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Jess Badger

@jesshoneybadger.bsky.social
1.4K followers 1.3K following 736 posts

Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes. jesshoneybadger.substack.com

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Reposted by Jess Badger
Mrs. Betty Bowers @mrsbettybowers.bsky.social · 11/04/2026
The amazing, letter-perfect performance of NASA this week is a ferocious rebuke to the right-wing fools who constantly tell us that for-profit businesses always do a job better than the government.
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Jess Badger @jesshoneybadger.bsky.social · 10/04/2026
The earth joy is my favorite part about spending the week with my close personal friends Christina, Victor, Reid, and Jeremy.
A 4 panel cartoon with flat illustrations.
Orion looking at moon says “this is incredible!”
Jacki at nasa says, “copy, moon joy.”
Earth loves go for toilet, amaze amaze amaze, copy heart copy bracelet, and Carroll.
Leah and Kelsey at nasa: “copy, earth joy.”
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Jess Badger @jesshoneybadger.bsky.social · 09/04/2026
This is what you would need to do too so it’s not like I’m doing something miraculous either. It’s realistic. My therapist and I were talking about this yesterday and they were able to deliver that compliment beautifully without ever making me feel like inspiration porn.
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Jess Badger @jesshoneybadger.bsky.social · 24/03/2026
I know it's been a while since I've posted on here. The needs of my body always come first. I hope this post allows folks with ME to feel seen in some of their fears and insight to those who don't understand. #pwME #ME/CFS
open.substack.com
How 500 Days of Bedrest is Actually Going
Featuring the backstory of a secret project I'm working on.
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Jess Badger @jesshoneybadger.bsky.social · 04/02/2026
My alma-mater dropped this today. This is from THE bartonella guy, not a MECFS guy. I plan to read this and report back shortly. @tomkindlon.bsky.social —putting this one on your radar in case you missed it.
news.ncsu.edu
Bartonella, Babesia and Chronic Fatigue Syndrome
A pilot study has found evidence of Bartonella and Babesia infection in almost half of 50 blood samples from patients suffering chronic fatigue syndrome.
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Jess Badger @jesshoneybadger.bsky.social · 28/01/2026
Kristi Noem is also a bird-legged hoe.
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Reposted by Jess Badger
George Poles @georgepoles.bsky.social · 29/07/2025
Long Covid - a thread. So, living with long covid isn’t great. I’m a relatively mild case and I’m managing it reasonably well with pacing but ‘managing with pacing’ still means a huge impact on life. 1/9
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Jess Badger @jesshoneybadger.bsky.social · 08/07/2025
My child, on turning 13: “This means I have to take off my shoes at the airport, doesn’t it?”
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Jess Badger @jesshoneybadger.bsky.social · 05/07/2025
dear
july:
help
me
find
the deepest
joy in the
smallest
hings
- Feelings
@_tiny -Feelings
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Jess Badger @jesshoneybadger.bsky.social · 04/07/2025
@delia_cai
me (not handling things) to my friend (also not handling things): I think you handled it perfectly
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Jess Badger @jesshoneybadger.bsky.social · 01/07/2025
Such a good point that I had never actually thought through before. Why are the patients being the one targeted over Medicaid fraud? We can’t even really do it!
Craig Christ, Ph.D. 
•••
There is something I realized last night when I heard some Republican complaining about all the "fraud" in Medicaid.
Medicaid does not pay people, they pay insurance companies or doctors. If there is
"fraud", then why are regular people the target.
Want to eliminate Medicaid fraud? Get rid of the insurance companies and doctors that file false claims to Medicaid for reimbursement.
That's your fraud. Not old people in nursing homes. Not disabled kids or poor kids.
Universal health care needs to happen and we can use their own stupid excuse against them when it is time.
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Jess Badger @jesshoneybadger.bsky.social · 12/06/2025
I wrote a thing!
open.substack.com
I put my kids in Pfizer's COVID vaccine trial—here's what really happened behind the scenes
Plus, the history of mRNA vaccines. (Hint: It didn't start with COVID.)
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Reposted by Jess Badger
Brian Tyler Cohen @briantylercohen.bsky.social · 22/04/2025
RFK Jr. is launching a government registry to track autistic Americans using private medical records.
newrepublic.com
RFK Jr. Set to Launch Disease Registry Tracking Autistic People
And he’s using private medical records to make it happen.
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Reposted by Jess Badger
Anirul Bene @anirula.bsky.social · 23/04/2025
It doesn’t matter. It’s inside the insurance cos, and Medicare/Medicaid, VA Medical patient data is all either already accessible or at risk via DOGE. And the EO for data sharing between gov’t orgs. They’ll use AI to also parse school records, social media, etc www.hipaajournal.com/sen-warren-s...
hipaajournal.com
Sen. Warren Seeks Answers from RFK Jr. Ahead of Potential Appointment as HHS Secretary
Sen. Elizabeth Warren (D-MA) has written to Robert F. Kennedy Jr. seeking answers about his plans for HHS policies and the HIPAA regulations should he be Sen. Elizabeth Warren (D-MA) has written to Ro...
