iiinova — where your digital self keeps evolving

Reposted by meg’s malaise

Dr. Lucky Tran @luckytran.com · 01/08/2026

As we recall the trauma caused by COVID in 2020, we should not forget COVID continues to harm. Many still suffer from Long COVID, people who mask are often harassed, and we haven’t scaled clean air infrastructure. If we truly acknowledge past harms, we should be working to create a better future.

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Wayside Scribbles @waysidescribbles.bsky.social · 23/07/2026

– I’m just saying you shouldn’t rule out anxiety #longcovid #ableism #satire

A cartoon of a person standing impaled by a large spear. Another person standing opposite them ignores the weapon and says, “I’M JUST SAYING YOU SHOULDN’T RULE OUT ANXIETY”.

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Kaitlin Is Just Getting Started @gothamgirlblue.com · 08/07/2026

It is an awful time arguing with my disability insurance to cover my ongoing leave due to Long COVID, so I’m asking for some help to bridge the gap until I can get paid the 4+ paychecks I am owed (I may have tried to avoid begging until it was urgent)

paypal.me

Pay Kaitlin Byrd using PayPal.Me

Go to paypal.me/gothamgirlblue and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.

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Wayside Scribbles @waysidescribbles.bsky.social · 09/07/2026

– You see, if so many were indeed housebound, you’d expect to see them everywhere! #longcovid #ableism #satire

A cartoon with two men. The man on the left gestures as he says, "YOU SEE, IF SO MANY WERE INDEED HOUSEBOUND, YOU'D EXPECT TO SEE THEM EVERYWHERE!".

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Anna Holmes @annabookwriter.bsky.social · 05/07/2026

Right, what we are not going to do this month: Tell people they don’t count as disabled Tell people who are not ready to self ID they are disabled Claim we can reclaim the r slur Install “you must be this incapacitated to ride” signs Deny the experience of long COVID havers

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meg’s malaise @megclems.bsky.social · 03/07/2026

Damnnnn All Stars, I was already bummed out before I watched the episode. I’m devastated, that should’ve been a double shantay 💔💔💔 #RPDR

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World Health Network @thewhn.bsky.social · 23/06/2026

One infection. That's all it takes. For millions around the world, a single COVID infection led to symptoms that lasted months or years. Long COVID can affect the brain, heart, lungs, immune system, and more. (...)

Graphic from the World Health Network on a light gray background. Text reads: “whn.global. World Health Network. Science for a safer, healthier world. One COVID infection. That’s all it takes to develop Long COVID. Mask up.” The words “COVID” and “Long COVID” are highlighted in bright pink, with a pink mask icon below.

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meg’s malaise @megclems.bsky.social · 11/06/2026

Ahh yes the old bury your head in the sand remedy 😵‍💫

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Michiel @murtoz.bsky.social · 03/06/2026

@wired.com this is what your shitty article leads to. Stop denying all of our lived experience. Stop making out like #pwME & #LongCovid aren't experts on our own bodies, our own illness. Lots of us have lived with this for decades. We KNOW what works and what doesn't. Stop publishing eugenics!

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Jessica Price @delafina777.bsky.social · 01/06/2026

WIRED has decided to hide comments pointing out that the author of the “It’s your fault for having Long COVID, you have it because you’re thinking and talking about having it instead of ignoring it” article has no qualifications to be talking about disease management.

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Putrino Lab @putrinolab.bsky.social · 28/05/2026

Wonderful day for a new #LongCOVID paper! Thanks to an incredible collaboration with @VirusesImmunity and brilliant work done by @keylas3, we studied the effects of injecting antibodies taken from people with LC into mice compared with what happened www.sciencedirect.com/science/arti... 1/

Graphical abstract of the new paper highlighting the following key concepts:
• Long COVID features autoantibodies targeting neural and
vascular tissues
• Patients’ IgG shows increased ADCP activity against MED20
• Passive transfer of IgG induces pain and fatigue-like
phenotypes in mice
• Mouse pain behavior after IgG transfer correlates with patient-reported chronic pain

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valebodi.bsky.social @valebodi.bsky.social · 23/05/2026

Having #ME/CFS MEans waking up feeling worse than when you went to sleep, no matter how long you’ve managed to sleep. It also means that your day ends almost at the same time that it’s started. Our bodies not only cannot recharge, but they are trapped inside multiple broken physiological cycles.

