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PANS PANDAS UK

@panspandasuk.bsky.social
204 followers 20 following 85 posts

UK charity raising awareness and understanding of post-infectious neuropsychiatric disorders. We support families and campaign for better care.

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PANS PANDAS UK @panspandasuk.bsky.social · 05/06/2025
Help your family to reconnect following a flare of PANS or PANDAS symptoms. Vicky Queralt, Clinical Psychologist, suggests a variety of strategies to support everyone affected: panspandasuk.org/wp-content/uploads/2025/05/Reconnecting-2.pdf
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PANS PANDAS UK @panspandasuk.bsky.social · 03/06/2025
Calling all paediatric dentistry professionals! PANS PANDAS UK are speaking at the @bspduk summer event, June 6th. events.teams.microsoft.com/event/129271...
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PANS PANDAS UK @panspandasuk.bsky.social · 02/06/2025
Did you know that PANS and PANDAS are medical conditions that affect children or young people in school? A summary guide for health professionals is available to download: panspandasuk.org/wp-content/uploads/2024/05/A-guide-for-Health-Professionals-Education-and-PANS-PANDAS-DIGITAL-VERSION.pdf
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PANS PANDAS UK @panspandasuk.bsky.social · 29/05/2025
@parentcarerassembly.scot has published a report on "Additional Support for Learning". You can read the full report here: www.panspandasuk.org/post/scottish-assembly-report/
panspandasuk.org
Scottish Assembly Report - PANS PANDAS UK
Welcome to PANS PANDAS' news blog. This post is titled: Scottish Assembly Report
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PANS PANDAS UK @panspandasuk.bsky.social · 29/05/2025
Join our informative webinar for parents and carers to learn what to expect during the EHC assessment process in the context of PANS or PANDAS Led by experienced SEN Solicitor Eleanor Wright, in collaboration with SOS!SEN 🔗 Register: panspandasuk.org/wp-content/uploads/2025/05/webinar-guide-1.pdf
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PANS PANDAS UK @panspandasuk.bsky.social · 28/05/2025
Our next teacher training session is on the 11th of June. Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events #TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation
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PANS PANDAS UK @panspandasuk.bsky.social · 28/05/2025
If you are a paediatric dentist and are unaware of how dental concerns can exacerbate symptoms in young people with PANS or PANDAS, join this @bspdofficial.bsky.social event:  events.teams.microsoft.com/event/129271...
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PANS PANDAS UK @panspandasuk.bsky.social · 28/05/2025
PANS, PANDAS and Parliament! Since 2020, PANS PANDAS UK and our fantastic community have continually driven political awareness about PANS and PANDAS. Learn more about our parliamentary engagement: panspandasuk.org/post/our-work-in-parliament
panspandasuk.org
Our Work in Parliament  - PANS PANDAS UK
Welcome to PANS PANDAS' news blog. This post is titled: Our Work in Parliament
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PANS PANDAS UK @panspandasuk.bsky.social · 28/05/2025
Join the @nicecomms.bsky.social Prioritisation board to share your crucial perspective on topics that affect parents, carers and families affected by ill health: www.nice.org.uk/get-involved...
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Reposted by PANS PANDAS UK
PANS PANDAS UK @panspandasuk.bsky.social · 19/05/2025
Thank you @cathkitchen.bsky.social! Including Learners with Medical Needs in School is a powerful step toward a more inclusive and compassionate education. PANS PANDAS UK is honoured to be a small part of something so needed tailored for professionals #InclusiveEducation #Gratitude #EdChat
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PANS PANDAS UK @panspandasuk.bsky.social · 22/05/2025
Current Education reforms could negatively impact children and young people with PANS and PANDAS. Find out what PANS PANDAS UK are doing to ensure our voices are heard: panspandasuk.org/post/protecting-vulnerable-voices
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PANS PANDAS UK @panspandasuk.bsky.social · 19/05/2025
Thank you @cathkitchen.bsky.social! Including Learners with Medical Needs in School is a powerful step toward a more inclusive and compassionate education. PANS PANDAS UK is honoured to be a small part of something so needed tailored for professionals #InclusiveEducation #Gratitude #EdChat
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PANS PANDAS UK @panspandasuk.bsky.social · 19/05/2025
Our next teacher training session is TONIGHT. Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events #TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation
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PANS PANDAS UK @panspandasuk.bsky.social · 16/05/2025
PANS PANDAS UK's new webpage for Scotland is now live! Growing our work across the devolved nations is so important for improving the lives of our community across the UK. Visit panspandasuk.org/post/pans-pandas-uk-launches-scotland-webpage to learn more about our work in Scotland.
panspandasuk.org
PANS PANDAS UK launches Scotland webpage - PANS PANDAS UK
Welcome to PANS PANDAS' news blog. This post is titled: PANS PANDAS UK launches Scotland webpage
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PANS PANDAS UK @panspandasuk.bsky.social · 12/05/2025
If you've ever felt this way, our Youth Advisory Board is the space for you. Speak out and be heard today: panspandasuk.org/youth-adviso...
