iiinova — where your digital self keeps evolving

Parkinson's Europe @parkinsonseurope.bsky.social · 07/10/2026

Have you listened to the latest episode of the Parkinson's Life podcast yet? It's all about celebrating artists with Parkinson's who use their work to raise awareness and funds, like the fantastic Cristian Mitrani, shown in this clip.

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Parkinson's Europe @parkinsonseurope.bsky.social · 06/10/2026

Nine in 10 women say that their neurologist did not discuss the potential impact of hormones on their Parkinson’s. This is something which has to change.

Menopause Awareness Month.
"I encourage any woman with Parkinson's to think about where they're at, hormonally. Then have a conversation. If your neurologist says, 'I don't know', your answer needs to be: 'Well, find out.' Cathy Molohan, Parkinson's advocate.

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Parkinson's Europe @parkinsonseurope.bsky.social · 05/10/2026

🚨 New podcast alert! In this new episode of the Parkinson's Life podcast, we explore the link between Parkinson's and creativity with our guests, artists @salsbergmathews.bsky.social, Cristian Mitrani, and Rudolph Castro. It's an inspiring listen💚 🔗 buff.ly/tkMZnDn

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Parkinson's Europe @parkinsonseurope.bsky.social · 02/10/2026

We can't wait for Par-Con this November! Par-Con is Parkinson's UK's community convention about living well with Parkinson’s.

person looking at laptop featuring a Par-Con webinar

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Parkinson's Europe @parkinsonseurope.bsky.social · 01/10/2026

Do you experience restless leg syndrome? We're working on an article about RLS and would love to hear how it affects you and how you manage this symptom. Do you have any tips you'd like to share with other people with Parkinson's, or is there a treatment you've found to work effectively?

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Parkinson's Europe @parkinsonseurope.bsky.social · 30/09/2026

"I want the people around us to see the person first, not the disease." 💚 Sabine Löwenthal, the founder of PDArt and a person with Parkinson's, chats to us about her early-onset diagnosis and how she uses her passion for miniature photography to portray life with Parkinson's in a humorous way.

A photograph by Sabine Löwenthal of miniature figures cycling in front of, walking past and living inside silver pill packets.

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Parkinson's Europe @parkinsonseurope.bsky.social · 29/09/2026

Finding joy in the everyday can be transformative 💚 In her new book, the amazing @salsbergmathews.bsky.social brings to life stories about how people with Parkinson's harvest joy. It's a life-affirming, uplifting, and inspirational book we could all do with in our lives. 🔗 buff.ly/CaSTw9S

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Parkinson's Europe @parkinsonseurope.bsky.social · 23/09/2026

"My photography is an ongoing pursuit of beauty and aesthetic expression" We speak with Cristian Mitrani about creativity, how his Parkinson's diagnosis has affected him, and how he uses his incredible photography to make a positive difference in the Parkinson's community. 🔗 buff.ly/ekFi1Ou

'I have had a successful career... now it is time to help others' Cristian Mitrani

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Parkinson's Europe @parkinsonseurope.bsky.social · 22/09/2026

A shocking statistic on the cost of Parkinson's in Europe. It comes from a new study – The Costs of Parkinson's Disease in Europe: Results of the Costs of Illness in Neurology Initiative – which our Strategic Director Amelia Hursey co-authored for the @ean.org

Parkinson's costs Europe €23 billion every single year

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Parkinson's Europe @parkinsonseurope.bsky.social · 21/09/2026

🚨 It's launch day! We're so excited to share that the online exhibition of Cristian Mitrani's photography is open. Photographer and philanthropist Cristian was diagnosed with Parkinson's in 2022 and has generously offered to donate a portion of the proceeds from his art sales to Parkinson's Europe.

Photograph of city scene by Cristian Mitrani

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Parkinson's Europe @parkinsonseurope.bsky.social · 18/09/2026

The majority of the ADAPT-PD trial participants receiving aDBS felt 1.3 hours more ON time, and a reduction of OFF time by 55%. That's the result revealed in our recent interview with Dr Martijn Beudel about the latest development in adaptive DBS technology.

How much difference would one extra hour of 'ON' time each day mean to you?

