Reposted by Malka_GHector Diaz @iamhectordiaz.com · 08/05/2025A Chicago Pope implies the existence of an MLA Pope and APA Pope 37285868051
Reposted by Malka_GSean Mullen, Ph.D. @drseanmullen.bsky.social · 23/04/20252/ We grew up watching Back to the Future thinking 2025 would have flying cars (hell that was supposed to happen 10 years ago). Instead, we got chronic illness, corrupted science, & vibes-based infection control. And that gave us fascism. Just like the 1918 pandemic & the events that followed. 1241
Reposted by Malka_GTom Kindlon @tomkindlon.bsky.social · 21/10/2024It's been great to see the influx of people from the ME/CFS and long Covid community in the last week. Here's a starter pack by @chromatowski.bsky.social that's worth checking out: bsky.app/starter-pack... It lists interesting people to follow and also has a feed #MEcfs #CFS #PwME #LongCovid 1/ 24321101
Reposted by Malka_Gbabs ✨ @itsbabs.bsky.social · 22/04/2025again, this is why wearing a mask is one of the most compelling acts of daily resistance you can engage in. if you changed almost nothing else but start wearing a mask in public indoor spaces, you’re arguably doing more material mitigation to keep you & your community well than this administration. 1394166
Reposted by Malka_GCurtis Suttle @virosphere.bsky.social · 18/04/2025Many data sets held by NOAA are being "retired" in may, including datasets relevant to ocean sciences and climate. If you have need for these data, or are an archivist, it would be good to download this now. PLEASE SHARE WIDELY. www.nesdis.noaa.gov/about/docume...nesdis.noaa.govNotice of ChangesNotices of changes are formal public announcements of planned services changes to applications and other products. 2125116
Reposted by Malka_GAlt CDC (they/them) @altcdc.altgov.info · 18/04/2025🏥HHS ELIMINATIONS💀 We have created a list of all agency and program eliminations proposed in the HHS 2026 Budget. Feds: Please let us know if you have any clarity to share. The cuts are massive. Reach out if you would like a PDF or xlsx @alt-hhs.altgov.info @altfda.altgov.info 74694447
Reposted by Malka_GBriana Mills, LMFT ♿️🏳️🌈 @brianamillslmft.bsky.social · 18/04/2025Disabled/neurodivergent people are worthy of living regardless of whether they have a job or pay taxes or not. 10620185
Reposted by Malka_GAlt CDC (they/them) @altcdc.altgov.info · 18/04/2025🚨 Still not getting the attention it deserves: Critical systems behind Medicare, Medicaid, and more—programs that serve over 150 million Americans—are at risk of collapse. Wired article explains how mass layoffs in HHS IT + cybersecurity leave our health infrastructure dangerously exposed. 🧵wired.comHHS Systems Are in Danger of Collapsing, Workers SayThe purging of IT and cybersecurity staff at the Department of Health and Human Services could threaten the systems used by the agency’s staff and the safety of critical health data. 9699316
Reposted by Malka_GKelly @broadwaybabyto.bsky.social · 18/04/2025Disability is one of the few minority groups you can join at any time. People believe they will be the exception & have trouble accepting they’re likely to become disabled at some point in their lives. Work on internalized ableism. Engage in disability justice. It will benefit you in the long run 15823245
Reposted by Malka_GC.H. Romatowski @chromatowski.bsky.social · 18/04/2025For #NEISvoid folks stocking up on supplements—my LC friend Anna is an NP, so has provider discounts from Pure Encapsulations (35%), Thorne (30%), and Fullscript (25%, has many brands). I just checked and she said I could share her Linktree w/those discounts: linktr.ee/annabell_np 8319
Reposted by Malka_GDallas Holladay, DO (she/her) @dholladay.bsky.social · 18/04/2025This is fine. Everything is super, duper fine. www.cbsnews.com/news/fda-foo...cbsnews.comFDA making plans to end its routine food safety inspections, sources sayFood safety inspections would be left to state and local authorities under the plan being developed by the FDA. 183
