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Meghann Ord

@litnerd.bsky.social
70 followers 73 following 479 posts

Reader. Moderate/severe ME/CFS (long covid). Known to some as Chris Muldoon. she/her

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Meghann Ord @litnerd.bsky.social · 6h
Thank you for the thread! I hope the consequences aren’t too bad. ❤️❤️
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Laura J Mixon @laurajmg.bsky.social · 10/10/2026
journals.sagepub.com/cms/10.3233/...
Figure 5 from the 2020 NIH study linked in the post following. A chart whose vertical axis shows the ratio of actual funding of US major diseases in 2017 versus the amount appropriate for its disease burden  and whose horizontal axis is the list of disease, in order of increasing funding per disease burden. ME/CFS is at the bottom, with its actual funding at 7.3% of what would be fair, compared to its burden on sufferers, their caregivers, and society.
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Laura J Mixon @laurajmg.bsky.social · 10/10/2026
It's a kind of living death, a fuzzy "lock-in" that no one believes you have. NIH researchers who calculate spending versus disease burden have found it to be grotesquely underfunded. (A study in 2020 found it ranked at the bottom of the charts for the most underfunded major disorders in the US.)
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Laura J Mixon @laurajmg.bsky.social · 10/10/2026
I'm a big believer in finding moments of joy in the now, and I have a lot to be thankful for. But ME/CFS is such a devastating disorder—not just for us sufferers, but also for our caregivers. And without more funding to find biomarkers, official treatments and a cure, our lives are pretty grim.
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Meghann Ord @litnerd.bsky.social · 12/10/2026
You had no choice but to become a romance writer. It was predestined.
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Meghann Ord @litnerd.bsky.social · 11/10/2026
But I’ve now traveled down the rabbit hole and am looking up clips on YouTube. The Double D MCs are letting it be! Might have to break out my DVD today. youtu.be/N1SyS7QhykI?...
youtu.be
Renaissance Man | 1994 | The Rap of Hamlet (To Be or Not To Be)
YouTube video by Child of the 80s
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Meghann Ord @litnerd.bsky.social · 11/10/2026
Obviously that was the best scene. (How the whole reason it even happened was because the drill sergeant called him out as a gotcha. Because the washout Double Ds were starting to get uppity and forget they were supposed to be worthless. And instead he got got. Benitez! New York NEW YORK)
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Meghann Ord @litnerd.bsky.social · 11/10/2026
@clairewillett.bsky.social posting Private Benitez reciting the St. Crispin’s Day speech in the rain just woke me like a sleeper agent. I used to be OBSESSED with that movie.
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Meghann Ord @litnerd.bsky.social · 06/10/2026
Fantastic. Thank you!!!
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Meghann Ord @litnerd.bsky.social · 06/10/2026
Do you have a jock/nerd type of opposites attract vibe? Trashy is fine.
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Meghann Ord @litnerd.bsky.social · 05/10/2026
Ha! Every once in a while, I’ll look at my TBR and feel guilty and like I need to apologize to the authors. Then I say out loud to myself, “they don’t care! They already got the sale!” 🤣
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Meghann Ord @litnerd.bsky.social · 05/10/2026
Omg. This just unlocked some long-buried dread in me.
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ceej @ceej.online · 04/10/2026
“how do we win back trump voters in 2026” we don’t. we create an environment where admitting to voting for trump is so socially embarrassing as to render them completely inert. you don’t “win back” trump voters. you demoralize them into staying home. you make it a dunce cap
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Meghann Ord @litnerd.bsky.social · 03/10/2026
I almost wish I was this out of touch. Did you ask him how blissful his ignorance feels living under that rock?
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Meghann Ord @litnerd.bsky.social · 02/10/2026
I’ve never been one for wading into The Discourse(TM), but my chronic illness is the only thing stopping me from a long rant right now. Also, I feel like I’ve returned to my youth. “People are being loudly wrong on tumblr dot com”
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Meghann Ord @litnerd.bsky.social · 01/10/2026
Congratulations! You had an incredible month
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Meghann Ord @litnerd.bsky.social · 30/09/2026
Rude. He checked the mileage WAY too early in the month. Are you at least winning the fundraising race? (I think I saw you guys had separate links?)
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Meghann Ord @litnerd.bsky.social · 30/09/2026
I am on the edge of my seat
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Meghann Ord @litnerd.bsky.social · 29/09/2026
I’m 2/3 done with this book and it’s SUCH a breath of fresh air after the series of DNFs I just struggled through. I’m absolutely gobbling it down. ❤️❤️❤️
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Meghann Ord @litnerd.bsky.social · 28/09/2026
I read book 1 because you were screeching about it on social media, and I adored it. Thank you for the notification that book 2 is available. It has now been ordered. 😂
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Meghann Ord @litnerd.bsky.social · 28/09/2026
🥳
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Meghann Ord @litnerd.bsky.social · 28/09/2026
*sigh* I’m so familiar with this brain thing. And so tired of it as well. Unfortunately, it seems to be a load-bearing, core part of who I am as a person. Congrats on only losing a few days to it!!
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Meghann Ord @litnerd.bsky.social · 24/09/2026
Granted, it didn’t do anything. 😂 But I’m still on a baby dose because I’m apparently a fragile little flower who has to very delicate about increasing. Maybe it will eventually?
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Meghann Ord @litnerd.bsky.social · 24/09/2026
❤️ Bree’s posting about GLP-1s is why I was so excited when my complex disease specialist had me ask my PCP to try putting me on it for my long Covid.