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Parkinson's Europe @parkinsonseurope.bsky.social · 17/09/2026

"Celebrating and pursuing joy is crucial to living well with Parkinson's" 💚 We speak to just a few of the contributors from @salsbergmathews.bsky.social new book, 'Harvesting Joy,' about finding joy and living well with Parkinson's. 👉 Read about their experiences here: buff.ly/9Mu9nOp

'I intend to live life fully'. Illustration of two women embracing each other and laughing.

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Parkinson's Europe @parkinsonseurope.bsky.social · 10/09/2026

What is adaptive DBS? 🤔 We talk to neurologist and DBS specialist, Dr Martijn Beudel, about this new personalised therapy for people with Parkinson's. Want to find out more? Read the full article about this new adaptive DBS technology here: buff.ly/4ymfmyN Created in partnership with Medtronic

Adaptive DBS is a new Deep Brain Stimulation feature which aims to adjust the stimultaion to the target brain areas only when required, instead of providing constant stimulation.

aDBS technology adapts to the brain activity in real time, allowing for a perosnlaised therpahy day and night.

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Parkinson's Europe @parkinsonseurope.bsky.social · 09/09/2026

🙌 Thank you all so much for supporting the launch of 'Harvesting Joy'! This is a special message from artist @salsbergmathews.bsky.social explaining why she wrote the book. 'Harvesting Joy' is available in 10 languages: you can download it for free or buy a hard copy on Amazon.

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Parkinson's Europe @parkinsonseurope.bsky.social · 08/09/2026

The countdown is finally over! We're so excited to share that 'Harvesting Joy' by the incredible @salsbergmathews.bsky.social goes on sale today 💚 You may remember that last year Barbara asked other people with Parkinson's to share their own personal strategies for finding joy.

OUT NOW: Harvesting Joy
'Harvesting Joy feels like an act of quiet defiance' Professort Jane Alty

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Parkinson's Europe @parkinsonseurope.bsky.social · 07/09/2026

🚨 Exciting news! Today we launch our new 'Parkinson's Art with a Heart' campaign. Here, we'll be celebrating inspirational people with Parkinson's who are helping us raise vital funds for the Parkinson's community – and YOU can get involved too!

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Parkinson's Europe @parkinsonseurope.bsky.social · 04/09/2026

Have you read this week’s piece in The Guardian on a sobering new study showing that almost half of the world’s farmers are poisoned by pesticides each year?

Parkinson's Europe Director General, Hélène Nicora

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Parkinson's Europe @parkinsonseurope.bsky.social · 04/09/2026

🗣️ We want to hear from you! We'd love to hear about your experiences of living with Parkinson's and menopause. How does it affect your symptoms? How does it affect your medication and treatment? Do you feel there is enough information and awareness, or is more needed?

How does the menopause affect your Parkinsons?

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Parkinson's Europe @parkinsonseurope.bsky.social · 03/09/2026

"We can consciously choose to take life with Parkinson's as lightly as possible"💚 We talk to the creator of 'Now more than ever: Living positively with Parkinson's' podcast, Kathrin Wersing, about her diagnosis journey and the power of sharing real-life stories. 👉 buff.ly/rm4kmPp #parkinsons

Kathrin Wersing holding a copy of the book 'Jetzt Erst Recht!'

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Parkinson's Europe @parkinsonseurope.bsky.social · 01/09/2026

Brian Magennis – the second Parkinson's Nurse in Ireland – talks to us about the benefits of a holistic approach to care, the importance of empathy and kindness, and why being an advocate for your patient and their family matters. It's a really powerful read 💚 👉 buff.ly/xmcCcjJ #parkinsons

"Parkinson's is fought with the body, but won in the mind." Brian Magennis, Advanced Nurse Practitioner

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Parkinson's Europe @parkinsonseurope.bsky.social · 31/08/2026

We spoke to Dr Dayne Beccano-Kelly about how improving diversity in science will move Parkinson's research forward, and his fascinating research into the differences in how Parkinson's manifests in women compared to men. So worth a read. 🔗 buff.ly/KXHzobh #parkinsons #parkinson #diversity #BBRAG

