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Nasim Marie Jafry

@nmjk.bsky.social
1.8K followers 376 following 575 posts

The State of Me, HarperCollins, 2008 | Shortlisted Bridport Flash Fiction Prize 2012 & 2023 | Love jazz, tulips, birds, French films | Second novel in progress | Had ME since 1983 societyofauthors.org/soa-member/nas…

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Nasim Marie Jafry @nmjk.bsky.social · 13h
open.spotify.com/track/0Q2b6A...
open.spotify.com
Heaven - Live
Talking Heads · Stop Making Sense (Live) · Song · 1984
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Nasim Marie Jafry @nmjk.bsky.social · 14h
Fire fears as vape shop prepares to open next to 120-year-old Glasgow tearooms www.theguardian.com/artanddesign...
theguardian.com
Fire fears as vape shop prepares to open next to 120-year-old Glasgow tearooms
Residents say shop threatens Charles Rennie Mackintosh’s last surviving tearoom months after vape shop blaze nearby
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Kriszta Satori @fulelo.bsky.social · 30/09/2026
#BBCNews - First female prime minister named in Morocco after winning elections www.bbc.co.uk/news/article...
bbc.co.uk
Fatima Zahra El Mansouri named as Morocco's first female prime minister
Her appointment by the king makes her only the second woman to lead a government in the Arab world.
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Nasim Marie Jafry @nmjk.bsky.social · 17h
Autumn rose
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Anushree Nande @anushreenande.bsky.social · 29/09/2026
New piece Earlier this year, I had the opportunity to have this chat with @davidnaimon.bsky.social for @therumpus.net about the wonderful @ursulakleguin.com. therumpus.net/2026/09/28/n...
therumpus.net
Nothing is Too Small to Contain the World: A Conversation with David Naimon - The Rumpus
Conversations on Writing does touch on how these big impossible questions can be found within the smallest choices we make as writers, within syntax, voice, point of view, and narrative. And the gestu...
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Nasim Marie Jafry @nmjk.bsky.social · 28/09/2026
‘You were right’: Ed Miliband tells critics Labour was wrong on Gaza www.theguardian.com/politics/202...
theguardian.com
‘You were right’: Ed Miliband tells critics Labour was wrong on Gaza
Foreign secretary will tell party’s conference ‘we are not here to accept the status quo but to change it’
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Nasim Marie Jafry @nmjk.bsky.social · 28/09/2026
Looking forward to this memoir: Mother Mary Comes To Me by Arundhati Roy review – brave and absorbing www.theguardian.com/books/2025/s...
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Nasim Marie Jafry @nmjk.bsky.social · 27/09/2026
Fascinating on Robert Louis Stevenson’s lighthouse engineering family.
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Nasim Marie Jafry @nmjk.bsky.social · 27/09/2026
www.bbc.co.uk/sounds/play/...
bbc.co.uk
Sunday Feature - Keepers of the Light - BBC Sounds
Robert Louis Stevenson, the lighthouse dynasty he left behind and the sea that shaped him.
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Tom Kindlon @tomkindlon.bsky.social · 09/09/2026
10 years today, after a David vs Goliath FOI legal battle that damaged Alem Mathees, White et al were forced to release data from PACETrial (that cost UK taxpayers £5M) showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS. Please remind the world #MEcfs #PwME #CFS
 Rethinking the treatment of chronic fatigue syndrome-a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
Carolyn E Wilshire  1 , Tom Kindlon  2 , Robert Courtney  3 , Alem Matthees  4 , David Tuller  5 , Keith Geraghty  6 , Bruce Levin  7
Affiliations Expand

    PMID: 29562932 PMCID: PMC5863477 DOI: 10.1186/s40359-018-0218-3 

Abstract

Background: The PACE trial was a well-powered randomised trial designed to examine the efficacy of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for chronic fatigue syndrome. Reports concluded that both treatments were moderately effective, each leading to recovery in over a fifth of patients. However, the reported analyses did not consistently follow the procedures set out in the published protocol, and it is unclear whether the conclusions are fully justified by the evidence.

