PANS PANDAS UK @panspandasuk.bsky.social · 05/06/2025Help your family to reconnect following a flare of PANS or PANDAS symptoms. Vicky Queralt, Clinical Psychologist, suggests a variety of strategies to support everyone affected: panspandasuk.org/wp-content/uploads/2025/05/Reconnecting-2.pdf 042
PANS PANDAS UK @panspandasuk.bsky.social · 03/06/2025Calling all paediatric dentistry professionals! PANS PANDAS UK are speaking at the @bspduk summer event, June 6th. events.teams.microsoft.com/event/129271... 011
PANS PANDAS UK @panspandasuk.bsky.social · 02/06/2025Did you know that PANS and PANDAS are medical conditions that affect children or young people in school? A summary guide for health professionals is available to download: panspandasuk.org/wp-content/uploads/2024/05/A-guide-for-Health-Professionals-Education-and-PANS-PANDAS-DIGITAL-VERSION.pdf 054
PANS PANDAS UK @panspandasuk.bsky.social · 29/05/2025@parentcarerassembly.scot has published a report on "Additional Support for Learning". You can read the full report here: www.panspandasuk.org/post/scottish-assembly-report/panspandasuk.orgScottish Assembly Report - PANS PANDAS UKWelcome to PANS PANDAS' news blog. This post is titled: Scottish Assembly Report 021
PANS PANDAS UK @panspandasuk.bsky.social · 29/05/2025Join our informative webinar for parents and carers to learn what to expect during the EHC assessment process in the context of PANS or PANDAS Led by experienced SEN Solicitor Eleanor Wright, in collaboration with SOS!SEN 🔗 Register: panspandasuk.org/wp-content/uploads/2025/05/webinar-guide-1.pdf 011
PANS PANDAS UK @panspandasuk.bsky.social · 28/05/2025Our next teacher training session is on the 11th of June. Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events #TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation 011
PANS PANDAS UK @panspandasuk.bsky.social · 28/05/2025If you are a paediatric dentist and are unaware of how dental concerns can exacerbate symptoms in young people with PANS or PANDAS, join this @bspdofficial.bsky.social event: events.teams.microsoft.com/event/129271... 021
PANS PANDAS UK @panspandasuk.bsky.social · 28/05/2025PANS, PANDAS and Parliament! Since 2020, PANS PANDAS UK and our fantastic community have continually driven political awareness about PANS and PANDAS. Learn more about our parliamentary engagement: panspandasuk.org/post/our-work-in-parliamentpanspandasuk.orgOur Work in Parliament - PANS PANDAS UKWelcome to PANS PANDAS' news blog. This post is titled: Our Work in Parliament 021
PANS PANDAS UK @panspandasuk.bsky.social · 28/05/2025Join the @nicecomms.bsky.social Prioritisation board to share your crucial perspective on topics that affect parents, carers and families affected by ill health: www.nice.org.uk/get-involved... 011
Reposted by PANS PANDAS UKPANS PANDAS UK @panspandasuk.bsky.social · 19/05/2025Thank you @cathkitchen.bsky.social! Including Learners with Medical Needs in School is a powerful step toward a more inclusive and compassionate education. PANS PANDAS UK is honoured to be a small part of something so needed tailored for professionals #InclusiveEducation #Gratitude #EdChat 022
PANS PANDAS UK @panspandasuk.bsky.social · 22/05/2025Current Education reforms could negatively impact children and young people with PANS and PANDAS. Find out what PANS PANDAS UK are doing to ensure our voices are heard: panspandasuk.org/post/protecting-vulnerable-voices 021
PANS PANDAS UK @panspandasuk.bsky.social · 19/05/2025Thank you @cathkitchen.bsky.social! Including Learners with Medical Needs in School is a powerful step toward a more inclusive and compassionate education. PANS PANDAS UK is honoured to be a small part of something so needed tailored for professionals #InclusiveEducation #Gratitude #EdChat 022
PANS PANDAS UK @panspandasuk.bsky.social · 19/05/2025Our next teacher training session is TONIGHT. Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events #TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation 010
PANS PANDAS UK @panspandasuk.bsky.social · 16/05/2025PANS PANDAS UK's new webpage for Scotland is now live! Growing our work across the devolved nations is so important for improving the lives of our community across the UK. Visit panspandasuk.org/post/pans-pandas-uk-launches-scotland-webpage to learn more about our work in Scotland.panspandasuk.orgPANS PANDAS UK launches Scotland webpage - PANS PANDAS UKWelcome to PANS PANDAS' news blog. This post is titled: PANS PANDAS UK launches Scotland webpage 010