Reposted by Malka_GIt's ME(Jaime) @exceedhergrasp1.bsky.social · 17/04/2025Some bad news for people living with #MECFS. Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC. I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet. Let's talk about what a passback is, and what it means for us. 🧵🧪 14209104
Reposted by Malka_GReuters @reuters.com · 17/04/2025US FDA suspends food safety quality checks after staff cuts reut.rs/42C4h1Z 21418181245
Reposted by Malka_GPatient-Led Research Collaborative @patientled.bsky.social · 17/04/2025PLRC is 5 years old today!!!! If you are able, please consider donating to help sustain #LongCOVID research when it’s needed most. bit.ly/plrc-donate 1/ 25727
Reposted by Malka_GInternet Archive @archive.org · 17/04/2025📢 The Internet Archive needs your help. At a time when information is being rewritten or erased online, a $700 million lawsuit from major record labels threatens to destroy the Wayback Machine. Tell the labels to drop the 78s lawsuit. 👉 Sign our open letter: www.change.org/p/defend-the... 🧵⬇️ 1181942215534
Reposted by Malka_GRachael Sirianni, PhD @docsirianni.bsky.social · 17/04/2025YES! This is a budget *proposal* at the current stage. We can NOT let them do this. This is the time to fight. This is the time to tell everyone you know what's happening and why it matters, to call your senators and reps, to write an op ed, to make your voice heard 0134
Reposted by Malka_GBK. Titanji @boghuma.bsky.social · 16/04/2025I have at least one interaction daily which reminds me of how oblivious most average Americans are to the aggressive destruction of public health & the unravelling of protections for their health happening in real time. That really scares me because it will be too late when realization sets in. 724253
Reposted by Malka_GJoe Katz @joekatz45.bsky.social · 17/04/2025"The Trump administration is seeking to deeply slash budgets for federal health programs, a roughly one-third cut in discretionary spending by the Department of Health and Human Services, according to a preliminary budget document obtained by The Washington Post." This is... a lot. Gift link.wapo.stInternal budget document reveals extent of Trump’s proposed health cutsHHS would be asked to absorb a $40 billion cut, about one-third of its discretionary budget. 9338150
Reposted by Malka_GLiz Nevra A. @nlizaki.bsky.social · 17/04/2025My friends made these graphic to push for a boost for my fundraisers — both need urgent support so I’m not homeless and can survive Please boost and engage with this post even if you can’t donate! 💜 Rent fund: www.paypal.com/paypalme/Sav... 💛 Medical GFM: www.gofundme.com/f/save-nevra 1/3 285
Reposted by Malka_GJoanne Freeman @jbf1755.bsky.social · 16/04/2025We’re not living through a “wow this is a bad administration” moment. It’s a “there may not be another administration” moment. It’s not just politics. 893473731
Reposted by Malka_GNPR @npr.org · 16/04/2025All 27 scientists at this CDC lab were told their duties were "unnecessary," and now viral outbreak investigations have been halted.npr.orgIn the middle of a hepatitis outbreak, U.S. shutters the one CDC lab that could helpAll 27 scientists at this CDC lab were told their duties were "unnecessary," and now viral outbreak investigations have been halted 592127905813
Malka_G @malkag.bsky.social · 10/04/2025Reminder that kosher for #Passover does NOT mean #GlutenFree! Matzah, matzah meal and matzah farfel by definition have gluten (unless it is oat matzah, which isn't used in packaged foods). There are lots of GF products for Passover, but you still need to read labels. #Pesach #FoodAllergies 010
Malka_G @malkag.bsky.social · 07/04/2025The absolute panic when one of the few packaged foods you tolerate is suddenly discontinued... #MCAS #NEISvoid 180