Methods: Here, we present results based on the original protocol-specified procedures. Data from a recent Freedom of Information request enabled us to closely approximate these procedures. We also evaluate the conclusions from the trial as a whole.
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Anita Chaudhuri @anitachaudhuri.bsky.social · 10/06/2026
Bunting, Chelsea #London #eastcoastkin #icm
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Bren Sweeney @brensweeney.bsky.social · 17/07/2026
Beautiful symmetry that I was asked to create The Pastels concert poster for their Christmas gig this year.💙 Their 80’s gig posters were cultural currency in the days before ‘image search’. *tickets almost gone. Get on it. x
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Chris Dale @chrisdaleoxford.bsky.social · 27/09/2026
In Iona Abbey OTD in 2023
Carved stone head with a drinking cup on a column in an old abbey.
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Nasim Marie Jafry @nmjk.bsky.social · 27/09/2026
‘It’s like the Scottish Upper East Side’: shame and snobbery as American students blamed for St Andrews classism www.theguardian.com/education/20...
theguardian.com
‘It’s like the Scottish Upper East Side’: shame and snobbery as American students blamed for St Andrews classism
Online comments reflect class tensions at Scottish university between those from lower-income families and wealthier US undergraduates
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Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social · 27/09/2026
My hope is that DecodeME + other research may lead to a significant shift. Jonathan Edwards has said that many more scientists & physicians he is contacting are taking an interest now. Things have been shifting slowly for a long time but we may be approaching a tipping point.
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Andy Lewis @andylewis.bsky.social · 27/09/2026
Every time someone links to this film, I have to repost it. It's one of the most significant bits of British 20th century art. Everything about it is incredible. Groundbreaking music production by Daphne Oram. Amazing camera work by Wolfgang Suschitzky (who later filmed Get Carter).-
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Grant Bulloch @bulloch.photography · 27/09/2026
Revisiting a trip to Colonsay over the next few posts, and the wonderful textures and patterns along its coastline. #photography #landscapephotography #photographers
Fractured lines in the rock with yellow lichen.
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idnana @anandimish.bsky.social · 26/09/2026
what a stellar profile of everyone’s favourite publishing house @fitzcarraldoeds.bsky.social in the @financialtimes.com’ HTSI www.ft.com/content/fad8...
ft.com
Fitzcarraldo – inside the chicest publisher on earth
Jacques Testard is transforming our reading habits, one blue book at a time
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Nasim Marie Jafry @nmjk.bsky.social · 25/09/2026
Looking forward to this: Meet the Writers: Anuradha Roy and Life in the Himalayas. monocle.com/player/?uuid...
monocle.com
Monocle radio - listen now
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Mairéad Hearne | Swirl and Thread Book Blog @maireadhearne.bsky.social · 25/09/2026
'You can now buy stamps celebrating modern Irish literature' via @thejournal.ie www.thejournal.ie/an-post-lite...
thejournal.ie
You can now buy stamps celebrating modern Irish literature
Emma Donoghue, author of Room, said she “shed a tear” when she heard that her book would appear on the stamps.
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Nasim Marie Jafry @nmjk.bsky.social · 25/09/2026
I’ve lived w ME since 1983. George’s article and allyship is hugely welcome. But nothing is going to change until the political will changes. Is there any other condition that’s seen such paltry advance in 40 years? The ME narrative was hijacked by psychiatry in 90s -Wessely & co. And here we are.
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Mickey’s in Cognitive Decline @mickeybiz.bsky.social · 24/09/2026
A third lunchtime ish tune It has been too long youtu.be/LbYxP11rbSM?...
youtu.be
Echo & The Bunnymen - Seven Seas (Official Music Video)
YouTube video by Echo & the Bunnymen
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Nasim Marie Jafry @nmjk.bsky.social · 24/09/2026
Not sure when PEM - post-exertional malaise - was coined for how utterly exhausted and poisoned you feel after any kind of exertion for #pwME. No activity, physical or mental can be sustained. Exercise exacerbates. I think noughties. I fear now the term is bandied around by anyone and everyone.
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Nasim Marie Jafry @nmjk.bsky.social · 23/09/2026
Love this quote: “To write a decent story is such a huge and unlikely accomplishment that we shouldn’t care how long it takes.” —George Saunders buff.ly/eeYMDkK
