Reposted by Katie Lazell-FairmanME/CFS Science @mecfsscience.org · 18/05/20261) Independent researcher Paolo Maccalini published an impressive paper implicating synaptic function in specific brain regions in the pathology of ME/CFS. It’s based on three major genetic studies, including DecodeME. The most replicated signal was for glutamatergic synapses. 15926
Reposted by Katie Lazell-FairmanAmber Woods @amberspeaks.bsky.social · 06/03/2026The Pentagon is building National Guard “quick reaction forces” for U.S. cities — troops “trained for civil unrest and rapid deployment.” The timeline most people missed: They’re expected to be operational by April 2026. A few weeks from now. 25182146
Katie Lazell-Fairman @klazell.bsky.social · 22/05/2025Me too, I used to dance lindy hop, blues and Argentine tango before I got Long Covid (and belly dance too when I was younger). I miss that flying through the air feeling so much 😭 010
Reposted by Katie Lazell-FairmanMatt Lazell-Fairman @mfairma.bsky.social · 18/05/2025We’re sharing madeleines and earl grey tea for #BlueSunday #TeaPartyforME! Madeleines are relatively easy to make for feeling so fancy and we’re happy to have been able to make them again. 412920
Reposted by Katie Lazell-FairmanBoo!-per Lund @cooperlund.online · 09/04/2025Whom up late thinking about how today might be the last day they were anything close to prosperous 929512
Reposted by Katie Lazell-FairmanMatt Lazell-Fairman @mfairma.bsky.social · 08/04/2025It’s been five years since John Prine died of COVID-19. If you’re so inclined (and able — it’s long), here’s an essay I wrote about how his songs helped me accept a life with the debilitating, deeply marginalized chronic illness ME/CFS. 1/3m-lazell-fairman.medium.comHow Singer-Songwriter John Prine Helped Me Accept A Life of IllnessIt’s been a year since Prine died of COVID-19. His death made me reflect on what it means to be sick and how his songs helped me learn to… 119533
Reposted by Katie Lazell-FairmanIda Bae Wells @nhannahjones.bsky.social · 26/03/2025When scholars of authoritarianism and fascism leave U.S. universities because of the deteriorating political situation here, we should really worry. 586236098166
Reposted by Katie Lazell-FairmanOlenka Sayko @osayko.bsky.social · 26/03/2025🚨 🚨 🚨 Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts! This condition impacts millions of Americans, many of whom are severely disabled with NO treatments! 093
Reposted by Katie Lazell-FairmanAlexandria Ocasio-Cortez @aoc.bsky.social · 22/03/2025Tucson, Arizona today. Original projected attendance was 3,000 people. 23,000 showed up. 427616616126974
Reposted by Katie Lazell-FairmanJessica Wildfire @jessicawildfire.bsky.social · 21/03/2025Martial law could happen in 30 days. Sound nuts? Look at what's already happening. www.the-sentinel-intelligence.com/p/should-i-s...the-sentinel-intelligence.comShould I Stay or Should I Go Now? 30 Days Until Martial Law...?It could happen. 15810
Reposted by Katie Lazell-FairmanCohen Center for Recovery from Complex Chronic Illness @coresinai.bsky.social · 17/03/2025Want to make a difference? Consider being a control in a clinical trial. Your participation can contribute to the future of science and medicine! Email CoreResearch@mountsinai.org if you're interested. 52617
Reposted by Katie Lazell-FairmanJoseph Rowntree Foundation @jrf-uk.bsky.social · 14/03/2025🏠 Without PIP, 700,000 more disabled households could be pushed into poverty. Cutting this or other disability benefits would increase hardship for some of the poorest in society - something morally indefensible. Read the letter in full here: www.scope.org.uk/campaigns/op... 3/3scope.org.ukThe cost of cuts to disability benefits: Our open letter to the Chancellor | Disability charity Scope UKRight now, the government is considering changes to disability benefits. But for millions of disabled people, these benefits are a lifeline. They are the difference between surviving and being pushed ... 23730