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PANS PANDAS UK @panspandasuk.bsky.social · 12/05/2025
One Week to Go Our next teacher training session is on 19 May. Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events #TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation
panspandasuk.org
Training, Events and Support Groups - PANS PANDAS UK
Welcome to PANS PANDAS UK. This is our Training, Events and Support Groups page.
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PANS PANDAS UK @panspandasuk.bsky.social · 06/05/2025
Did you know that Twinkl offers a wide range of educational resources on PANS and PANDAS? A big thank you to them for making these valuable materials available. www.twinkl.co.uk/resource/pans-pandas-information-and-cpd-pack-t-s-1643108429
twinkl.co.uk
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PANS PANDAS UK @panspandasuk.bsky.social · 05/05/2025
Two weeks until the next teacher training session on 19th May See all our upcoming events here: panspandasuk.org/events
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PANS PANDAS UK @panspandasuk.bsky.social · 02/05/2025
The absence of UK clinical guidelines for PANS and PANDAS hinders access to prompt, accurate assessment, diagnosis and treatment and creates a postcode lottery for patients: panspandasuk.org/post/work-continues-apace-on-development-of-clinical-guidelines
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PANS PANDAS UK @panspandasuk.bsky.social · 01/05/2025
Our PANS PANDAS APPG met again this year to discuss securing prompt and accurate assessment, diagnosis and treatment on the NHS for everyone affected by PANS and PANDAS. Find out more, and discover how to get your MP involved: panspandasuk.org/post/pans-pa...
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PANS PANDAS UK @panspandasuk.bsky.social · 30/04/2025
Thank you for joining our teacher training session yesterday. Here are the details for the upcoming sessions. panspandasuk.org/events
panspandasuk.org
Training, Events and Support Groups - PANS PANDAS UK
Welcome to PANS PANDAS UK. This is our Training, Events and Support Groups page.
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PANS PANDAS UK @panspandasuk.bsky.social · 28/04/2025
Calling all MPs! Join us on Wednesday to hear from leading experts about PANS and PANDAS, the misunderstood neuropychiatric conditions affecting children in your constituency. Find out more: panspandasuk.org/post/pans-pa...
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PANS PANDAS UK @panspandasuk.bsky.social · 28/04/2025
Our next teacher training session is tomorrow. Date: 29/04 Register now: panspandasuk.org/events/ Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education. #TeacherTraining #PANS #PANDAS #Education #SEN
panspandasuk.org
Training, Events and Support Groups - PANS PANDAS UK
Welcome to PANS PANDAS UK. This is our Training, Events and Support Groups page.
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PANS PANDAS UK @panspandasuk.bsky.social · 03/04/2025
Don't miss out; the next edition of our community newsletter will be sent soon! Sign up today for the latest health, education, and community news, as well as important updates about PANS and PANDAS - panspandasuk.org/support-resources/sign-up-to-our-newsletter/
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PANS PANDAS UK @panspandasuk.bsky.social · 03/04/2025
Thank you to everyone who joined us at the RCPCH conference. Clinical and patient experts came together to advocate for improved care for everyone affected by PANS and PANDAS. #RCPCH2025 Find out more: panspandasuk.org/post/perspectives-on-pans-and-pandas-at-rcpch-2025
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PANS PANDAS UK @panspandasuk.bsky.social · 27/03/2025
PANS PANDAS UK in partnership with SOSSEN is delighted to be hosting an upcoming education webinar about #PANS and #PANDAS, for both families and professionals wanting to learn more. Please share with any relevant networks. #SEND #Teachers #SENDParents #EducationMatters #TeacherTraining
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PANS PANDAS UK @panspandasuk.bsky.social · 24/03/2025
The Trustees of the PANS PANDAS UK charity are delighted to announce the appointment of Vicky Burford as the Chief Executive Officer of the charity. Visit our News to find out more. panspandasuk.org?p=4834
panspandasuk.org
Announcing the new PANS PANDAS UK CEO - PANS PANDAS UK
Welcome to PANS PANDAS' news blog. This post is titled: Announcing the new PANS PANDAS UK CEO
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PANS PANDAS UK @panspandasuk.bsky.social · 21/03/2025
PANS PANDAS UK in partnership with SOSSEN is delighted to be hosting an upcoming education webinar about #PANS and #PANDAS, for both families and professionals wanting to learn more. Please share with any relevant networks. #SEND #Teachers #SENDParents  #EducationMatters #TeacherTraining
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PANS PANDAS UK @panspandasuk.bsky.social · 18/03/2025
Our next teacher training session is on 19 March. 📅 Date: 19 March 🎟 Register now: panspandasuk.org/events/ Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education. #TeacherTraining #PANS #PANDAS #SEN #InclusiveEducation
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PANS PANDAS UK @panspandasuk.bsky.social · 17/03/2025
Neurodivergent individuals can also develop #PANS or #PANDAS. Neurodivergent people require equal access to medical evaluation and treatment as required. More info here - panspandasuk.org/frequently-a...  #Neurodivergence #NeurodiversityCelebrationWeek
panspandasuk.org
Frequently Asked Questions - PANS PANDAS UK
Welcome to PANS PANDAS UK. This is our Frequently Asked Questions page.