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Parkinson's Europe @parkinsonseurope.bsky.social · 26/08/2026

Constipation is a common yet annoying complication of Parkinson's, but it's important to know you're not alone with this. The good news is that Parkinson's-related #constipation can be managed with lifestyle changes. 👉 Here are our expert-approved tips on managing constipation: buff.ly/nRCIJgL

Expert tips to manage constipation in Parkinson's

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Parkinson's Europe @parkinsonseurope.bsky.social · 24/08/2026

🖼️ This powerful painting by American artist Michael J. is titled "endendido/apagao". He created half of this artwork with his DBS device turned on, and half with stimulation turned off to represent what DBS therapy can do.

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Parkinson's Europe @parkinsonseurope.bsky.social · 19/08/2026

🚨 Interesting new research on the most common, burdensome and worrisome symptoms of early-stage Parkinson's. We're so proud of our Strategic Director Amelia Hursey, who co-authored the report, for her involvement in such an important study. 👉 It's well worth a read in full: buff.ly/qGO6z0B

Survey results: most common, burdensome and worrisome symptoms in early-stages Parkinson's

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Parkinson's Europe @parkinsonseurope.bsky.social · 17/08/2026

🎙️ Podcast: Beyond the operation – life with adaptive DBS In the latest episode of the Parkinson's Life podcast, we explore the next frontier of Deep Brain Stimulation: adaptive DBS. 🔗 Well worth a listen: buff.ly/vi4LMWh Sponsored by Medtronic #adaptiveDBS

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Parkinson's Europe @parkinsonseurope.bsky.social · 12/08/2026

🥁 And the results are in... We asked you to share your favourite #Parkinsons social media accounts and loved reading through all of your suggestions. These are the top 20 accounts that came up again and again – from the helpful and informative to the relatable and entertaining. 🔗 buff.ly/vCzbGEP

Results: your top Parkinson's social media accounts

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Parkinson's Europe @parkinsonseurope.bsky.social · 10/08/2026

"I have my life back," says Margie Burns-Kohn, an artist whose Parkinson's symptoms improved dramatically following DBS. Margie's art is featured in "The Art of Parkinson's", an online exhibition from Abbott, featuring the artwork of people with Parkinson's who have undergone DBS. buff.ly/DaeIus8

Margie Burns-Kohn holding a tube of paint while wearing a paint-splattered apron

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Parkinson's Europe @parkinsonseurope.bsky.social · 05/08/2026

We spoke to Dr. Martijn Beudel from Amsterdam UMC about how Medtronic’s adaptive DBS technology could deliver more targeted therapy for people with Parkinson’s. 🔗 Click here to find out more about how Adaptive DBS works: buff.ly/tmvnE4c In partnership with Medtronic

New DBS technology "adapts to a patient's unique brain activity in real time"

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Parkinson's Europe @parkinsonseurope.bsky.social · 03/08/2026

"F*** Parkinson's!" Since Michael J. Fox uttered these immortal words on Apple TV's #Shrinking, it's become a defiant, rallying cry for the online Parkinson's community. Michael J. Fox is a true legend, continuing to raise awareness and spark conversations about Parkinson's. 🔗 buff.ly/UAoekwS

"F*** Parkinson's!"
How Apple TV's 'Shrinking' created a social media mantra for the Parkinson's community.

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Parkinson's Europe @parkinsonseurope.bsky.social · 29/07/2026

Have you read the findings of Britannia Pharmaceuticals' social listening study? It's a fascinating insight into the main topics people with Parkinson's and their caregivers discuss on social media. 🔗 buff.ly/tYaDPzd We'd love to hear if these findings resonate with you; comment below👇

57% of Parkinson's discussions in Europe come from online news, especially about innovations in treatment.

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Parkinson's Europe @parkinsonseurope.bsky.social · 28/07/2026

🏖️ As we have a small team at Parkinson's Europe, we reduce our activities during August to allow our staff to take summer holidays. We're still here – please just allow a little extra time for us to respond to your messages. #Parkinsons #Parkinson #summerholiday

Summer closure. Picture of a parasol set up on the beach.