Reposted by Katie Lazell-Fairman🌌💫ꪖꪀᧁꫀꪶꪶꫀ꠸ᧁꫝ💫🌌 @angelleigh.bsky.social · 15/03/2025The media won't tell you that people are still suffering from & becoming disabled by Long Covid. Each infection increases risk, even a mild case & even if you think you did fine previously. Getting repeatedly infected is not sustainable & public health is worse than ever. Protect yourself & others. 511940
Reposted by Katie Lazell-FairmanPhillyPhile215 @phillyphile215.bsky.social · 15/03/2025Started the day crying, seeing everyone sharing all their #LongCovidAwarenessDay stories. How many more will become disabled? Ignoring the problem won’t make it go away. We need real investments in research on sophisticated therapeutics. (Note the irony in the chart’s title) 25112
Reposted by Katie Lazell-FairmanIt's ME(Jaime) @exceedhergrasp1.bsky.social · 14/03/2025My friend & colleague Heather Stone has worked tirelessly to fight for treatment for people with rare & incurable diseases, including #LongCOVID. This well-written article follows her work at FDA & the coinciding quest to cure a fatal infection: Balamuthia. 🧪 www.washingtonpost.com/opinions/int...washingtonpost.comOpinion | The free-living bureaucratMichael Lewis on Heather Stone of the Food and Drug Administration. 36515
Reposted by Katie Lazell-FairmanThe Onion @theonion.com · 14/03/2025Chuck Schumer Helps Pull Democrats Back From Brink Of Courage 466387649649
Reposted by Katie Lazell-FairmanMatt Lazell-Fairman @mfairma.bsky.social · 05/03/2025This. If masking everywhere is too much, start with hospitals, doctor’s offices, and elder care facilities. It’s a small thing to help make these places safer for immunocompromised people like me. 193
Reposted by Katie Lazell-FairmanLia Pas @liapas.bsky.social · 08/03/2025For this #InternationalWomensDay I’m sharing one of my symptomatology embroideries, paresthesia (face) (2016). Paresthesias are tingling sensations. Mine are caused by #MECFS, a disease affecting mostly women, and the symptoms are often ignored or not taken seriously because of medical misogyny. 🧶 511729
Reposted by Katie Lazell-FairmanJennifer C @thejenniwren.teamlh.social · 10/03/2025My fellow Americans, we officially hit a new low today. Thanks to felon Trump’s all out assault on democracy, we are now on a civil rights loss warning list with the Democratic Republic of Congo, Italy, Pakistan & Serbia. Nonviolent civil resistance is a must! www.theguardian.com/us-news/2025...theguardian.comUS added to international watchlist for rapid decline in civic freedomsCivicus, an international non-profit, puts country alongside Democratic Republic of Congo, Italy, Pakistan and Serbia 10732281496
Reposted by Katie Lazell-FairmanDavid Osland @davidosland.bsky.social · 09/03/2025Cutting disability benefits doesn't 'incentivise work'. But it does penalise and humiliate the disabled, and that's the real point. 32719191
Reposted by Katie Lazell-FairmanPapa Woof und Krampus und Bleaken @papawoof.bsky.social · 10/03/2025 8070201004
Reposted by Katie Lazell-FairmanBroken Frontier @brokenfrontier.bsky.social · 09/03/2025Deeply concerning news about our friend and former BF teammate Rebecca Burke whose backpacking trip to the US has ended with her being detained by ICE for over ten days, with no clear timeline for her release. Please read her father's statement here: www.facebook.com/paulrburke 7220241105
Reposted by Katie Lazell-FairmanArlyssa D. Becenti ✍️🗞️ @abecenti.bsky.social · 05/03/2025www.democracynow.org/2025/3/4/hea...democracynow.orgFormer Social Security Chief Warns DOGE Cuts Could “Collapse” Benefits Within WeeksBack in the United States, the former head of the Social Security Administration has warned interference from the Trump administration could result in beneficiaries missing payments within the next th... 1175
Reposted by Katie Lazell-FairmanMatt Lazell-Fairman @mfairma.bsky.social · 03/03/2025The pwME in vid calling for return to “old fashioned convalescence” reminded me of a neighbor who got mono in 1950s. Her doc advised family to support her rest. Took 6 months, but she recovered from bedbound never to relapse. It’s not total nonsense that there is lost wisdom, but RFKs BS is not it. 061