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PANS PANDAS UK @panspandasuk.bsky.social · 17/03/2025
Did you know that PANS PANDAS UK is a member of the Health Conditions in School Alliance, supporting children and young people with medical conditions in school? medicalconditionsatschool.org.uk
medicalconditionsatschool.org.uk
Health Conditions in Schools Alliance
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PANS PANDAS UK @panspandasuk.bsky.social · 14/03/2025
Still time to register! Upcoming free #PANS and #PANDAS training for Educational psychologists in conjunction with Reed on Tuesday March 18th, 12.00-13.30pm. events.teams.microsoft.com/event/49d16a...   #EdPsych #Psychology #Education #EdChat #EdTech #Learning #TeacherTraining
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PANS PANDAS UK @panspandasuk.bsky.social · 14/03/2025
The Alex Manfull Fund 5K, in Washington, DC, will support ground-breaking research into PANS, PANDAS and other auto-immune disorders. Spread the word to help these projects reach the finish line #TAMF5K @ManfullPhD bit.ly/TAMF5K2025
bit.ly
The 2025 Alex Manfull Fund 5K Run/Walk -
Mark your calendars for April 12, 2025 and get ready to hit the pavement to run or walk in the Third Annual 2025 Alex Manfull Fund 5K! TAMF 2025 5K Run/Walk Race: April 12, 2025 How you can... Read Mo...
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PANS PANDAS UK @panspandasuk.bsky.social · 13/03/2025
We are delighted that hundreds of healthcare professionals have already completed the first-ever PANDAS CPD module. Get involved here: panspandasuk.org/post/unprece...
panspandasuk.org
Unprecedented demand for PANDAS module - PANS PANDAS UK
Welcome to PANS PANDAS' news blog. This post is titled: Unprecedented demand for PANDAS module
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PANS PANDAS UK @panspandasuk.bsky.social · 13/03/2025
PANS PANDAS UK is pleased to share that a 45-minute recorded teacher training summary on #PANS and #PANDAS is now available for free via NASEN. nasen.org.uk/resources/twilight-talk-supporting-children-and-young-people-pans-and-pandas-educational-settings #TeacherTraining #Education #SpecialNeeds
nasen.org.uk
Twilight Talk: Supporting Children and Young People with PANS and PANDAS in Educational Settings
In this talk Tina Coope from the charity PANS PANDAS UK will discuss: What are PANS and PANDAS? How do the conditions impact on children and young people in the classroom? How can schools begin to pro...
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PANS PANDAS UK @panspandasuk.bsky.social · 11/03/2025
PANS PANDAS UK provide our teacher training through the education resource provider @twinklresources.bsky.social Our next session is tomorrow, Wednesday 12th March at 7pm. www.eventbrite.co.uk/e/supporting...
eventbrite.co.uk
Supporting Children with PANS or PANDAS in Educational Settings
Hosted by PANS PANDAS UK, attendees will gain valuable insights into PANS and PANDAS and learn how to support children with the conditions.
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PANS PANDAS UK @panspandasuk.bsky.social · 07/03/2025
UK parents/carers of children with OCD – we need your input! We’re working with the COrUS team University of Manchester on vital research (funded by NIHR) to improve support for families. Take this short, anonymous survey (10 mins): www.qualtrics.manchester.ac.uk/jfe/form/SV_...
