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Allie Signorelli

@alliesiggy.bsky.social
557 followers 277 following 41 posts

Young Onset Parkinson’s Patient & Advocate | Writer | Storyteller | Mildly Funny | Always Feisty | Tragically Hopeful

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Allie Signorelli @alliesiggy.bsky.social · 26/02/2025
Had a great time chatting with Jamie-Lynn Sigler and Christina Applegate. Check it out here or wherever you listen to pods. open.spotify.com/episode/2QGi...
open.spotify.com
How to Make Your Own Community with Allie Signorelli
MeSsy with Christina Applegate & Jamie-Lynn Sigler · Episode
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Reposted by Allie Signorelli
Dr Indu Subramanian @drisubramanian.bsky.social · 24/01/2025
I am doing a fellowship in journalism to raise the voices in #parkinsons #healthcare my first publication on #stigma #neurology #mentalhealth #movement-disorders @parkinsondotorg.bsky.social @parkinsoncanada.bsky.social @shakinginmyboots.bsky.social @alliesiggy.bsky.social @michaelokun.bsky.social
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Allie Signorelli @alliesiggy.bsky.social · 01/12/2024
This Netflix movie where Pentatonix is dragging themselves is amazing 😂 Meet Me Next Christmas for those who need a cute movie tonight! 🎄
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Allie Signorelli @alliesiggy.bsky.social · 28/11/2024
Have added tinnitus to my list of Parkinson’s symptoms which sounds like a baby goat screaming inside my ears - especially at night. Slightly less than enjoyable, though not as bad as a screeching monkey would be, I think. Hard to say really.
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Allie Signorelli @alliesiggy.bsky.social · 28/11/2024
This show 😭 I am him. He is me. Just the best. #shrinking #parkinsons
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Allie Signorelli @alliesiggy.bsky.social · 26/11/2024
@katiecouric.bsky.social welcome! People are nicer here (so far 😂)
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Allie Signorelli @alliesiggy.bsky.social · 25/11/2024
TONIGHT!! See ya at 6 pm ET to learn more about what Ai-jen and @caringacrossgen.bsky.social are doing for caregivers everywhere. See ya soon!
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Allie Signorelli @alliesiggy.bsky.social · 24/11/2024
Calling all caregivers…and those that love them! Join me and @aijenpoo.bsky.social tomorrow for a conversation all about caregiving. 6pm ET on @imstillallie on Instagram. See ya then!💕 @caringacrossgen.bsky.social
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Reposted by Allie Signorelli
Brian Wallach @bsw5020.bsky.social · 21/11/2024
The life of the caregiver is a hard one and I am so grateful to all caregivers.
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Allie Signorelli @alliesiggy.bsky.social · 21/11/2024
I don’t know the difference between lists, hashtags, starter packs, pack animals or animal crackers at this point. But here we are… #parkinsons
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Allie Signorelli @alliesiggy.bsky.social · 21/11/2024
Are people actually nicer here than they are on Twitter or have I just not found the meanies yet? (And did I just summon the meanies?)
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Allie Signorelli @alliesiggy.bsky.social · 18/11/2024
My convo with Katie Couric about what it’s like to live with YOPD and the importance of advocacy
youtu.be
Diagnosed with Parkinson's at 47, Allie Signorelli is now a tireless advocate
YouTube video by Katie Couric
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Allie Signorelli @alliesiggy.bsky.social · 18/11/2024
This! 👏
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Allie Signorelli @alliesiggy.bsky.social · 18/11/2024
Any other of my Parkie friends on here wake up with pain in one spot every day? My right foot really hurts and burns every morning when I wake up. Any advice on how to deal - other than acting out stretching or yoga in my dreams? 😝
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Allie Signorelli @alliesiggy.bsky.social · 17/11/2024
Very proud to be part of this amazing climbing group!!
cbsnews.com
Combating Parkinson's with rock climbing
There is currently no cure for Parkinson's Disease. But some with Parkinson's are finding that an unusual therapy – rock climbing – is helping them improve their balance, mobility, strength and cognit...
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Allie Signorelli @alliesiggy.bsky.social · 17/11/2024