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Jess Badger @jesshoneybadger.bsky.social · 17/04/2025
Hope this helps.
open.substack.com
what illnesses are we supposed to be worried about today?
Regularly updated overview of public health threats in the United States by a microbiologist.
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Jess Badger @jesshoneybadger.bsky.social · 07/04/2025
I enjoyed that the Ratliff family set sail without a clear plot resolution. Keeps things open for them to lose everything and retreat to the small town they own in Canada, perhaps? White Lotus, meet Schitt’s Creek.
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Reposted by Jess Badger
Jerad Walker @jeradwalker.bsky.social · 07/04/2025
Hear me out. An HBO mockumentary reality tv series called The Ratliffs that follows the disgraced North Carolina family on their road to redemption. #thewhitelotus
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Jess Badger @jesshoneybadger.bsky.social · 25/03/2025
I bought a new phone case and added a new screen protector so all the messages I'm sending feel extra fancy today.
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Jess Badger @jesshoneybadger.bsky.social · 25/03/2025
When I look at this I think, “yup, severe MECFS is exactly where I am.”
C.H. Romatowski
@chromatowski.bsky.social
NIH recently found 1 in 22 ppl who'd had Covid developed
ME/CFS. The "mild" form of that disease, as @julialmv.bsky.social
's graph shows, means losing capacity to do 50% of your daily activities.
What would you give up?
Friends? Time w/your kids? Could you cut work hours in half w/o losing yr job?
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Jess Badger @jesshoneybadger.bsky.social · 20/03/2025
#BM100
open.substack.com
I have discovered the single greatest sport achievement of all time.
Here's the story of the closest finish in the greatest test of human stamina.
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Jess Badger @jesshoneybadger.bsky.social · 15/03/2025
Just popping in to remind you that your weird friend is still weird. Just paid $24.99 to watch the LGT World Women’s Curling Championship on my personal television. Hope you are also able to carpe diem your Saturday afternoon!
A photograph of the posters television showing curling tournament on it. The photo shows the end of the sheet of ice with one curling stone in the middle. The United States is playing Switzerland.
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Jess Badger @jesshoneybadger.bsky.social · 14/03/2025
I went outside at 3am to see the lunar eclipse so you didn’t have to. The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort. Nature: 10/10
A photo of the moon using a phone camera. The moon is small but slightly red and centered. Some 35 mm film sprockets are along the side.
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Jess Badger @jesshoneybadger.bsky.social · 14/03/2025
I went outside at 3am to see the lunar eclipse so you didn’t have to. The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort. Nature: 10/10
A photo of the moon using a phone camera. The moon is small but slightly red and centered. Some 35 mm film sprockets are along the side.
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Jess Badger @jesshoneybadger.bsky.social · 12/03/2025
mmmyoursquid
People love to talk about whether or not disabled people can work but if you can work just fine and your disability is destroying your ability to have a life outside of work (because work takes all your energy and more)
Dead silence. Nobody cares.
eenymeenypia
File this under, oh you can be active for 4 hours? You can work part-time. Um no, I have to get ready for work (30 min) get to work (15 min) get home from work (15 min) feed myself all day (30 min) maintain myself, my home and my life (15 min, yeah right), which leaves 15 min for work and absolutely nothing else.
chameleonchild
This is so accurate, back after I'd relapsed I wanted to try and go in for one class at school so I could still stay in contact with the education system. I let slip during a meeting that I managed to drag myself to that I could manage about 4 hours of activity a week, which the teacher sprang on to mean I was being lazy for just trying to get to 1 hour class.
Never matter that it was 30 minutes travel, that I would have to get washed and dressed, that I would probably still need to recover for 3 days from it.
Far too often abled people see the things they do easily as "non activities"
', they don't realise that for many disabled people these things
have to be carefully planned and measured, and sometimes they simply can't be done.
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Jess Badger @jesshoneybadger.bsky.social · 11/03/2025
I love The Diplomat, but it surprises me how often they talk about clothing, choose clothing for each other, or change clothes in front of each other. Those involved in diplomacy, when you get a minute, is this a thing? 😂
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Reposted by Jess Badger
Nate's Myth @natesmith.dev · 08/03/2025
ok i admit it's important to keep your vitamins in a pill organizer that looks very different from the one you keep your dog's pills in, but at least i'm not getting worms this week
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Jess Badger @jesshoneybadger.bsky.social · 08/03/2025
open.substack.com
can you spot the misinformation?
