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@me-with-me.bsky.social
1.7K followers 534 following 2.8K posts

Just a #pwME/CFS, an #unpaidcarer for my wife who has rheumatoid arthritis and for our #SEN son, navigating my way through life and #ElectiveHomeEducation. In an increasingly volatile society. #childloss #stillbirth #rainbowbaby #miscarriage

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Best for Britain @bestforbritain.org · 9h
More than 9,600 have already taken action and called on Ofcom to investigate Nigel Farage's GB News show. A party leader and sitting MP should not be allowed to host their own news show. Help us reach 10,000 signatures. ⬇️
bestforbritain.org
Farage on GB News: Demand that Ofcom takes immediate action - Best for Britain
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Prem Sikka @premnsikka.bsky.social · 2h
Drax’s planned datacentre to burn 4.9m tonnes of wood to produce its electricity, nearly double the CO2 emissions of all flights from London Gatwick airport. Drax, a highly profitable company gets subsidies to burn wood and produce electricity How many lives will it ruin?
theguardian.com
Drax datacentre could create nearly twice the yearly emissions of all Gatwick flights
Exclusive: Campaign group’s analysis of North Yorkshire plans finds datacentre would have to burn 4.9m tonnes of wood a year
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Snowy. @snowy.bsky.social · 12h
We need so much more of this.
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Amnesty International UK @amnestyuk.bsky.social · 05/10/2026
JUST LAUNCHED: Amnesty International UK’s NEW DOCUMENTARY explores the recent crackdown on protesting in Britain 🪧 The Fight to be Heard charts the growing pressures facing protesters in the UK. Watch the full film at the link below 👀
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BladeoftheSun @bladeofthes.bsky.social · 04/10/2026
Members of the Patriotic Alliance are stopping cars with non-white people in them and harassing them like this. This is a hate crime, arrest these people.
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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 05/10/2026
"Brain Scans of 24 People With Long COVID Reveal Signs of Injury to Dopamine Neurons" A small Canadian study of 24 people with Long COVID found signs that dopamine-releasing neurons may be damaged. Those with bigger changes had worse memory, slower movement and less motivation.
sciencealert.com
Brain Scans of 24 People With Long COVID Reveal Signs of Injury to Dopamine Neurons
Scientists have discovered a distinct change in the brains of people with long COVID that might explain some of the illness's most debilitating symptoms.
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Prem Sikka @premnsikka.bsky.social · 05/10/2026
Energy suppliers urge UK govt to help households struggling with energy bills. Silence on cutting profit margins, windfall taxes on excessive profits. Household energy debt heading to £7bn. 120,000 a year die in fuel poverty. We can't afford privatisation and resulting profiteering.
bbc.co.uk
Suppliers pile pressure on government over energy bills
Immediate action is needed to help households struggling with bills this winter, says trade body Energy UK.
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David Combest @decombest.bsky.social · 04/10/2026
Cornell rape accuser faces threats demanding she drop her lawsuit, attorney says www.nbcnews.com/news/us-news...
nbcnews.com
Cornell rape accuser faces threats demanding she drop her lawsuit, attorney says
Attorney Thomas Giuffra said women mistakenly identified as Jane Doe have also received threats, and that he received one Sunday morning.
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Angelica Shalagina Official🇺🇦 @angel-shalagina.bsky.social · 04/10/2026
My cat has no idea what geopolitics is. She only knows When the explosions are loud enough to hide. And somehow that tiny detail Explain this war better than a thousand speeches #ukraine #cats #war #ukrainians #ukrainiangirl
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Good Law Project @goodlawproject.org · 04/10/2026
The Department for Health and Social Care has written to us demanding we take down our video criticising Palantir’s NHS contract – we won’t goodlawproject.org/is-this-the-firs…
goodlawproject.org
Is this the first ever SLAPP by our own Government? | Good Law Project
The Department for Health and Social Care has written to us demanding we take down our video criticising Palantir’s NHS contract – we won’t
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News to Remember @moments2remember.link · 04/10/2026
4 men in plain clothes kidnap a woman—they claim to be ICE. Woman's name is Angel Zhao. She lives in Huntington Beach, California—originally Shanghai, China.
