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Jessie Chaffee

@jessielchaffee.bsky.social
114 followers 166 following 27 posts

Author of Florence in Ecstasy. Living with and writing about #longcovid lithub.com/a-single-ray-of-light-on… www.JessieChaffee.com

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Jessie Chaffee @jessielchaffee.bsky.social · 20/05/2026
Thank you so much for sharing, Katie. Sending you love! ❤️
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Jessie Chaffee @jessielchaffee.bsky.social · 28/04/2025
I look forward to @memoirland.bsky.social’s Memoir Monday every week. Many thanks to @saribotton.bsky.social for including my @literaryhub.bsky.social essay about living with #longcovid in this week’s roundup! 🙏❤️
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Diane Mehta @dianemehta.bsky.social · 28/04/2025
After playing anagrams for several hours via Game Pigeon on my phone with my son, who is in college, he wrote between classes and said, “Mom, stop.” Fun to write this for @oldstermag.bsky.social thank you @saribotton.bsky.social oldster.substack.com/p/word-games
oldster.substack.com
Word Games
Diane Mehta on learning the frantic art of scrambling for words from her speedy and strategic 21-year-old son.
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Laura Helmuth @laurahelmuth.bsky.social · 23/04/2025
OH COME ON. NIH cancels a 34-year-old longitudinal study on women's health that started with 160,000 volunteers and continues to answer urgent questions about aging, heart disease, cancer & more 🧪 in @science.org
science.org
NIH cancels its first and largest study centered on women
The Women’s Health Initiative has produced numerous influential findings
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Jessie Chaffee @jessielchaffee.bsky.social · 11/04/2025
Was just reading through your excellent newsletter and saw you linked to my essay—thank you! So kind of you. And thank you for all the vital info!!!
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Violet Blue® @violetblue.bsky.social · 10/04/2025
Just doing my part to introduce the term "cooker" to the rest of the world: www.patreon.com/posts/covid-... #Covid #LongCovid #Vaccines #StillCoviding
patreon.com
Covid: April 10, 2025 | Threat Model
Get more from Threat Model on Patreon
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Jessie Chaffee @jessielchaffee.bsky.social · 11/04/2025
Margot! So happy to be connected here and THANK YOU for the comment support—I was so grateful for that 🙏❤️ And sending you strength and good wishes for your writing and health. And I’m excited to read your work!
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Billy Hanlon @bhanlon15.bsky.social · 08/04/2025
WSJ: 'The NIH Is Our Crown Jewel. Don’t Shatter It' 'Nowhere else on the planet offers anything close to our opportunities for medical innovation' www.wsj.com/opinion/the-...
wsj.com
Opinion | The NIH Is Our Crown Jewel. Don’t Shatter It
Nowhere else on the planet offers anything close to our opportunities for medical innovation.
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Billy Hanlon @bhanlon15.bsky.social · 07/04/2025
The Sick Times: 'Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC' H/T @betsyladyzhets.bsky.social @lisamccorkell.bsky.social thesicktimes.org/2025/04/07/l...
thesicktimes.org
Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC - The Sick Times
Lisa McCorkell, one of the founders of the Patient-Led Research Collaborative (or PLRC), recently stepped down after five years co-leading the organization. The Sick Times co-founder and managing edit...
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Cohen Center for Recovery from Complex Chronic Illness @coresinai.bsky.social · 07/04/2025
Long COVID and viral reactivation are linked. Our latest trial focuses on repurposing existing, broad spectrum antivirals to reduce symptoms in adults with #LongCOVID. Our clinical trial is currently recruiting! Email CoreResearch@mountsinai.org to inquire
Volunteers Needed
Long COVID
Clinical Trial
Icahn
School of Medicine at
Mount
Sinai
Do you have a confirmed diagnosis of Long Covid?
You may be eligible for a 6 month drug clinical trial involving antiviral drugs
You may qualify if:
• You are over 18
• You have a diagnosis of Long Covid from a physician
• You are HIV negative
• You are able to commute to our office
• Other criteria are considered as well
| Participation Involves:
• Being randomly assigned into one of three groups
• Truvada (drug)
• Selzentry (drug)
• Placebo
• Attend 6 in-person study visits
• Blood and saliva samples
• Completion of surveys online
Study goal:
We are investigating if antiviral medications have an effect on
