man’s disease'
"I felt like I was starting to lose my mind."
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Barbara Salsberg Mathews @salsbergmathews.bsky.social · 30/01/2026
Mime + Dance = Synergy! I'm grateful to @parkinsoncanada.bsky.social for supporting our community partnership with Dancing with Parkinson's. Me and my co-facilitator, Sarah Martens trained DWP dance teachers how to integrate therapeutic mime into their classes. drive.google.com/file/d/1tcHT...
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Parkinson Canada @parkinsoncanada.bsky.social · 29/01/2026
We’re partnering with Cure PSP to co-fund research focused on #PSP and other atypical parkinsonian conditions, including earlier diagnosis and virtual wellness programs supporting movement and speech. Details on the projects: parkinson.ca/parkinson-ca... #parkinson's #parkinsonsresearch
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Parkinson Canada @parkinsoncanada.bsky.social · 22/01/2026
Your voice can help shape the future of #Parkinson’s care in Canada. If you’re living with Parkinson’s or are a #carepartner to someone who is, share your experience through our Access to Care Survey. 👉 legeropinion.co/2026-parkinsons-community-survey
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Parkinson Canada @parkinsoncanada.bsky.social · 20/01/2026
Join our free webinar tomorrow: Managing your #Parkinson’s medications & symptoms Pharmacist Greta Mah will share practical strategies for tracking symptoms & medications. 📅 Wed, Jan 21, 2026 | 🕑 2–3 p.m. ET Register: parkinsoncanada.zoom.us/webinar/regi...
parkinsoncanada.zoom.us
Welcome! You are invited to join a webinar: Managing your Parkinson’s medications and symptoms. After registering, you will receive a confirmation email about joining the webinar.
Welcome! You are invited to join a webinar: Managing your Parkinson’s medications and symptoms. After registering, you will receive a confirmation email about joining the webinar.
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Parkinson Canada @parkinsoncanada.bsky.social · 18/12/2025
Did you know that we upload all of our past webinars to our YouTube channel? Watch anytime and learn from leading clinicians, researchers, and people living with #Parkinson’s about research, practical supports, and more: www.youtube.com/@ParkinsonCanada
youtube.com
Parkinson Canada
Parkinson Canada is the national voice of over 110,000 people in Canada impacted by Parkinson’s. Thanks to the support of generous donors, we empower the Parkinson’s community through tailored program...
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Parkinson Canada @parkinsoncanada.bsky.social · 12/11/2025
Join us for a free one-day #Parkinson’s research conference with @westernu.ca & Parkinson Society SWO. Connect with experts, learn how local research is improving care, and help shape a stronger community. Register now 👉 lnkd.in/gMnJfczs #parkinsonsresearch #researchconference
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Parkinson Canada @parkinsoncanada.bsky.social · 20/10/2025
Today we were in Fredericton, NB, for the SOLVE Parkinson’s Conference. Over 120 researchers, clinicians, and people affected by #Parkinson’s gathered to discuss strengthening local research and care. Key topics included improving rural access, diagnosis speed, and fostering future researchers.
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Parkinson Canada @parkinsoncanada.bsky.social · 22/09/2025
Our first virtual Patient Engagement in Research Workshop was a success! Thank you to everyone who joined us. Together we explored how patient engagement can shape the future of #ParkinsonsResearch 📅 Missed this one? Our next workshop takes place on October 23. Stay tuned for registration details!
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Parkinson Canada @parkinsoncanada.bsky.social · 15/09/2025
Join the conversation! 🔬 Join our virtual Workshop on Patient Engagement in Research on Sept 22. Share your ideas, learn about current initiatives, and help build a sustainable research environment. Register here 👉 lnkd.in/g897P528 #Parkinson's #ParkinsonsResearch
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Parkinson Canada @parkinsoncanada.bsky.social · 03/09/2025
Barbara, one of our CareFund recipients, continues to inspire with her creativity and dedication. She uses therapeutic mime to support people living with Parkinson’s and raise awareness through the arts. We’re so proud to see her share this important work with the Neurohumanities Network!
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Parkinson Canada @parkinsoncanada.bsky.social · 02/09/2025
🚨 The 2026 Parkinson Canada Research Grant Competition is open! We’re funding researchers at every career stage to drive breakthroughs in #Parkinsons care & treatment. Deadline: Nov 3, 2025. Apply now 👉 parkinsoncan.smapply.io/res/p/Resea… #ParkinsonsResearch #ResearchFunding
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Parkinson Canada @parkinsoncanada.bsky.social · 25/08/2025
You know your body best. Track it your way with our 10-Week Medication Guide, supported by AbbVie. Track mood, mobility, sleep, and more to stay in tune with your #Parkinson’s journey. Empower yourself and get the support you deserve. Get yours today 👉 www.parkinson.ca/resources/ed...
