Michigan Lupus Foundation @michiganlupus.bsky.social · 16/07/2026milupus.orgLupus and Air Quality Alerts: What You Need to Know — Michigan Lupus FoundationIt's smoky across Michigan right now due to smoke drifting south from the Canadian wildfires. Wildfire smoke and other air pollutants can be especially harmful for people living with lupus by placing ... 000
Michigan Lupus Foundation @michiganlupus.bsky.social · 18/05/2026Thank you, Grand Rapids Morning Mix, for helping shine a spotlight on Lupus Awareness Month! 💜 #lupus #lupusawareness #lupusawarenessmonth #lupuswarrior 000
Michigan Lupus Foundation @michiganlupus.bsky.social · 01/05/2026May is Lupus Awareness Month! 💜 It's a time for the #lupus community to join together to raise awareness of the physical, emotional and economic impact of lupus. Help share information about lupus on social media, in your community and with family and friends. www.milupus.org/toolkitmilupus.orgMay is Lupus Awareness Month — Michigan Lupus Foundation 000
Michigan Lupus Foundation @michiganlupus.bsky.social · 17/03/2026📢 📣 @michiganlupus.bsky.social is hosting a #lupus symposium to bring healthcare providers together for a day of advanced education, collaboration & networking. Exclusively open to #rheumatologists, medical professionals & medical students. @umich.edu milupus.org/events/annarbormedical2026milupus.orgAnn Arbor Lupus Medical Symposium — Michigan Lupus FoundationJoin the Michigan Lupus Foundation for a professional lupus symposium bringing healthcare providers together for a day of advanced education, collaboration and networking. This event is exclusively op... 012
Michigan Lupus Foundation @michiganlupus.bsky.social · 22/02/2026wilx.comMichigan man’s lupus diagnosis took ‘a while’— and he’s not aloneData from the National Lupus Foundation found 63% of people with lupus surveyed were incorrectly diagnosed. 000
Michigan Lupus Foundation @michiganlupus.bsky.social · 24/12/2025Happy Holidays to our incredible #lupus community! We are grateful for each and every one of you. Whether you’re celebrating, resting or simply making it through the season, we wish you warmth, peace and brighter days ahead. 💜 020
Michigan Lupus Foundation @michiganlupus.bsky.social · 17/12/2025The Michigan Lupus Foundation urges Congress to preserve Affordable Care Act subsidies for 2026. Their expiration would disproportionately harm #lupus patients and others living with pre-existing conditions. www.milupus.org/pressroom/ac...milupus.orgTHE URGENT IMPORTANCE OF PRESERVING AFFORDABLE CARE ACT SUBSIDIES FOR 2026 — Michigan Lupus FoundationMichigan – December 17, 2025 110
Michigan Lupus Foundation @michiganlupus.bsky.social · 24/11/2025mailchi.mpBecause of you, the Michigan Lupus Foundation is still here.As 2025 draws to a close, we find ourselves filled with gratitude for your overwhelming support of the Michigan Lupus Foundation! This past year, the Michigan Lupus Foundation launched an urgent capit... 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 20/11/2025Michigan lupus patients shared their stories in a Time Magazine feature written by Dr. Rachel Bergmans of @umich.edu's Chronic Pain and Fatigue Research Center.time.comDEI Isn’t Wasteful. It’s Necessary for Good MedicineLupus patients pay the price when we erase inclusion from medical research. 020
Michigan Lupus Foundation @michiganlupus.bsky.social · 14/11/2025nbcnews.comAll lupus cases may be linked to a common virus, study findsResearchers say they finally understand the connection between the autoimmune disease and Epstein-Barr virus. 010
Reposted by Michigan Lupus FoundationSenator Elissa Slotkin @slotkin.senate.gov · 14/11/2025If you thought that the Big Beautiful Bill was cutting someone else’s health care… 86214
Reposted by Michigan Lupus FoundationLupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 12/11/2025Want to see Medicaid’s impact on your community? @ModernMedicaid’s updated #MedicaidDashboard is a one-stop-shop for national, state and district-level enrollment data. Check out the site for more: data.modernmedicaid.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social 021
Michigan Lupus Foundation @michiganlupus.bsky.social · 07/11/2025Did you know you can use #FMLA leave to take part in a clinical trial, either for your own health condition or that of a family member? This protection helps ensure employees can take the time to participate in clinical trials without risking their jobs. www.nextep.com/blog/fmla-an...nextep.comDepartment of Labor Weighs in on FMLA and Medical Trials - NextepCan you use job-protected FMLA leave to participate in medical trials? The Department of Labor says yes. In a recent opinion letter, the Wage & Hour division of the U.S. Department of Labor (DOL) clar... 000
Reposted by Michigan Lupus FoundationLupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 27/10/2025#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social 054
Reposted by Michigan Lupus FoundationLupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 21/10/2025We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the #Lupus Community Booth # 2121. #PatientVoice @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social #LADAorg 064
Michigan Lupus Foundation @michiganlupus.bsky.social · 08/10/2025THANK YOU to everyone who attended and supported the Metro Detroit Walk for Lupus! Over 300 attendees came together to bring visibility to an often invisible illness. We extend a heartfelt thank you to all participants, volunteers, generous donors and event sponsors for making our event a success.💜 021
