iiinova — where your digital self keeps evolving

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Steven Kapp @drstevenkapp.bsky.social · 09/06/2026

Actually, diagnoses too often increase access to harmful behavioural (ABA) therapy by poorly trained, undersupervised workers who game the system for profits: www.nytimes.com/2026/06/04/o... ABA trains autistic children to mask their autism and camouflage journals.lww.com/jrnldbp/full... 2/

nytimes.com

Opinion | Children With Autism Lose When the Focus Is on Profits

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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 05/04/2026

Delighted to write this for @neurohubcomjournal.bsky.social " Functioning labels don’t describe us; they gatekeep access to support, autonomy, and opportunity." Read more: news.neurohubcommunity.org/p/words-that...

Infographic titled “Words That Wound: Why Functioning Labels Harm Autistic People” by Autistic Realms and NeuroHub Community Ltd.

Key message: Labels such as “profound autism,” “levels,” and “high” or “low functioning” are not neutral. They shape access to support, autonomy, and wellbeing for Autistic people.

Section: “Understanding the Harm of Functioning Labels.”

“Functioning labels deny needs”: These labels reduce Autistic people to simplified categories, obscuring the depth, variability, and context of lived experiences, and replacing understanding with assumptions.
“Functioning labels cause harm”: They distort how Autistic people are understood, minimise real struggles, overlook strengths, and lead to unmet, delayed, or misaligned support.

Images show:

Two disabled people smiling and interacting (one in a wheelchair).
A young child playing.
A group of people in a supportive discussion circle.

Final section: Moving beyond functioning labels creates space for understanding, respect, autonomy, agency, and meaningful support.

Closing statement: “Functioning labels don’t describe us, they gatekeep access to support, autonomy, and opportunity.

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luis01.bsky.social @luis01.bsky.social · 24/04/2026

read a bit too much psych stats and my soul quietly re-entered my body like “yeah alright this is us now” 📊

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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 03/04/2026

Intensive Interaction isn’t about “fixing” or prompting communication. It’s about meeting someone where they are—through connection & attunement. A neuro-affirming, relational framing to support those with PMLD, co-authored with @jo3grace.bsky.social autisticrealms.com/intensive-in...

autisticrealms.com

Intensive Interaction as Neuro-Affirming Relational Practice | Autistic Realms

Intensive Interaction isn’t about “fixing” or prompting communication. It’s about meeting someone where they are—through connection, attunement, and shared ...

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Sue Fletcher-Watson @suereviews.bsky.social · 20/03/2026

Trans? Autistic? Both? This survey could be for you!

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luis01.bsky.social @luis01.bsky.social · 14/03/2026

Just curious if anyone has ever tried eating disorder anonymous? ##EDRecovery

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Sunder Katwala (sundersays) @sundersays.bsky.social · 14/03/2026

Jurgen Habermas, philosopher and German, European public intellectual has died, aged 96 (Spiegel) www.spiegel.de/kultur/philo...

spiegel.de

Philosoph Jürgen Habermas gestorben

Jürgen Habermas ist tot. Der Philosoph und Soziologe starb heute im Alter von 96 Jahren in Starnberg.

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Frances Fisher @francesfisher11.bsky.social · 04/03/2026

My first meme!🛟

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Jade Farrington (she/her) @jadefarrington.bsky.social · 07/03/2026

Is the AuDHD mind at war with itself? Replacing the narrative of conflict with a single monotropic neurology jadefarrington.substack.com/p/is-the-aud... #QTWTAIN

jadefarrington.substack.com

Is the AuDHD mind at war with itself?

Challenging the narrative of conflict

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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 14/02/2026

FREE ONLINE COMMUNITY EVENT Thu, Feb 19 6:00-7:30pm (GMT) Re-Storying Autism: A Framework for Families, Parents and Carers Reimagining Support For Autistic People autisticrealms.com/re-storying-auti…

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David Gray-Hammond (NeuroHub Community) @neurohubcommunity.org · 08/02/2026

What Was The First Story You Heard About Autism? An exploration of the stories we hear about autism and what they mean to Autistic people.

neurohubcommunity.org

What Was The First Story You Heard About Autism?

An exploration of the stories we hear about autism and what they mean to Autistic people.

