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Katie Lazell-Fairman

@klazell.bsky.social
914 followers 345 following 38 posts

Artist, Long Covid, ME/CFS, POTS, EDS, previously Data Scientist. Life on pause due to #longcovid. Climate collapse aware.

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Reposted by Katie Lazell-Fairman
ME/CFS Science @mecfsscience.org · 18/05/2026
1) Independent researcher Paolo Maccalini published an impressive paper implicating synaptic function in specific brain regions in the pathology of ME/CFS. It’s based on three major genetic studies, including DecodeME. The most replicated signal was for glutamatergic synapses.
Screenshot of the paper: "Biological Insights from Genome-Wide Association Studies and Whole Genome Sequencing of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
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Amber Woods @amberspeaks.bsky.social · 06/03/2026
The Pentagon is building National Guard “quick reaction forces” for U.S. cities — troops “trained for civil unrest and rapid deployment.” The timeline most people missed: They’re expected to be operational by April 2026. A few weeks from now.
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Katie Lazell-Fairman @klazell.bsky.social · 22/05/2025
Me too, I used to dance lindy hop, blues and Argentine tango before I got Long Covid (and belly dance too when I was younger). I miss that flying through the air feeling so much 😭
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Reposted by Katie Lazell-Fairman
Matt Lazell-Fairman @mfairma.bsky.social · 18/05/2025
We’re sharing madeleines and earl grey tea for #BlueSunday #TeaPartyforME! Madeleines are relatively easy to make for feeling so fancy and we’re happy to have been able to make them again.
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Boo!-per Lund @cooperlund.online · 09/04/2025
Whom up late thinking about how today might be the last day they were anything close to prosperous
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Matt Lazell-Fairman @mfairma.bsky.social · 08/04/2025
It’s been five years since John Prine died of COVID-19. If you’re so inclined (and able — it’s long), here’s an essay I wrote about how his songs helped me accept a life with the debilitating, deeply marginalized chronic illness ME/CFS. 1/3
m-lazell-fairman.medium.com
How Singer-Songwriter John Prine Helped Me Accept A Life of Illness
It’s been a year since Prine died of COVID-19. His death made me reflect on what it means to be sick and how his songs helped me learn to…
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Reposted by Katie Lazell-Fairman
Ida Bae Wells @nhannahjones.bsky.social · 26/03/2025
When scholars of authoritarianism and fascism leave U.S. universities because of the deteriorating political situation here, we should really worry.
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Reposted by Katie Lazell-Fairman
Olenka Sayko @osayko.bsky.social · 26/03/2025
🚨 🚨 🚨 Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts! This condition impacts millions of Americans, many of whom are severely disabled with NO treatments!
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Reposted by Katie Lazell-Fairman
Alexandria Ocasio-Cortez @aoc.bsky.social · 22/03/2025
Tucson, Arizona today. Original projected attendance was 3,000 people. 23,000 showed up.
Bernie Sanders, AOC, and Greg Casar on stage in Tucson in front a crowd of 23,000 people.
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Jessica Wildfire @jessicawildfire.bsky.social · 21/03/2025
Martial law could happen in 30 days. Sound nuts? Look at what's already happening. www.the-sentinel-intelligence.com/p/should-i-s...
the-sentinel-intelligence.com
Should I Stay or Should I Go Now? 30 Days Until Martial Law...?
It could happen.
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Cohen Center for Recovery from Complex Chronic Illness @coresinai.bsky.social · 17/03/2025
Want to make a difference? Consider being a control in a clinical trial. Your participation can contribute to the future of science and medicine! Email CoreResearch@mountsinai.org if you're interested.
Participants Wanted
If you either: 1) have not had COVID-19 or
2) had COVID-19 and completely recovered within 12 weeks, you may be eligible.
We are recruiting participants who have not had COVID-19, or had
COVID-19 and completely recovered within 12 weeks, to be 'controls' in a research study investigating the long-term symptoms experienced by people with post-acute COVID-19 syndrome (Long COVID).
The research study involves providing a blood sample (approximately 1 fluid ounce or 2 tablespoons) during a single research appointment.
There is no longer term follow up or participation involved.
If you are interested, please contact: CoreResearch@MountSinai.org
Research study location:
Cohen Center for Recovery from Complex Chronic Illness
FSB-18 (sub-basement), 5 E 98th Street, New York, NY 10029
IRB Approved
Effective Date: 11/12/2024 End
Date:11/11/2025
Mount Sinai IRB STUDY-20-01758 Principal
Investigator: Dr David Putrino
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Joseph Rowntree Foundation @jrf-uk.bsky.social · 14/03/2025
🏠 Without PIP, 700,000 more disabled households could be pushed into poverty. Cutting this or other disability benefits would increase hardship for some of the poorest in society - something morally indefensible. Read the letter in full here: www.scope.org.uk/campaigns/op... 3/3
scope.org.uk
The cost of cuts to disability benefits: Our open letter to the Chancellor | Disability charity Scope UK
Right now, the government is considering changes to disability benefits. But for millions of disabled people, these benefits are a lifeline. They are the difference between surviving and being pushed ...
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🌌💫ꪖꪀᧁꫀꪶꪶꫀ꠸ᧁꫝ💫🌌 @angelleigh.bsky.social · 15/03/2025
The media won't tell you that people are still suffering from & becoming disabled by Long Covid. Each infection increases risk, even a mild case & even if you think you did fine previously. Getting repeatedly infected is not sustainable & public health is worse than ever. Protect yourself & others.
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PhillyPhile215 @phillyphile215.bsky.social · 15/03/2025
Started the day crying, seeing everyone sharing all their #LongCovidAwarenessDay stories. How many more will become disabled? Ignoring the problem won’t make it go away. We need real investments in research on sophisticated therapeutics. (Note the irony in the chart’s title)
Chart from this recent article in the New York Times showing a steep increase in disability rates after 2020: https://www.nytimes.com/interactive/2025/03/09/upshot/covid-lockdown-five-year-charts.html