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Hayley @writagal.bsky.social · 17/04/2026

Just observing that parties who consistently say they back vulnerable communities now have an opportunity to actually back that up in practice by loudly committing to policy to support those impacted by Long Covid, if elected - this is what aligning to the values you say you have actually means 💡🤔

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New Scientist @newscientist.com · 15/04/2026

The immune system going rogue and attacking healthy tissue seems to behind some cases of long covid, a discovery that could open doors towards treatments

newscientist.com

Attacks from our immune system are a cause of long covid

The immune system going rogue and attacking healthy tissue seems to behind some cases of long covid, a discovery that could open doors towards treatments

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borderless @borderless.bsky.social · 03/04/2026

People really memory holed-covid, due to a huge far right propaganda effort. That's why all you hear about is lockdowns, and not: - hospitals out of capacity - Skype calls with family members in quarantine as they died - bodies stored in freezer trailors - mass graves in NYC

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meg’s malaise @megclems.bsky.social · 04/04/2026

My old sleep neurologist said the same thing when I told him I was taking it. I didn’t really see an impact positively or negatively, so stopped taking it when the bottle ran out 🤷‍♀️

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C.H. Romatowski @chromatowski.bsky.social · 28/03/2026

Some #LongCovid news—Rep. Valerie Foushee has introduced a resolution to recognize Long Covid Awareness Month! 🧵 on how you can support this resolution—and help pave the way for further action!

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Congresswoman Valerie Foushee @foushee.house.gov · 26/03/2026

I introduced a resolution to recognize March as Long COVID Awareness Month to raise awareness about the millions of people living with persisting symptoms after a COVID-19 infection. www.congress.gov/bill/119th-c...

congress.gov

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meg’s malaise @megclems.bsky.social · 01/04/2026

This makes me want to cry. Thank you so much, Congresswoman.

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meg’s malaise @megclems.bsky.social · 01/04/2026

Friends with ME/CFS who have had an upper scope & colonoscopy - did it (including the prep) set off PEM for you, and how badly?

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meg’s malaise @megclems.bsky.social · 31/03/2026

I’ve been so curious about that!

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Kirsty Hall @kirstyhall.bsky.social · 28/03/2026

I sometimes wonder if people think we’re exaggerating when we say ‘there’s no medical help for ME/cfs’ but there’s genuinely almost nothing. One fairly useless course (exercises, condescending ‘advice' and CBT) and maybe some low dose amitriptyline, which did fuck all for me.

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meg’s malaise @megclems.bsky.social · 30/03/2026

Hate that we still need to prove this, but so glad someone is doing the work!

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meg’s malaise @megclems.bsky.social · 25/03/2026

Desperately needed this little sliver of hope today

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Robbie Corey-Boulet @rcoreyb.bsky.social · 24/03/2026

Ghana's President John Dramani Mahama, speaking in New York on Tuesday, criticised the U.S. administration for what he described as normalising ‌the erasure of Black history, warning such policies could have ripple effects elsewhere. www.reuters.com/world/africa...

reuters.com

Ghana's president, in New York, says US 'normalising' erasure of Black history

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meg’s malaise @megclems.bsky.social · 24/03/2026

The irony of me being in a PEM flare from the mental exertion of trying to find answers about PEM… 😞

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meg’s malaise @megclems.bsky.social · 24/03/2026

Yeah, I’m so befuddled 🤷‍♀️

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meg’s malaise @megclems.bsky.social · 24/03/2026

That’s what’s so frustrating, like instead of thinking, “hmm, I think I have PEM, therefore I may possibly have ME/LC” they’re insisting they have xyz completely separate illnesses and those illnesses give them PEM

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meg’s malaise @megclems.bsky.social · 24/03/2026

It’s so hard to navigate, like I don’t want to argue with people, but I also don’t want to let misinformation slide. Lately I’ve seen people with MS, muscular dystrophy, fibro, general chronic pain, etc. claiming it lately and I just don’t understand 😵‍💫

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#MEAction Network @meactnet.bsky.social · 23/03/2026