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me with ME 🇬🇧 📷 🍂 ❤️☮️ 🇺🇦🇪🇺🇨🇦 @me-with-me.bsky.social · 04/10/2026
Yep, it’s all smoke and mirrors from Labour. Even if they did do free at point social care, it will get privatised through the back door like the NHS. It’s a scam.
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HOPE not hate @hopenothate.org.uk · 04/10/2026
Ninety years ago today, Oswald Mosley tried to march his Blackshirts through the Jewish East End. 🧵 He had thousands of uniformed fascists behind him and 6,000 police clearing the way. But the people of the East End got there first.
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Adam @abrokenbattery.bsky.social · 04/10/2026
My #MECFS Scandal explainer has just hit half a million views on YouTube. I remember worrying that 27 minutes was too long and nobody would watch it. I never expected it to get so many. Thank you to everyone who shared it! Here’s the trailer 👇
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Katy B @katybrc.bsky.social · 04/10/2026
"Based on the current evidence, we can say that #ME appears to be a distinct disease – with its own genetic profile. We have not seen any genetic overlap with mental health conditions."- @cgatist.bsky.social @decodemestudy.bsky.social #MedSky 🧬 ⬇️ scienceillustrated.com/health/peopl...
scienceillustrated.com
People with chronic fatigue have been misunderstood for decades: reputable researcher offers surprising advice to those struggling with the illness
Chronic fatigue syndrome has often been overlooked by doctors and researchers. Geneticist Chris Ponting has revolutionised our understanding of the disease – and he has a remarkable message for those ...
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me with ME 🇬🇧 📷 🍂 ❤️☮️ 🇺🇦🇪🇺🇨🇦 @me-with-me.bsky.social · 04/10/2026
The British Bigots Company at its finest.
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Zack Polanski @zackpolanski.bsky.social · 04/10/2026
Labour just don't get it. They don't get how scared people are with extreme weather becoming our new normal. We need voices in parliament that will force them to take wildfires seriously, not quietly shirk responsibility.
Revealed: government quietly dropped plan to orepare England for wildfires
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Prem Sikka @premnsikka.bsky.social · 03/10/2026
Free social care is coming… but only if you’re over 65, says UK govt. Govts awaits the Casey Review for further decisions. 12% of children, 24% of working-age adults, 45% of adults over State Pension age have a disability Low incomes; poor food, housing, healthcare; NHS queues adds to problems
disabilitynewsservice.com
Free social care is coming… but only if you’re over 65, government confirms after Burnham speech
Andy Burnham’s announcement of free personal care as part of a new National Care Service will only apply to those over 65, and not to working-age disabled people, No 10 has confirmed, sparking shoc…
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Chronic Illness Humor @chronicillness.bsky.social · 03/10/2026
Things chronic pain patients have normalized that are actually insane

Automatically checking how far you’ll have to walk before agreeing to plans.

Bringing meds, heating pads, or other “just in case” supplies everywhere.

Mentally calculating whether something fun is worth the pain afterward.

Being relieved when a test finally show something abnormal because you’re tired of being told everything looks fine.
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Parody Nigel Farage @parodypm.bsky.social · 03/10/2026
Full marks to Bobby J for not bothering to mention that this was entirely due to being given £45 million from the Labour government and told to do it. Even a Reform council couldn't fuck that up.
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On The Threshold @intothewoods8.bsky.social · 03/10/2026
The Labour government is hiding the deaths associated with the DWP. When Labour talk about slashing welfare they are fully aware of the damage and horror it will cause. Labour = psychopaths.
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Reform Party UK Exposed @reformexposed.bsky.social · 03/10/2026
Another shining moment for Reform UK Durham… Volunteers threatened with legal action for restoring parks freedomineverydaylife.org/volunteers-t...
freedomineverydaylife.org
Volunteers threatened with legal action for restoring parks – Freedom in Everyday Life
Since 2017, volunteers from Hemp Garden Community Association have worked to transform a neglected green space into a thriving community park. Elvet Green in Durham has been transformed from a…
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Lee Hurley @hleehurley.com · 03/10/2026
I implore all cis people to read this.
