iiinova — where your digital self keeps evolving

Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 24/05/2025

Kudos to @zahitouma.bsky.social and the #LUPUS2025 organizers for hosting a wonderful Gala event last evening while the #LADAOrg team enjoyed the food, music and networking. #Lupus @lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @alhkim.bsky.social

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 23/05/2025

#LADAOrg is honored to sponsor #LUPUS2025 & bring our mighty team to learn, engage, & share insights. @lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @tiffanyandlupus.bsky.social Kathleen Arntsen, Dina Thachet, Kaamilah Gilyard, Whiney Carter, David Arntsen, Autumn Austin

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 07/03/2025

The Lupus Walk webpage is live! Join us on May 17th by walking or running to benefit lupus research sponsored by @masonicresearch.bsky.social and #LADAorg while also promoting #LupusAwareness during Lupus Awareness Month. www.mmri.edu/ways-to-give...

mmri.edu

Lupus Walk Utica, NY | MMRI Research

Join us for the Lupus Walk, co-sponsored by MMRI & the Lupus and Allied Diseases Association, Inc. to support lupus research by MMRI.

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 15/04/2025

Are you ready to show your support for those affected by #lupus on May 10th by sharing facts about lupus and proudly wearing your purple for #WorldLupusDay #MakeLupusVisible WorldLupusDay.org/tool-kit @lupus.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social

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Reposted by Anne Zablotowicz

CaringForLupus @caringforlupus.bsky.social · 17/04/2025

A Truly Amazing DOCTOR is hard to find Difficult to part with AND Impossible to Forget Thank You Doctor Moorthy 💜🦋🥼 #LupusChat #LupusAwareness @lupuschat.bsky.social @ladaorg.bsky.social @lupusresearch.bsky.social

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Reposted by Anne Zablotowicz

#LupusChat @lupuschat.bsky.social · 23/03/2025

Our next #LupusChat will be on Sunday, May 4 at 3PM Eastern Time! Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date!

a save the date for the next upcoming Lupus Chat discussion taking place on BlueSky on May 4th at 3 PM Eastern Time

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 29/04/2025

Lupus is often life altering, dream stealing, career ending and physically, emotionally and financially devastating, but you can have a full life by becoming educated and empowered. With only 2 days to go ‘til Lupus Awareness Month, please read and share our daily Lupus facts. @lupuschat.bsky.social

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 01/05/2025

#Lupus is a complex chronic inflammatory #autoimmune disease in which a triggering agent causes the immune system to dysregulate and attack the patient’s tissue in any organ system of the body; including the skin, joints, kidney, brain, heart, lungs, blood & blood vessel. @lupuschat.bsky.social

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 02/05/2025

A person with #lupus takes between 8 and 12 medications a day, requiring careful attention to drug interactions and unique allergies and sensitivities and a team approach. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @ghlforg.bsky.social

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 03/05/2025

#Lupus clinical research has been problematic due to the lack of basic understanding of the disease, reliable biomarkers, and uniform control groups, clinical outcome measure limitations and the heterogeneity of the patient population. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 02/03/2025

We were thrilled to sponsor the 40th Annual Health Policy Ball to support #healthpolicy fellows. Loved networking with passionate stakeholders like #SequoiaRagland from the House Health Committee. #HealthProm25 #patientvoice #KathleenArntsen @annezab.bsky.social @infusionaccessfoundation.org

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 01/04/2025

The #LADAorg Board was honored to attend the @masonicresearch.bsky.social 1958 Gala to represent the #PatientVoice and support #Lupus, Autoimmune, Cardiovascular, and Autism research. Kudos to Maria Kontaridis and her staff for hosting such an amazing event! @annezab.bsky.social

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 07/04/2025

#LADAorg thanks our patient experts @annezab.bsky.social Kaamilah Gilyard and Whitney LaBar for attending #CARRA2025 to provide valuable #patient insights and interact with the amazing CARRA research community! carrainc research community!

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Reposted by Anne Zablotowicz

Lupus Foundation of America @lupus.org · 06/12/2024

#FluSeason is here, and if you have #lupus, protecting yourself from infection is essential. With a higher risk due to lupus and treatments, proactive steps like flu shots and managing exposure can help. Learn more tips: buff.ly/41jQ9eI

buff.ly

Protecting yourself from infections

When you have lupus, you are at increased risk for all kinds of infections. There are two main reasons for this higher risk: lupus disease and treatments.

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 11/12/2024

We’re at the finish line! @speakerjohnson.bsky.social help us make history by including the #MCEDAct in the end of year package. This legislation will revolutionize #cancer detection, improve survivorship, and save lives. Cancer doesn’t wait, and neither should we. #MCED @acscan.bsky.social

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 12/12/2024

Investing in #HealthForAll means protecting people, especially the most vulnerable among us, from impoverishing health costs and financial hardship caused by illness. It’s on the government to adopt laws and budgets that guarantee the right to health for everyone, everywhere.

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 12/12/2024

@govkathyhochul.bsky.social please prioritize passing step therapy reform & sign #A901AS1267A. NYers shouldn't have to suffer through ineffective treatments before receiving the medication they truly need. It's time to prioritize patient well-being over unreasonable cost-cutting measures.

@GovKathyHochul prioritize passing step therapy reform & sign #A901AS1267A ASAP. NYers shouldn't have to suffer through ineffective treatments before receiving the medication they truly need. It's time to prioritize patient well-being over unreasonable cost-cutting measures

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Reposted by Anne Zablotowicz

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 12/12/2024

Patients, families and communities across NY cannot wait any longer for access to #MCED technologies. The time for Congress to act is NOW – we urge Congress to pass the #MCEDAct this year @schumer.senate.gov #HakeemJeffers @ghlforg.bsky.social @acscan.bsky.social @infusioncenter.bsky.social

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