PANS PANDAS UK @panspandasuk.bsky.social · 12/05/2025If you've ever felt this way, our Youth Advisory Board is the space for you. Speak out and be heard today: panspandasuk.org/youth-adviso... 011
PANS PANDAS UK @panspandasuk.bsky.social · 12/05/2025One Week to Go Our next teacher training session is on 19 May. Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events #TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducationpanspandasuk.orgTraining, Events and Support Groups - PANS PANDAS UKWelcome to PANS PANDAS UK. This is our Training, Events and Support Groups page. 011
PANS PANDAS UK @panspandasuk.bsky.social · 06/05/2025Did you know that Twinkl offers a wide range of educational resources on PANS and PANDAS? A big thank you to them for making these valuable materials available. www.twinkl.co.uk/resource/pans-pandas-information-and-cpd-pack-t-s-1643108429twinkl.co.uk 012
PANS PANDAS UK @panspandasuk.bsky.social · 05/05/2025Two weeks until the next teacher training session on 19th May See all our upcoming events here: panspandasuk.org/events 012
PANS PANDAS UK @panspandasuk.bsky.social · 02/05/2025The absence of UK clinical guidelines for PANS and PANDAS hinders access to prompt, accurate assessment, diagnosis and treatment and creates a postcode lottery for patients: panspandasuk.org/post/work-continues-apace-on-development-of-clinical-guidelines 023
PANS PANDAS UK @panspandasuk.bsky.social · 01/05/2025Our PANS PANDAS APPG met again this year to discuss securing prompt and accurate assessment, diagnosis and treatment on the NHS for everyone affected by PANS and PANDAS. Find out more, and discover how to get your MP involved: panspandasuk.org/post/pans-pa... 021
PANS PANDAS UK @panspandasuk.bsky.social · 30/04/2025Thank you for joining our teacher training session yesterday. Here are the details for the upcoming sessions. panspandasuk.org/eventspanspandasuk.orgTraining, Events and Support Groups - PANS PANDAS UKWelcome to PANS PANDAS UK. This is our Training, Events and Support Groups page. 020
PANS PANDAS UK @panspandasuk.bsky.social · 28/04/2025Calling all MPs! Join us on Wednesday to hear from leading experts about PANS and PANDAS, the misunderstood neuropychiatric conditions affecting children in your constituency. Find out more: panspandasuk.org/post/pans-pa... 422
PANS PANDAS UK @panspandasuk.bsky.social · 28/04/2025Our next teacher training session is tomorrow. Date: 29/04 Register now: panspandasuk.org/events/ Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education. #TeacherTraining #PANS #PANDAS #Education #SENpanspandasuk.orgTraining, Events and Support Groups - PANS PANDAS UKWelcome to PANS PANDAS UK. This is our Training, Events and Support Groups page. 011
PANS PANDAS UK @panspandasuk.bsky.social · 03/04/2025Don't miss out; the next edition of our community newsletter will be sent soon! Sign up today for the latest health, education, and community news, as well as important updates about PANS and PANDAS - panspandasuk.org/support-resources/sign-up-to-our-newsletter/ 011
PANS PANDAS UK @panspandasuk.bsky.social · 03/04/2025Thank you to everyone who joined us at the RCPCH conference. Clinical and patient experts came together to advocate for improved care for everyone affected by PANS and PANDAS. #RCPCH2025 Find out more: panspandasuk.org/post/perspectives-on-pans-and-pandas-at-rcpch-2025 011
PANS PANDAS UK @panspandasuk.bsky.social · 27/03/2025PANS PANDAS UK in partnership with SOSSEN is delighted to be hosting an upcoming education webinar about #PANS and #PANDAS, for both families and professionals wanting to learn more. Please share with any relevant networks. #SEND #Teachers #SENDParents #EducationMatters #TeacherTraining 031
PANS PANDAS UK @panspandasuk.bsky.social · 24/03/2025The Trustees of the PANS PANDAS UK charity are delighted to announce the appointment of Vicky Burford as the Chief Executive Officer of the charity. Visit our News to find out more. panspandasuk.org?p=4834panspandasuk.orgAnnouncing the new PANS PANDAS UK CEO - PANS PANDAS UKWelcome to PANS PANDAS' news blog. This post is titled: Announcing the new PANS PANDAS UK CEO 011
