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Malka_G

@malkag.bsky.social
533 followers 2.2K following 220 posts

Writer/editor. Chronically ill. Slowly working on setting up this account. Hoping to reconnect with #NEISvoid, #DisabilityTwitter, #CovidIsntOver, #StillMasking, etc.

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Malka_G @malkag.bsky.social · 31/05/2025
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Hector Diaz @iamhectordiaz.com · 08/05/2025
A Chicago Pope implies the existence of an MLA Pope and APA Pope
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Malka_G @malkag.bsky.social · 08/05/2025
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Malka_G @malkag.bsky.social · 08/05/2025
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Malka_G @malkag.bsky.social · 25/04/2025
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Sean Mullen, Ph.D. @drseanmullen.bsky.social · 23/04/2025
2/ We grew up watching Back to the Future thinking 2025 would have flying cars (hell that was supposed to happen 10 years ago). Instead, we got chronic illness, corrupted science, & vibes-based infection control. And that gave us fascism. Just like the 1918 pandemic & the events that followed.
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Tom Kindlon @tomkindlon.bsky.social · 21/10/2024
It's been great to see the influx of people from the ME/CFS and long Covid community in the last week. Here's a starter pack by @chromatowski.bsky.social that's worth checking out: bsky.app/starter-pack... It lists interesting people to follow and also has a feed #MEcfs #CFS #PwME #LongCovid 1/
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Malka_G @malkag.bsky.social · 22/04/2025
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babs ✨ @itsbabs.bsky.social · 22/04/2025
again, this is why wearing a mask is one of the most compelling acts of daily resistance you can engage in. if you changed almost nothing else but start wearing a mask in public indoor spaces, you’re arguably doing more material mitigation to keep you & your community well than this administration.
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Malka_G @malkag.bsky.social · 22/04/2025
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Curtis Suttle @virosphere.bsky.social · 18/04/2025
Many data sets held by NOAA are being "retired" in may, including datasets relevant to ocean sciences and climate. If you have need for these data, or are an archivist, it would be good to download this now. PLEASE SHARE WIDELY. www.nesdis.noaa.gov/about/docume...
nesdis.noaa.gov
Notice of Changes
Notices of changes are formal public announcements of planned services changes to applications and other products.
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Alt CDC (they/them) @altcdc.altgov.info · 18/04/2025
🏥HHS ELIMINATIONS💀 We have created a list of all agency and program eliminations proposed in the HHS 2026 Budget. Feds: Please let us know if you have any clarity to share. The cuts are massive. Reach out if you would like a PDF or xlsx @alt-hhs.altgov.info @altfda.altgov.info
An image of all agency and program eliminations proposed for HHS. Reach out to altCDC for an accessible version or filterable PDF. The alt-text box does not fit all the text contained.
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Briana Mills, LMFT ♿️🏳️‍🌈 @brianamillslmft.bsky.social · 18/04/2025
Disabled/neurodivergent people are worthy of living regardless of whether they have a job or pay taxes or not.
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Alt CDC (they/them) @altcdc.altgov.info · 18/04/2025
🚨 Still not getting the attention it deserves: Critical systems behind Medicare, Medicaid, and more—programs that serve over 150 million Americans—are at risk of collapse. Wired article explains how mass layoffs in HHS IT + cybersecurity leave our health infrastructure dangerously exposed. 🧵
wired.com
HHS Systems Are in Danger of Collapsing, Workers Say
The purging of IT and cybersecurity staff at the Department of Health and Human Services could threaten the systems used by the agency’s staff and the safety of critical health data.
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Kelly @broadwaybabyto.bsky.social · 18/04/2025
Disability is one of the few minority groups you can join at any time. People believe they will be the exception & have trouble accepting they’re likely to become disabled at some point in their lives. Work on internalized ableism. Engage in disability justice. It will benefit you in the long run
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Malka_G @malkag.bsky.social · 18/04/2025
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C.H. Romatowski @chromatowski.bsky.social · 18/04/2025
For #NEISvoid folks stocking up on supplements—my LC friend Anna is an NP, so has provider discounts from Pure Encapsulations (35%), Thorne (30%), and Fullscript (25%, has many brands). I just checked and she said I could share her Linktree w/those discounts: linktr.ee/annabell_np
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Malka_G @malkag.bsky.social · 18/04/2025
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Malka_G @malkag.bsky.social · 18/04/2025
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Dallas Holladay, DO (she/her) @dholladay.bsky.social · 18/04/2025
This is fine. Everything is super, duper fine. www.cbsnews.com/news/fda-foo...
cbsnews.com
FDA making plans to end its routine food safety inspections, sources say
Food safety inspections would be left to state and local authorities under the plan being developed by the FDA.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 17/04/2025
Some bad news for people living with #MECFS. Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC. I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet. Let's talk about what a passback is, and what it means for us. 🧵🧪
National Center for Emerging and Zoonotic Infectious Diseases
The Budget discontinues funding for the Lyme Disease,. Prion Disease, Chronic Fatigue Syndrome and the Harmful Algal Bloom programs to prioritize funding for core infectious disease and surveiIlance activities. The Budget also includes $25 minion for the wastewater surveillance program within the Emerging Infectious Diseases PPA."
