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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 03/10/2026

Kudos to CSRO for bringing rheumatology stakeholders to discuss #Access to care and treatment issues with policymakers. LADA is honored to share our #PatientPerspective. Thank you @congressmannion.bsky.social @kirstengillibrand.bsky.social @schumer.senate.gov for meeting with us.

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 20/08/2026

We are thrilled to share that our 26th Annual #Lupus Charity Golf Classic was a tremendous success raising $207, 232 for our education, #awareness, #advocacy and research programs. We also donated a recordbreaking $618,612 to for lupus research. @mmriresearch.bsky.social @lupusresearch.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 01/08/2026

Bravo to the FDA, CARRA and the passionate #patient and #carepartner representatives Miah, Elizabeth, McKenna, Chloe and Nia, and researchers for making the FDA Workshop to advance pediatric #lupus drug development a success! Mike drop! #LADAOrg @caringforlupus.bsky.social @annezab.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 31/05/2026

We need innovative research that includes cross-sector collaborations and public-private partnerships, identifies causes, biomarkers, better trial methodologies, diagnostic measures and treatments, prevents complications, and eradicates #lupus. #LupusAwarenessMonth @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 30/05/2026

#Lupus is considered a disease of unmet medical need because of the lack of efficient diagnostic tools, effective therapies, and well-designed clinical trials. Only 1 day to go before the end of #LupusAwarenessMonth. Thank you to all who promoted #LupusAwareness 💜🦋! @michiganlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 29/05/2026

The annual per person with #lupus cost to employers, including medical care, work absence, and short-term disability, is higher than for other chronic diseases such as diabetes, chronic obstructive pulmonary disease, and heart disease. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 29/05/2026

We are proud to be one of @CVEEP’s 300 partners working together to share information on #vaccines and help protect communities from infectious diseases. We look forward to furthering this important work alongside CVEEP. Learn more: cveep.org

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 28/05/2026

People with #lupus are concerned with potential side effects of drug interventions as well as disease worsening such as hair loss, rashes, weight gain, gastrointestinal problems; outcomes that may be socially challenging to young women and men in the prime of their lives. #LupusAwarenessMonth

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 27/05/2026

#Lupus typically begins during critical years for education and career advancement, lupus profoundly disrupts working lives. We need better diagnostic tools and treatments so that we can achieve our life goals! #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @michiganlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 26/05/2026

While some drugs do benefit people with #lupus, significant side effect profiles exist and can cause increases in infections, cancer, bone loss and osteoporosis, sterility, and stroke among many other adverse health consequences. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 25/05/2026

Classification criteria are used to define #lupus research study populations due to lack of specific #biomarkers resulting in combining heterogeneous patients with various disease manifestations and pathophysiologies and pathogenesis into one group. #LupusAwarenessMonth @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 23/05/2026

#Fatigue is the most prevalent and incapacitating symptom experienced by about 85 to 92% of people with #lupus, resulting in decreased physical and mental function, and 50% of patients rated it as the most disabling symptom. #LupusAwarenessMonth @lupuschat.bsky.social @michiganlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 22/05/2026

#Gout is a systemic disease that can impact the entire body. Managing gout may help reduce the risk of other serious conditions so talk with your provider about your symptoms to get the most appropriate care. Discover more this #GoutAwarenessDay: goutalliance.org/gout-awarene... #goutalliance

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 22/05/2026

Although #lupus is more severe and more prevalent in non-white populations, recruitment of minority patients to participate in clinical trials has proven to be particularly challenging. #lupusawarenessmonth #lupusawareness @lupuschat.bsky.social @michiganlupus.bsky.social @mmriresearch.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 21/05/2026

Women of color tend to develop #lupus at a younger age, experience more serious complications and have higher mortality rates—up to 3 times the incidence and mortality of Caucasians. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @michiganlupus.bsky.social @mmriresearch.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 20/05/2026

Clinical trials aren’t designed to measure outcomes which are most important to those with #lupus such as mitigating fatigue, daily health-related qol, reduction in current drug regimen, steroid-sparing, side effect tolerability, and comorbid conditions. #LupusAwareness @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 19/05/2026

#Lupus disproportionately affects women of color in the United States; it is 2 to 3 times more common among African-Americans, Hispanics and Latinos, Asians, and Native Americans. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 17/05/2026

There are significant challenges in creating a uniform control group in #lupus clinical trials because of the variety of background and concomitant medications—usually immunosuppressants. #LupusAwarenessMonth #autoimmune @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 16/05/2026

Some drugs used to treat #lupus are approved for other indications such as chemotherapies, used to treat cancer, and immunosuppressants, used post organ transplantation. Some are known to be teratogenic (causing birth defects) and often compromise fertility in men and women. @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 13/05/2026

#Lupus is an unpredictable condition in which symptoms come and go (flares) and complications can arise suddenly. We need #innovative research that can identify a reliable method to predict and prevent flares before they occur. #LupusAwarenessMonth @lupuschat.bsky.social @caringforlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 12/05/2026

The absence of reliable #biomarkers is a challenge for clinicians in providing the most optimal patient care and is impeding the development of new #lupus therapies. #LupusAwarenessMonth @michiganlupus.bsky.social @lupuschat.bsky.social @caringforlupus.bsky.social @mmriresearch.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 11/05/2026

