iiinova — where your digital self keeps evolving

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 06/09/2026

Hesitant to chime in because the issue is related but not the same. You'd be surprised how many disabled pwME are actually the ones doing the grant- and paper-writing, though their names never appear on anything. I have very mixed feelings on this.

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Jen Doyle @poisontart.bsky.social · 06/09/2026

And yet, no mention of a mass- disabling event in the last 6 years? Weird.

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The Ghost of Kloud Kat @kloudkat.bsky.social · 06/09/2026

They really saw people just becoming more accepting of disabilities of others and thise people not being sufficiently miserable in navigating life with those disabilities and decided it was a problem.

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fernflower.bsky.social @fernflower.bsky.social · 06/09/2026

Those of us in the ME/CFS community have watched this movement building for years now. In addition to pushing [more] ableist eugenics into the mainstream, it seems like a fairly intentional effort to avoid paying disability supports for chronic illness.

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Kari Shaw @clvrchick.bsky.social · 03/09/2026

It’s time to add a work requirement to anyone in Congress. In fact, any restriction that they want to enact against the public should be added to their requirements. You want to drug test people getting aide, then they all have to be drug tested.

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margin of error @ihaveopinions.bsky.social · 03/09/2026

Are there any more beautiful words in the English language than "chatbot not working"?

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World Health Network @thewhn.bsky.social · 03/09/2026

COVID-19 doesn’t only pose a risk to people considered “high risk.” Long COVID can affect anyone, including people who were previously healthy, nondisabled, and children. Symptoms can persist for months or longer and may significantly impact daily life. (...)

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Falco SkyWolf @falcoskywolf.bsky.social · 29/08/2026

At $450 so far, with $700 rent needed before 11AM tomorrow. 22 HOUR DEADLINE. Also need $500 between storage, groceries, and laundry ASAP. #PleaseShare, and chip in if possible? Rent is top priority, but all are survival essentials! #MutualAidRequest #DisabilityCrowdFund #KeepFolksAlive

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Areanna @areannathatsall.bsky.social · 30/08/2026

Rent cleared now Falco must raise enough for food laundry and storage. Make sure he can eat please!!

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Alone LL @ladylonghaul.bsky.social · 30/08/2026

Thank you, Heather! I’m going to be okay (financially,) eventually. Everything takes time to settle when there are multiple people deceased in a family. My parents did set things aside for me and my brother. I don’t want people to choose me over others in the community who have less support.

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Judy Stone @drjudystone.bsky.social · 28/08/2026

Exciting news - I updated today's post on the summer surge in #Covid to reflect that all 3 new vaccines received FDA approval today--Moderna, Pfizer, and Novavax-Sanofi. www.forbes.com/sites/judyst...

forbes.com

Covid-19 Cases Surge—Here’s What’s Different This Summer That Will Help

As Covid again increases, these will help you weather or prevent infection: vaccines, masks, Paxlovid, metformin, azelastine, some antihistamines, and Ensitrelvir.

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#MEAction Network @meactnet.bsky.social · 20/07/2026

Are you someone with myalgic encephalomyelitis/chronic fatigue syndrome #MECFS or #LongCOVID who’s been to the emergency room at least once over the past 10 years for your symptoms? Clinical care needs your voice! Take the Emergency Department research survey: surveys.mayoclinic.org/jfe/form/SV_...

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BladeoftheSun @bladeofthes.bsky.social · 10/06/2026

There is always this make-believe that nothing can be done to billionaires, spread of course by the billionaires themselves. But actually it is the billionaires themselves that can't do anything if the Government attacks them.

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heather (still away) pls 🔁📌 @k1llstreakz.bsky.social · 04/05/2026

😭💔🫂 please help my friend through an immensely hard time ko-fi.com/ladylonghaul or DM @ladylonghaul.bsky.social for other options

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Sherrilyn Ifill @sifill.bsky.social · 25/05/2026

Again, please share. In every aspect of American history you will run smack dab into the critical contributions of Black people. It’s not Black history. It’s American history. Trying to erase it is a fool’s errand. We live it every day. time.com/5836444/blac...

time.com

The Forgotten Black History of How Memorial Day Started

Historians like the Pulitzer Prize winner David Blight have tried to raise awareness of freed slaves who decorated soldiers' graves in 1865

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 05/05/2026

If you find this work valuable, and are able to donate, I hope you will. If you've already donated or can't right now, but this work is meaningful to you, a personal request from a friend is many times more likely to end in a donation than a repost. ❤️ I'll be reaching out to friends & family too.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 05/05/2026

Our Emergency Department fundraising is on fire! Note: in order to make the best use of our $15k match, we need to raise $15k from other donors. We're so close! Can you get us a little closer? millionsmissing.funraise.org/fundraiser/m...

