Sign in

Dr Nicola Sugden

@nicolasugden.bsky.social
808 followers 1.4K following 43 posts

Edinburgh-based researcher looking at data and healthcare. Formerly history of genetics; genomics; evolution; children; animals; race; minds; brains; psychology /iatry /oanalysis; madness; neurodiversity; disability; bioethics; reproductive technology.

PostsRepliesMedia
Dr Nicola Sugden @nicolasugden.bsky.social · 14/08/2026
Last change to submit! Our CFP closes on Monday: #STS #CriticalDataStudies #MedAnthro
110
Dr Nicola Sugden @nicolasugden.bsky.social · 13/08/2026
Another eclipse, another pinhole camera:
A woman sits cross-legged looking into a home-made pinhole camera made from a cardboard box decorated in colourful wrapping paperInside the pinhole camera, the eclipsed sun appears as a tiny crescent of light against a shadowed background
100
Reposted by Dr Nicola Sugden
Dr Hannah J. Elizabeth @sexhistorian.bsky.social · 06/08/2026
The cool thing about this PhD (beyond the funding) is you'll get to design your own project but also be part of a small team. It's associated with my project on the history of activism around AIDS denial wellcome.org/research-fun... & in September 2027 a postdoc will also join the project! #HistMed
wellcome.org
A Transnational History of HIV/AIDS Denial: Origins, manifestations, and persistence, 1981 to the present - Grants Awarded | Wellcome
A Transnational History of HIV/AIDS Denial: Origins, manifestations, and persistence, 1981 to the present
11413
Dr Nicola Sugden @nicolasugden.bsky.social · 06/08/2026
❗Deadline approaching❗ Reconfiguring the citizen-patient through health and care data - two-day interdisciplinary workshop in Edinburgh in December: dare.ed.ac.uk/events/2026/... #STS #CriticalDataStudies #MedAntro
Image shows multicoloured icons representing citizens and their health data (e.g. baby, adult, person with walking stick; thermometer, computer, checklist)
000
Reposted by Dr Nicola Sugden
Mar Hicks @histoftech.bsky.social · 22/07/2026
The Society for the History of Technology conference extended its call to late August, & this year’s conference will be all online. Details below if you’d like to submit. Also, I’m putting together a panel that has 1 or 2 more slots on it, so lmk if (1/2) www.historyoftechnology.org/annual-meeti...
historyoftechnology.org
2026 SHOT Annual Meeting (Virtual)
Visit the post for more.
34323
Reposted by Dr Nicola Sugden
Rebekah Higgitt @rhiggitt.bsky.social · 13/07/2026
We have made the news! #eshs-hss (overlooking the blandly sweeping statements made about Edinburgh and #histSTM) www.heraldscotland.com/news/2627512...
heraldscotland.com
Thousands of academics descend on Scottish capital for 'landmark' event
The five-day conference is being held at Edinburgh University, the Edinburgh International Conference Centre (EICC), and the National Museum of…
08221
Dr Nicola Sugden @nicolasugden.bsky.social · 08/07/2026
Very very late, but this was my 2025 in fiction. Highlights: Piranesi and Babel (obviously); The Gods Below; Lake of Souls. Biggest Disappointment: The Book of Dust (I have OPINIONS™️😡). Most horrifying (complimentary) (won't be re-reading): Clay's Ark.
Picture shows the covers of twelve books: Norse Myths; Bloodchild; The Book of Dust; How Long 'til Black Future Month; The CHildren of Jocasta; Mythology; Medea; Pattern Master; Clay's Ark; The God's Below; Erewhon; The Mask Falling.Picture showing twelve book covers: The Song Rising; A Conjuring of Light; A Gathering of Shadows; The Ladies of Grace Adieu; He, She, and It; A Darker Shade of Magic; The Grace of Kings; Babel; Before the Coffee Gets Cold; The Mime Order; PiranesiPicture showing twelve book covers: The Iliad; The Odyssey; Goddess of the River; Call of the Bone Ships; Atalanta; The Bone Ships Wake; The Buried Giant; Echo of Worlds; Broken Stars; The Raven Tower; Jonathan Strange & Mr Norrell
020
Reposted by Dr Nicola Sugden
Shoumita Dasgupta, PhD @profdasgupta.bsky.social · 08/07/2026
“I don’t think people hoping to benefit public health by sharing their genetic data [All of Us] were really thinking that that’s the kind of company [Palantir] that would be handling their information.” -KHasson of @geneticsandsociety.bsky.social www.motherjones.com/politics/202...
motherjones.com
Palantir has a hand in NIH's most ambitious health initiative
The defense tech firm's work with public health data has largely flown under the radar.