#Lupus affects women 9 times more often than men, with eighty percent of new cases developing between the ages of 15 and 44 during their child-bearing years or prime of life. #LupusAwarenessMonth #LupusAwareness @caringforlupus.bsky.social @lupuschat.bsky.social @michiganlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 11/05/2026

There is no known cause or cure for #Lupus or #LupusNephritis. Research is critical to discover the pathogenesis of lupus, better treatments and improve lives. #LupusAwarenessMonth @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @mmriresearch.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 08/05/2026

By the most conservative estimates, there are at least 322,000 Americans with definite or probable #lupus. Recent independent surveys have suggested a prevalence as high as 1.5 million. #lupusawareness #lupusawarenessmonth @lupuschat.bsky.social @caringforlupus.bsky.social @mmriresearch.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 07/05/2026

Only five treatments are approved for #lupus (aspirin, corticosteroids, hydroxychloroquine, belimumab, and anifrolumab-fnia) and three drugs for lupus nephritis (belimumab, voclosporin and obinutuzumab). #autoimmune @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 06/05/2026

Developing disease-modifying therapies in #lupus has proven difficult given the heterogeneity of the disease, unpredictable relapsing and remitting course of the symptoms, and the lack of validated biomarkers, inadequate clinical endpoints & outcome measures. #lupusawareness @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 05/05/2026

#Lupus is a leading cause of kidney disease, stroke and premature cardiovascular disease in young women and is highly individualized, extremely volatile, debilitating, life-diminishing, and potentially fatal. #lupusawareness #lupusawarenessmonth @lupuschat.bsky.social @caringforlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 04/05/2026

33% of people with #lupus in the US are on work disability and the majority of them rely on a government-sponsored health plan such as Medicare and Medicaid. Access to care and treatments is crucial to helping us reach our education & career goals. #lupusawareness @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 03/05/2026

#Lupus clinical research has been problematic due to the lack of basic understanding of the disease, reliable biomarkers, and uniform control groups, as well as clinical outcome measure limitations and the heterogeneity of the patient population. #lupusawareness #autoimmune @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 02/05/2026

On average, a person with #lupus takes between 8-12 medications a day, requiring careful attention to drug interactions and unique allergies and sensitivities. #lupusawarenessmonth #autoimmune @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @mmriresearch.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 01/05/2026

Lupus is an extremely complex chronic inflammatory autoimmune disease where a triggering agent causes the immune system to dysregulate and attack the patient affecting any organ system of the body; including the skin, joints, kidney, brain, heart, lungs, blood & blood vessels. @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 27/04/2026

LADAorg was honored to sponsor the @masonicresearch.bsky.social 3rd Annual 1958 Gala to support #lupus #autism and #cardiovascular disease research. Kudos to Dr. Maria Kontaridis and the #MMRI Team for hosting such a wonderful event. @annezab.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 24/04/2026

With only 7 days to go, are you ready to promote #LupusAwareness during May? Join us by sharing our 31 days of #Lupus facts to educate others about this unpredictable, life altering, dream stealing, and physically, emotionally and financially devastating #Autoimmune disease. @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 12/11/2025

Want to see Medicaid’s impact on your community? @ModernMedicaid’s updated #MedicaidDashboard is a one-stop-shop for national, state and district-level enrollment data. Check out the site for more: data.modernmedicaid.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 07/11/2025

The #LADAorg Team is thrilled to attend and exhibit at #RNS2025 in beautiful San Antonio to network, learn, share resources and elevate the #PatientVoice in Rheumatology! Kudos to RNS President Teri Puhalsky and Executive Director Sadie Larson for hosting the Annual Conference. #Lupus

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 30/10/2025

Kudos to @whitneywarriors for doing an amazing job presenting at the #ACR25 #PatientPerspective session. By sharing her own challenges and solutions is key to advancing better care. #LADAorg #PatientVoice @lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 27/10/2025

#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 23/08/2025

We are thrilled to share that our 25th Annual #Lupus Charity Golf Classic raised over $205,000 last week at Shenendoah Golf Course and we donated another $539,724 for #LupusResearch. Thank you to our volunteers, sponsors, golfers and #TurningStone sales, catering and golf staff.

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 18/06/2025

Thank you to #BIO and Michele for giving our President & CEO Kathleen Arntsen the opportunity to share her #Autoimmune journey at #BIO2025 and why #Advocacy and Research are important. @annezab.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 16/06/2025

The #LADAOrg Team is excited to be here at #BIO2025 in Boston to bring the #PatientPerspective and partner with other stakeholders to advance global innovation that improves lives. Kudos to BIO for developing a great program and our dear friend Paul for always being a good sport! 💜

The #LADAOrg Team is excited to be here at #BIO2025 to bring the #PatientPerspective and partner with other stakeholders to advance global #Innovation that improves lives. Kudos to BIO for developing a great program and our dear friend Paul for being a good sport! 💜

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 31/05/2025

We need crosssector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, >effective #lupus drugs and cures. @lupuschat.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 30/05/2025

#Lupus is considered a disease of unmet medical need because of the lack of efficient diagnostic tools, effective therapies, and well-designed clinical trials. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 29/05/2025

The annual per patient cost to employers, including medical care, work absence, and shortterm disability, is higher than for other chronic diseases such as diabetes, chronic obstructive pulmonary disease, and heart disease. #LupusAwareness @lupuschat.bsky.social @masonicresearch.bsky.social

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