Emergency Department Guidelines
We're 75% of the way there, thanks to you!
...and we still have 25% to go!
On the right is a donut chart showing 75% of funds have been raised, with 25% to go.
Underneath is a stacked bar graph, showing the proportion of the grant paid for by Whittemore Peterson, the 15k match, the amount of donations we've received that aren't the grant or the match, how much longer we have to go until we've raised all $15k of the $15k match, and a chonk we still need to raise.

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Alone LL @ladylonghaul.bsky.social · 20/05/2026

She hadn’t been able to sleep for a year due to pain. She couldn’t sit down without excruciating pain. Treatment was for her to do more physical therapy or try OTCs or some medication. Her requests to get MRIs were all denied & dismissed. They had her try acupuncture. She had cancer “everywhere.”

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Alone LL @ladylonghaul.bsky.social · 20/05/2026

My mother followed my father 4 months and 3 1/2 days later. She had been asking her doctors to run tests, order MRIs, etc. for months to years in some cases. They kept prescribing her physical therapy and either NSAIDS that her body could no longer tolerate or mild pain management.

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Balaeniceps tex 𓅣🌏🏳️‍🌈🏳️‍⚧️☭ @socialistpuffin.bsky.social · 04/04/2026

The idea that poor people don't deserve to have good, nutritious, and delicious food is pure classism and is a desire to deprive every last opportunity for joy from the lives of people struggling to get by.

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𝕊𝕦𝕟𝕕𝕒𝕖 𝔾𝕦𝕣𝕝 @sundaedivine.lol · 04/04/2026

Lasers were a huge scientific breakthrough and now we use them to play with cats. Computers were also a huge scientific breakthrough and now we use them to look at pictures of cats. In other words, science was made for cats.

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Chantal James @chantalalive.blacksky.app · 05/04/2026

Y'all have to stop thinking our world's fucked up because some people have disabilities that are making them fuck it up instead of that it has some incredibly wrong systems in place!

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Alone LL @ladylonghaul.bsky.social · 21/01/2026

Pick up the nearest book. Turn to page 42, post the second sentence. “We’ll discuss what to do about this later.”

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Alone LL @ladylonghaul.bsky.social · 19/01/2026

As of 2 weeks ago, I’ve lost my father. It happened so quickly that I couldn’t go to him to be there. I saw him over video call over a week earlier on Christmas Eve day. I’m not sure if he knew who I was each time he looked at the phone placed in front of him that day. bsky.app/profile/lady...

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Your Internet Friend Tom Tomorrow @tomtomorrow.bsky.social · 19/01/2026

in the best case scenario (we somehow survive all of this), we will still have had so many years of our lives disrupted by stress and anger and calamity

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bfitzinAR @bfitzinar.bsky.social · 19/01/2026

January. Months change. Years change. Survival needs don't (food/water/shelter/meds). Indigenous, Black, POC, 2SLGBTQNBIA, Disabled folks & small business folks who need some help to make it, drop your cash links, GFMs, your Ko-fis & Patreons & etsy shops here. #HelpFolksLive2026

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bfitzinAR @bfitzinar.bsky.social · 19/01/2026

January 19th. #HelpFolksLive2026 thread. Something's *always* due & food is *always* needed. Things only get better with community action. *Now* is when folks need food, water, shelter, meds. *Now* is when we/the community needs to be there for each other. There's no one else. Just us.

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Alone LL @ladylonghaul.bsky.social · 19/01/2026

I haven’t had the spoons to be active here or update, lately. My mother called hospice for my dad three weeks ago. He fell with hospice present trying to get out of bed and fractured his arm. They took him to the hospital where he was given strong pain medication. He died hours after discharge.

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FabForward 𓂆 @fabforward.bsky.social · 20/12/2025

Sharing for @ladylonghaul.bsky.social 💕💸 bsky.app/profile/fabf...