22718
Reposted by Dr Nicola Sugden
WIRED @wired.com · 06/07/2026
“We created this platform, the Palestine Museum Digital Archive, which is an unlootable archive,” says Amer Shomali the museum’s general director. The mission is to safeguard Palestinian history and make it available to those unable to visit Palestine.
wired.com
How Palestinians Are Building a Digital Archive That Can’t Be Erased
Distributed backups, cyber resilience, and a half-million records are preserving Palestinian history beyond any single building or border.
1173
Dr Nicola Sugden @nicolasugden.bsky.social · 02/07/2026
📣Call for Papers📣Workshop: Reconfiguring the citizen-patient through health and care data Join us on 3rd-4th December to think about how citizenship and patienthood are being reforged together in an era of intense datafication. Full CFP & further info: dare.ed.ac.uk/events/2026/... #STS #MedAnthro
Image shows multicoloured icons representing citizens and their health data (e.g. baby, adult, person with walking stick; thermometer, computer, checklist)
101
Reposted by Dr Nicola Sugden
Michael Barany @mjb.mathstodon.xyz.ap.brid.gy · 02/06/2026
Since September I've been working with an international group to develop what we hope can be a response from the mathematics community to artificial intelligence in maths. The Leiden Declaration is now posted and open for signatures: leidendeclaration.ai #LeidenDeclaration
leidendeclaration.ai
Leiden Declaration on Artificial Intelligence and Mathematics
This declaration calls for action to address the challenges posed by the use of artificial intelligence within mathematics research.
77547
Dr Nicola Sugden @nicolasugden.bsky.social · 12/05/2026
I'd like to introduce everyone to my new colleague, Trixie. She is very small and has a marshmallow instead of a brain.
Photograph shows a small calico cat, mostly white with some orange and black markings, laying down.
170
Reposted by Dr Nicola Sugden
Matt Houlbrook @tricksterprince.bsky.social · 05/05/2026
Our new exhibition Remembering Humberside is up-and-running @hullhistorycentre.bsky.social and @northlincsmuseum.bsky.social. If you're lucky enough to be on Humberside it's well worth a visit. For everyone else, there's a nice write-up in The Hull Story. www.thehullstory.com/allarticles/...
thehullstory.com
The rise and fall of Humberside — The Hull Story
By Martin Taylor , city archivist - based on the text of the exhibition, Remembering Humberside April 1 this year was the thirtieth anniversary of the abolition of Humberside County Council. Its l...
23620
Dr Nicola Sugden @nicolasugden.bsky.social · 10/03/2026
Couldn't help quoting Charles West: "bear in mind that the heart may break, or the reason fail, under causes that seem to us quite insufficient; the griefs of childhood may be, in proportion to the child’s power of bearing them, as overwhelming as those which break the strong man down."
000
Dr Nicola Sugden @nicolasugden.bsky.social · 10/03/2026
"‘A Category for the Not-Yet-Known’: How Rheumatism Made Room for Winnicott’s Child Psychoanalysis'" is out now in Social History of Medicine: doi.org/10.1093/shm/.... First drafted as part of a PhD chapter c.8 years ago. It's never too late!