buff.ly
George Saunders, The Art of Fiction No. 245
My first meeting with George Saunders took place in his home of ten years, a ranch house in the Catskills. The house stood on fifteen acres of hilly woods, crisscrossed by narrow paths that he and...
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David Naimon @davidnaimon.bsky.social · 14/09/2026
Don't miss today's ep with China Miéville about his new novel, 21 years in the making, THE ROUSE. We explore everything from Marxism to monsters, apophatic theology to the nature of consciousness to the failure of language before all that goes bump in the night. Audio: milkweed.org/between-the-...
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Jonathan Slater @jonathanslater.bsky.social · 24/09/2026
The Greenhouse from recycled church stained glass windows, also known as "Sacré Blur" was made by horticultural installation artists Heywood and Condie from salvaged 18th and 19th century ecclesiastical stained glass. London
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London Review of Books @lrb.co.uk · 24/09/2026
‘In Hermione Lee’s biography we enter the life and work of a woman who was “dandyish, witty, controlled”, and who often sought in the shade what other writers may seek in the sunny uplands of a social group.’ Andrew O’Hagan on Anita Brookner. www.lrb.co.uk/the-paper/v4...
lrb.co.uk
Andrew O’Hagan · Omelettes and Whisky: Anita Brookner’s Edge
Over the course of 24 novels and 87 years, Anita Brookner achieved many dislocations of selfhood and may have become...
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London Review of Books @lrb.co.uk · 18/09/2026
As universities are cutting English degree programmes, Colin Burrow isn't the only one asking ‘what’s the point of literary criticism?’ But he has several answers, and in this episode he joins @moonjets.bsky.social to discuss them. Listen here: podcasts.apple.com/gb/podcast/t...
podcasts.apple.com
What’s the point of literary criticism?
Podcast Episode · The LRB Podcast · 18 September · 37min
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Nasim Marie Jafry @nmjk.bsky.social · 24/09/2026
*worthless
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Nasim Marie Jafry @nmjk.bsky.social · 24/09/2026
And of course patients who were mild/moderate became severe because of the ideology of those worthess psychiarists. Forced to do GET. Why is this OK? #pwME
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Nasim Marie Jafry @nmjk.bsky.social · 24/09/2026
The media's collusion with those psychs and their acolytes ensured that people with a hellish illness were besmirched instead of supported. So thank you, George Monbiot, again. #pwME
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Nasim Marie Jafry @nmjk.bsky.social · 24/09/2026
George Monbiot has written an excellent article on the ongoing appalling gaslighting of ME patients. Please see below reposting. My 2008 novel The State of Me fictionalises my own diagnosis in eigties. I was fortunately seen by consultant neurologist Peter Behan who was researching ME. #pwME
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George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Nasim Marie Jafry @nmjk.bsky.social · 23/09/2026
Love this quote: “To write a decent story is such a huge and unlikely accomplishment that we shouldn’t care how long it takes.” —George Saunders buff.ly/eeYMDkK
buff.ly
George Saunders, The Art of Fiction No. 245
My first meeting with George Saunders took place in his home of ten years, a ranch house in the Catskills. The house stood on fifteen acres of hilly woods, crisscrossed by narrow paths that he and...
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George Monbiot @georgemonbiot.bsky.social · 23/09/2026
Possession of an offensive weapon, reckless endangerment, criminal damage ... Let's hope the police take this seriously. www.theguardian.com/world/2026/s...
theguardian.com
Far-right activist Daniel Thomas slashes dinghy in Channel with blade while rescue worker onboard
Thomas called followers to protest against arrival of asylum seekers in Gosport, but Border Force instead transported them to Dover
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Nasim Marie Jafry @nmjk.bsky.social · 22/09/2026
Watched all the Michael Apted 7ups over the years. #70up is utterly beautiful and heartbreaking.
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Rachel Malik @rachelmalik.bsky.social · 22/09/2026
It’s nearly a year and a half since my mum died and I’ve written something about her life
rachelmalik.com
Remembering my mum
It’s nearly a year and a half since my mum died and I miss her terribly. I want to talk to her, ask her advice, hang out in her beautiful flat (now sold), laugh, feel frustrated, all of it. Just after...
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Chris Ponting @cgatist.bsky.social · 14/09/2026