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Steven Kapp @drstevenkapp.bsky.social · 24/01/2026

While UK is proposing to narrow diagnoses (!), our new study led by @isaacahuvia.bsky.social: adults w/ self-identified autism had more unmet needs & higher distress, & similar understanding of autism, than officially diagnosed peers. Most wanted formal diagnosis journals.sagepub.com/doi/10.1177/...

journals.sagepub.com

Identifying as Autistic Without a Formal Diagnosis: Who Self-Identifies as Autistic and Why? - Isaac L. Ahuvia, Emine Gurbuz, Josephine Cuda, Steven K. Kapp, Abigail Houck, Jacquelyn A. Gates, Jessica...

Background: Adults increasingly self-identify as autistic without a formal diagnosis, yet little research has systematically investigated (a) the unique charact...

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Centre for Research in Autism and Education @craeioe.bsky.social · 29/11/2025

1/ On health inequalities for autistic people the @hlautismactcom.parliament.uk report credited the success of the Oliver McGowan Training to coproduction and delivery, but still many autistic people struggle to access healthcare.

bit.ly

Autism Act 2009 - Reports, special reports and government responses - Committees - UK Parliament

Report, special report and government response publications for Autism Act 2009.

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ARGH Scotland (formerly Autism Rights Group Highland) @arghscotland.bsky.social · 13/11/2025

Representatives of autistic-led organisations giving evidence to Holyrood’s health, social care and sport committee said a national plan is needed to fix significant gaps in neurodevelopmental pathways: healthandcare.scot/stories/4295...

healthandcare.scot

Autistic Scots push MSPs for neurodivergent-led change

A lack of accessible diagnosis and support is driving autistic people and their families into crisis, MSPs have been told. Representatives of autistic-led organisations giving evidence to Holyrood’s ...

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Kathryn Bromwich @kathrynbromwich.bsky.social · 31/10/2025

This was a painful piece to write. I love horror, but it doesn’t always love me back. I wish I didn’t have to write this, but it keeps happening, often from people who should know better Tl;dr: we need more disabled writers/directors so we can tell our own stories 🙏 Please share

Screenshot of Guardian comment piece: Horror movies have an ableism problem. Isn’t it time we found new ‘monsters’? by Kathryn Bromwich.

Films such as Frankenstein still use disability as shorthand for moral depravity. But human behaviour is far scarier than human appearance

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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 14/10/2025

This is possibly THE best video about stimming I have ever seen by Sophie Broadgate. I have shared quite a lot over the past few years but may be not shared here... enjoy! pikaiafilms.co.uk/In-Motion-2022 Read more here from @stimpunks.org : stimpunks.org/glossary/sti...

pikaiafilms.co.uk

In Motion (2022) — Pikaia Films

In Motion (2022) In Motion sheds light on the emotional experience of autism, normalising and celebrating different forms of stimming (self-stimulatory...

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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 28/09/2025

Explore The Map of Monotropic Experiences: Reframing Autism Through A Neurodiversity-Affirming Lens. Full Training Pack Available autisticrealms.com/map-of-monotropi…

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Thinking Person's Guide to Autism @thinkingautism.com · 13/09/2025

Not every autistic person has the ability or capacity to be a "contributing member of society," and that is OK. We are all interdependent, we all depend on each other—some more, some less. That's how society should function, ideally. #neurodiversity #disability #autism

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The Sociological Review Foundation @thesociologicalreview.org · 10/09/2025

“Quite often, big social theorists actually formed their ideas in social movements, or in radical or activist spaces – what sociologists call counter-public spheres.” @alimeghji.bsky.social talks to Iris Pissaride about W.E.B. Du Bois’ legacy in the Magazine’s September issue. buff.ly/BWdBY33

Illustration for The Sociological Review magazine's September 2025 issue.

Whimsical drawing of three anthropomorphic flowers – orange, green and black against a brown and cream background – protesting together. One holds a black flag, another shouts through a megaphone, and the third listens intently with blue sound waves connecting them.

