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Jessie Chaffee

@jessielchaffee.bsky.social
114 followers 166 following 27 posts

Author of Florence in Ecstasy. Living with and writing about #longcovid lithub.com/a-single-ray-of-light-on… www.JessieChaffee.com

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Jessie Chaffee @jessielchaffee.bsky.social · 28/04/2025
I look forward to @memoirland.bsky.social’s Memoir Monday every week. Many thanks to @saribotton.bsky.social for including my @literaryhub.bsky.social essay about living with #longcovid in this week’s roundup! 🙏❤️
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Diane Mehta @dianemehta.bsky.social · 28/04/2025
After playing anagrams for several hours via Game Pigeon on my phone with my son, who is in college, he wrote between classes and said, “Mom, stop.” Fun to write this for @oldstermag.bsky.social thank you @saribotton.bsky.social oldster.substack.com/p/word-games
oldster.substack.com
Word Games
Diane Mehta on learning the frantic art of scrambling for words from her speedy and strategic 21-year-old son.
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Laura Helmuth @laurahelmuth.bsky.social · 23/04/2025
OH COME ON. NIH cancels a 34-year-old longitudinal study on women's health that started with 160,000 volunteers and continues to answer urgent questions about aging, heart disease, cancer & more 🧪 in @science.org
science.org
NIH cancels its first and largest study centered on women
The Women’s Health Initiative has produced numerous influential findings
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Violet Blue® @violetblue.bsky.social · 10/04/2025
Just doing my part to introduce the term "cooker" to the rest of the world: www.patreon.com/posts/covid-... #Covid #LongCovid #Vaccines #StillCoviding
patreon.com
Covid: April 10, 2025 | Threat Model
Get more from Threat Model on Patreon
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Billy Hanlon @bhanlon15.bsky.social · 08/04/2025
WSJ: 'The NIH Is Our Crown Jewel. Don’t Shatter It' 'Nowhere else on the planet offers anything close to our opportunities for medical innovation' www.wsj.com/opinion/the-...
wsj.com
Opinion | The NIH Is Our Crown Jewel. Don’t Shatter It
Nowhere else on the planet offers anything close to our opportunities for medical innovation.
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Billy Hanlon @bhanlon15.bsky.social · 07/04/2025
The Sick Times: 'Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC' H/T @betsyladyzhets.bsky.social @lisamccorkell.bsky.social thesicktimes.org/2025/04/07/l...
thesicktimes.org
Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC - The Sick Times
Lisa McCorkell, one of the founders of the Patient-Led Research Collaborative (or PLRC), recently stepped down after five years co-leading the organization. The Sick Times co-founder and managing edit...
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Cohen Center for Recovery from Complex Chronic Illness @coresinai.bsky.social · 07/04/2025
Long COVID and viral reactivation are linked. Our latest trial focuses on repurposing existing, broad spectrum antivirals to reduce symptoms in adults with #LongCOVID. Our clinical trial is currently recruiting! Email CoreResearch@mountsinai.org to inquire
Volunteers Needed
Long COVID
Clinical Trial
Icahn
School of Medicine at
Mount
Sinai
Do you have a confirmed diagnosis of Long Covid?
You may be eligible for a 6 month drug clinical trial involving antiviral drugs
You may qualify if:
• You are over 18
• You have a diagnosis of Long Covid from a physician
• You are HIV negative
• You are able to commute to our office
• Other criteria are considered as well
| Participation Involves:
• Being randomly assigned into one of three groups
• Truvada (drug)
• Selzentry (drug)
• Placebo
• Attend 6 in-person study visits
• Blood and saliva samples
• Completion of surveys online
Study goal:
We are investigating if antiviral medications have an effect on
Long Covid symptoms
IRB Approved
Effective Date: 12/17/2024
End Date:7/22/2025
Please email
CoreResearch@MountSinai.org
for more information
Location: 5 East 98th St, SB-18
Lead Researcher: David Putrino, PT, PhD
STUDY- 24-00088
Participation will be compensated up to $300
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MaskTogetherAmerica @togetherwemask.bsky.social · 05/04/2025
“Being immunocompromised, I need to avoid getting infected again with COVID or anything else, so wearing a face mask is essential.”— Behind the BreatheTeq KN95 is Katie Holten holding a sign that says, “STOP the COUP” supporting #MaskTogetherAmerica #Handsoff Public Health!
Behind the BreatheTeq KN95 is Katie Holten @katieholten holding a sign that says, “STOP the COUP” sharing her action with #MaskTogetherAmerica
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Lit Hub @literaryhub.bsky.social · 01/04/2025
Jessie Chaffee on Ray Bradbury’s “All Summer in a Day” and living in the shadow of long COVID.
buff.ly
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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Violet Blue® @violetblue.bsky.social · 06/04/2025
Powerful, gorgeous, hard read that is also a little about Stonewall and ends up being a lot about resisting erasure. The Women's House of Detention seems like a pretty important thing to remember right now.