doi.org
‘A Category for the Not-Yet-Known’: How Rheumatism Made Room for Winnicott’s Child Psychoanalysis
Summary. Influential psychoanalyst and children’s doctor Donald Woods Winnicott (1896–1971) began his career in children’s hospitals and continued to work
031
Dr Nicola Sugden @nicolasugden.bsky.social · 05/03/2026
There's still time to submit to the our panel 'Caring for the Possible: In the Meantime of Healthcare’s Data-Driven Futures' at @easst.bsky.social 2026! (Extended CFP closes 9th March)
010
Dr Nicola Sugden @nicolasugden.bsky.social · 24/02/2026
Technology and risk in healthcare’s move to digital: Five lessons from the history of technology and STS dare.ed.ac.uk/blog/2026/te...
dare.ed.ac.uk
Technology and risk in healthcare’s move to digital: Five lessons from the history of technology and STS | Dare | Data and the Healthcare ‘Revolution’ – DARE for short – explores the intersection of d...
000
Dr Nicola Sugden @nicolasugden.bsky.social · 06/02/2026
Theorising the data-care-learning nexus, with a little help from celestial mechanics: dare.ed.ac.uk/blog/2026/da...
dare.ed.ac.uk
Data-care-learning as a three-body problem | Dare | Data and the Healthcare ‘Revolution’ – DARE for short – explores the intersection of data, care and learning in the era of data-driven transformatio...
030
Reposted by Dr Nicola Sugden
Joseph Cox @josephcox.bsky.social · 02/02/2026
New: our zine about ICE surveillance is here! People who bought a custom printed copy will get in the mail soon. We're also releasing the PDF for free for anyone to download. Also releasing a version in Spanish so more people can read about the tech ICE is using. Get here: www.404media.co/icezine/
404media.co
Our Zine About ICE Surveillance Is Here
Download a PDF of our first ever zine here.
814951
Reposted by Dr Nicola Sugden
Joseph Cox @josephcox.bsky.social · 30/01/2026
New from 404 Media: here is the user guide for ELITE, the tool Palantir made for ICE. A map shows people on a map; ICE clicks them, brings up their dossier. ICE uses to find which neighborhoods to target. We obtained it, you can now read the document for yourself: www.404media.co/here-is-the-...
404media.co
Here is the User Guide for ELITE, the Tool Palantir Made for ICE
404 Media is publishing a version of the user guide for ELITE, which lets ICE bring up dossiers on individual people and provides a “confidence score” of their address.
17959653
Reposted by Dr Nicola Sugden
Emma Wilkinson @emmajourno.bsky.social · 28/01/2026
This is worth paying attention to particularly for those who have concerns about Palantir's involvement in NHS data.... www.bmj.com/content/392/...
bmj.com
ICE and Palantir: US agents using health data to hunt illegal immigrants
US immigration agents are using an app developed by Palantir that draws on the health records of millions of Americans to find and detain illegal immigrants. The revelation comes as the US’s Immigrat...
35552
Dr Nicola Sugden @nicolasugden.bsky.social · 14/01/2026
What happens to the promissory utopias of data-driven healthcare “in the meantime”? Join our panel at @easst.bsky.social 2026 to discuss 'Caring for the Possible: In the Meantime of Healthcare’s Data-Driven Futures': dare.ed.ac.uk/events/2025/...
dare.ed.ac.uk
Call for Abstracts: Open Panel at EASST 2026 | Dare | Data and the Healthcare ‘Revolution’ – DARE for short – explores the intersection of data, care and learning in the era of data-driven transformat...
010
Dr Nicola Sugden @nicolasugden.bsky.social · 09/01/2026
thanks i hate it openai.com/index/introd...
openai.com
Introducing ChatGPT Health
A dedicated experience in ChatGPT designed for health and wellness.