ME/CFS Advocacy Week 2026 starts today and it's not too late to join! Solve M.E. & #MEAction Network are building the case to make ME/CFS part of standardized medical education. Register: tinyurl.com/MEActionAdvo2026 Virtual kickoff call today at 12 pm PT/ 3 pm ET! #MECFS #pwME #MedEd

Announcement for ME/CFS Advocacy Week 2026 starting March 23-27 with a virtual kickoff call on March 23 at 12 pm PT/3 pm ET. Register at tinyurl.com/MEActionAdvo2026. Text-based graphic with a megaphone in top corner, text in center, and logos in bottom corners.

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meg’s malaise @megclems.bsky.social · 24/03/2026

I’m seeing more and more people claiming to have PEM but not ME/CFS. Is there some new study or something I missed? Is it not pathognomonic?

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Adrenalynn (she/her) @adrenalyn.bsky.social · 04/03/2026

"there is no cure for long Covid" Also no supports while you recover - financial, physical, mental health

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Pandemic 𓅃. Index @panaccindex.bsky.social · 04/03/2026

The “long covid is going away on its own“ myth was started by an influencer named “Health Nerd” who is an Australian epidemiologist who thinks US kids shouldn’t be vaccinated against COVID-19 (cuz AUS/UK don’t) and that NYC should have ran unethical RCTs on hospital visitation in 2020. Not science.

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Martha, but like, super spooky @mostlymartha.bsky.social · 20/01/2026

You cannot optimize yourself enough that you will not die.

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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 19/01/2026

The journalist who coined the phrase “the #GreatestMEdicalScandal of the 21st century” got interested in ME after this same psych lobby accused him of spreading Long Covid by writing about it. He was so taken aback by their absurdity that he investigated further: www.theguardian.com/commentisfre...

theguardian.com

‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal | George Monbiot

The notion that this illness is psychosomatic is having devastating effects, says Guardian columnist George Monbiot

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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 18/01/2026

For those lucky enough to live outside the nightmare world of Myalgic Encephalomyelitis, the man discussed here (Simon Wessely) leads a powerful psych lobby w/ a long history of gaslighting sick people—from Gulf War vets to 9/11 first responders to poisoned Iranian school girls to ME & Long Covid

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The Sick Times @thesicktimes.org · 14/01/2026

People with the most severe #LongCOVID symptoms represent the most clinically urgent population, yet they remain absent from the evidence base that guides care. They are not beyond the reach of science; they are where real progress begins. Read more from @neurologistmom.bsky.social: bit.ly/49TMXdz

A young person lies in bed in a dark room, with an eye mask over their face and earplugs in. The text reads, "The Sick Times. Severe people may hold answers to Long COVID. They must be included in research. By Sevda Sarıkaya."

"The most severely affected are not on the margins of Long COVID; they represent its truest and most revealing form. The future of Long COVID research will be measured not by how many trials are launched, but by how many lives they truly represent." - Sevda Sarıkaya, Severe people may hold answers to Long COVID. They must be included in research.

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Tiany✨ @atiany.bsky.social · 17/12/2025

having #LongCovid means telling people “I’m not feeling well” like every other day. I’ve just stopped saying it. I can’t figure out what else to say.

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Marianne Dhenin @mariannedhe.bsky.social · 02/12/2025

I'm not going to RT the fucking Atlantic but I do want to remind everyone that one in four U.S. adults is disabled, so one in five students accessing accommodations at their uni is among the most non-story stories ever penned.

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Patient-Led Research Collaborative @patientled.bsky.social · 02/12/2025

We're thrilled to announce that thanks to two generous donors, the Silver Giving Foundation and Lunardelli-McRee family, all donations made to PLRC will be matched up to $100K through January 1 of next year! Support our work: patientresearchcovid19.com/donate/

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Alexis M. 🎃 @turnoftheshrew.bsky.social · 21/11/2025

Sometimes I forget that normies don’t understand the “possible permanent decline” part. Yes, getting sick after basic tasks is terrible enough. But we want to LIVE. If we could assuredly recover we’d do ALL THE THINGS, get sick, recover & repeat. That alone would be life-changing. #MECFS #LongCovid

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