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Parkinson's Europe @parkinsonseurope.bsky.social · 27/07/2026

What frustrates you the most about Parkinson's care? Britannia Pharmaceuticals Ltd has analysed mentions of Parkinson's across social media for over 22 months. What comes up time and again is how hard it is to navigate the #healthcare system. You can read the report here: buff.ly/tYaDPzd

Issues with Parkinson's healthcare and a lack of support dominates social media conversations across Europe.

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Parkinson's Europe @parkinsonseurope.bsky.social · 23/07/2026

🚨 Important news: we are honoured to have been approached by photographer Cristian Mitrani and The Muisca Gallery in Paris with an incredibly generous proposal that will make a meaningful difference to our work. 🧵 1/5 #Parkinsons #Parkinson

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Parkinson's Europe @parkinsonseurope.bsky.social · 22/07/2026

Do you struggle with dysphagia? Swallowing problems are common in Parkinson's, which can sometimes make it harder to eat the unrestricted diet you may have been used to. But it shouldn't stop you enjoying a healthy and varied diet. 🔗 Read the article in full: buff.ly/FRlve7r #parkinsons

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Parkinson's Europe @parkinsonseurope.bsky.social · 21/07/2026

🎙️ Have you listened to the new episode of the Parkinson's Life podcast? This time we chat about adaptive #DBS with a patient who has experienced it first-hand, a nurse who programmed it, and a neurologist helping to shape how it's used across Europe. 🔗 buff.ly/Ki7gaLj Sponsored by Medtronic.

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Parkinson's Europe @parkinsonseurope.bsky.social · 18/07/2026

🌍️ Planning a getaway this summer? Get prepared and download a free copy of the Parkinson's Passport (now available in NINE languages), so you have a handy record of all your important medical information. Download it now: buff.ly/ADOKHds #parkinson #parkinsons #parkinsonspassport

Parkinson's Passports in various languages

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Parkinson's Europe @parkinsonseurope.bsky.social · 17/07/2026

✈️ Who's ready for a holiday?☀️ We've rounded up three incredible, therapeutic destinations in Italy, Portugal and Spain which offer Parkinson's-friendly breaks. Created by specialist providers, these holidays are tailor-made for people living with Parkinson's. 🔗 buff.ly/95K04Qj #parkinsons

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Parkinson's Europe @parkinsonseurope.bsky.social · 16/07/2026

Have you been referred for a clinical swallowing evaluation? If so, you may be wondering what to expect. We spoke to Veronica Clark, an independent speech and language therapist specialising in Parkinson's, about what to expect on the day and what happens next. 🔗 buff.ly/FT8VPom #parkinsons

What to expect at a clinicial swallowing evaluation

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Parkinson's Europe @parkinsonseurope.bsky.social · 09/07/2026

☀️ Anyone else struggling with meal ideas when it's this hot? We've found some delicious, easy-to-prepare, Parkinson's-friendly summer recipes that are perfect for sunny days. Let us know what you decide to make! 👉 Here's the link: buff.ly/QQoaqoh #parkinsonsmeals #healthyrecipes #summerrecipes

10 summer recipes for people with Parkinson's

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Parkinson's Europe @parkinsonseurope.bsky.social · 08/07/2026

If you experience problems with saliva control, you're not alone. Many people with Parkinson's have issues with drooling or dribbling, and while it can feel annoying and often embarrassing, there are ways to help manage this. 🔗 Read the article here: buff.ly/PHGAeCz #managingdrooling #parkinson

Tips to manage drooling with Parkinson's

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Parkinson's Europe @parkinsonseurope.bsky.social · 07/07/2026

Last week, it was fantastic to attend #EAN2026 - @ean.org's brilliant annual congress - with this year's theme being "Brains, Bytes & Beyond: Tech in Neurology". Here are five of our top takeaways 🧵

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Parkinson's Europe @parkinsonseurope.bsky.social · 02/07/2026

This extraordinary quilted artwork, "Mass Extinction is a Hoax" by Ann H, is one of the pieces included in Abbott's online exhibition "The Art of Parkinson's". The online collection celebrates the artwork of people with Parkinson's who have undergone #DBS treatment. 👉 Read more: buff.ly/TzdD8wL