030
Reposted by Dr Nicola Sugden
Royal Historical Society @royalhistsoc.org · 07/01/2026
If you're looking for #history networks on BlueSky in 2026, our Starter Pack - recently updated - has details of 150 leading societies, organisations and groups active in the UK and Ireland bit.ly/4ptl0On #Skystorians
bit.ly
Societies & groups for historians, UK and Ireland
Join the conversation
38242
Dr Nicola Sugden @nicolasugden.bsky.social · 26/11/2025
I'll be sharing some thoughts on chatbots, therapy, and the mental health crisis next week:
161
Reposted by Dr Nicola Sugden
Autism: The International Journal of Research & Practice. @journalautism.bsky.social · 23/09/2025
Autism ableism seen through research abstract contents: A mixed-methods analysis of language in NIH-funded genetic and genomic autism research
journals.sagepub.com
Autism ableism seen through research abstract contents: A mixed-methods analysis of language in NIH-funded genetic and genomic autism research - Nicola Sugden, Lily S Barna, Kaylee Foor, John Kee, Chris Gunter, 2025
In recent years, genetic and genomic autism research has come under increasing scrutiny, moving to the center of debates about ableism, neurodiversity, autism acceptance, and the future of research...
072
Reposted by Dr Nicola Sugden
Ben Collier @susansegfault.bsky.social · 26/09/2025
netwars.pelicancrossing.net/2025/09/26/t... great overview of the history and evidence on ID cards by Wendy
netwars.pelicancrossing.net
The absurdity card
Fifteen years ago, a new incoming government swept away a policy its immediate predecessors had been pushing since shortly after the 2001 9/11 attacks: identity
063
Reposted by Dr Nicola Sugden
Gil Durán @gilduran.com · 24/09/2025
2/ In 2001, Borsook said tech "libertarianism" reflected an adolescent mindset, with a craving for unchecked independence & resistance to constraint. She warned that tech libertarians wanted an anti-human world that worked more like a computer. From "Cyberselfish," a book based on her 90s writing:
from cyberselfish by paulina borsook: It's an inability to reconcile the demands of being individual with
the demands of participating in society, which coincides beautifully
with a preference for, and glorification of, being the solo comman-
der of one's computer in lieu of any other economically viable be-
havior. Computers are so much more rule-based, controllable,
fixable, and comprehensible than any human will ever be. As many
political schools of thought do, these technolibertarians make a
philosophy out of a personality defect.
193131773
Dr Nicola Sugden @nicolasugden.bsky.social · 23/09/2025
In case you were wondering, two of the thirteen projects funded by the NIH's $50m Autism Data Science Initiative (ADSI) talk about prevention in their project abstracts: dpcpsi.nih.gov/autism-data-...
dpcpsi.nih.gov
Autism Data Science Initiative Funded Research | DPCPSI
Funded Projects #allabstracttableClick on the link for the project title below to see the full award abstract.
022
Dr Nicola Sugden @nicolasugden.bsky.social · 16/09/2025
How do genetics and genomics researchers write about autism? Well... When we looked at abstracts for NIH-funded research and we found potentially ableist discourse and language to be ubiquitous: journals.sagepub.com/doi/10.1177/...
journals.sagepub.com
Autism ableism seen through research abstract contents: A mixed-methods analysis of language in NIH-funded genetic and genomic autism research - Nicola Sugden, Lily S Barna, Kaylee Foor, John Kee, Chr...
In recent years, genetic and genomic autism research has come under increasing scrutiny, moving to the center of debates about ableism, neurodiversity, autism a...
140
Reposted by Dr Nicola Sugden
University and College Union (UCU) @ucu.org.uk · 12/06/2025
“Universities are in crisis and this inquiry couldn’t come soon enough.” @drjogrady.bsky.social After sustained pressure from UCU, The Education Committee has launched an inquiry into university finances. We’ll be submitting evidence. Full statement here: www.ucu.org.uk/article/1405...
02914
Reposted by Dr Nicola Sugden
UCU Edinburgh @ucuedinburgh.bsky.social · 09/06/2025
Our branch stands firmly for trans inclusion and trans equality, and will not cease in protesting against discriminatory and inflammatory claims about trans people! www.ucu.org.uk/article/1404...
ucu.org.uk
Employment Tribunal rejects claims University and College Union discriminated against members on grounds of their gender critical beliefs
The University and College Union has successfully defended claims against it in an Employment Tribunal from two UCU members who claim they had been discriminated against and harassed by the union beca...