As exemplified by the title’s misspelling Covid causes cognitive dysfunction.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 14/03/2025
My friend & colleague Heather Stone has worked tirelessly to fight for treatment for people with rare & incurable diseases, including #LongCOVID. This well-written article follows her work at FDA & the coinciding quest to cure a fatal infection: Balamuthia. 🧪 www.washingtonpost.com/opinions/int...
washingtonpost.com
Opinion | The free-living bureaucrat
Michael Lewis on Heather Stone of the Food and Drug Administration.
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The Onion @theonion.com · 14/03/2025
Chuck Schumer Helps Pull Democrats Back From Brink Of Courage
Chuck Schumer Helps Pull Democrats Back From Brink Of Courage
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Matt Lazell-Fairman @mfairma.bsky.social · 05/03/2025
This. If masking everywhere is too much, start with hospitals, doctor’s offices, and elder care facilities. It’s a small thing to help make these places safer for immunocompromised people like me.
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Lia Pas @liapas.bsky.social · 08/03/2025
For this #InternationalWomensDay I’m sharing one of my symptomatology embroideries, paresthesia (face) (2016). Paresthesias are tingling sensations. Mine are caused by #MECFS, a disease affecting mostly women, and the symptoms are often ignored or not taken seriously because of medical misogyny. 🧶
paresthesia (face) 2016

