iiinova — where your digital self keeps evolving

Jon Dunn @dunnjons.bsky.social · 14h

Reposted by Nasim Marie Jafry

It's been a classic Clouded Yellow year here in the UK, with many autumn insects still on the wing now we're moving into October. I've seen a lot of other Colias clouded yellows on my travels this year - here are my favourites, starting with Pale Arctic Clouded Yellow in Sweden. #butterflies

Pale Arctic Clouded Yellow (Colias tyche), seen on Butterflies of the European Arctic tour I co-led for Mariposa Nature Tours, © Jon Dunn

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elia ayoub @ayoub.bsky.social · 10h

The most obvious disaster waiting to happen

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George Monbiot @georgemonbiot.bsky.social · 02/10/2026

To those who somehow don't seem to understand: Which part of authorising weapons sales to a state committing genocide, banning the protest movement trying to stop these sales, using the RAF to provide surveillance flights for Israel and providing major diplomatic and media support is NOT complicity?

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Nina Willburger @drnwillburger.bsky.social · 03/10/2026

Fascinating world of ancient #glass! #Roman dove-shaped vessels were used as perfume bottles. The liquid was sealed inside and the tip of the tail or the beak had to be broken to remove the perfume. This particular example, discovered in a first-century burial at Rovasenda, Italy, is...🧵1/2 🏺

A close-up of an undamaged, translucent glass vessel shaped like a dove. The vessel contains a clear liquid with a reddish sediment visible at the bottom.

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Kelly Rebar @kellyjeanrebar.bsky.social · 02/10/2026

The soft blue tones of a cement birdbath after an overnight rain in #October.

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Nasim Marie Jafry @nmjk.bsky.social · 02/10/2026

'Fiction is that strange, smoky thing that writers don't entirely own even if they think they do'. Arundhati Roy

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Nasim Marie Jafry @nmjk.bsky.social · 28/09/2026

Looking forward to this memoir: Mother Mary Comes To Me by Arundhati Roy review – brave and absorbing www.theguardian.com/books/2025/s...

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Tom Kindlon @tomkindlon.bsky.social · 09/09/2026

Fascinating on Robert Louis Stevenson’s lighthouse engineering family.

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Reposted by Nasim Marie Jafry

10 years today, after a David vs Goliath FOI legal battle that damaged Alem Mathees, White et al were forced to release data from PACETrial (that cost UK taxpayers £5M) showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS. Please remind the world #MEcfs #PwME #CFS

Rethinking the treatment of chronic fatigue syndrome-a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
Carolyn E Wilshire 1 , Tom Kindlon 2 , Robert Courtney 3 , Alem Matthees 4 , David Tuller 5 , Keith Geraghty 6 , Bruce Levin 7
Affiliations Expand

PMID: 29562932 PMCID: PMC5863477 DOI: 10.1186/s40359-018-0218-3

Abstract

Background: The PACE trial was a well-powered randomised trial designed to examine the efficacy of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for chronic fatigue syndrome. Reports concluded that both treatments were moderately effective, each leading to recovery in over a fifth of patients. However, the reported analyses did not consistently follow the procedures set out in the published protocol, and it is unclear whether the conclusions are fully justified by the evidence.

Methods: Here, we present results based on the original protocol-specified procedures. Data from a recent Freedom of Information request enabled us to closely approximate these procedures. We also evaluate the conclusions from the trial as a whole.

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Hey, 40 years is a long time to go undiagnosed. I was lucky to be diagnosed by a neurologist with a research interest in ME after 18 months of illness. I published a novel in 2008 based on my experience in 80s/90s. My words are my weapon against the ignorance that still prevails.

Bren Sweeney @brensweeney.bsky.social · 17/07/2026

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Beautiful symmetry that I was asked to create The Pastels concert poster for their Christmas gig this year.💙 Their 80’s gig posters were cultural currency in the days before ‘image search’. *tickets almost gone. Get on it. x

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Chris Dale @chrisdaleoxford.bsky.social · 27/09/2026

In Iona Abbey OTD in 2023

Carved stone head with a drinking cup on a column in an old abbey.

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Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social · 27/09/2026

My hope is that DecodeME + other research may lead to a significant shift. Jonathan Edwards has said that many more scientists & physicians he is contacting are taking an interest now. Things have been shifting slowly for a long time but we may be approaching a tipping point.

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I just realised it's 44 years this September I got ill... I guess at some point the situation for pwME has to improve. Once the old guard have truly gone.

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I hope so but am just utterly jaded with it all.