0186
Reposted by Dr Nicola Sugden
Maddy Rose @maddyirose.bsky.social · 28/05/2025
The Pathways to Work Green Paper sets out plans to cut billions from health and disability benefits. Instead of getting people into work, these cuts will push hundreds of thousands into poverty. Our new report looks at the impact of cuts to PIP, UC health & scrapping the WCA (🧵)
citizensadvice.org.uk
Pathways to Poverty: How planned cuts to disability benefits will impact the people we support
Pathways to Poverty: How planned cuts to disability benefits will impact the people we support
24035
Reposted by Dr Nicola Sugden
Chris Gunter 🧬 @girlscientist.bsky.social · 27/05/2025
Excited to see the EMU’s work published yesterday in @jscicom.bsky.social! We studied the science communication (scicomm) landscape at NIH (obviously pre-2025). jcom.sissa.it/article/pubi... Congrats to AJ Hilliard, @nicolasugden.bsky.social, and Kristin Bass for their work on this.
jcom.sissa.it
Survey-based analysis of a science of science communication scientific interest group: member feedback and perspectives on science communication
Coordinated attempts to promote systematic approaches to the design and evaluation of science communication efforts have generally lagged behind the proliferation and diversification of those efforts....
152
Reposted by Dr Nicola Sugden
Chanda Prescod-Weinstein 🌌 @chanda.blacksky.app · 02/04/2025
Honestly, this book broke my brain a little and my heart big time. physicsworld.com/a/so-you-thi...
physicsworld.com
So you think you know Roger Penrose? Be prepared to be shocked – Physics World
Chanda Prescod-Weinstein reviews The Impossible Man: Roger Penrose and the Cost of Genius by Patchen Barss
1798
Dr Nicola Sugden @nicolasugden.bsky.social · 02/04/2025
#DataStudies and #HistTech folks! Check out @0404am.bsky.social's forthcoming workshop 'A Social Science of Databases: Building Metaphysical Machines' dare.ed.ac.uk/events/2025/...
dare.ed.ac.uk
OPEN CALL: A SOCIAL SCIENCE OF DATABASES: BUILDING METAPHYSICAL MACHINES | Dare | Data and the Healthcare ‘Revolution’ – DARE for short – explores the intersection of data, care and learning in the er...
120
Dr Nicola Sugden @nicolasugden.bsky.social · 02/04/2025
Most of the people I worked with in my 1st postdoc just got fired. They worked to promote public understanding of genetics and genomics and to make research and its benefits more relevant and equitable. For reasons why that work is important, see: modern history. www.genomeweb.com/policy-legis...
genomeweb.com
NHGRI Fires Dozens of Employees, Puts Acting Director Vence Bonham on Administrative Leave
Employees of at least four branches of the National Human Genome Research Institute received layoff notices on Tuesday morning.
130
Reposted by Dr Nicola Sugden
Dr Kevin Guyan @kevinguyan.bsky.social · 19/03/2025
Some longer thoughts on the Review of Data, Statistics and Research on Sex and Gender 📝 kevinguyan.com/2025/03/19/a...
kevinguyan.com
A Trumpian approach to sex and gender data
The UK Department for Science, Innovation and Technology has published a Review of Data, Statistics and Research on Sex and Gender, a hangover from the former Tory government’s mission to add…
16428
Reposted by Dr Nicola Sugden
Anna Rogers @jollyette.bsky.social · 04/03/2025
I quit my job at the NIH last month, in large part because it seemed like I could no longer honestly write about topics like health equity. so I wrote about it for Slate instead 🧪 slate.com/technology/2...
slate.com
I Just Quit My Job at the NIH. Slashing DEI Is Going to Haunt the Future of Medicine.
We’d only started to correct a major gap in understanding.
32813
Reposted by Dr Nicola Sugden
The Ethical Data Initiative @edinitiative.bsky.social · 20/12/2024
🌍💡Join us for our first annual multi-stakeholder town hall meeting, "Shaping the Future of Data Ethics"! 📆 March 31, 2025 Keynote speakers: - RDA SecGen Hilary Hanahoe - The Harvard Data Review's Xiao-Li Meng Don't miss out! Find out more and register: ethicaldatainitiative.org/2024/12/20/e...
ethicaldatainitiative.org
Ethical Data Initiative Annual Townhall Event - The Ethical Data Initiative
Dear Colleagues, On behalf of the Ethical Data Initiative (EDI) at the TUM Think Tank and the University of Exeter, we would like to invite you to participate in our first annual multi-stakeholder tow...