Long Covid symptoms
IRB Approved
Effective Date: 12/17/2024
End Date:7/22/2025
Please email
CoreResearch@MountSinai.org
for more information
Location: 5 East 98th St, SB-18
Lead Researcher: David Putrino, PT, PhD
STUDY- 24-00088
Participation will be compensated up to $300
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MaskTogetherAmerica @togetherwemask.bsky.social · 05/04/2025
“Being immunocompromised, I need to avoid getting infected again with COVID or anything else, so wearing a face mask is essential.”— Behind the BreatheTeq KN95 is Katie Holten holding a sign that says, “STOP the COUP” supporting #MaskTogetherAmerica #Handsoff Public Health!
Behind the BreatheTeq KN95 is Katie Holten @katieholten holding a sign that says, “STOP the COUP” sharing her action with #MaskTogetherAmerica
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Lit Hub @literaryhub.bsky.social · 01/04/2025
Jessie Chaffee on Ray Bradbury’s “All Summer in a Day” and living in the shadow of long COVID.
buff.ly
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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Jessie Chaffee @jessielchaffee.bsky.social · 07/04/2025
Thank you so much—I really hope it raises awareness. And I'm so glad to hear there's more LC coverage ahead! 🙏❤️
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Violet Blue® @violetblue.bsky.social · 06/04/2025
Powerful, gorgeous, hard read that is also a little about Stonewall and ends up being a lot about resisting erasure. The Women's House of Detention seems like a pretty important thing to remember right now.
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Jessie Chaffee @jessielchaffee.bsky.social · 06/04/2025
Thank you so much for reading and sharing, @violetblue.bsky.social, and thank you for the kind words ❤️ And thank you for your ongoing coverage on C19 and LC 🙏❤️
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María Richardson @diatoma.bsky.social · 06/04/2025
"I subsist on teaspoons of life” #LongCovid essay by @jessielosch.bsky.social on @literaryhub.bsky.social with shout-outs to @patientled.bsky.social & #LongCovidMoonshot! (also featuring one of my favorite public libraries in niu yor 💜)
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The Sick Times @thesicktimes.org · 05/04/2025
An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases. Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up. bit.ly/42fSrue
A person wearing an eye mask and headphones lying on the ground in a public space, holding a sign with information about Severe ME/CFS Awareness Day in English and German. The text reads, “The Sick Times. An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases. By Sam Pearce.” What many people with Mild and Moderate ME and Long COVID do not understand — until it is too late — is the terrible progression of energy-limiting disease. The potential deterioration of quality of life is not “bad, a bit worse, and then worse again”; it is bad, worse — and then you fall off a cliff.
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Dr. Lucky Tran @luckytran.com · 05/04/2025
Spectacular view of 100,000 people attending the #HandsOff march in NYC
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Jessie Chaffee @jessielchaffee.bsky.social · 05/04/2025
www.mobilize.us/handsoff/eve...
mobilize.us
Hands Off! DIY Online Action · Hands Off
This is an online action - no street or zoom meet. Sign up to Phone-bank for US Congress Special Elections: [https://mobilize.us/s/Mq2gAI/a](https://mobilize.us/s/Mq2gAI/a) Hopefully flip the US Ho...
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Jessie Chaffee @jessielchaffee.bsky.social · 05/04/2025
www.mobilize.us/handsoff/eve...
mobilize.us
Hands Off! COVID Long-Haulers Fights Back · Hands Off
**Donald Trump and Elon Musk think this country belongs to them.** We are fighting back! They're taking everything they can get their hands on—our health care, our data, our jobs, our services—and da...
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Jessie Chaffee @jessielchaffee.bsky.social · 05/04/2025
Wishing I could be at today's #HandsOff2025 rally in person, but #longcovid is keeping me home. But I WILL be attending these virtual protests. Additional virtual opportunities in 🧵 #chronicillness #disability
mobilize.us
Hands Off! Disabled Community Fights Back · Hands Off
🚨 Donald Trump and Elon Musk think this country belongs to them. We are fighting back! 🚨 They're grabbing everything they can—our health care, our data, our jobs, our services—and daring the world to...
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Jessie Chaffee @jessielchaffee.bsky.social · 05/04/2025
