iiinova — where your digital self keeps evolving

CaringForLupus @caringforlupus.bsky.social · 05/10/2025

Purple 💜 💪 Power - Hispanic Heritage Month Every day, we see the strength. Every week, we see Hope. Every month, we need to make lupus visible. Awareness is a continuous journey of compassion and support. Thank you Washington School

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#LupusChat @lupuschat.bsky.social · 28/08/2025

Hey #LupusChat fam, please join us is wishing our Founder & CEO @tiffanyandlupus.bsky.social a very Happy Birthday!!! We are forever grateful for all you do for the community. You are a beacon of light and we appreciate you. We hope you have THE BEST day! 🎉🎂

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Kristen @kristenyoung.bsky.social · 26/05/2025

Adding some of my favorite slides … #LUPUS2025 Many excellent sessions and abstracts, especially appreciated the multiple sessions on CNS lupus and cognitive impairment - an area of importance for patients with lupus.

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Kristen @kristenyoung.bsky.social · 26/05/2025

Thrilled to have the opportunity to present our early research on identifying stereotypes for patients with SLE at #LUPUS2025 in Toronto. Leaving inspired and grateful for this outstanding community of scientists, clinicians, and patient partners.

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 30/05/2025

#Lupus is considered a disease of unmet medical need because of the lack of efficient diagnostic tools, effective therapies, and well-designed clinical trials. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social

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CaringForLupus @caringforlupus.bsky.social · 25/05/2025

#LADAorg Kidney or Liquid Biopsy for Assessing Lupus Nephritis Activity Andrea Fava John Hopkins University School of Medicine, Division of Rheumatology, Baltimore, United States of America @ladaorg.bsky.social @lupuschat.bsky.social #Lupus2025 #Lupuschat #Lupus

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CaringForLupus @caringforlupus.bsky.social · 25/05/2025

Thank you @ladaorg.bsky.social , Kathleen Arntsen and Team for the incredible opportunity to attend the 16th International Congress on Systemic Lupus 💜🦋 I learned so much, connected with global experts & advocates. Your support amplifies our stories, fuels research & drives change #Lupus2025

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 24/05/2025

Kudos to @zahitouma.bsky.social and the #LUPUS2025 organizers for hosting a wonderful Gala event last evening while the #LADAOrg team enjoyed the food, music and networking. #Lupus @lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @alhkim.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 25/05/2025

It is estimated that as many as one in every 250 African American women in America has #lupus and huge health disparities exist. There is a critical need for #socialdeterminants of health (SDOH) to be addressed as well. #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 23/05/2025

#LADAOrg is honored to sponsor #LUPUS2025 & bring our mighty team to learn, engage, & share insights. @lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @tiffanyandlupus.bsky.social Kathleen Arntsen, Dina Thachet, Kaamilah Gilyard, Whiney Carter, David Arntsen, Autumn Austin

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CaringForLupus @caringforlupus.bsky.social · 23/05/2025

#LADAorg Dr. Victoria Werth is a Professor of Dermatology and Medicine at the Perelman School of Medicine at the University of Pennsylvania @ladaorg.bsky.social @lupuschat.bsky.social #Lupus2025 #Lupuschat #Lupus

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CaringForLupus @caringforlupus.bsky.social · 23/05/2025

#LADAorg team for Ready for Day 3 of #LUPUS2025 💜🦋💜 Meet-the-Professor Session: Refractory Skin Manifestation Dr. Cheryl Rosen is a dermatologist at Toronto Western Hospital. @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

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CaringForLupus @caringforlupus.bsky.social · 23/05/2025

#LADAorg Clinical Scientific Session: Update on Lupus Nephritis, Novel Approaches in LN "It is important to treat the kidney Holistically" @ladaorg.bsky.social @lupuschat.bsky.social #Lupus2025 #Lupuschat #Lupus

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Tiffany @tiffanyandlupus.bsky.social · 22/05/2025

Amazing prezi by Dr. Michelle Jacobson on Menopause in SLE. 🔺 VMS (Vasomotor symptoms) can have severe effects on QOL 🔺concerning symptoms: night sweats, vaginal dryness, mood disorders, libido loss, etc 🔺Recommended therapy: Fezolinetant #LUPUS2025 @ladaorg.bsky.social @lupuschat.bsky.social

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Tiffany @tiffanyandlupus.bsky.social · 22/05/2025

Sitting in on a session that centers Fertility and More - Navigating Male Reproductive Health in Lupus There seems to be no available data on fertility or family planning for men with lupus. So the presenter is sharing data for men w/ arthritis. #LUPUS2025 @ladaorg.bsky.social #LADAOrg #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 22/05/2025