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Malka_G @malkag.bsky.social · 17/04/2025
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Malka_G @malkag.bsky.social · 17/04/2025
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Reuters @reuters.com · 17/04/2025
US FDA suspends food safety quality checks after staff cuts reut.rs/42C4h1Z
US FDA suspends food safety quality checks after staff cuts
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Patient-Led Research Collaborative @patientled.bsky.social · 17/04/2025
PLRC is 5 years old today!!!! If you are able, please consider donating to help sustain #LongCOVID research when it’s needed most. bit.ly/plrc-donate 1/
banner with pastel colors that says "Patient-Led Research Collaborative 5th anniversary - you can sustain long covid patient-led work when it's needed most!" with a link to bit.ly/plrc-donate
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Malka_G @malkag.bsky.social · 17/04/2025
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Malka_G @malkag.bsky.social · 17/04/2025
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Internet Archive @archive.org · 17/04/2025
📢 The Internet Archive needs your help. At a time when information is being rewritten or erased online, a $700 million lawsuit from major record labels threatens to destroy the Wayback Machine. Tell the labels to drop the 78s lawsuit. 👉 Sign our open letter: www.change.org/p/defend-the... 🧵⬇️
Defend the Internet Archive.
Protect the Wayback Machine.
Tell the music labels: Drop the 78s lawsuit.
Sign our open letter on change.org
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Malka_G @malkag.bsky.social · 17/04/2025
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Rachael Sirianni, PhD @docsirianni.bsky.social · 17/04/2025
YES! This is a budget *proposal* at the current stage. We can NOT let them do this. This is the time to fight. This is the time to tell everyone you know what's happening and why it matters, to call your senators and reps, to write an op ed, to make your voice heard
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Malka_G @malkag.bsky.social · 17/04/2025
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Malka_G @malkag.bsky.social · 17/04/2025
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Malka_G @malkag.bsky.social · 17/04/2025
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Malka_G @malkag.bsky.social · 17/04/2025
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Malka_G @malkag.bsky.social · 17/04/2025
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Malka_G @malkag.bsky.social · 17/04/2025
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Malka_G @malkag.bsky.social · 17/04/2025
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Malka_G @malkag.bsky.social · 17/04/2025
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Malka_G @malkag.bsky.social · 17/04/2025
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BK. Titanji @boghuma.bsky.social · 16/04/2025
I have at least one interaction daily which reminds me of how oblivious most average Americans are to the aggressive destruction of public health & the unravelling of protections for their health happening in real time. That really scares me because it will be too late when realization sets in.
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Malka_G @malkag.bsky.social · 17/04/2025
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Joe Katz @joekatz45.bsky.social · 17/04/2025
"The Trump administration is seeking to deeply slash budgets for federal health programs, a roughly one-third cut in discretionary spending by the Department of Health and Human Services, according to a preliminary budget document obtained by The Washington Post." This is... a lot. Gift link.
wapo.st
Internal budget document reveals extent of Trump’s proposed health cuts
HHS would be asked to absorb a $40 billion cut, about one-third of its discretionary budget.
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Malka_G @malkag.bsky.social · 17/04/2025
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Malka_G @malkag.bsky.social · 17/04/2025
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Liz Nevra A. @nlizaki.bsky.social · 17/04/2025
My friends made these graphic to push for a boost for my fundraisers — both need urgent support so I’m not homeless and can survive Please boost and engage with this post even if you can’t donate! 💜 Rent fund: www.paypal.com/paypalme/Sav... 💛 Medical GFM: www.gofundme.com/f/save-nevra 1/3
A pink, purple a yellow graphic depicting flowers and hands reaching out to each other reads:

Support Nevra
Nevra recently underwent a diagnostic surgery for her endometriosis which has put extra strain on her body and has worsened her POTS and CCI symptoms.
She urgently needs a fundraising push to be able to afford rent, carers, medical care and to pay back her surgery loans.
Link for rent $1434 needed in 13 days
PayPal.com/paypal/me/saveliznevra
Link for all other costs goal: £1500
GoFundMe.com/f/save-nevra
+Links in @SaveLizNevraOfficial's bio
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Joanne Freeman @jbf1755.bsky.social · 16/04/2025
We’re not living through a “wow this is a bad administration” moment. It’s a “there may not be another administration” moment. It’s not just politics.
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NPR @npr.org · 16/04/2025
All 27 scientists at this CDC lab were told their duties were "unnecessary," and now viral outbreak investigations have been halted.
npr.org
In the middle of a hepatitis outbreak, U.S. shutters the one CDC lab that could help
All 27 scientists at this CDC lab were told their duties were "unnecessary," and now viral outbreak investigations have been halted
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Malka_G @malkag.bsky.social · 16/04/2025
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Malka_G @malkag.bsky.social · 16/04/2025
Thanks! Did you have any noticeable side effects with it?
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Malka_G @malkag.bsky.social · 16/04/2025
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