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PANS PANDAS UK @panspandasuk.bsky.social · 06/03/2025
PANS PANDAS UK provide our teacher training through the education resource provider Twinkle. Our next session is on Wednesday 12th March at 7pm.
eventbrite.co.uk
Supporting Children with PANS or PANDAS in Educational Settings
Hosted by PANS PANDAS UK, attendees will gain valuable insights into PANS and PANDAS and learn how to support children with the conditions.
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PANS PANDAS UK @panspandasuk.bsky.social · 05/03/2025
Upcoming Teacher Training: Supporting Children with PANS & PANDAS in Education Settings Join us on 19th March 2025, from 16:00 - 17:15 📅 Save the date & register now: panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #InclusiveEducation #SEND #EducationMatters #SupportingStudents
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PANS PANDAS UK @panspandasuk.bsky.social · 03/03/2025
Today we are introducing Friends of PANS PANDAS UK; a new way to support our charity on a regular basis. For more information about our Friends programme, click the link below. Thank you. panspandasuk.org/friends-of-p...
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PANS PANDAS UK @panspandasuk.bsky.social · 28/02/2025
Thank you for joining our teacher training session yesterday- Here are the details for the upcoming sessions: panspandasuk.org/events/
panspandasuk.org
Training & Events - PANS PANDAS UK
Welcome to PANS PANDAS UK. This is our Training & Events page.
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PANS PANDAS UK @panspandasuk.bsky.social · 27/02/2025
Disordered eating can affect anyone. Experiencing PANS or PANDAS can include episodes of restrictive eating. Support is available @beatedsupport.bsky.social #EDAW2025 #AnyoneAnytime
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PANS PANDAS UK @panspandasuk.bsky.social · 27/02/2025
Thank you to everyone who has filled in our survey so far. There is still one day left to share your views. By completing our new survey, you will help us plan a fantastic 2025 and beyond for PANS PANDAS UK forms.gle/2hxbHRSAgPfF...
forms.gle
Community Survey
Thank you for being a valued member of the PANS PANDAS UK community. Your views and voices are important to us, and we strongly believe that you should all have a say in the direction of the charity a...
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PANS PANDAS UK @panspandasuk.bsky.social · 27/02/2025
Our next Teacher Training Session is TONIGHT! Don’t miss out—secure your spot today! ⬇️ 🔗 panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #Education #SEN #Neurodiversity #PANSandPANDASUK
panspandasuk.org
Training & Events - PANS PANDAS UK
Welcome to PANS PANDAS UK. This is our Training & Events page.
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PANS PANDAS UK @panspandasuk.bsky.social · 26/02/2025
One day to go until our next CPD-accredited teacher training. Don’t miss out—secure your spot today! ⬇️ 🔗 panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #Education #SEN #Neurodiversity #PANSandPANDASUK
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PANS PANDAS UK @panspandasuk.bsky.social · 24/02/2025
Three days to go until our next CPD-accredited teacher training. Don’t miss out—secure your spot today! ⬇️ 🔗 panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #Education #SEN #Neurodiversity #PANSandPANDASUK
panspandasuk.org
Training & Events - PANS PANDAS UK
Welcome to PANS PANDAS UK. This is our Training & Events page.
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PANS PANDAS UK @panspandasuk.bsky.social · 19/02/2025
One week to Go! Our next Teacher Training Session is happening on 27th February! 🔗 panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #Education #SEN #Neurodiversity #PANSandPANDASUK
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PANS PANDAS UK @panspandasuk.bsky.social · 19/02/2025
Is your child suddenly experiencing OCD behaviours, Tics, Anxiety, Depression, Aggression, Hyperactivity, Food restrictions or other unexplained changes? It might be PANS or PANDAS. Find out more: panspandasuk.org/what-are-pan...
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PANS PANDAS UK @panspandasuk.bsky.social · 19/02/2025
PANS PANDAS UK Delivers Key Training for Educators via @nasen_org panspandasuk.org/post/pans-pa... #Education #TeacherTraining #SEN #PANS #PANDAS #NASEN
panspandasuk.org
PANS PANDAS UK deliver Key Training for Educators via NASEN  - PANS PANDAS UK
Welcome to PANS PANDAS' news blog. This post is titled: PANS PANDAS UK deliver Key Training for Educators via NASEN
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PANS PANDAS UK @panspandasuk.bsky.social · 13/02/2025
Our next Teacher Training Session is happening on 27th February! Don’t miss out—secure your spot today! ⬇️ 🔗 panspandasuk.org/events/ #PANS #PANDAS #TeacherTraining #Education #SEN #Neurodiversity #PANSandPANDASUK
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