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Parkinson Canada @parkinsoncanada.bsky.social · 20/08/2025
Have lived experience with #Parkinson’s? Your insights can shape the future of #ParkinsonsResearch. 🔬 Join us as a Lived Experience Reviewer & help evaluate research grants to ensure they meet our community's needs. 📅 Apply by August 31, 2025. 🔗 forms.office.com/pages/respon...
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Parkinson Canada @parkinsoncanada.bsky.social · 15/08/2025
With support from the Della Vedova family, Prof. Denis Soulet at @ulaval.ca is exploring whether #zuranolone, a medication for postpartum depression, may help protect dopamine-producing neurons in #Parkinson’s. Read more 👉 www.parkinson.ca/della-vedova... #ParkinsonsResearch
parkinson.ca
Della Vedova family funds promising study on repurposing zuranolone for Parkinson’s - Parkinson Canada
Professor Denis Soulet at Université Laval is leading a groundbreaking investigation into whether a medication currently used to treat postpartum depression could also protect the brain in Parkinson’s...
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Parkinson Canada @parkinsoncanada.bsky.social · 14/08/2025
⏳ Apply now for the Patient Engagement in Research Grant! Receive up to $3,000 to fund projects that bring together researchers & people with lived experience to shape #Parkinson’s research. Deadline: August 29, 2025 Questions? research@parkinson.ca Apply: www.parkinson.ca/research/app...
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Parkinson Canada @parkinsoncanada.bsky.social · 12/08/2025
Starting a new #Parkinson's medication can be a big change, but you don’t have to navigate it alone. Our free 10-Week Medication Guide offers tools, tips & resources for both you and your #carepartner, helping you take the next step, together. 📥 Download here: www.parkinson.ca/resources/ed...
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Parkinson Canada @parkinsoncanada.bsky.social · 11/08/2025
Why does walking get harder as #Parkinson’s progresses? 🚶 New research is uncovering how changes in the brain and nervous system cause #gait issues like freezing, shuffling, and falls, and how this could lead to better treatments. 🧠 Read more: www.parkinson.ca/gait-challen... #ParkinsonsResearch
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Parkinson Canada @parkinsoncanada.bsky.social · 06/08/2025
If you’ve ever searched for answers at 2 a.m., felt overwhelmed at an appointment, or just wanted to feel a bit more in control, this is for you. The Every Victory Counts® Canadian Edition offers trusted insights & support to help you live well with #Parkinson’s. 👉 www.parkinson.ca/resources/ed...
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Parkinson Canada @parkinsoncanada.bsky.social · 01/08/2025
Join us Aug 20, 2–3 PM ET for a free webinar on stem cell therapies in #Parkinson’s research. 🧠 Hear from experts Dr. Kim & Dr. Kirkeby on the latest clinical trials + what the future may hold. 🧬 👉 parkinsoncanada.zoom.us/webinar/regi... #StemCellResearch #ParkinsonsResearch
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Parkinson Canada @parkinsoncanada.bsky.social · 21/07/2025
People affected by #Parkinson’s offer crucial insights that can drive better research. Apply now for our Patient Engagement in Research Grant 🧠🔬 💰 Up to $3,000 📅 Deadline: Aug 29 🔗 www.parkinson.ca/research/app... #ParkinsonsResearch
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Barbara Salsberg Mathews @salsbergmathews.bsky.social · 16/07/2025
Help Fill the Caregivers Gap. Tell Your Story. Raise awareness of the growing need for caregivers for those without this support. @parkinsoncanada.bsky.social @parkinsonseurope.bsky.social @parkinsondotorg.bsky.social @parkinsons.org.uk
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Parkinson Canada @parkinsoncanada.bsky.social · 14/07/2025
Starting a new #Parkinson's medication? You’re not alone. 💊🗓️ Our free 10-Week Medication Guide—supported by AbbVie—offers tips, trackers & tools to help you feel more confident. ➡️ Swipe to preview what’s inside 📥 Download now: www.parkinson.ca/resources/edu...
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Parkinson Canada @parkinsoncanada.bsky.social · 24/06/2025
Last week, we met with #NewBrunswick Health Minister Dr. John Dornan to discuss improving health care for people living with Parkinson’s in the province. We were also proud to present Harry Forestell with the King Charles III Coronation Medal in recognition of his advocacy. 💙 parkinson.ca/advocacy
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Barbara Salsberg Mathews @salsbergmathews.bsky.social · 20/06/2025
Check out my article on Therapeutic Mime for people with Parkinson’s at www.canva.com/design/DAGcx... @parkinsons.org.uk @parkinsonseurope.bsky.social @parkinsoncanada.bsky.social
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Parkinson Canada @parkinsoncanada.bsky.social · 20/06/2025
Big news in #Parkinson's research! #Prasinezumab, a potential disease-modifying therapy, is entering Phase III trials. If successful, it could help address the progression of the condition. Read more on our blog 👉 parkinson.ca/prasinezumab...