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Meghann Ord @litnerd.bsky.social · 20/09/2026
“IT IS A PERSON.” - Ratthi on the comm
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Meghann Ord @litnerd.bsky.social · 18/09/2026
THIS. And this fear is ironically exacerbated every time I do actually find one. Like, it legitimizes the concern.
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Meghann Ord @litnerd.bsky.social · 18/09/2026
You really did!
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Meghann Ord @litnerd.bsky.social · 15/09/2026
I wish you could too. Hoping for a future where you have to explain to kids what it was like and they can conceive it was ever being that draconian.
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Xero now with 100% more 🎃 @artificer-ind.bsky.social · 09/09/2026
Still patiently waiting to be "left behind" by AI rather than it chasing me across every damn space like a slasher in a low budget flick.
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Meghann Ord @litnerd.bsky.social · 10/09/2026
And never mind if you want to wash your body and not your hair.
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Meghann Ord @litnerd.bsky.social · 09/09/2026
I was idly interested when you first started posting about this, but then I read your newsletter and now I’m 👀🍿✍️
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Meghann Ord @litnerd.bsky.social · 04/09/2026
You’re unstoppable
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Micah @rincewind.run · 31/08/2026
canada: "fuck you, americans!" americans: "yeah, that's fair, fuck us up"
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Meghann Ord @litnerd.bsky.social · 30/08/2026
😂
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Meghann Ord @litnerd.bsky.social · 26/08/2026
I very much enjoyed the part of the trade deadline experience where I was bracing myself with “oh, god. Now we have to meet the terrible, toxic brother.” And then immediately was like, “OHHHH! Okay. It’s just Lars the unreliable narrator. Gotcha. That makes way more sense.”
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Meghann Ord @litnerd.bsky.social · 26/08/2026
Omg! I don’t normally wonder about the m/f side couples in queer romance, but they had me paying attention. I went in a hater and they totally won me over. I would jump on this story
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Bateman Horne Center @batemanhornecenter.bsky.social · 24/08/2026
For people with severe ME/CFS, more activity is not always the goal. Good care may mean reducing unnecessary exertion and protecting limited capacity for what matters most. Read the full blog post: bit.ly/4zlv02i
Question: How can we help this person do more?Prompt to prioritize what matters most and make it manageable within people's capacity.Blue textured background with text: The goal is not doing more. It is protecting what matters. Read the full blog.
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Meghann Ord @litnerd.bsky.social · 24/08/2026
Mine was navy blue, but I took advantage of the special that gave me two rows of free engraving on the front. 😂
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Meghann Ord @litnerd.bsky.social · 23/08/2026
archiveofourown.org/works/812220...
archiveofourown.org
who will love a little sparrow - Chapter 1 - weeb_grass - Heated Rivalry (TV), Game Changers Series - Rachel Reid [Archive of Our Own]
An Archive of Our Own, a project of the Organization for Transformative Works
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Meghann Ord @litnerd.bsky.social · 22/08/2026
Today I was sad about not having friends anymore, so I said screw it and I played some games on my phone. But now my head is ready to crack open, I’m horribly nauseated, and I keep having diarrhea. Ughhhhhhh
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Meghann Ord @litnerd.bsky.social · 22/08/2026
And by that, I literally mean I want yo just play with my phone without worrying about limiting screen time.
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Meghann Ord @litnerd.bsky.social · 22/08/2026
Like..I’m so grumpy and I want to say screw it and take a break. I want to stop trying to be good for a second and just go wild and do what I want.
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Meghann Ord @litnerd.bsky.social · 22/08/2026
And the thing that’s hardest to bear about it is the endlessness. You have do hard things some times. That’s life. But the way you get through them is to grit your teeth and get to the other side. But what to do when there is no other side? 😫
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Meghann Ord @litnerd.bsky.social · 22/08/2026
I’m so sick of being photophobic
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Meghann Ord @litnerd.bsky.social · 17/08/2026
I just started a WIP where the chapter count is currently “21/?”. The author note at the start of chapter 6 says, “this was only supposed to be 4 chapters! I swear the next one will be the last.” 😂 Sweet summer child…
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Meghann Ord @litnerd.bsky.social · 17/08/2026
One of my favorite things: reading a novel-length fanfic where authors notes on early chapters reveal that the fic ran away from the author. I’m always so tickled.
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Meghann Ord @litnerd.bsky.social · 11/08/2026
Nearly broke down crying because when I sat down to eat, my fork was just out of reach. If anyone is wondering what kind of day I’m having. #severeMEawarenessmonth
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Nome @nome.bsky.social · 02/08/2026
My experience is of every American COVID-19 mitigation effort being obviously insufficient, and ended far too soon. To see people now argue that they somehow were too much, going too far? Not anti-vax or MAGA people, but folks just out here on Bluesky? It staggers me.
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Jen the Feisty Librarian @feistywaters.com · 31/07/2026
The most infuriating thing about all the Fauci stuff this week is that everyone is past tensing a pandemic that is still happening. Covid is still disabling and killing people.
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ngoziu @ngoziu.com · 31/07/2026
Someone should adapt Check, Please!, a gay hockey romance (teen).
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