Reposted by Malka_GKelly @broadwaybabyto.bsky.social · 15/02/2025Disability is not a moral failing. Health is never a guarantee. Instead of judging those who are sick, help them. Fight for better social supports. Wear a mask. Push back on ableism. Give to mutual aid. Give help freely & without strings and don’t make people beg. 533288
Reposted by Malka_GMolly Jong-Fast @mollyjongfast.bsky.social · 24/01/2025Also yes project 2025 was always the plan. 426121574537
Reposted by Malka_GDr. Lucky Tran @luckytran.com · 14/01/2025All Los Angeles Public Library locations are providing free N95 masks. Libraries are essential! 5368582394
Reposted by Malka_GDr Val Finlayson @justsomeisotope.bsky.social · 12/01/2025FYI for anyone else in Montgomery and Prince George's counties: WSSC Water urges limited water use due to increase in breaks and leaks | wusa9.com search.app/pF7btWW7yJ32...wusa9.comWashington, DC's Leading Local News: Weather, Traffic, Sports and more | Washington, DC | wusa9.com 012
Reposted by Malka_GDr. Jen Irwin @drjenirwin.bsky.social · 12/12/2024It’s an inconvenient truth: if we claim to care about EQUITY, we must protect people from COVID at work, schools, health settings, etc…the most disadvantaged are among those disproportionally impacted by acute & long-COVID. We need courage to speak up, clean the air, mask up in the name of EQUITY. 17518
Reposted by Malka_GKelly @broadwaybabyto.bsky.social · 13/12/2024For people with complex chronic illnesses - the ER is often one of the worst places we can be. They’re busy, full of sick people, staff are overworked and often burned out and they can be a sensory nightmare. Ever spent 2 days on an ER gurney? You will know what I mean. /2 116314
Malka_G @malkag.bsky.social · 12/12/2024Scary stuff. "Should this project succeed, our ability to make collective sense of the world will be further fractured. We will no longer inhabit one of several competing filter bubbles; each of us will be in our own private filter bubble." 030
Reposted by Malka_GKelly @broadwaybabyto.bsky.social · 11/12/2024There’s so many benefits to wearing a mask: You protect yourself Your protect those around you You send a message that you don’t believe people are expendable You have peace of mind that even if you get sick - you won’t have infected or harmed anyone else You make them harder to ban! 416033
Reposted by Malka_GDr. Jen Irwin @drjenirwin.bsky.social · 11/12/2024WHO Director, Dec 10 2024: “We cannot talk about COVID in the past tense. It’s still with us, it still causes acute disease and “long COVID”, and it still kills.” www.who.int/director-gen... 313547
Reposted by Malka_G🌈Dr. Frizzle @swilua.bsky.social · 10/12/2024How do you get someone to take it? But getting them to TRUST you, which is not about precision or process, it’s about EMOTION Understanding audience, purpose, context, emotional strategy, those are all communication things It’s a completely different skillset than science 1525
Reposted by Malka_G🌈Dr. Frizzle @swilua.bsky.social · 11/12/2024I’m going to tag @regenceutah.bsky.social every day until they approve my friend’s chemotherapy This is day 6 She is scheduled to start chemo this Friday The numbers listed on their website don’t work Instead we are emailing their CEO and also the governor and senators! 626182
Reposted by Malka_GPatient-Led Research Collaborative @patientled.bsky.social · 11/12/2024We're hiring 2 new roles! These are 6-month contracts with possible extension, and can be between 25-40 hrs/week. Deadline Dec 31! 1) Partnerships & Advocacy Coordinator 2) Fundraising & Operations Manager Please share widely! patientresearchcovid19.com/job-opportun... #LongCovid #neisvoid #pwmepatientresearchcovid19.comJob Opportunities – Patient Led Research Collaborative 48650
Reposted by Malka_GPhillyPhile215 @phillyphile215.bsky.social · 09/12/2024#pwLC #pwME #NEISVoid Propublica request for feedback on barriers to care in US 01824
