Reposted by alex 🇨🇦🇺🇦
This week at The Sick Times, Lisa Kava shares a few things that she learned about advocacy during the #LongCOVID Moonshot. bit.ly/4nyX1Ok
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![The U.K. government recently announced £4.75 million ($6.4 million USD) in funding for a genomics study of myalgic encephalomyelitis (ME). The research project, Sequence ME, builds upon findings of the Decode ME study that found key genetic differences in people with ME. The new funding will allow researchers to sequence the genomes of 6,000 people with myalgic encephalomyelitis (ME) to generate a “high-resolution genetic map of the illness.” The second phase of funding adds to an initial investment announced earlier this year. “This project will allow us to pinpoint individual genes disrupted in [ME], moving beyond broader chromosomal signals identified to date,” said researcher Chris Ponting.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:age5xvis2s2vy5qiz2tjxoc6/bafkreiclklwlr3kpbjhqpahnku32mhwycotfwiuzawasoovq536mu665by)
![Everybody wanted it to be over, and Carolyn Abramson in the Globe said that once they … things changed once they lifted the travel advisory, the travel
advisory was a sort of a shift in the whole psychology in the city and all of a sudden everybody now was together.When the travel advisory came down, there
was the City, the Province, Health Canada, everybody
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SARS Commission Final Report: Volume Three © Spring of Fear
Did Politics Intrude?
was outraged and fighting together, and then when they got the travel advisory turned back, everybody
celebrated about that and once everybody were getting
back to normal and everybody was … that is part of why the lack of leadership. There should have been somebody who said … nobody questioned it. [Dr.] Jim Young went off to China to talk about our
successes and how we controlled it. [Dr.] Bonnie [Henry] went with him and [Dr.] Tony [Mazzulli] went with him and nobody said, “how do you know it is over?” including myself. None of us said “well, just because,” and it is such a simple question to ask and we blew it. It is just amazing everybody blew it.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:ou6sjyhswn7s3qyfqhw7mbk6/bafkreiaaly6pkg2vrs5ziksycoka46yfowzgo4paou76lbb7mwvcy34qu4)