Reposted by Katie Lazell-FairmanMatt Lazell-Fairman @mfairma.bsky.social · 04/03/2025If you don’t wear a mask bc you’re worried friends or family will pull away, know that none of those ppl would be there for you anyway if you come down with a debilitating post-infectious illness like #LongCovid or #MECFS. 🧵 23011
Reposted by Katie Lazell-FairmanMatt Lazell-Fairman @mfairma.bsky.social · 04/03/2025As a sick person, I know the love that must have been in that house and want to believe that some of that somehow remains now that she and he have passed on. I want more for ppl to honor that love by breaking the veil in themselves that makes disabled ppl so foreign. 3/3 071
Reposted by Katie Lazell-FairmanMatt Lazell-Fairman @mfairma.bsky.social · 04/03/2025Watched a YT vid abt English artist William Hogarth. He supported one of the first orphanages, in part bc he’d spent 5 yrs growing up in a debtor’s prison w his family, after his father’s attempt to start a Latin-speaking coffee house failed. Can we stop listening to the ghouls that want that world?museumstjohn.org.uk‘There will meet some learned gentlemen’: Hogarth’s Coffee House at St. John’s Gate - Museum of the Order of St JohnRichard Hogarth, father of the engraver and painter William, set up his coffee shop in 1704 at St. John’s Gate, Clerkenwell 021
Reposted by Katie Lazell-FairmanGeorge Takei @georgetakei.bsky.social · 27/02/2025They said we were being hysterical for saying he would rule like a fascist. 521878153
Reposted by Katie Lazell-FairmanKarenB-Raven50VB 🧸🧸 @bright1950start.bsky.social · 24/02/2025ECONOMIC BLACKOUT FRIDAY, FEBRUARY 28, 2025 Share this information and participate! You are a valuable human being with your own specific gifts. More Boycotts to follow.. read next page ⬇️ #DemVoice1 #LiveBlue #ResistanceUnited #Voices4Victory #OneVoice 26573314
Reposted by Katie Lazell-Fairman✨ A Goddess has NO KING ✨ @the-goddess-speaks.bsky.social · 26/02/2025BLACKOUT FRIDAY 🚫💰 Together we are legion 🎨: @pinkojoe.bsky.social 40869331
Reposted by Katie Lazell-FairmanBOO Bolander @bbolander.bsky.social · 18/02/2025hey did you know you can usually buy basically any book ever printed secondhand from a seller on ebay and never have to deal with amazon ever again 760175
Reposted by Katie Lazell-FairmanErin Biba @erinbiba.bsky.social · 17/02/2025Note that this very specifically targets disabled children. 1218051
Reposted by Katie Lazell-FairmanFrancesca Cole @francescacole.bsky.social · 08/02/2025My lab strives to reduce infertility, miscarriages, and birth defects. We want y’all to have healthy kids. I know it sounds weird, but indirect costs pay for lights, HVAC, maintenance, cleaning, safety, and admin. It’s really hard to reduce birth defects in the dark. Call your representatives 223548
Reposted by Katie Lazell-FairmanJ. Offir, PhD @joffirphd.bsky.social · 07/02/2025Smart move. They're closing about 80 markets in NYC and nearby counties. "Seven cases of bird flu had been detected at markets in Queens, the Bronx and Brooklyn." www.nytimes.com/2025/02/07/n...nytimes.comNew York Live Bird Markets Ordered to Close After Bird Flu Is FoundThe order affects roughly 80 markets in New York City and in several nearby counties. Gov. Kathy Hochul described it as a “proactive” step to help curb the spread of bird flu. 0389
Reposted by Katie Lazell-FairmanCosta Samaras @costasamaras.com · 05/02/2025The agency that tells you if there’s a hurricane coming btw 33639177
Reposted by Katie Lazell-FairmanRichard Stiennon @stiennon.bsky.social · 02/02/2025I hope you can make sense of this www.youtube.com/watch?v=5RpP... It seems so delusional.youtube.comDARK GOTHIC MAGA: How Tech Billionaires Plan to Destroy AmericaYouTube video by Blonde Politics | The Silly Serious 43019