Michigan Lupus Foundation @michiganlupus.bsky.social · 28/08/2025Thank you for sharing this personal story about the Grand Rapids Walk for Lupus, Grand Rapids Magazine! www.grmag.com/charity-even...grmag.comWalk for Lupus returns to John Ball Zoo - Grand Rapids MagazineThe Michigan Lupus Foundation will bring its annual Walk for Lupus back to Grand Rapids on Saturday, Sept. 6. 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 08/07/2025The Michigan Lupus Foundation has been growing! Thank you for helping us reach more #lupus warriors across the state of #Michigan and beyond. Together we can help raise awareness and build a supportive community for those living with this incurable, debilitating and often misunderstood disease. 020
Michigan Lupus Foundation @michiganlupus.bsky.social · 03/06/2025Thank you for ending #LupusAwarenessMonth with us by making our Lansing Walk for Lupus a success! Thank you to all participants, volunteers, supporters & our event sponsors. We raised critical awareness of #lupus & strengthened the sense of community & hope for those living with the disease. 💜 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 28/05/2025What does having #lupus feel like? #lupusawareness #lupusawarenessmonth #lupuswarrior #milupus #chronicillness #autoimmune #michiganlupus #makelupusvisible 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 23/05/2025People with #lupus can experience cognitive symptoms such as having a hard time thinking clearly or remembering things. This is called #brainfog. Brain fog can impact cognitive skills like language, memory, coordination, mood and vision. 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 21/05/2025Thank you @wilxtv.bsky.social for helping to spread lupus awareness during #LupusAwarenessMonth!wilx.comMaking Invisible Illnesses Visible: Raising Awareness on LupusMay is Lupus Awareness month and we talk about the struggles those living with Lupus face as well as how we expression compassion and empathy for those who live with invisible illnesses. 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 19/05/2025Many people living with #lupus struggle to maintain full-time employment. A national statistic estimates only 30% of lupus patients are able to be employed full time. #lupusawareness #lupusawarenessmonth 020
Michigan Lupus Foundation @michiganlupus.bsky.social · 15/05/2025People living with #lupus are often told they do not look sick since they display no noticeable signs of the illness. While it can be taken as a compliment, it also takes away how hard each person with lupus fights every day. Not all disabilities or illnesses are visible. #lupusawarenessmonth 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 14/05/2025The majority of those with #lupus identify #fatigue as their primary symptoms. Lupus fatigue is not the same as feeling tired — it's a tired sleep can't fix. #lupusawareness #lupusawarenessmonth 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 11/05/2025Happy #worldlupusday!! Thank you to everyone who gathered in Traverse City and Livonia today to spread awareness! Wearing purple helps make an invisible illness visible. 💜 #lupus #lupusawarenessmonth #milupus #makelupusvisible 020
Michigan Lupus Foundation @michiganlupus.bsky.social · 09/05/2025The Michigan Lupus Foundation is pleased to announce Governor Gretchen Whitmer officially proclaimed May 2025 as #LupusAwarenessMonth in the state of Michigan. We thank Governor Whitmer for this important recognition! 💜milupus.orgGOVERNOR WHITMER PROCLAIMS MAY AS LUPUS AWARENESS MONTH IN THE STATE OF MICHIGAN — Michigan Lupus Foundation(Michigan – May 9, 2025) – The Michigan Lupus Foundation is pleased to announce Governor Gretchen Whitmer officially proclaimed May as Lupus Awareness Month in the state of Michigan. Proclamations a... 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 08/05/2025The exact cause of #lupus is unknown, but research shows it’s a combination of genetic, hormonal & environmental factors. People with a predisposition for #autoimmune may develop the disease when they come into contact with something in their environment that triggers an overactive immune system. 000
Michigan Lupus Foundation @michiganlupus.bsky.social · 06/05/2025#Lupus is a chronic autoimmune disease with a wide range of symptoms, which can vary greatly between individuals. #lupusawarenessmonth 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 01/05/2025#lupus #lupusawareness #lupusawarenessmonth #lupuswarrior #milupus #chronicillness #autoimmune #michiganlupus #makelupusvisible 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 01/05/2025#LupusAwarenessMonth starts NOW! 💜 May is a time for the lupus community across the country to join together to raise awareness of the physical, emotional & economic impact of lupus. Help #share information on social media, in your community and with family & friends. www.milupus.org/toolkitmilupus.orgMay is Lupus Awareness Month — Michigan Lupus Foundation 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 18/04/2025Lupus Awareness Month is right around the corner! 💜 Help raise awareness by talking out loud about #lupus and sharing your personal journey. Submit your story and we’ll share it on social media, email and on our website throughout the month of May. www.milupus.org/storymilupus.orgShare Your Story — Michigan Lupus Foundation 010