Reposted by Malka_GKelly @broadwaybabyto.bsky.social · 09/12/2024If you’re newly disabled - you may find one of the toughest battles you’ll have is with yourself. Unlearning internalized ableism, convincing yourself it’s “ok” to rest, ask for help & rely on others… these are not easy things to do. But they are critically important for survival. 22499125
Reposted by Malka_GTom Kindlon @tomkindlon.bsky.social · 09/12/2024(US) Urgent Call to Action: Medicare Telehealth Benefit From Massachusetts ME/CFS & FM Assoc massmecfs.org/newsletters/... Links in image www.congress.gov/bill/118th-c... actionnetwork.org/letters/pres... actionnetwork.org/users/sign_in #chronicillness #Spoonies #ChronicallyIll #LongCovid #MEcfs 197
Reposted by Malka_GPatients with Power @ptswithpower.com · 05/12/2024Docs, Just because you’ve found a possible cause for your patient’s symptoms, doesn’t mean you’ve found the most likely cause. If the case isn’t cut-and-dry, search for possible cause 2 and 3, *then* decide which is most likely. #MedEd #NEISvoid 0101
Reposted by Malka_GMentally Millennial🦋💅🏻 @millennialmh.bsky.social · 05/12/2024friendly reminder that you didn't waste your year. any moments of happiness or comfort, any small accomplishments, they all matter. this has been a really hard year, and simply surviving is something to be proud of. #2024 #2025 #spoonie #disabled #mentalillness #chronicillness #bpdfam #bpd #neisvoid 0245
Reposted by Malka_GRaiinbowEyes @raiinboweyes.bsky.social · 04/12/2024If you have #POTS and #MECFS and are affected by the #IVfluids shortage, this thread is for you. Did you know a proper Oral Rehydration Solution is proven to be as hydrating as IV fluids? And even more beneficial for than IV fluids in some ways? Not regular electrolyte drinks. Let’s talk. #NEISvoid 43114
Reposted by Malka_GBrianna @goodchat.bsky.social · 04/12/2024It's a lonely feeling when you feel like you've lost years to being in survival mode. Especially when it used to be a communal thing, before everyone decided to ignore facts and embrace constant sickness. Now you watch the normalcy farce on social media and feel empty. 911712
Reposted by Malka_GTaylor Lorenz @taylorlorenz.bsky.social · 04/12/2024Unless Congress acts in the next three weeks, Medicare will stop covering telehealth. For people too sick to leave home for months, including millions who have been disabled by Covid, this will mean losing all access to healthcare. Please sign this petition urging your representatives to actactionnetwork.orgPreserving TelehealthPreserving Telehealth Many U.S. telehealth benefits are set to expire shortly at the end of this year (December 31, 2024). With this email campaign, you can simply fill out your information and it wi... 732134989
Reposted by Malka_GKelly @broadwaybabyto.bsky.social · 04/12/2024One of the single best things you can do for us on #InternationalDayofPeoplewithDisabilities is to wear a mask. Make public spaces safe for us again. Join us in demanding masks in healthcare. Refuse to leave us by the wayside. 7454146
Reposted by Malka_GKelly @broadwaybabyto.bsky.social · 04/12/2024Telehealth was something disabled people had spent years begging for. It’s a game changer when you have an energy limiting chronic illness. It’s hard to imagine any legitimate reason to remove it - it will cause harm. Let patients access care in the way that is safest for them. 19964352
Reposted by Malka_GJulie Rehmeyer @julierehmeyer.bsky.social · 04/12/2024Unless Congress acts in the next three weeks, Medicare will stop covering telehealth. For patients like me, too sick to leave home for months at a time, that would mean losing all access to healthcare. Please sign this petition prodding your representatives to act: actionnetwork.org/letters/pres...actionnetwork.orgPreserving TelehealthPreserving Telehealth Many U.S. telehealth benefits are set to expire shortly at the end of this year (December 31, 2024). With this email campaign, you can simply fill out your information and it wi... 5258145