🔹Dr. Perez shares which medications are safe for treatment and male fertility in SLE 🔹 @eular_org has released 2025 guidelines for male patients w/SLE looking to conceive.🔹pain, guilt, fatigue, libido can impact male sexual health. #LUPUS2025 #LADAOrg @ladaorg.bsky.social @lupuschat.bsky.social

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CaringForLupus @caringforlupus.bsky.social · 22/05/2025

#LADAorg Helen Masson: O026 - MULTI-OMIC INTEGRATION REVEALS THREE MOLECULAR SUBTYPES WITH DISTINCT IMMUNOLOGICAL PHENOTYPES IN A COHORT OF 722 SYSTEMIC LUPUS ERYTHEMATOSUS PATIENTS (ID 740) @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #LupusChat #Lupus

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CaringForLupus @caringforlupus.bsky.social · 22/05/2025

#LADAorg Richard A Furie: O025 - RESULTS FROM THE REGENCY TRIAL ASSESSING EFFICACY AND SAFETY OF OBINUTUZUMAB IN ACTIVE LUPUS NEPHRITIS (ID 750) @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

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CaringForLupus @caringforlupus.bsky.social · 22/05/2025

#LADAorg Abstract Concurrent Session 04: Advancing Lupus Therapies and Insights 0024 - ENDOTHELIAL BRD4 PARTICIPATES IN THE DEVELOPMENT OF LUPUS NEPHRITIS (ID 733) Authors: Wang X., Zhang W., Ni X. @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

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CaringForLupus @caringforlupus.bsky.social · 22/05/2025

#LADAorg Breaking Barriers: Advancing Disease Modification and Early Intervention in SLE & LN with Patient-Centered Strategies @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

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CaringForLupus @caringforlupus.bsky.social · 22/05/2025

#LADAorg Breaking Barriers: Advancing Disease Modification and Early Intervention in SLE & LN with Patient-Centered Strategies Professor Karen Costenbader Director, Lupus Program, Brigham @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat

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CaringForLupus @caringforlupus.bsky.social · 22/05/2025

#LADAorg Stacy Payne Ardoin: Targets in CV Disease in cSLE Dr. Ardoin's clinical research focuses on optimal treatment and long-term outcomes of adults and children with lupus. @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

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CaringForLupus @caringforlupus.bsky.social · 22/05/2025

#LADAORG Pediatric Scientific Session: Outcomes and Targets in Children with SLE Andrea M Knight: Targets for the Management of NPSLE (Including Mental Health) @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #LupusChat #Lupus

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CaringForLupus @caringforlupus.bsky.social · 22/05/2025

#LADAORG First Session today: Pediatric Scientific Session: Outcomes and Targets in Children with SLE 💜🦋 Dr Eve Smith co-leads the International cSLE Treat-to-Target (T2T) Let's work together to improve the care provided to children with lupus #LUPUS2025 #LupusChat #Lupus

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 22/05/2025

Thank you Peter Lipsky for an informative presentation on #ArtificialIntelligence at #LUPUS2025 during the “Future of Lupus” session. #LADAOrg @lupuschat.bsky.social @caringforlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 22/05/2025

The #LADAOrg team has all arrived in Toronto for #LUPUS2025 where we will be attending sessions and learning about the latest in lupus from international experts while networking with the global lupus community. #Lupus #LupusAwarenessMonth @lupuschat.bsky.social @caringforlupus.bsky.social

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 22/05/2025

#Fatigue is the most prevalent and incapacitating symptom experienced by about 85 to 92% of people with #lupus, resulting in decreased physical and mental function, and 50% of patients rated it as the most disabling symptom. #LupusAwarenessMonth @lupuschat.bsky.social @caringforlupus.bsky.social

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Tiffany @tiffanyandlupus.bsky.social · 22/05/2025

Intriguing to hear from Dr. Lipsky that there is some hope that AI can improve the way we approach patient care. There are some roadblocks of course but the prospective looks somewhat promising. #LUPUS25 #LADAOrg #LupusChat

A slide from Dr. Lipsky’s presentation on Discriminative AI Approaches to the Problem of Lupus Heterogeneity

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The Journal of Rheumatology @jrheumatol.bsky.social · 21/05/2025

📢 Just released! @jrheumatol.bsky.social has published the abstracts from the 16th International Congress on Systemic Lupus Erythematosus. Explore the latest in lupus research and key insights from the conference: 🔗 www.jrheum.org/content/52/S... #LUPUS2025 #lupus #lupusresearch

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CaringForLupus @caringforlupus.bsky.social · 21/05/2025

#LADAORG Happening Now : The Future in Lupus 👈 What generative Al is and how it can be applied to improve SLE care #LUPUS2025 #LupusChat #Lupus @ladaorg.bsky.social @lupuschat.bsky.social

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 21/05/2025

Opening ceremony #LUPUS2025 by the Chair: Zahi Touma …. Emphasizing the future of better therapies for lupus patients, including the patient voice in the conference and future, and acknowledging the conference taking place on the land of First Nations.

