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geneticsandsociety.bsky.social

@geneticsandsociety.bsky.social
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 15h
Research shows how an Australian Facebook group for donor-conceived people provides a place to share practical knowledge, such as DNA tracing, and spurs critiques of the fertility industry and advocacy for donor-conceived people’s needs.
progress.org.uk
Inside the Facebook group where donor-conceived people find each other | PET
For decades, donor-conceived people had no way of knowing whether anyone else had been through what they had. The internet changed that.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 17h
Researchers replaced missing cortex and hippocampus cells in specially bred rodents with human brain cells. They plan to study the resulting “human-mouse chimera” to learn more about the activity of human brain cells and the development of brain diseases. endpoints.news/researchers-...
endpoints.news
Mice with human brain cells open a new testing ground for drugmakers to study disease
Stanford's Sergiu Pasca bred mice lacking cortex/hippocampus for the first time, replacing cells with human neurons, aiding neuropsychiatric research including frontotemporal dementia and autism.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 02/10/2026
A new report shows that “elective” egg freezing is now the fastest-growing fertility treatment in the UK, and that most who freeze their eggs do so because they don’t have a suitable partner with whom they want to have a child. 1/3
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 02/10/2026
Epigenome editing aims to change how genes are expressed, rather than editing genes directly. 1/2
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 01/10/2026
The UK government is reviewing complaints that a British-owned surrogacy service in Mexico is denying insurance claims made by surrogates who had medical complications during their pregnancies or after childbirth. 1/2
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 01/10/2026
Cofertility advertises free egg freezing for women willing to donate half of their eggs that are retrieved to the company, which then sells them to intended parents seeking eggs for their own IVF procedures. 1/2
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 30/09/2026
The Trump administration is speeding ahead to integrate AI in medical care. HHS is funding pilot projects that use AI agents to diagnose ailments and prescribe treatments without thorough assessment of the safety and effectiveness of the tools. www.nytimes.com/2026...
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 30/09/2026
The UK and Scottish Governments are proposing amendments to the Health Bill to standardize the number of NHS-funded IVF cycles (three cycles for women under 40) and the age limits for treatments.
progress.org.uk
Potential changes to NHS IVF in England and Scotland | PET
Changes to NHS funding for IVF have been put forward by both the UK and Scottish governments, potentially paving the way for better access.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 29/09/2026
The deaths of two children in China who had received gene-edited therapies delivered through adeno-associated viruses have spurred alarm that AAVs are too risky as viral vectors for gene therapies. 1/2
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 29/09/2026
Eugenics paves the way for “biomedical nihilism,” or the assumption that the premature deaths of marginalized—or “inferior”—people are “natural and inevitable.” 1/2
lareviewofbooks.org
Eugenics and the Nihilism of Law-and-Order Politics | Los Angeles Review of Books
For the Legacies of Eugenics series, Terence Keel examines how eugenics shapes the way we think about people who lose their lives during violent encounters with the state.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 29/09/2026
Bill Gates is sounding the alarm on AI and is advocating that policy experts pay more attention to the threats it poses. In an interview with MIT Tech Review, he emphasized, “You can’t count on an industry to self-regulate.”
technologyreview.com
Bill Gates says we’ve passed AI’s danger thresholds. Now what?
In a new interview, the billionaire philanthropist sounds an alarm on the urgency of getting our AI policies in order.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 29/09/2026
Surrogacy contracts should not be seen as overriding a surrogate’s bodily autonomy and informed consent, because it is the surrogate’s body that undergoes procedures and bears risks. 1/3
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 23/09/2026
A new website “Eugenic States: A Contextual Archive” introduces visitors to themes in the history of eugenics, including disability, race and immigration, and legal history. It also includes resources on the history of eugenics in California, North Carolina, and Iowa. 1/2 home.dartmouth.edu/n...
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 22/09/2026
Sperm from a Danish donor was used to conceive over 50 children in Belgium after being distributed to 24 countries via Cryos International sperm bank. 1/2
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 22/09/2026
Alexandria Ocasio-Cortez said she was freezing her eggs to “feel more in control” of her life, which resonates with research investigating why women freeze their eggs. 1/2
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 22/09/2026
Eugenics paves the way for “biomedical nihilism,” or the assumption that the premature deaths of marginalized—or “inferior”—people are “natural and inevitable.” 1/2
lareviewofbooks.org
Eugenics and the Nihilism of Law-and-Order Politics | Los Angeles Review of Books
For the Legacies of Eugenics series, Terence Keel examines how eugenics shapes the way we think about people who lose their lives during violent encounters with the state.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 22/09/2026
Bill Gates is sounding the alarm on AI and is advocating that policy experts pay more attention to the threats it poses. In an interview with MIT Tech Review, he emphasized, “You can’t count on an industry to self-regulate.” www.technologyreview.com/2026/08/26/1...
technologyreview.com
Bill Gates says we’ve passed AI’s danger thresholds. Now what?