📢 New ME/CFS genetics preprint from the Beentjes/ Khamseh/ Ponting groups NB: Not DecodeME We discover 7 genetic associations to ME/CFS that are independently replicated in UK Biobank and/or All of Us ME/CFS case/control status required multiple lines of evidence www.medrxiv.org/content/10.6...
ME/CFS cases (or controls) were defined using multiple lines of evidence in 2 independent UK Biobank cohorts, and 1 independent All of Us cohort. We needed to restrict genetic ancestry to Europeans to minimise the chance of spurious associations. Next, we used TarGene to estimate the effects of genetic variants on ME/CFS risk. Finally, we replicated 7 variants that were both significant in a Discovery GWAS, and in one of two Replication GWAS.
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Manchester University Press @manchesterup.bsky.social · 17/09/2026
British South Asians have a long tradition of radical political activism. @tajali1.bsky.social tells the inspirational story of how they organised against racism in the past and how they continue to fight in the present. Join us at @lighthousebks.bsky.social: lighthousebookshop.com/events/come-...
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George Monbiot @georgemonbiot.bsky.social · 21/09/2026
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks.
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Nina Willburger @drnwillburger.bsky.social · 20/09/2026
The amazing “Elk’s Head of Huittinen” comes from a Mesolithic settlement in southern Finland, dating to around 6100 BC. The ~10 cm long steatite (soapstone) head was carefully ground and finished and features a shaft hole for mounting. Because the stone is soft, it is unlikely...🧵1/3 📷 me
A close-up photograph of a grayish-brow stone sculpture of an elk head, shown diagonally against a black background. The elongated muzzle points toward the lower right, with rounded antler-like forms rising at the top.
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The Agnes Owens Archive @aowensarchive.bsky.social · 20/09/2026
We’re delighted to be working with Byres Road Book Festival to celebrate Agnes Owens’ centenary with a special series of events. 📚✨ Join us 24 & 27 Sept at Òran Mór and Hillhead Library. Free!
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London Review of Books @lrb.co.uk · 19/09/2026
‘Literary criticism, above all, is about particularities. It's about looking at a poem and saying something about this poem and not another poem. And that means it should be defended as a particularity.’ Colin Burrow on the point of criticism, on the podcast: podcasts.apple.com/gb/podcast/t...
podcasts.apple.com
What’s the point of literary criticism?
Podcast Episode · The LRB Podcast · 18 September · 37min
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Nasim Marie Jafry @nmjk.bsky.social · 18/09/2026
Women with same health conditions as men ‘less likely to be offered active treatment’ www.theguardian.com/science/2026...
theguardian.com
Women with same health conditions as men ‘less likely to be offered active treatment’
Men with heart, kidney or liver conditions more likely to be offered intervention compared with women, global analysis finds
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elia ayoub @ayoub.bsky.social · 17/09/2026
Friend shared this video of a man unveiling the library he hid when he fled Damascus in 2011. It’s incredible
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Nasim Marie Jafry @nmjk.bsky.social · 16/09/2026
‘Newsnight’s kindest critic’: Bonnie Greer was always effortlessly in command www.theguardian.com/stage/2026/s...
theguardian.com
‘Newsnight’s kindest critic’: Bonnie Greer was always effortlessly in command
Playwright was an unusual mix of originality and authority and in high demand as a cultural critic
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Nasim Marie Jafry @nmjk.bsky.social · 16/09/2026
70 Up review – a deeply moving conclusion for the 63-year-long TV experiment www.theguardian.com/tv-and-radio...
theguardian.com
70 Up review – a deeply moving conclusion for the 63-year-long TV experiment
The landmark documentary series looked like it was done for good – until one participant was diagnosed with terminal cancer. Asif Kapadia takes the helm for its most elegiac, thoughtful outing ever
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Dani Garavelli @danigaravelli.bsky.social · 16/09/2026
Predappio - the town where Mussolini was born & where his remains lie - is a grotesque neo_Fascist fever dream. I visited during his birthday commemorations & wrote on what its willingness to exploit his memory says about the country, and the rise of its far-right. In the latest @lrb.co.uk
lrb.co.uk
Dani Garavelli · Diary: Cult of Mussolini
A couple of days before I arrived in Predappio, I read that Hitler’s birthplace in Austria had been compulsorily...
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