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The Journal of Rheumatology @jrheumatol.bsky.social · 18/03/2025

We’re excited to announce that @jrheumatol.bsky.social will publish the abstracts from #LUPUS2025 📄✨. This supplement will showcase innovative research and key insights from the conference. Our team will also be onsite at #LUPUS2025. Visit us at booth 20 🤝. See you there!

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 19/05/2025

No single test exists to diagnose #Lupus, resulting in many patients suffering more serious complications before a diagnosis is reached. Research to identify better diagnostic measurements is needed. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social

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#LupusChat @lupuschat.bsky.social · 20/05/2025

We’re headed to Toronto for #LUPUS25! Both @caringforlupus.bsky.social & @tiffanyandlupus.bsky.social will be representing the lupus community as advocates thanks to the sponsorship of @ladaorg.bsky.social. Stay tuned as we share highlights from the 16th International Congress of SLE! 💜✨ #LupusChat

A banner for the 16th International Congress of Systemic Lupus Erythematosus in Toronto from May 21-24.

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 21/05/2025

Minority women tend to develop #Lupus at a younger age, experience more serious complications and have higher mortality rates—up to 3 times the incidence and mortality of Caucasians. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social

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CaringForLupus @caringforlupus.bsky.social · 21/05/2025

#LADAORG Team at the #LUPUS2025 opening ceremony 🎉 More than 65 countries 🌎 and over 1,000 registered 👥️ #Lupuschat #Lupus @ladaorg.bsky.social @lupuschat.bsky.social

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#LupusChat @lupuschat.bsky.social · 18/05/2025

Gracias por participar en la poderosa conversación de hoy sobre #AbogaciaPorLupus. Sus historias, su fuerza y sus voces contribuyen a construir un mundo más informado y compasivo para todas las personas que viven con lupus. #LupusChat

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#LupusChat @lupuschat.bsky.social · 18/05/2025

Thank you for being part of today’s powerful #AdvocateForLupus discussion. Your stories, strength, and voices are helping shape a more informed, compassionate world for everyone living with lupus. 💜 #LupusChat

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CaringForLupus @caringforlupus.bsky.social · 18/05/2025

A6 Miah was diagnosed with Lupus at a young age...she has discovered strength in vulnerability and courage in sharing her story. #LupusChat

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#LupusChat @lupuschat.bsky.social · 18/05/2025

Q6: Si tu experiencia con el Lupus fuera un mensaje o publicación/post breve, qué frase compartirías para crear conciencia y crear #AbogaciaPorLupus durante el #MesDelLupus? #LupusChat

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#LupusChat @lupuschat.bsky.social · 18/05/2025

Q6: If your lupus journey were a short message or post, what’s one sentence you’d share to raise awareness and #AdvocateForLupus during #LupusAwarenessMonth? #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 18/05/2025

A6: Vivir con lupus es duro y a menudo invisible, ¡pero nuestras voces importan! Hablar sobre nuestras luchas es cómo nos protegemos, educamos a los demás y hacemos espacio para un cambio real. #AbogaciaPorLupus #MesDelLupus #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 18/05/2025

A6: Living with lupus is tough and often invisible, but our voices matter! Speaking up about our struggles is how we protect ourselves, educate others, and make space for real change. 💜 #AdvocateForLupus #LupusAwarenessMonth #LupusChat

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CaringForLupus @caringforlupus.bsky.social · 18/05/2025

A5 Self-care......💜💜 care of your physical and mental well-being. Make time for activities that bring joy and relaxation is very important #LupusChat

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CaringForLupus @caringforlupus.bsky.social · 18/05/2025

A5 Finding your voice with lupus takes courage and time...💜🦋💜 #LupusChat

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CaringForLupus @caringforlupus.bsky.social · 18/05/2025

A5 Learn about lupus as much as you can...., its effects and available resources. Understanding your condition empowers you to advocate for yourself #LupusChat

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#LupusChat @lupuschat.bsky.social · 18/05/2025

Q5: What advice would you give to someone with lupus who’s just beginning to find their voice? #LupusChat

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#LupusChat @lupuschat.bsky.social · 18/05/2025

Q5: Qué consejo le darías a alguien con Lupus que apenas está empezando a encontrar su voz? #LupusChat

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