Andy Lewis @andylewis.bsky.social · 27/09/2026

Reposted by Nasim Marie Jafry

Every time someone links to this film, I have to repost it. It's one of the most significant bits of British 20th century art. Everything about it is incredible. Groundbreaking music production by Daphne Oram. Amazing camera work by Wolfgang Suschitzky (who later filmed Get Carter).-

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Grant Bulloch @bulloch.photography · 27/09/2026

Revisiting a trip to Colonsay over the next few posts, and the wonderful textures and patterns along its coastline. #photography #landscapephotography #photographers

Fractured lines in the rock with yellow lichen.

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𝔻𝕖𝕔𝕝𝕒𝕟 𝕆'𝔻𝕣𝕚𝕤𝕔𝕠𝕝𝕝 @jacqbetula.bsky.social · 25/09/2026

I hope we'll find out the truth about this accusation that AI was used for Thélyson Orélien's book. It was discussed in a recent TLS podcast. In that discussion, the fact that it was published by the controversial publisher Grasset was noted as surprising. www.theguardian.com/books/2026/s...

theguardian.com

Novelist accused of using AI to write book removed from French prize list

Thélyson Orélien had been in the running to win a top literary prize before the AI claim emerged on social media

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idnana @anandimish.bsky.social · 26/09/2026

what a stellar profile of everyone’s favourite publishing house @fitzcarraldoeds.bsky.social in the @financialtimes.com’ HTSI www.ft.com/content/fad8...

ft.com

Fitzcarraldo – inside the chicest publisher on earth

Jacques Testard is transforming our reading habits, one blue book at a time

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Am so looking forward to listening. We visited Murree hill station with a convoy of relatives in '74, my mum took us to Pakistan after my dad had died, I scrape the memories from my head for my novel-in-progress!

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I got ill in 1982/83 after a severe enterovirus. It still chills me the way the medical establishment hijacked patients, reframing the narrative of a complex neuroimmune illness to suit themselves. Appalling arrogance and ignorance every step of the way.

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Monocle radio - listen now

Looking forward to this: Meet the Writers: Anuradha Roy and Life in the Himalayas. monocle.com/player/?uuid...

monocle.com

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I’ve lived w ME since 1983. George’s article and allyship is hugely welcome. But nothing is going to change until the political will changes. Is there any other condition that’s seen such paltry advance in 40 years? The ME narrative was hijacked by psychiatry in 90s -Wessely & co. And here we are.

Oh, everyone’s got PEM now. Social media contagion.

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Hey, Declan, China Miéville is indeed fascinating to listen to. I have saved an hour for tomorrow. I have not read any of his previous work, have you? Would love to read The Rouse but the length is daunting.

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Nasim Marie Jafry @nmjk.bsky.social · 23/09/2026

Not sure when PEM - post-exertional malaise - was coined for how utterly exhausted and poisoned you feel after any kind of exertion for #pwME. No activity, physical or mental can be sustained. Exercise exacerbates. I think noughties. I fear now the term is bandied around by anyone and everyone.

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Reposted by Nasim Marie Jafry

Love this quote: “To write a decent story is such a huge and unlikely accomplishment that we shouldn’t care how long it takes.” —George Saunders buff.ly/eeYMDkK

buff.ly

George Saunders, The Art of Fiction No. 245

My first meeting with George Saunders took place in his home of ten years, a ranch house in the Catskills. The house stood on fifteen acres of hilly woods, crisscrossed by narrow paths that he and...

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David Naimon @davidnaimon.bsky.social · 14/09/2026

Have followed David for ages but I missed this interview. Listening now, thanks for highlighting!

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Reposted by Nasim Marie Jafry

Don't miss today's ep with China Miéville about his new novel, 21 years in the making, THE ROUSE. We explore everything from Marxism to monsters, apophatic theology to the nature of consciousness to the failure of language before all that goes bump in the night. Audio: milkweed.org/between-the-...

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Jonathan Slater @jonathanslater.bsky.social · 24/09/2026

The Greenhouse from recycled church stained glass windows, also known as "Sacré Blur" was made by horticultural installation artists Heywood and Condie from salvaged 18th and 19th century ecclesiastical stained glass. London

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London Review of Books @lrb.co.uk · 24/09/2026

‘In Hermione Lee’s biography we enter the life and work of a woman who was “dandyish, witty, controlled”, and who often sought in the shade what other writers may seek in the sunny uplands of a social group.’ Andrew O’Hagan on Anita Brookner. www.lrb.co.uk/the-paper/v4...

lrb.co.uk

Andrew O’Hagan · Omelettes and Whisky: Anita Brookner’s Edge

Over the course of 24 novels and 87 years, Anita Brookner achieved many dislocations of selfhood and may have become...

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