In a new interview, the billionaire philanthropist sounds an alarm on the urgency of getting our AI policies in order.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 22/09/2026
Surrogacy contracts should not be seen as overriding a surrogate’s bodily autonomy and informed consent, because it is the surrogate’s body that undergoes procedures and bears risks. 1/3
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 21/09/2026
Attempts to genetically engineer hypoallergenic dogs should prompt us to scrutinize the potential negative health consequences of human intervention in canine reproduction. 1/2
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 21/09/2026
The proliferation of AI in healthcare, finance, the military, and other sectors of society raises the stakes of the potential negative consequences that AI systems, without thorough safety measures, may pose as they become more sophisticated at deceiving human users.
theguardian.com
‘If you build something vastly smarter than you, it better be on your side’: can we stop AI from deceiving us?
The long read: We are used to the idea that our fellow humans might intentionally mislead or manipulate us, but the idea that machines can now do the same is deeply unsettling. Researchers are racing to find solutions before it’s too late
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 18/09/2026
HHS Secretary Robert F. Kennedy Jr.’s recent social media posts spreading misinformation about the measles vaccine continue a longstanding pattern of his to downplay the severity of measles and cast doubt on the safety and efficacy of routine vaccines.
statnews.com
Kennedy posts vaccine misinformation, spars on social media amid measles deaths
Kennedy has blamed others for declining vaccination rates, and downplayed the dangers of measles.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 18/09/2026
Pamela Drucker’s history of contraception is a stark reminder that birth control was historically entangled with eugenics, coerced sterilization, and population control, even as access to contraception remains an important aspect of reproductive autonomy. thereader.mitpress.mit.edu/birth-contro...
thereader.mitpress.mit.edu
Birth Control’s Liberation Narrative Has a Dark Side
Modern contraceptives were shaped by unethical research practices and the sacrifices of everyday women whose suffering was too often ignored.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 10/09/2026
An increasing number of Americans are heading overseas for cheaper fertility treatments. Egg retrieval and IVF in countries like Greece and Spain are much cheaper than the same treatments in the United States, despite Trump’s repeated promises to lower the cost of IVF. 1/2
kffhealthnews.org
High Fertility Costs Push Americans Abroad for IVF Treatment - KFF Health News
Despite President Donald Trump’s promises to make fertility treatment more affordable, the overall costs for one IVF cycle in the U.S. remain in the tens of thousands of dollars. So more Americans tha...
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 16/08/2026
A Florida judge is deciding whether to award custody of twins to the surrogate who gave birth to them and her husband, who have been caring for them for over 20 months, or to their genetic father, who contracted with the surrogate from his home in China. 1/3
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 14/08/2026
Aurora Therapeutics, which Jennifer Doudna and Fyodr Urnov launched seven months ago with a focus on personalized gene editing drugs, has cut several staff members from its team and is pivoting away from its focus on a gene therapy for phenylketonuria (PKU).
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 13/08/2026
Researchers “supercooled” pig kidneys and then transplanted them back into pigs to show that the technique could successfully preserve organs for several days prior to transplantation. They hope to test the technique with human organs next, if they receive FDA approval to do so.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 13/08/2026
A biotech company has produced two “hypoallergenic” beagles. The company’s published research shows how they edited skin cells from a beagle to remove a key protein that triggers allergy symptoms in humans, then transferred the edited DNA into eggs, leading to the birth of two puppies.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 12/08/2026
Using a pathway that allows hospitals in China to start studies without government oversight, a Chinese biotech startup called HuidaGene was testing a CRISPR gene therapy in children with Duchenne muscular dystrophy.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 12/08/2026
During the second Trump administration, ICE’s collection of detainees’ DNA has dramatically increased.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 11/08/2026
Luxembourg’s national ethics committee said that egg freezing access should be expanded to all women, not just those who are freezing their eggs for medical reasons. The committee supports age limits for egg freezing but did not specify a specific age. www.luxtimes.lu/luxe...
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 11/08/2026
Open AI and Anthropic have both disclosed that versions of their AI models escaped and hacked organizations during internal company experiments.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 11/08/2026
Republicans blocked proposed legislation that would have expanded IVF access to all members of the military and their families.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 10/08/2026
A North Dakota fertility doctor is being sued for repeatedly using his own sperm in infertility treatments without the knowledge or consent of his patients.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 07/08/2026
Australians undergoing IVF often pay for add-on treatments offered by fertility clinics in the hopes they will improve IVF success rates, but research shows that there’s almost no evidence to suggest these expensive add-ons actually work.
abc.net.au
IVF add-ons are common in Australia, but there's no proof most work
Experts urge clinics and specialists to "carefully consider" offering IVF add-on treatments as they can be seen as "implicit endorsement of benefit" when there's little evidence most work.  