Artist: Raquel Figueira

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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 05/09/2025

A FREE and by donation Conference Event Aimed at Parents, Carers, Teachers & Health Professionals This October 2nd at 4 pm GMT, @laurahellfeld.bsky.social and I will be presenting for the @panspandasuk.bsky.social Charity www.eventbrite.co.uk/e/neurodiver...

eventbrite.co.uk

Neurodivergence, PANS and PANDAS with Helen Edgar and Laura Hellfield

Join Helen and Laura as they discuss neurodivergent burnout, barriers to learning and neurodiversity-affirming support

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Caroline Keep @ka83k.bsky.social · 05/09/2025

#Neurodivergent #Autistic #ADHD #inclusion #Dyslexia crowd are you in work ? Fill this survey in. Rebecca Killick is working on figuring out what works in work! So take part in the survey here ⬇️🙏🙏🙏 www.smartsurvey.co.uk/s/THRIVE_sur...

smartsurvey.co.uk

THRIVE: Neurodivergence at work

Please take the time to complete our survey. Your feedback is important.

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Trans+ Solidarity Alliance @transsolidarity.bsky.social · 05/09/2025

BREAKING 🚨 The updated EHRC Code of Practice has now been sent to the Government. The Code is just as bad as we feared. It would mean a mandatory trans bathroom ban, and trans people's exclusion from public life. The impact would be devastating. But politicians still have time to stop this.

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Jeremy Corbyn @jeremycorbyn.bsky.social · 27/08/2025

I am sickened by the relentless demonisation of refugees. No refugee underfunded a school. No refugee closed a hospital. No refugee took away support from the sick and disabled. We need solutions not scapegoats. Stop blaming refugees and tax the rich instead!

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Thriving Autistic @thrivingautistic.bsky.social · 26/08/2025

We are now accepting expressions of interest for our September 2025 - March 2026 Discovery Programme cohorts! Join our supportive 6-week online programme with other newly identified Autistic adults. Find out more: www.thrivingautistic.org/discovery-pr... Kindly funded by Rethink Ireland

thrivingautistic.org

Discovery Programme: Welcome to Your Autistic Self

Have you recently discovered that you’re Autistic? Would you like to learn more about your neurotype and discuss what it means for you in a supportive group with other newly identified Autistic adults...

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luis01.bsky.social @luis01.bsky.social · 10/08/2025

Panic attacks aren’t “just anxiety”. They can bring a racing heart, breathlessness & dizziness so intense it feels like a heart attack. Believe people, stay calm, no judgement. Awareness breaks stigma – you never know who’s battling one right now.

media.tenor.com

a cartoon brain jumping a jump rope with the words mental health is a priority below it

Alt: a cartoon brain jumping a jump rope with the words mental health is a priority below it

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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 09/08/2025

I wrote a blog about the Monotropism Questionnaire & how it relates to inner Autistic/ADHD/ AuDHD experiences based on the original paper by Garau et al. (2023) This blog had over 100k views when I first shared it ....I will update it soon! Read more: autisticrealms.com/monotropism-...

autisticrealms.com

Monotropism Questionnaire & Inner Autistic/ADHD Experiences | Autistic Realms

Over the past few weeks, there has been a sudden surge of interest in the Monotropism Questionnaire (MQ), pre-print released in June 2023 in the resea ...

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Autism @autismtalk.bsky.social · 05/08/2025

Finding Out I'm Autistic | My Adult Autism Assessment www.youtube.com/watch?v=RSZ-...

youtube.com

Finding Out I'm Autistic | My Adult Autism Assessment

YouTube video by Courtney, Literally

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luis01.bsky.social @luis01.bsky.social · 30/07/2025

If you’re interested in writing around neurodiversity, mental health, and how we make sense of the world differently, I’ve got a Substack where I share thoughts, essays, and reflections. Would love for you to follow along: substack.com/@luis2201

substack.com

Luis Robertson | Substack

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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 27/07/2025

✨ What Are Glimmers? ✨ Glimmers are small, powerful moments of Autistic joy that emerge when we’re deeply immersed in what matters to us. 🌱 Discover how monotropism & flow create space for joy in an often overwhelming world. 💫 Find out more: autisticrealms.com/glimmers-aut...

autisticrealms.com

Glimmers: Autistic Joy and Monotropism | Autistic Realms

Glimmers are small, powerful moments of Autistic joy that emerge when we’re deeply immersed in what matters to us. Learn how monotropism & flow create s ...

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