Reposted by Katie Lazell-Fairmanᴋʟᴀᵾs @tinyklaus.com · 04/02/2025Please share this with as many people as you can. It explains the tech Nazi agenda to fuse Curtis Yarvin's RAGE and Project 2025 together to completely dismantle our country. Silicon Valley is full of absolute lunatics and everyone needs to understand this threat. www.youtube.com/watch?v=5RpP...youtube.comDARK GOTHIC MAGA: How Tech Billionaires Plan to Destroy AmericaYouTube video by Blonde Politics | The Silly Serious 79950
Reposted by Katie Lazell-Fairmaneartha mae @endoeartha.bsky.social · 28/01/2025General strike? 3632347
Reposted by Katie Lazell-FairmanPhysicians for a Healthy Democracy @physiciandemocracy.medsky.social · 28/01/2025@ocasio-cortez.house.gov 595274467837
Reposted by Katie Lazell-FairmanKrystal Kavita Jagoo, MSW (She/Her/Hers) 🇹🇹👊🏽✍️🏾♊️♊️♏️ @equitableforall.com · 29/01/2025Shameless plug for my earlier article on this very topic: web.archive.org/web/20230306... 02913
Reposted by Katie Lazell-FairmanElizabeth Warren @warren.senate.gov · 28/01/2025While President Trump illegally pauses federal funding from Congress, the Senate must not be business as usual. We do not consent to this lawless power grab. 1396160042621
Reposted by Katie Lazell-FairmanMatt Lazell-Fairman @mfairma.bsky.social · 26/01/2025Absolutely stunning @theguardian.com keeps promoting these ghouls and their pseudoscientific BS. These narratives are poison and a gift to reactionary forces. #MECFS #LongCovid web.archive.org/web/20250126...web.archive.orgThe mind/body revolution: how the division between ‘mental’ and ‘physical’ illness fails us allNew research shows western medicine’s traditional split between brain and body is, in fact, far from clear cut – and could provide a breakthrough for many complex conditions 081
Reposted by Katie Lazell-FairmanMarikit 🇵🇭💜 @mataraykween.bsky.social · 26/01/2025Well this is familiar to Filipinos. The Drug War by Duterte set quotas too, and a reward system for kills, which is why thousands died, many of them innocent. 1178
Katie Lazell-Fairman @klazell.bsky.social · 23/01/2025The recipes with pineapple juice in them work well 110
Reposted by Katie Lazell-FairmanThe Tennessee Holler @thetnholler.bsky.social · 21/01/2025CARTOON OF THE DAY 165167223589
Reposted by Katie Lazell-FairmanNick Martin @nick-martin.bsky.social · 02/01/2025Some folks are going to try to make it illegal to wear a mask in New York this year. With COVID still raging, millions dealing with Long Covid (including me), and the stage being set for bird flu or another virus to become the next pandemic, I'll be speaking out against this deeply misguided effort. 25804175
Reposted by Katie Lazell-Fairmanvalebodi.bsky.social @valebodi.bsky.social · 23/12/2024The Cardiac Output–Cerebral Blood Flow Relationship Is Abnormal in Most Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with a Normal Heart Rate and Blood Pressure Response During a Tilt Test www.mdpi.com/2227-9032/12... #MECFS #CBF #PwMEmdpi.comThe Cardiac Output–Cerebral Blood Flow Relationship Is Abnormal in Most Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with a Normal Heart Rate and Blood Pressure Response During a Tilt T...Introduction: Orthostatic intolerance is highly prevalent in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and is caused by an abnormal reduction in cerebral blood flow (CB... 13010
Reposted by Katie Lazell-FairmanGhostly Bree @mostlybree.kitrocha.com · 20/12/2024it blew my mind when I realized this!!! sharing in case anyone else doesn't know! 1218760
Reposted by Katie Lazell-FairmanBilly Hanlon @bhanlon15.bsky.social · 17/12/2024PolyBio: “Study first to document dysfunctional natural killer cells in long COVID” ‘PolyBio-supported study finds reduced percentages of cytotoxic NK cells in people with long COVID. The immune dysfunction might facilitate SARS-CoV-2 persistence..’ polybio.org/study-first-...polybio.orgStudy first to document dysfunctional natural killer cells in long COVID - PolyBio Research FoundationPolyBio-supported study finds reduced percentages of cytotoxic natural killer cells in people with long COVID. The immune dysfunction might facilitate SARS-CoV-2... 24314