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Parkinson's Europe @parkinsonseurope.bsky.social · 30/06/2026

What is MR-guided Focused Ultrasound, and how can it help people with Parkinson's? You'll find the answers to these and many other questions in our interactive online resource, all about DATTs (Device Assisted Treatment and Therapies). 🔗 Click here to find out more: buff.ly/cil5FBh #DATTs

MR-guided Focused Ultrasound is a procedure which uses ultrasound waves guided by MRI (Magnetic Resonance Imaging) to precisely treat areas of the brain.
It's a one-day, incisionless procedure with a short recovery time.
The procedure is currently unilateral (treating one side of the body). The patient is awake during the procedure, which lasts for around 2-3 hours, and can normally go back to normal life within a few days.

Benefits of MR-guided Focused Ultrasound: The benefits of the procedure are reduction of motor symptoms and motor complications and improvement in quality of life.

Risks of MR-guided Focused Ultrasound: Side effects (such as gait and speech) are common, but most are mild to moderate and progressively resolved.

Find out more: parkinsonseurope.org/datts

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Parkinson's Europe @parkinsonseurope.bsky.social · 27/06/2026

We're proud to see our Partnerships Director, Francesco, presenting at #EAN2026 today! Francesco was speaking about our work producing resources about different Parkinson's treatment options, which help to empower people with Parkinson's at their healthcare consultations. @ean.org

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Parkinson's Europe @parkinsonseurope.bsky.social · 27/06/2026

We're at the @ean.org Congress in Geneva this week! 😎 To all our fellow #EAN2026 attendees, come and say hello - find us at booth N34 in the Neurohood area. 👋

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Parkinson's Europe @parkinsonseurope.bsky.social · 25/06/2026

Did you know it's possible to get genetic testing for Parkinson's? Read all about the gene changes linked to Parkinson's, as well as the reasons why you might consider genetic testing, in our latest article. 🔗 buff.ly/aJcpNeC In partnership with Sano Genetics. #genetictesting #parkinsons

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Parkinson's Europe @parkinsonseurope.bsky.social · 24/06/2026

✈️ Airport accessibility – things need to change. We're calling for more invisible disabilities training and greater awareness to help make it easier for people with Parkinson's to travel abroad. 🔗 Read the article in full here: buff.ly/OlM0vRq @myedf.bsky.social #parkinsons #disabilityrights

Airports have 'more to learn' about accessibility for people with Parkinson's

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Parkinson's Europe @parkinsonseurope.bsky.social · 23/06/2026

What do you know about infusion pumps? You can read all about these and other DATTs (Device Assisted Treatment and Therapies) in our new interactive resource. It's a really useful guide to help you feel more informed about treatment options. 👉 Click here to read it in full: buff.ly/cil5FBh #DATT

A pump is a device which gives a continuous infusion of Parkinson's medicine via a needle inserted in the small intestine or under the skin.
This allows the medicine to bypass the gastrointestinal tract and be absorbed more rapidly by the body, reducing the fluctuations and wearing off linked to oral tablets.
The pump is normally worn attached to a belt or in a dedicated case/bag. It has a display and button to adjust the medication flow. Dose changes are always managed by a clinician.

Benefits of an infusion pump: The benefits of using a pump are the reduction of fluctuations linked to the wearing off of medication doses and the more stable control of Parkinson's symptoms.
Risk of an infusion pump: Common risks are related to skin reactions and possible infections on the infusion site, and difficulties in handling the pump by yourself or a caregiver.

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Parkinson's Europe @parkinsonseurope.bsky.social · 22/06/2026

"Parkinson's is fought with the body, but won in the mind" Read our interview with Advanced Nurse Practitioner Brian Magennis about the role of Parkinson's nurses, the importance of a holistic approach to care, and the changes he'd like to see in #ParkinsonsCare across Europe. 👉 buff.ly/nhFvmc2

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Parkinson's Europe @parkinsonseurope.bsky.social · 19/06/2026

All smiles at our AGM and Members' Meeting this week! Another wonderful example of how we are so much #StrongerTogether ❤️ #Parkinsons #Parkinson

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