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bfitzinAR @bfitzinar.bsky.social · 20/12/2025

December 20th. #HelpFolksLive2025 thread. Something's *always* due & food is *always* needed. Things only get better with community action. *Now* is when folks need food, water, shelter, meds. *Now* is when we/the community needs to be there for each other. There's no one else. Just us.

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Lady DEADtera, Wee Ghostie Edition 👻🍁😷 @ladylettera32.bsky.social · 20/12/2025

Wearing a well-fitted respirator mask to protect yourself & others is a radical act in a time when too many people in power want you to shut up, get back to work, & be a good little consumer instead of worrying about the health and wellbeing of ordinary people including you, your family,& friends

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Alone LL @ladylonghaul.bsky.social · 24/11/2025

I have #EDS. I also have low #ferritin but complicated by another genetic predisposition to #hemochromatosis and now having stopped menses. My body needs good nutrition to heal and rebuild bone and connective tissues. I’m struggling to consume proper nutrition to heal. bsky.app/profile/lady...

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FabForward 𓂆 @fabforward.bsky.social · 20/12/2025

If you want to help my friend @ladylonghaul.bsky.social sky.social you can donate (always as friends & family) to her kofi link below OR dm her for more payment options. 💕💸 Please also RS this and give her a follow! #MutualAid #HelpSky #Disability #LongCovid #ADHD ko-fi.com/ladylonghaul...

ko-fi.com

Buy LadyLonghaul a Coffee

Accepting tips and small donations for amusing snark or occasionally useful info dumps here. I also share my personal journey as an adoptee with no family medical history and emerging chronic and gene...

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Colin Spacetwinks @spacetwinks.bsky.social · 19/12/2025

so much of our nation's healthcare runs on goddamn gofundmes! perhaps consider that kind of context for how people feel about the economy! jesus!

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Alone LL @ladylonghaul.bsky.social · 20/12/2025

Please help me find support to help cover the costs related to managing all of these serious complex conditions. They’re all related through connective tissues and mast cells. My elderly parents are already paying an obscene amount to keep me insured & for dental/oral care. #HelpFolksLive2025

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Alone LL @ladylonghaul.bsky.social · 20/12/2025

The online #Zebra #LongCovid and #MECFS communities have been my lifelines for years. I’m deeply grateful for everyone here. I humbly ask if you can help me try to beat some of the odds stacked against me to survive these procedures & surgeries. I want to live. #MillionsMissing #NEISvoid #MAVoid

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Alone LL @ladylonghaul.bsky.social · 20/12/2025

I’m listing all the appointments, including those completed so it’s clearer how urgent this medical and oral care has been. It’s one reason why I haven’t been able to keep up over here at the Good Place. My parents have had to pay for most of this. They’re in their 80’s. I can’t demand more.

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FabForward 𓂆 @fabforward.bsky.social · 19/12/2025

If you want to help my friend @ladylonghaul.bsky.social you can donate (always as friends & family) to her kofi link below OR dm her for more payment options. 💕💸 Please also RS this and give her a follow! #MutualAid #HelpSky #Disability #LongCovid #ADHD #HSD #pwME #FBLC #MCAS t.co/ubOxiuV78e

t.co

http://Ko-fi.com/LadyLonghaul

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Alone LL @ladylonghaul.bsky.social · 19/12/2025

🚨641 (edited) to clear next 3 most urgent goals, incl. rides to medical appointments + compounded Rxes + specialist doctor copays. If I don’t get help, I’ll have to pull $$ from groceries and rent. I just canceled one of my orders for meal kits for next week. Anything helps! More information 👇

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Kendra "Gloom is My Beat" Pierre-Louis @kendrawrites.com · 01/12/2025

instead of foisting AI on us... how about they just fix search?

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Josh Colletta ($18 / $8,000), professional loudmouth @joshcolletta.bsky.social · 29/11/2025

Internet is taken care of and won't be an issue for the foreseeable future, but I so still need to renew my domain name, plus I need to get rent and my electricity paid, and God only knows what's going to happen with my food assistance next month.

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KSWriteshere 🍉♊ @kswriteshere.bsky.social · 29/11/2025

Thank you so much for the space! Asking for help to stay housed for December, a few small bills and a few urgent wishlist things. All is appreciated! #helpsky #mutualaid #helpfolkslive2025 #disability #communitycare 💸💕 Ways to help: linktr.ee/khernandez op: bsky.app/profile/kswr...

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