PANS PANDAS UK @panspandasuk.bsky.social · 21/03/2025PANS PANDAS UK in partnership with SOSSEN is delighted to be hosting an upcoming education webinar about #PANS and #PANDAS, for both families and professionals wanting to learn more. Please share with any relevant networks. #SEND #Teachers #SENDParents #EducationMatters #TeacherTraining 011
PANS PANDAS UK @panspandasuk.bsky.social · 18/03/2025Our next teacher training session is on 19 March. 📅 Date: 19 March 🎟 Register now: panspandasuk.org/events/ Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education. #TeacherTraining #PANS #PANDAS #SEN #InclusiveEducation 021
PANS PANDAS UK @panspandasuk.bsky.social · 17/03/2025Neurodivergent individuals can also develop #PANS or #PANDAS. Neurodivergent people require equal access to medical evaluation and treatment as required. More info here - panspandasuk.org/frequently-a... #Neurodivergence #NeurodiversityCelebrationWeekpanspandasuk.orgFrequently Asked Questions - PANS PANDAS UKWelcome to PANS PANDAS UK. This is our Frequently Asked Questions page. 022
PANS PANDAS UK @panspandasuk.bsky.social · 17/03/2025Did you know that PANS PANDAS UK is a member of the Health Conditions in School Alliance, supporting children and young people with medical conditions in school? medicalconditionsatschool.org.ukmedicalconditionsatschool.org.ukHealth Conditions in Schools Alliance 032
PANS PANDAS UK @panspandasuk.bsky.social · 14/03/2025Still time to register! Upcoming free #PANS and #PANDAS training for Educational psychologists in conjunction with Reed on Tuesday March 18th, 12.00-13.30pm. events.teams.microsoft.com/event/49d16a... #EdPsych #Psychology #Education #EdChat #EdTech #Learning #TeacherTraining 033
PANS PANDAS UK @panspandasuk.bsky.social · 14/03/2025The Alex Manfull Fund 5K, in Washington, DC, will support ground-breaking research into PANS, PANDAS and other auto-immune disorders. Spread the word to help these projects reach the finish line #TAMF5K @ManfullPhD bit.ly/TAMF5K2025bit.lyThe 2025 Alex Manfull Fund 5K Run/Walk -Mark your calendars for April 12, 2025 and get ready to hit the pavement to run or walk in the Third Annual 2025 Alex Manfull Fund 5K! TAMF 2025 5K Run/Walk Race: April 12, 2025 How you can... Read Mo... 011
PANS PANDAS UK @panspandasuk.bsky.social · 13/03/2025We are delighted that hundreds of healthcare professionals have already completed the first-ever PANDAS CPD module. Get involved here: panspandasuk.org/post/unprece...panspandasuk.orgUnprecedented demand for PANDAS module - PANS PANDAS UKWelcome to PANS PANDAS' news blog. This post is titled: Unprecedented demand for PANDAS module 032
PANS PANDAS UK @panspandasuk.bsky.social · 13/03/2025PANS PANDAS UK is pleased to share that a 45-minute recorded teacher training summary on #PANS and #PANDAS is now available for free via NASEN. nasen.org.uk/resources/twilight-talk-supporting-children-and-young-people-pans-and-pandas-educational-settings #TeacherTraining #Education #SpecialNeedsnasen.org.ukTwilight Talk: Supporting Children and Young People with PANS and PANDAS in Educational SettingsIn this talk Tina Coope from the charity PANS PANDAS UK will discuss: What are PANS and PANDAS? How do the conditions impact on children and young people in the classroom? How can schools begin to pro... 031
PANS PANDAS UK @panspandasuk.bsky.social · 11/03/2025PANS PANDAS UK provide our teacher training through the education resource provider @twinklresources.bsky.social Our next session is tomorrow, Wednesday 12th March at 7pm. www.eventbrite.co.uk/e/supporting...eventbrite.co.ukSupporting Children with PANS or PANDAS in Educational SettingsHosted by PANS PANDAS UK, attendees will gain valuable insights into PANS and PANDAS and learn how to support children with the conditions. 011
PANS PANDAS UK @panspandasuk.bsky.social · 07/03/2025UK parents/carers of children with OCD – we need your input! We’re working with the COrUS team University of Manchester on vital research (funded by NIHR) to improve support for families. Take this short, anonymous survey (10 mins): www.qualtrics.manchester.ac.uk/jfe/form/SV_... 034