Thank you so much, @bhanlon15.bsky.social ❤️
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Billy Hanlon @bhanlon15.bsky.social · 03/04/2025
Literary Hub: 'A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID' Jessie Chaffee: “For a moment, I am the girl, her existence of gray monotony broken by a sliver of sunlight while others revel...." lithub.com/a-single-ray...
lithub.com
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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Lisa Geiszler @melovewarrior.bsky.social · 01/04/2025
Well-written essay on living with Long Covid #LC #ME lithub.com/a-single-ray...
lithub.com
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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Jessie Chaffee @jessielchaffee.bsky.social · 05/04/2025
Thank you so much, Lisa ❤️
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Nadine Böke @nadineboke.bsky.social · 05/04/2025
Deze komt vandaag heel hard bij me binnen. Wat een mooi literair essay over leven met long covid, de impact ervan op je dagelijks leven, en het gevecht om erkenning. Ik ben iets minder ziek dan de schrijfster - ik kan oa een paar keer per week de deur uit en ong 4 uur p/d licht actief zijn. Maar..
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Jessie Chaffee @jessielchaffee.bsky.social · 05/04/2025
Thank you! ❤️
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Scissors @scissors.myatproto.social · 05/04/2025
“Because there are people resisting erasure.” “And resisting erasure will become both more difficult and more necessary.”
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Jessie Chaffee @jessielchaffee.bsky.social · 05/04/2025
Thank you so much for reading and for sharing ❤️
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Long Covid Advocacy @longcovidadvoc.com · 05/04/2025
📒A must read by @jessielchaffee.bsky.social Haunting, vivid & poignant. It weaves in the: ☀️ symbolism of Bradbury's 'All Summer in a Day' 📚 the setting of Greenwich Village & the prison turned library ✊ activism 🕳️ the quiet violence of absence we experience from #LongCovid
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Jessie Chaffee @jessielchaffee.bsky.social · 05/04/2025
Thank you so much for sharing, @longcovidadvoc.com, and thank you for all of the support and advocacy! 🙏 ❤️
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Long Covid UK @longcoviduk.bsky.social · 05/04/2025
A moving piece: “I feel the full weight of this missed day, how it sits upon all the other missings of these years with #LongCovid - Christmas with family…beach with my son…parties, concerts, time with friends, writing, reading, traveling, imagining… things I did when I wasn’t trapped in this body”
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Jessie Chaffee @jessielchaffee.bsky.social · 05/04/2025
Thank you so much for sharing, and thank you for all that you've done to support, connect, and advocate for the #longcovid community 🙏❤️
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Jessie Chaffee @jessielchaffee.bsky.social · 05/04/2025
Thank you so much, Rebekah, and sending you love and strength ❤️
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
Oooo... I actually need to stop in to Three Lives. I'll order from there!!
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
Happy Book Birthday! I just ordered a copy—it looks wonderful!! ☺️❤️
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
And love to my fellow long haulers, and to everyone living with chronic illness and disability, many of whom have sustained me, despite their own struggles—I thank you, I see you, and I desperately hope others will too. ❤️ #longcovid #longcovidawareness #chronicillness
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
Gratitude to my two guys who appear in this piece—my son and my husband, @brendankiely.bsky.social—who have loved and seen me every step of the way.
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
Gratitude to writers whose essential work on #chronicillness has made me feel less alone. @edyong209.bsky.social @margosteines.bsky.social @meghanor.bsky.social @thesicktimes.bsky.social @mileswgriffis.bsky.social @betsyladyzhets.bsky.social @porochista.bsky.social @filowenstein.bsky.social
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
Gratitude to activists and advocates who have fought for support for #longcovid sufferers for 5 long years. @angelamswinca.bsky.social @patientled.bsky.social @filowenstein.bsky.social @ahandvanish.bsky.social @longcovidsupport.bsky.social @longcovidadvoc.com @c19lap.bsky.social @sanders.senate.gov
Screenshot of essay excerpt about the U.S. Senate Committee Hearing on Long COVID:

Because there are people resisting erasure. There are people challenging the “post-pandemic” story, in which COVID is a historical blip rather than an ongoing and devastating narrative. One morning, a year-and-a-half into my illness, I watch the U.S. Senate Committee Hearing on Long COVID, a meeting that is only happening because of the advocacy of groups like the Patient-Led Research Collaborative and Long COVID Moonshot. Bernie Sanders introduces the meeting, and I weep as he states the simplest truths:

“Long COVID is a very serious illness that can have devastating consequences for those who contract it….Long COVID can include more than two hundred symptoms, including serious cognitive impairment and severe cardiovascular and neurological problems….Far too many patients with long COVID have struggled to get their symptoms taken seriously.”Screenshot of essay excerpt about long COVID patients who testified at the U.S. Senate Committee Hearing on Long COVID: 

None of this new to me, and yet hearing it acknowledged feels groundbreaking. Then the panelists give testimony. Rachel Beale, a mother of three, says, “My kids have grown accustomed to me being sick….Full recovery seems out of reach for me. I’ve been sick for almost three years.” Her appearance in person at the hearing is a physical sacrifice—it will trigger a days-long fatigue crash, she predicts. Nicole Heim, whose teenaged daughter has long COVID, testifies, “Long COVID stripped away my daughter’s life as she knew it.”

Angela Vázquez, the founder of Body Politic, a grassroots organization that connected and advocated for long COVID patients early in the pandemic, shares her prolonged journey to diagnosis—one impeded by disbelief and gaslighting, and made worse by the inequitable treatment she received as a woman of color. Then she says something that both resonates with and terrifies me: “We are living through what is likely to be the largest mass disabling event in modern history.”
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
Infinite gratitude to the doctors tirelessly seeking answers for #longcovid patients. I was fortunate to participate in trials run by @putrinolab.bsky.social @coresinai.bsky.social @virusesimmunity.bsky.social @hmkyale.bsky.social @polybiorf.bsky.social. They are heroes— "Supers," my son would say 💫
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
Thank you to Emily Firetog and @jessiegaynor.bsky.social for giving this piece a home. I’ve had #longcovid for three years, and I hope that if more people know what it is, and what it’s like, they’ll take precautions to avoid it. #LongCovidAwareness
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
Very grateful to have my essay about living with #longcovid, and the many missings it has wrought, up on @literaryhub.bsky.social.
lithub.com
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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Andrew Hume @andrewhume.bsky.social · 04/04/2025
“There are people resisting erasure. There are people challenging the ‘post-pandemic’ story, in which COVID is a historical blip rather than an ongoing and devastating narrative.” Stunning essay by @jessielchaffee.bsky.social lithub.com/a-single-ray...
lithub.com
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
Thank you so much, Andrew. I so appreciate this, and I'm so grateful for your support ❤️
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Katie Holten @katieholten.bsky.social · 04/04/2025
I love this story by @jessielchaffee.bsky.social for lots of reasons, not just because we share the same beautiful library and the shadow of Long COVID. Please read it! Grateful we have spaces like @literaryhub.bsky.social that share powerful stories like this. lithub.com/a-single-ray...
lithub.com
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
Thank you so much, @katieholten.bsky.social. So grateful for this response, and very grateful to now be connected. I'm so sorry that you are also living in this shadow. ❤️
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