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Natalie Bennett @nataliegreenpeer.bsky.social · 02/10/2026
Victims of violent crimes, particularly women, are left with fear and uncertainty about the early release scheme, which lacks adequate safeguards and checks.
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Snowy. @snowy.bsky.social · 03/10/2026
You know what. It’s a fucking shame the media haven’t put even half as much coverage on Gaza and Israeli/IDF war crimes as they have on this “hijacking”. I wonder why they haven’t?
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Disability News Service @johnpring.bsky.social · 03/10/2026
The social security minister has still yet to decide whether secret reviews into deaths linked to the Department for Work and Pensions can be released to grieving relatives, a year after he asked civil servants to examine the issue. #DWP #BenefitDeaths www.disabilitynewsservice.com/no-decision-...
disabilitynewsservice.com
No decision from Timms on releasing secret reports on deaths, a year after speaking to DWP civil servants
The social security minister has still yet to decide whether secret reviews into deaths linked to the Department for Work and Pensions (DWP) can be released to grieving relatives, a year after he a…
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Adam @abrokenbattery.bsky.social · 03/10/2026
“ME/CFS patients are deeply inconvenient.” George Monbiot on how people with #MECFS need long term support, but governments and insurers have an incentive to “brush it away” and dismiss patients leaving them “massively mistreated, maligned” and “blamed for their illness”.
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Left Foot Forward @left-foot-forward.bsky.social · 03/10/2026
Campaign group @weownit.org.uk has endorsed @rachelmillward.bsky.social announcement that the Green Party would take water firms into public ownership without compensation
leftfootforward.org
Water campaigners back Green Party’s ‘no-compensation’ public ownership plan for water firms
"It is absolutely right that people want these water companies to not receive any compensation."
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Tractor Boy🚜 #FBPE 🇪🇺 🇵🇸🇺🇦 @tommoitfc.bsky.social · 03/10/2026
The scale is mind boggling and it will take something seismic to stop it now….
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The Green Party of England & Wales @greenparty.org.uk · 03/10/2026
“I'm brown. I’m a Muslim. But I’m as English as a Yorkshire cup of tea.” Mothin Ali on belonging, diversity and building a country confident enough to live with difference.
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We Own It @weownit.org.uk · 03/10/2026
"Privatisation means cutting services and pumping public money into private pockets" - @nataliegreenpeer.bsky.social Profit-greedy hedge funds have no place in our water, children's social care and public services in general Greens are calling on Andy Burnham to deliver on his words
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Snowy. @snowy.bsky.social · 03/10/2026
If you’re an unpaid carer, this is a chance to be heard by government. Get in quick, the debate is next Thursday! ukparliament.shorthandstories.com/cet-support-...
ukparliament.shorthandstories.com
Support for unpaid carers
Share your experiences with Alison Bennett MP for her debate in Westminster Hall.
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Otto English @ottoenglish.bsky.social · 02/10/2026
By Suella Braverman's definition of Englishness as being "a lineage, an ancestry, a connection to the heritage of this country which dates back a few generations," I'm no longer English. So where shall I go and live when Reform comes knocking?
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Prem Sikka @premnsikka.bsky.social · 03/10/2026
Thousands of young people could lose key disability benefits Govt could limit the Personal Independence Payment (Pip), and further strip Motability support. Hope the govt sees sense and doesn't repeat Starmer policies. Why not end corporate welfare?
independent.co.uk
Thousands could lose key disability benefits in welfare changes
The plans risk reigniting tensions with backbench Labour MPs over welfare spending
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Sylvia @sylvia-suffragette.bsky.social · 02/10/2026
What happened to “I can’t do anything as I’m sticking to the Manifesto”? Funny how they can do all the things that make people’s lives worse, even though they aren’t in the manifeso, but doing anything that would help “Sorry, impossible as it’s not in the manifesto”
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Saul Staniforth @saulstaniforth.bsky.social · 02/10/2026
"Burnham.. is calling for greater control over water.. energy" Control not ownership "Hes also calling for electoral reform" After the next election "Hes calling for a tougher stance on Israel" He's not ending arms exports, isn't deproscribing PA, refuses to call it genocide
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#votegreen #wealthtax
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Byline Times @bylinetimes.bsky.social · 02/10/2026
The United Nation’s supposedly “Independent” AI Panel has financial and personnel ties to Big AI firms, Byline Times has revealed. In response to this publication's enquiries, the UN has acknowledged possible 'conflicts' of interest. bylinetimes.com/2026/09/25/u...