An embroidery of the outline of a face in bone coloured thread on bone coloured linen. The forehead, cheeks, jaws, and temples are covered in filigree lines in dark blues, greens, and yellows. There are French knots spaced out along the lips. Lines of beige strands of thread are strung from the knots across the face in a geometric formation.
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Jennifer C @thejenniwren.teamlh.social · 10/03/2025
My fellow Americans, we officially hit a new low today. Thanks to felon Trump’s all out assault on democracy, we are now on a civil rights loss warning list with the Democratic Republic of Congo, Italy, Pakistan & Serbia. Nonviolent civil resistance is a must! www.theguardian.com/us-news/2025...
theguardian.com
US added to international watchlist for rapid decline in civic freedoms
Civicus, an international non-profit, puts country alongside Democratic Republic of Congo, Italy, Pakistan and Serbia
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David Osland @davidosland.bsky.social · 09/03/2025
Cutting disability benefits doesn't 'incentivise work'. But it does penalise and humiliate the disabled, and that's the real point.
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Papa Woof und Krampus und Bleaken @papawoof.bsky.social · 10/03/2025
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Broken Frontier @brokenfrontier.bsky.social · 09/03/2025
Deeply concerning news about our friend and former BF teammate Rebecca Burke whose backpacking trip to the US has ended with her being detained by ICE for over ten days, with no clear timeline for her release. Please read her father's statement here: www.facebook.com/paulrburke
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Arlyssa D. Becenti ✍️🗞️ @abecenti.bsky.social · 05/03/2025
www.democracynow.org/2025/3/4/hea...
democracynow.org
Former Social Security Chief Warns DOGE Cuts Could “Collapse” Benefits Within Weeks
Back in the United States, the former head of the Social Security Administration has warned interference from the Trump administration could result in beneficiaries missing payments within the next th...
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Matt Lazell-Fairman @mfairma.bsky.social · 03/03/2025
The pwME in vid calling for return to “old fashioned convalescence” reminded me of a neighbor who got mono in 1950s. Her doc advised family to support her rest. Took 6 months, but she recovered from bedbound never to relapse. It’s not total nonsense that there is lost wisdom, but RFKs BS is not it.
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Matt Lazell-Fairman @mfairma.bsky.social · 04/03/2025
If you don’t wear a mask bc you’re worried friends or family will pull away, know that none of those ppl would be there for you anyway if you come down with a debilitating post-infectious illness like #LongCovid or #MECFS. 🧵
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Matt Lazell-Fairman @mfairma.bsky.social · 04/03/2025
As a sick person, I know the love that must have been in that house and want to believe that some of that somehow remains now that she and he have passed on. I want more for ppl to honor that love by breaking the veil in themselves that makes disabled ppl so foreign. 3/3
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Matt Lazell-Fairman @mfairma.bsky.social · 04/03/2025
Watched a YT vid abt English artist William Hogarth. He supported one of the first orphanages, in part bc he’d spent 5 yrs growing up in a debtor’s prison w his family, after his father’s attempt to start a Latin-speaking coffee house failed. Can we stop listening to the ghouls that want that world?
museumstjohn.org.uk
‘There will meet some learned gentlemen’: Hogarth’s Coffee House at St. John’s Gate - Museum of the Order of St John
Richard Hogarth, father of the engraver and painter William, set up his coffee shop in 1704 at St. John’s Gate, Clerkenwell
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George Takei @georgetakei.bsky.social · 27/02/2025
They said we were being hysterical for saying he would rule like a fascist.
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KarenB-Raven50VB 🧸🧸 @bright1950start.bsky.social · 24/02/2025
ECONOMIC BLACKOUT FRIDAY, FEBRUARY 28, 2025 Share this information and participate! You are a valuable human being with your own specific gifts. More Boycotts to follow.. read next page ⬇️ #DemVoice1 #LiveBlue #ResistanceUnited #Voices4Victory #OneVoice
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✨ A Goddess has NO KING ✨ @the-goddess-speaks.bsky.social · 26/02/2025
BLACKOUT FRIDAY 🚫💰 Together we are legion 🎨: @pinkojoe.bsky.social
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BOO Bolander @bbolander.bsky.social · 18/02/2025
hey did you know you can usually buy basically any book ever printed secondhand from a seller on ebay and never have to deal with amazon ever again
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Erin Biba @erinbiba.bsky.social · 17/02/2025
Note that this very specifically targets disabled children.
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Francesca Cole @francescacole.bsky.social · 08/02/2025
My lab strives to reduce infertility, miscarriages, and birth defects. We want y’all to have healthy kids. I know it sounds weird, but indirect costs pay for lights, HVAC, maintenance, cleaning, safety, and admin. It’s really hard to reduce birth defects in the dark. Call your representatives
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J. Offir, PhD @joffirphd.bsky.social · 07/02/2025
Smart move. They're closing about 80 markets in NYC and nearby counties. "Seven cases of bird flu had been detected at markets in Queens, the Bronx and Brooklyn." www.nytimes.com/2025/02/07/n...
nytimes.com
New York Live Bird Markets Ordered to Close After Bird Flu Is Found
The order affects roughly 80 markets in New York City and in several nearby counties. Gov. Kathy Hochul described it as a “proactive” step to help curb the spread of bird flu.
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Costa Samaras @costasamaras.com · 05/02/2025
The agency that tells you if there’s a hurricane coming btw
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Richard Stiennon @stiennon.bsky.social · 02/02/2025
I hope you can make sense of this www.youtube.com/watch?v=5RpP... It seems so delusional.
youtube.com
DARK GOTHIC MAGA: How Tech Billionaires Plan to Destroy America
YouTube video by Blonde Politics | The Silly Serious
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ᴋʟᴀᵾs @tinyklaus.com · 04/02/2025
Please share this with as many people as you can. It explains the tech Nazi agenda to fuse Curtis Yarvin's RAGE and Project 2025 together to completely dismantle our country. Silicon Valley is full of absolute lunatics and everyone needs to understand this threat. www.youtube.com/watch?v=5RpP...
youtube.com
DARK GOTHIC MAGA: How Tech Billionaires Plan to Destroy America
YouTube video by Blonde Politics | The Silly Serious
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eartha mae @endoeartha.bsky.social · 28/01/2025
General strike?
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Physicians for a Healthy Democracy @physiciandemocracy.medsky.social · 28/01/2025
@ocasio-cortez.house.gov
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Krystal Kavita Jagoo, MSW (She/Her/Hers) 🇹🇹👊🏽✍️🏾♊️♊️♏️ @equitableforall.com · 29/01/2025
Shameless plug for my earlier article on this very topic: web.archive.org/web/20230306...
Image Description: Against a white background, text states:

RACE AND IDENTITY 
RACE AND MENTAL
HEALTH

How to Rest and Recover While You Fight for Social Change

By KrystalJagoo Updated on October 04, 2020
Medically reviewed by Ann- Louise T. Lockhart
PsyD, ABPP

Below that, is an illustration of 4 folx of various ages, skin colours, sizes, sharing a pizza, while the news plays on TV. Around the room are raised first pictures on the wall, along with other symbols of solidarity.
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Elizabeth Warren @warren.senate.gov · 28/01/2025
While President Trump illegally pauses federal funding from Congress, the Senate must not be business as usual. We do not consent to this lawless power grab.
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Matt Lazell-Fairman @mfairma.bsky.social · 26/01/2025
Absolutely stunning @theguardian.com keeps promoting these ghouls and their pseudoscientific BS. These narratives are poison and a gift to reactionary forces. #MECFS #LongCovid web.archive.org/web/20250126...
web.archive.org
The mind/body revolution: how the division between ‘mental’ and ‘physical’ illness fails us all
New research shows western medicine’s traditional split between brain and body is, in fact, far from clear cut – and could provide a breakthrough for many complex conditions
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Marikit 🇵🇭💜 @mataraykween.bsky.social · 26/01/2025
Well this is familiar to Filipinos. The Drug War by Duterte set quotas too, and a reward system for kills, which is why thousands died, many of them innocent.
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Katie Lazell-Fairman @klazell.bsky.social · 23/01/2025
The recipes with pineapple juice in them work well
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The Tennessee Holler @thetnholler.bsky.social · 21/01/2025
CARTOON OF THE DAY
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Nick Martin @nick-martin.bsky.social · 02/01/2025
Some folks are going to try to make it illegal to wear a mask in New York this year. With COVID still raging, millions dealing with Long Covid (including me), and the stage being set for bird flu or another virus to become the next pandemic, I'll be speaking out against this deeply misguided effort.
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valebodi.bsky.social @valebodi.bsky.social · 23/12/2024
The Cardiac Output–Cerebral Blood Flow Relationship Is Abnormal in Most Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with a Normal Heart Rate and Blood Pressure Response During a Tilt Test www.mdpi.com/2227-9032/12... #MECFS #CBF #PwME
mdpi.com
The Cardiac Output–Cerebral Blood Flow Relationship Is Abnormal in Most Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with a Normal Heart Rate and Blood Pressure Response During a Tilt T...
Introduction: Orthostatic intolerance is highly prevalent in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and is caused by an abnormal reduction in cerebral blood flow (CB...
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Ghostly Bree @mostlybree.kitrocha.com · 20/12/2024
it blew my mind when I realized this!!! sharing in case anyone else doesn't know!
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Billy Hanlon @bhanlon15.bsky.social · 17/12/2024
PolyBio: “Study first to document dysfunctional natural killer cells in long COVID” ‘PolyBio-supported study finds reduced percentages of cytotoxic NK cells in people with long COVID. The immune dysfunction might facilitate SARS-CoV-2 persistence..’ polybio.org/study-first-...
polybio.org
Study first to document dysfunctional natural killer cells in long COVID - PolyBio Research Foundation
PolyBio-supported study finds reduced percentages of cytotoxic natural killer cells in people with long COVID. The immune dysfunction might facilitate SARS-CoV-2...
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