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 07/08/2026
Researchers are alarmed that several fertility clinics globally are advertising the experimental and largely unstudied technique of pronuclear genome transfer, sometimes called “mitochondrial replacement therapy,” which creates an embryo using the DNA of three people. 1/2
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 06/08/2026
A new docuseries examines the US government’s forced sterilization of women in Puerto Rico in the mid-20th century, explaining its origins in the eugenics movement, the corporate interests that contributed to sterilization becoming widespread on the island, and its impact on women of color.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 06/08/2026
A seven-year-old girl died days after receiving an experimental base editing gene therapy at a hospital in China. Reports suggest that the researchers downplayed or did not disclose safety risks with the treatment, and that they pressured the girl’s parents for financial support. 1/4
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 05/08/2026
A new nonprofit hopes to make gene therapy development for rare diseases faster by creating treatments that function as “routine procedures,” in contrast to current development and approval pathways, which frame each gene therapy for a rare disease as a new drug.
nytimes.com
‘Too Rare to Care’? A New Center for Rare Diseases Hopes to Change That
A new nonprofit wants to streamline gene therapy for diseases often avoided by pharmaceutical companies — making treatment more like a routine procedure than a bespoke drug.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 05/08/2026
A panel on health journalism focused on reporters’ and editors’ responsibility to recognize and push back on contemporary resurgences of eugenics in political narratives and policy proposals.
healthjournalism.org
‘We’re in bold times’: Resurgence of eugenics-coded health policies, products in US
Experts at HJ26 said journalists have a responsibility to identify and push back on policies and actions that contribute to a “resurgence” of eugenics.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 04/08/2026
Researchers have identified a genetic mutation underlying diffuse midline glioma, an aggressive brain tumor that most commonly affects children and adolescents. Experiments targeting the mutation’s effects seem to slow the disease. www.nytimes.com/2026...
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 04/08/2026
As midterm elections approach, Senate Democrats are reviving efforts to expand access to IVF – and draw attention to Donald Trump’s unfulfilled campaign promise to make IVF free.
ms.now
Senate Democrats revive IVF as midterm issue highlighting Trump failures
Democrats hope to remind voters of President Donald Trump’s unfulfilled campaign promise to fund in vitro fertilization treatments.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 03/08/2026
Australian couples often go abroad for compensated surrogacy arrangements, which are banned in Australia. Overseas arrangements are legally and logistically complicated, expensive, and risky, which has motivated the Australian government to consider legal reform.
theguardian.com
A friend, Facebook or ... Ukraine? No easy surrogacy options for Australian families desperate for children
With huge amounts of money at stake and power imbalances in play, the Australian Law Reform Commission is looking at how to better regulate the industry
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 03/08/2026
Crispr co-inventor Jennifer Doudna is pivoting to AI-based protein design. In newly published research, Doudna’s team tests the use of AI-created proteins in genome editing.
fiercebiotech.com
Nobel Laureate Jennifer Doudna enters AI protein design arena
Jennifer Doudna, Ph.D., the Nobel Laureate best known for co-inventing the CRISPR system that has become the foundation for gene editing, is dipping her toes into a new, buzzy field:
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 01/08/2026
Researchers’ creation of what they say in a preprint is the first “synthetic cell” could mark a significant advance in synthetic biology. The research has spurred debate about whether these cells are “alive” and about ethical risks with this line of research. www.statnews.com/2026/07/01/s...
statnews.com
Synthetic biology researchers think they’ve made a cell. Is it alive?
Researchers have created what they say may count as the first synthetic cell, and have started a public benefit corporation to share the technology with
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 30/07/2026
Europeans are increasingly pursuing surrogacy arrangements in Mexico, where the practice is relatively affordable but also unregulated.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 30/07/2026
A top German official, Jens Spahn, abruptly resigned after facing public pressure for having a child via surrogacy in the U.S. The practice is banned in Germany, and Spahn had previously defended the ban. The controversy has reignited debate over surrogacy in Germany. www.nytimes.com/2026...
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 29/07/2026
Predictive genomic tools have been trained primarily on the DNA of people of European descent, which makes them ineffective at predicting risks for other groups.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 29/07/2026
A Health and Human Services funding notice describes IVF embryos as “children,” demonstrating a concerning shift in federal policy toward embryonic personhood.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 28/07/2026
Researchers used reproductive hormones to stimulate the growth of immature eggs from sheep. Once matured, the eggs were fertilized by IVF and five lambs were born, which appear healthy so far.
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geneticsandsociety.bsky.social @geneticsandsociety.bsky.social · 28/07/2026
Media coverage of a recent preprint on base editing of embryos, along with the researchers’ decision to release their study as a preprint, risk making gene editing seem inevitable and safer than it actually is.
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