bylinetimes.com
UN Acknowledges 'Conflicts' of Interest After Byline Times Exposes AI Panel’s Ties to OpenAI and Anthropic Funders
The supposedly independent panel has close ties to donors who financed the AI giants they have assessed, a Byline Times investigation has found
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Anti-Reform @antireform.bsky.social · 02/10/2026
Making Billionaires pay taxes & stop profiteering could pay for fully funded excellent healthcare, free lifetime education, decent housing, living disability benfits & pensions + tackle climate change Stopping immigration makes everyone poorer #BlameMillionairesNotMigrants via The UK Against Hate
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The Kyiv Independent @kyivindependent.com · 02/10/2026
Russian troops were left with no food, water, or ammunition and had to drink their own urine to survive after being abandoned by their commanders, POWs captured by Ukraine have said.
kyivindependent.com
Russian soldiers 'had to drink urine to survive' after being abandoned by commanders, POWs say
Russian troops were left with no food, water, or ammunition and had to drink their own urine to survive after being abandoned by their commanders, POWs captured by Ukraine have said. The claims were ...
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Ed Poole @edpoole1975.bsky.social · 02/10/2026
I sometimes wonder how much the fact that Health ministers are usually drawn from the demographic that uses the NHS the least (able bodied, white men, young-middle aged) is a factor in it's issues. It probably plays a part in the obsession with apps and convenience over continuity and human contact.
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Frances Ryan @francesryan.bsky.social · 02/10/2026
Disability doesn’t care how old you are. Specialist food is no cheaper if you’re 19. Employers don’t lose their prejudice if you’re 21. This is blatant intergenerational inequality from Labour. Younger disabled people of all severities deserve better. www.theguardian.com/politics/202...
theguardian.com
Key disability benefit for young people may be axed under major welfare changes
Exclusive: Plan under discussion involves intensive support to help young people into employment
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sarah boothby @swastrosarah.bsky.social · 02/10/2026
All of this "gross exaggeration" was amplified by BBC Radio, the national state broadcaster. It was a propaganda campaign but in whose interest? This is the aspect I would like @georgemonbiot.bsky.social to use his journalistic privileges to explore. Who benefits from such a campaign, and how?
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Byline Times @bylinetimes.bsky.social · 02/10/2026
In addition to being the UK's most Kremlin-sanctioned newspaper, Byline Times has now been banned two years running from both Conservative and Reform UK party conferences. Judge us by our critics, and subscribe to support our work: subscribe.bylinetimes.com @peterjukes.bsky.social
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Angelica Shalagina Official🇺🇦 @angel-shalagina.bsky.social · 02/10/2026
⚠️ BREAKING: russia is preparing sabotage operations in EU and NATO countries, Ukraine’s military intelligence warns. GRU and FSB agents could target military facilities, critical infrastructure and communications. Among the potential targets: Starlink ground stations in Europe.
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And now the NHS just starves #pwME to death instead. RIP Dame Esther Rantzen and thank you trying.
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George Monbiot @georgemonbiot.bsky.social · 01/10/2026
You can see the genocide from space. Yet still it is widely denied.
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Oliver @oliver48.bsky.social · 02/10/2026
via Campbell Finnie
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Not surprised by this. That age restriction will creep up the same as the pension age. Plus it will all be privatised through the back door just like the NHS. It’s more smoke & mirrors to make removing the triple lock sound good. If only corporations & super wealthy were taxed fairly… #wealthtax
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HOPE not hate @hopenothate.org.uk · 02/10/2026
The NSC marks a shift into an increasingly confrontational style of activism on the British far extreme right. HOPE not hate will monitor the situation closely. hopenothate.org.uk/2026/10/02/n...
hopenothate.org.uk
National Socialist Collective exposed: Nazi militants set to target anti-racists on Cable Street anniversary – HOPE not hate
HOPE not hate blows the lid on a new outfit uniting some of the most active and extreme neo-Nazis in the country. The National Socialist...
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