086
Dr Nicola Sugden @nicolasugden.bsky.social · 04/03/2025
Since Married at First Sight Australia S12 premiered in the UK last night its important to note how MAFS helps us understand the important difference between data and information.
100
Reposted by Dr Nicola Sugden
Dr Kevin Guyan @kevinguyan.bsky.social · 21/02/2025
Edinburgh is hosting a QUEER DATA SHOWCASE! ✨ We’re inviting artists, academics, activists and anyone who works with – or is interested in – queer data to share their ideas. 📢 The Call for Presenters is live! www.ai-ethics.org/queer-data-s... #data #AI #tech #LGBTQ #queer #edinburgh
A poster for the upcoming Queer Data Showcase. The event is hosted by Mystika Glamoor and is happening at Cabaret Bar, Pleasance in Edinburgh on 5 June 2025.
1125
Dr Nicola Sugden @nicolasugden.bsky.social · 20/02/2025
I don't get sick, I *stay* sick 💅💃
151
Reposted by Dr Nicola Sugden
Laura Hercher @laurahercher.bsky.social · 13/01/2025
Absolutely fantastic discussion of the case against polygenic embryo editing from @wiringthebrain.bsky.social A few related thoughts…
1139
Dr Nicola Sugden @nicolasugden.bsky.social · 08/01/2025
2024 in fiction. An unusual year in that I read two entire books set in the present real world with no spaceships or magic. I track my reading on Bookworm, the only book app that lets you clothe a silly worm avatar: www.bookwormreads.co/home
Image showing the front covers of 16 books: Uplift; Ithaca; The Bone Shard Daughter; Creative Surgery; Chapterhouse: Dune; The Gilded Ones; Binti; Lavinia; Galatea; Ariadne; Phaedra; Wake Siren; Transition; Stone Blind; The Penelopiad; and ElektraImage showing the front covers of 15 books: The Three Musketeers; Autonomous; Transcendent Kingdom; The Bone Ships; House of Odysseus; The Bone Shard War; The Bone Shard Emperor; The Priory of the Orange Tree; A Day of Fallen Night; The Future of Another Timeline; Translation State; Infinity Gate; The Stardust Thief; and Think Again
120
Dr Nicola Sugden @nicolasugden.bsky.social · 08/01/2025
Call for Abstracts! Join @abbyrking.bsky.social and I in Seattle to talk about "Data, Care and Learning in Datafied Worlds" at 4S 2025. Deadline 31st January. dare.ed.ac.uk/events/2025/...
dare.ed.ac.uk
Call for Abstracts: Open Panel at 4S 2025 Seattle | Dare | Data and the Healthcare ‘Revolution’ – DARE for short – explores the intersection of data, care and learning in the era of data-driven transf...
011
Dr Nicola Sugden @nicolasugden.bsky.social · 14/12/2024
I saw the 'Fantasy Diabetes Card Fighting Game' Dia Fight on Kickstarter (www.kickstarter.com/projects/rya...) and then I found out there are in fact numerous diabetes-themed games including Diabetor & The Sugar Monsters! and Battlebetes. MEDICAL ANTHROPOLOGISTS ASSEMBLE
kickstarter.com
Dia Fight
The Fantasy Diabetes Card Fighting Game.
010
Dr Nicola Sugden @nicolasugden.bsky.social · 13/12/2024
tfw you're writing about the history of the relationship between mental illness and rheumatic conditions whilst yourself experiencing mental illness and rheumatic conditions
000
Dr Nicola Sugden @nicolasugden.bsky.social · 13/12/2024
I'm back. Apologies in advance to all my new followers.
010
Dr Nicola Sugden @nicolasugden.bsky.social · 18/07/2024
Logging in for the first time in a while to update my bio now that I'm in Edinburgh 😎
030