PANS PANDAS UK @panspandasuk.bsky.social · 06/03/2025PANS PANDAS UK provide our teacher training through the education resource provider Twinkle. Our next session is on Wednesday 12th March at 7pm.eventbrite.co.ukSupporting Children with PANS or PANDAS in Educational SettingsHosted by PANS PANDAS UK, attendees will gain valuable insights into PANS and PANDAS and learn how to support children with the conditions. 021
PANS PANDAS UK @panspandasuk.bsky.social · 05/03/2025Upcoming Teacher Training: Supporting Children with PANS & PANDAS in Education Settings Join us on 19th March 2025, from 16:00 - 17:15 📅 Save the date & register now: panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #InclusiveEducation #SEND #EducationMatters #SupportingStudents 042
PANS PANDAS UK @panspandasuk.bsky.social · 03/03/2025Today we are introducing Friends of PANS PANDAS UK; a new way to support our charity on a regular basis. For more information about our Friends programme, click the link below. Thank you. panspandasuk.org/friends-of-p... 031
PANS PANDAS UK @panspandasuk.bsky.social · 28/02/2025Thank you for joining our teacher training session yesterday- Here are the details for the upcoming sessions: panspandasuk.org/events/panspandasuk.orgTraining & Events - PANS PANDAS UKWelcome to PANS PANDAS UK. This is our Training & Events page. 000
PANS PANDAS UK @panspandasuk.bsky.social · 27/02/2025Disordered eating can affect anyone. Experiencing PANS or PANDAS can include episodes of restrictive eating. Support is available @beatedsupport.bsky.social #EDAW2025 #AnyoneAnytime 021
PANS PANDAS UK @panspandasuk.bsky.social · 27/02/2025Thank you to everyone who has filled in our survey so far. There is still one day left to share your views. By completing our new survey, you will help us plan a fantastic 2025 and beyond for PANS PANDAS UK forms.gle/2hxbHRSAgPfF...forms.gleCommunity SurveyThank you for being a valued member of the PANS PANDAS UK community. Your views and voices are important to us, and we strongly believe that you should all have a say in the direction of the charity a... 010
PANS PANDAS UK @panspandasuk.bsky.social · 27/02/2025Our next Teacher Training Session is TONIGHT! Don’t miss out—secure your spot today! ⬇️ 🔗 panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #Education #SEN #Neurodiversity #PANSandPANDASUKpanspandasuk.orgTraining & Events - PANS PANDAS UKWelcome to PANS PANDAS UK. This is our Training & Events page. 010
PANS PANDAS UK @panspandasuk.bsky.social · 26/02/2025One day to go until our next CPD-accredited teacher training. Don’t miss out—secure your spot today! ⬇️ 🔗 panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #Education #SEN #Neurodiversity #PANSandPANDASUK 010
PANS PANDAS UK @panspandasuk.bsky.social · 24/02/2025Three days to go until our next CPD-accredited teacher training. Don’t miss out—secure your spot today! ⬇️ 🔗 panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #Education #SEN #Neurodiversity #PANSandPANDASUKpanspandasuk.orgTraining & Events - PANS PANDAS UKWelcome to PANS PANDAS UK. This is our Training & Events page. 000
PANS PANDAS UK @panspandasuk.bsky.social · 19/02/2025One week to Go! Our next Teacher Training Session is happening on 27th February! 🔗 panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #Education #SEN #Neurodiversity #PANSandPANDASUK 000
PANS PANDAS UK @panspandasuk.bsky.social · 19/02/2025Is your child suddenly experiencing OCD behaviours, Tics, Anxiety, Depression, Aggression, Hyperactivity, Food restrictions or other unexplained changes? It might be PANS or PANDAS. Find out more: panspandasuk.org/what-are-pan... 032
PANS PANDAS UK @panspandasuk.bsky.social · 19/02/2025PANS PANDAS UK Delivers Key Training for Educators via @nasen_org panspandasuk.org/post/pans-pa... #Education #TeacherTraining #SEN #PANS #PANDAS #NASENpanspandasuk.orgPANS PANDAS UK deliver Key Training for Educators via NASEN - PANS PANDAS UKWelcome to PANS PANDAS' news blog. This post is titled: PANS PANDAS UK deliver Key Training for Educators via NASEN 012
PANS PANDAS UK @panspandasuk.bsky.social · 13/02/2025Our next Teacher Training Session is happening on 27th February! Don’t miss out—secure your spot today! ⬇️ 🔗 panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #Education #SEN #Neurodiversity #PANSandPANDASUK 021