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Parkinson Canada @parkinsoncanada.bsky.social · 13/06/2025
As we engage with Canada’s new Parliament, we need your input. 🗣️ If #Parkinson’s touches your life, take 10 minutes to complete our survey. Your insights will help shape our advocacy priorities and improve care, support & quality of life. 📋 forms.cloud.microsoft/r/t0XhbcSwhn
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Parkinson Canada @parkinsoncanada.bsky.social · 12/06/2025
We were on #ParliamentHill this week, meeting with members of the newly elected Parliament to elevate key priorities: better access to care, increased research funding, and greater affordability for people affected by #Parkinsons @gordjohns.bsky.social @bencarrwpg.bsky.social
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Parkinson Canada @parkinsoncanada.bsky.social · 10/06/2025
This important research expands our understanding of the structure and behaviour of α-synuclein aggregates, a key area in #Parkinson’s science. We’re proud to support innovative work like this which deepens our understanding of Parkinson’s and brings us one step closer to new treatments. 🧠🔬
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Parkinson Canada @parkinsoncanada.bsky.social · 10/06/2025
If you have a care partner you would like to honour, make sure to send your stories and photos over to @salsbergmathews.bsky.social 💙
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Parkinson Canada @parkinsoncanada.bsky.social · 05/06/2025
The internet is full of advice, but not all of it is helpful. Join leading #Parkinson's expert Dr. Benzi Kluger on Wed, June 18 at 2 p.m. ET for a FREE webinar on how to spot red flags, ask better questions, and make informed care decisions. 🔗 Register: parkinsoncanada.zoom.us/webinar/regi...
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Parkinson Canada @parkinsoncanada.bsky.social · 29/05/2025
NOW OPEN: 2025 C-OPN Data Challenge Parkinson Canada & @braincanada.bsky.social are offering 4 grants of up to $50K for research using the C-OPN database 📝 Register by: July 14 📅 Apply by: July 28 💡 Info webinar: June 17 - email ko.currie@parkinson.ca 🔗 parkinsoncan.smapply.io #ParkinsonsResearch
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Barbara Salsberg Mathews @salsbergmathews.bsky.social · 25/05/2025
I’m illustrating PD caregivers’ stories to share via PD groups. Please DM me & share photos, stories, location. Denise Coley, who lives with PD in Morgan Hill, US, struggles with appetite. Her husband, Bernard prepares "showcase plates" to entice her to eat, proving you taste with your eyes 1st
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Barbara Salsberg Mathews @salsbergmathews.bsky.social · 24/05/2025
Thanks @parkinsoncanada.bsky.social for receiving the CARE Fund Grant, making it possible for me to make the therapeutic mime videos to help my PD sisters & brothers 🌷🙏🌷
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Barbara Salsberg Mathews @salsbergmathews.bsky.social · 21/05/2025
Sharpen your mind by practising ‘Space Substance’ in Mime @parkinsons.org.uk @parkinsonseurope.bsky.social @parkinsoncanada.bsky.social @worldpdcongress.bsky.social
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Parkinson Canada @parkinsoncanada.bsky.social · 21/05/2025
This past April,we were proud to help represent Canada at #ADPD2025. While there, we spoke with Parkinson Canada-funded researcher Dr. Margaux Teil about advancing #Parkinson’s research, global collaboration, and the power of lived experience. 📖 parkinson.ca/an-interview... #ParkinsonsResearch
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Parkinson Canada @parkinsoncanada.bsky.social · 15/05/2025
Today, the Ontario Government released its 2025–26 Budget: A Plan to Protect Ontario. We welcome investments in primary care and expanded care teams, as well as new supports for seniors and caregivers—key priorities for the #Parkinson’s community. 🔗 www.parkinson.ca/advocacy-ref...
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Barbara Salsberg Mathews @salsbergmathews.bsky.social · 14/05/2025
New free therapeutic mime videos available now. Read more from Parkinson’s Europe: parkinsonseurope.org/2025/05/14/m... @parkinsonseurope.bsky.social @parkinsoncanada.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social @parkinsondotorg.bsky.social
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Parkinson Canada @parkinsoncanada.bsky.social · 13/05/2025
📣 Next week! Join us next Wednesday, May 21, for a FREE webinar exploring the changing roles of #carepartners. Together, we’ll talk about the challenges, the resilience, and the tools that can help you find your footing again. 🔗 Register now: parkinsoncanada.zoom.us/webinar/regi... #Parkinsons
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