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María Richardson @diatoma.bsky.social · 06/04/2025
"I subsist on teaspoons of life” #LongCovid essay by @jessielosch.bsky.social on @literaryhub.bsky.social with shout-outs to @patientled.bsky.social & #LongCovidMoonshot! (also featuring one of my favorite public libraries in niu yor 💜)
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The Sick Times @thesicktimes.org · 05/04/2025
An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases. Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up. bit.ly/42fSrue
A person wearing an eye mask and headphones lying on the ground in a public space, holding a sign with information about Severe ME/CFS Awareness Day in English and German. The text reads, “The Sick Times. An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases. By Sam Pearce.” What many people with Mild and Moderate ME and Long COVID do not understand — until it is too late — is the terrible progression of energy-limiting disease. The potential deterioration of quality of life is not “bad, a bit worse, and then worse again”; it is bad, worse — and then you fall off a cliff.
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Dr. Lucky Tran @luckytran.com · 05/04/2025
Spectacular view of 100,000 people attending the #HandsOff march in NYC
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Jessie Chaffee @jessielchaffee.bsky.social · 05/04/2025
Wishing I could be at today's #HandsOff2025 rally in person, but #longcovid is keeping me home. But I WILL be attending these virtual protests. Additional virtual opportunities in 🧵 #chronicillness #disability
mobilize.us
Hands Off! Disabled Community Fights Back · Hands Off
🚨 Donald Trump and Elon Musk think this country belongs to them. We are fighting back! 🚨 They're grabbing everything they can—our health care, our data, our jobs, our services—and daring the world to...
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Billy Hanlon @bhanlon15.bsky.social · 03/04/2025
Literary Hub: 'A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID' Jessie Chaffee: “For a moment, I am the girl, her existence of gray monotony broken by a sliver of sunlight while others revel...." lithub.com/a-single-ray...
lithub.com
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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Lisa Geiszler @melovewarrior.bsky.social · 01/04/2025
Well-written essay on living with Long Covid #LC #ME lithub.com/a-single-ray...
lithub.com
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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Nadine Böke @nadineboke.bsky.social · 05/04/2025
Deze komt vandaag heel hard bij me binnen. Wat een mooi literair essay over leven met long covid, de impact ervan op je dagelijks leven, en het gevecht om erkenning. Ik ben iets minder ziek dan de schrijfster - ik kan oa een paar keer per week de deur uit en ong 4 uur p/d licht actief zijn. Maar..
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Scissors @scissors.myatproto.social · 05/04/2025
“Because there are people resisting erasure.” “And resisting erasure will become both more difficult and more necessary.”
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Long Covid Advocacy @longcovidadvoc.com · 05/04/2025
📒A must read by @jessielchaffee.bsky.social Haunting, vivid & poignant. It weaves in the: ☀️ symbolism of Bradbury's 'All Summer in a Day' 📚 the setting of Greenwich Village & the prison turned library ✊ activism 🕳️ the quiet violence of absence we experience from #LongCovid
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Long Covid UK @longcoviduk.bsky.social · 05/04/2025
A moving piece: “I feel the full weight of this missed day, how it sits upon all the other missings of these years with #LongCovid - Christmas with family…beach with my son…parties, concerts, time with friends, writing, reading, traveling, imagining… things I did when I wasn’t trapped in this body”
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Jessie Chaffee @jessielchaffee.bsky.social · 04/04/2025
Very grateful to have my essay about living with #longcovid, and the many missings it has wrought, up on @literaryhub.bsky.social.
lithub.com
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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Andrew Hume @andrewhume.bsky.social · 04/04/2025
“There are people resisting erasure. There are people challenging the ‘post-pandemic’ story, in which COVID is a historical blip rather than an ongoing and devastating narrative.” Stunning essay by @jessielchaffee.bsky.social lithub.com/a-single-ray...
lithub.com
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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Katie Holten @katieholten.bsky.social · 04/04/2025
I love this story by @jessielchaffee.bsky.social for lots of reasons, not just because we share the same beautiful library and the shadow of Long COVID. Please read it! Grateful we have spaces like @literaryhub.bsky.social that share powerful stories like this. lithub.com/a-single-ray...
lithub.com
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
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