Got all dressed up and went to the Michael J. Fox Foundation Gala last night! Heard Stevie Nicks sing Landslide and cried. So good!
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Allie Signorelli @alliesiggy.bsky.social · 16/11/2024
My tremor has been less active since I stopped watching the news. Could this be the Parkinson’s cure we’ve all been waiting for? 😂
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Seth Abramson @sethabramson.bsky.social · 15/11/2024
Here we go! I’m working on finding every pro sports team on Bluesky. Comment if you find one I missed, and feel free to share this with the sports fans in your life. (My first job in journalism was as a Division I football reporter, and my second was as a Division I basketball color commentator.)
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Allie Signorelli @alliesiggy.bsky.social · 15/11/2024
Read my newest Substack article on why Parkinson’s went viral this summer…but for all the wrong reasons. 👇🏻 #parkinsons
open.substack.com
Parkinson's Went Viral This Summer...But For All the Wrong Reasons
It's Time to End the Use of Neurodegenerative Diseases as Political Insults
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Allie Signorelli @alliesiggy.bsky.social · 15/11/2024
Just passed by the cemetery where one of my besties is buried. She was 38 and didn’t beat breast cancer. When people ask me why I have a good outlook despite having Parkinson’s, I always think of her and how’d she’d literally give anything to still be here with her girls. I appreciate every damn day
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Allie Signorelli @alliesiggy.bsky.social · 15/11/2024
Late night packing for a trip used to be shoes….
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Allie Signorelli @alliesiggy.bsky.social · 15/11/2024
The National Parkinson’s Plan (NPP) must not be forgotten in the transition. If you haven’t contacted your MOC about it, check in and see if the can provide an update. We can’t afford to lose any more time. #nationalparkinsonsplan #npp #parkinsons
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Allie Signorelli @alliesiggy.bsky.social · 15/11/2024
Wohooooo!!! The party on BlueSky keeps getting better and better!!!!
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Reposted by Allie Signorelli
Bluesky @bsky.app · 15/11/2024
it's official — 1,000,000 people have joined Bluesky in just the last day!!! welcome and thank you for being here 🥳
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Allie Signorelli @alliesiggy.bsky.social · 14/11/2024
You can find me on Instagram too! #parkinsons #pdcommunity #yopd
instagram.com
Allie Signorelli (@imstillallie) • Instagram photos and videos
62K Followers, 837 Following, 370 Posts - See Instagram photos and videos from Allie Signorelli (@imstillallie)
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Allie Signorelli @alliesiggy.bsky.social · 14/11/2024
This feels a bit like joining a new school doesn’t it? Here’s a little about me for my new friends here. Totally open to sitting with you at lunch today! 😉 #parkinsons #pd #yopd
michaeljfox.org
Allie Signorelli
Allie Signorelli was diagnosed with Young Onset Parkinson's disease at 47 years old. She has been a nonprofit fundraiser and event producer working to raise millions for vital causes.
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Allie Signorelli @alliesiggy.bsky.social · 14/11/2024
Hello #PDCommunity I created a starter pack for PD - let me know if you want to be added. Looking for fellow PD baddies on this new app 😊 go.bsky.app/UVSff6j
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Iain Liddle @iainliddle.com · 13/11/2024
There are lots of new people on Bluesky over the last few days. I wonder if this is a platform where we can build a healthy, supportive Parkinson's community. Like or comment if #Parkinsons or #YOPD is relevant to you I'll build a list to help people find each other. Shares welcome. #PDcommunity
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Allie Signorelli @alliesiggy.bsky.social · 14/11/2024
Getting out of a cozy bed on a cold morning when you have Parkinson’s takes the same courage as bungee jumping. Not that I’d ever bungee jump.
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Allie Signorelli @alliesiggy.bsky.social · 13/11/2024
Hello! I’m a Young Onset Parkinson’s patient and advocate looking to do my part to end this disease and leave the world a slightly better place for my kids. Looking for fellow neurodegenerative warriors to battle with while having some laughs and sharing a few tears along the way! #parkinsons
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