Reposted by Michigan Lupus FoundationLupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 15/04/2025Are you ready to show your support for those affected by #lupus on May 10th by sharing facts about lupus and proudly wearing your purple for #WorldLupusDay #MakeLupusVisible WorldLupusDay.org/tool-kit @lupus.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social 074
Michigan Lupus Foundation @michiganlupus.bsky.social · 10/04/2025Even on days when it feels like no one gets it, know there is a whole community that does. 💜 #lupus #lupusawareness #lupuswarrior #chronicillness 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 09/04/2025mailchi.mpMICHIGAN LUPUS FOUNDATION UPDATE & UPCOMING EVENTSThank you to everyone who has donated to our urgent capital campaign! The Michigan Lupus Foundation is working hard to raise emergency funds to ensure the organization is able to continue offering sup... 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 16/03/2025"The Invisible Illness" comic book is an innovative story-driven campaign to raise awareness about the unseen battles of #lupus and provide critical funding to ensure the future of the foundation. Learn more at milupus.org.milupus.orgThe Invisible Illness Comic Book — Michigan Lupus Foundation 084
Michigan Lupus Foundation @michiganlupus.bsky.social · 07/03/2025With the help of BrandComix, a division of Comix Wellspring, the Michigan Lupus Foundation is creating "The Invisible Illness" — an original comic book that illustrates the real struggles of living with #lupus and the support our foundation provides. Stay tuned for more details! 020
Reposted by Michigan Lupus FoundationLupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 26/02/2025We are excited to become a member of the #Rare_Ready coalition. Don’t miss the chance to tell your story for better access to rare disease therapies. Share your rare at www.rareandready.org. #RareDisease #RareandReadyrareandready.orgRare & Ready: A Genetic Condition CoalitionRare and Ready: A Genetic Coalition believes state policies must make sure that patients with rare or genetic conditions can get the care they need. These patients deserve access to new FDA-approved t... 022
Reposted by Michigan Lupus FoundationLupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 20/02/2025NY state received an A from The AIDS Institute because it has a law restricting the use of copay accumulator adjustment policies, and protecting financial assistance for people with marketplace plans. Other states do not. Read the report. aidsinstitute.net/documents/TAI-… 011
Reposted by Michigan Lupus FoundationLupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 19/02/2025Are you hearing about #340B and still not sure what it is? Check out a new resource hub from #ChronicCarePA to learn more about the 340B program and how it could be impacting your access to care: chroniccarealliance.org/priority-iss...chroniccarealliance.org340B Drug Pricing Program | Chronic Care Policy AllianceHOW THE 340B DRUG PRICING PROGRAM IMPACTS PATIENTS The 340B Drug Pricing Program was established by Congress in 1992 with the intention to make prescription medications and healthcare services afforda... 011
Michigan Lupus Foundation @michiganlupus.bsky.social · 12/02/2025The #Michigan Lupus Foundation has launched an urgent capital campaign to raise emergency funds by May 1 to ensure the nonprofit is able to continue offering support services for those with lupus in the state of Michigan. Read more about how you can help below. 💜milupus.orgSave the Michigan Lupus Foundation — MI Lupus Foundation 020
Michigan Lupus Foundation @michiganlupus.bsky.social · 10/02/2025Thanks for the #lupus coverage, The Michigan Daily!michigandaily.comMichigan Lupus Foundation hosts Ann Arbor Lupus SymposiumThe event raised awareness for those with lupus, a chronic autoimmune disease that leads the body’s immune system to attack healthy tissue. 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 10/02/2025Thank you to everyone who participated in the Ann Arbor Lupus Symposium! We had helpful presentations from Michigan Medicine's Dr. Saleh, Dr. Fivenson from David Fivenson Dermatology, Dr. Bergmans & Dr. Aday for an in-depth look at #lupus and #chronicpain. 020
Michigan Lupus Foundation @michiganlupus.bsky.social · 02/02/2025Lupus is 3x more common in black women than other races. As many as 1 in 250 black women will develop #lupus and tend to have more severe disease complications. This month and every month, we see you and appreciate you. You are not fighting alone. #blackhistorymonth #lupusawareness 010
Michigan Lupus Foundation @michiganlupus.bsky.social · 24/01/2025milupus.orgAnn Arbor Lupus Symposium — MI Lupus FoundationJoin us for an opportunity to bring the lupus community together for a day of connection and education in Ann Arbor. The symposium is open to those with lupus, friends and family, medical professional... 000
Michigan Lupus Foundation @michiganlupus.bsky.social · 14/01/2025Thanks for following us on @bsky.app! The Michigan Lupus Foundation is committed to improving the quality of life for those living with lupus through support, education & research with the goal of finding a cure. Learn more at milupus.org. 010