March 7, 2025 Some people blast you all day with information and no translation. I'm trying NOT to do that.
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Reposted by Jess Badger
Peter Morley ♿️ @petermorley.bsky.social · 05/03/2025
I fight through my tears everyday to keep you updated on Social Security & dismantling of major health care programs. I want you to know there are MILLIONS of grassroots people working on this. The judicial cases DO matter. We must live in hope NOT fear. As someone on SSDI, I get it. NEVER GIVE UP!
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Reposted by Jess Badger
Jess Badger @jesshoneybadger.bsky.social · 05/03/2025
I hope you are right about “no chance of passing.” You are the only one I would trust to say that BTW.
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Jess Badger @jesshoneybadger.bsky.social · 05/03/2025
Disability sky: What mobility devices do you use that benefit you?
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Jess Badger @jesshoneybadger.bsky.social · 05/03/2025
Having Democratic wardrobes collectively reflect the same wavelength of light is the sort of strong leadership we are looking for in times like these. 🤦🏻‍♀️ For fuck sake.
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Reposted by Jess Badger
Allison Gill @muellershewrote.com · 01/03/2025
NEW: Senator Marshall (R-KS) RUNS AWAY, fleeing his own town hall after being asked about DOGE firing Veterans. MAKE HIM GO VIRAL.
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Jess Badger @jesshoneybadger.bsky.social · 28/02/2025
Sent this out to 3000k folks on Substack this morning. It includes public health updates about seasonal flu, H5N1 flu, TB, measles, and a few virus rumors flying around as well as Medicare, Medicaid, USAID. Lots of drama llamas out there sharing misinformation so I want to clear things up.
open.substack.com
public health news updates galore!
February 28, 2025: Updates about seasonal & avian flu, COVID, measles, TB, mystery viruses, and where the budget cuts are happening. I also explain what approach I take to keeping you updated.
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Jess Badger @jesshoneybadger.bsky.social · 25/02/2025
Didn’t love what I’ve been seeing in the news about the H5N1 avian flu. It’s not all bad but I’m a little uneasy. Here is an update from me, your friendly neighborhood microbiologist. Just what you need to know with an easy to skim format and all my sources!
open.substack.com
flu update: all your questions answered
February 25, 2025: The newest developments are not moving in our favor.
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Reposted by Jess Badger
Robert Reich @rbreich.bsky.social · 23/02/2025
The wages of the richest 1% have skyrocketed 182% since 1979.  Meanwhile, the wages of the bottom 90% have seen just 44% growth.  Trickle down economics was always a hoax.
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Reposted by Jess Badger
Adrienne Asher @asheradrienne.bsky.social · 24/02/2025
Researchers have identified a nanobody that effectively neutralizes all tested Omicron subvariants, SARS-CoV-1, & pangolin coronavirus. This has potential as an intranasal prophylactic & could help with development of a universal vaccine against current & future sub-viruses. -Ruth Ann Crystal, MD
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Reposted by Jess Badger
Jess Badger @jesshoneybadger.bsky.social · 23/02/2025
Congress approved an extension in late December. The current administration could do the same, if they choose to. 100% fixable. In fact Trump has done it before. But I’ll make sure not to blame Trump because ::checks notes:: Peter Anderson really doesn’t want me to.
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Jess Badger @jesshoneybadger.bsky.social · 23/02/2025
@matthewcort.land I have been trying to figure out why this isn’t news either. It’s been something I’ve been aware of since the new 2025 Medicare manual was mailed to me. No one is talking about it and I’m worried it will slip through the radar:
open.substack.com
medicare telehealth is set to expire in 38 days.
Why doesn't anyone at Medicare know anything?
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Reposted by Jess Badger
Tom Robinson @tomrobinson.com · 22/02/2025
Video snippet courtesy of Belfast legend David Holmes on Instagram...
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Reposted by Jess Badger
Catherine Rampell @crampell.bsky.social · 23/02/2025
Kennedy Center ticket sales dropped roughly 50 percent week-over-week after Trump announced his takeover www.washingtonpost.com/entertainmen...
washingtonpost.com
As sales drop, artists weigh canceling Kennedy Center shows in protest
Kennedy Center artists are deciding to cancel or perform. Ticket sales dropped roughly 50 percent after Trump announced he would take over the venue, sources said.
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Jess Badger @jesshoneybadger.bsky.social · 21/02/2025
Here’s an update on my convo with Medicare today. Buckle up. If you are on disability, this is REALLY important.
open.substack.com
medicare telehealth is set to expire in 38 days.
Why doesn't anyone at Medicare know anything?
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Reposted by Jess Badger
Long Covid Families @longcovidfam.bsky.social · 21/02/2025
A new study found that 78% of U.S. physicians see Long COVID as a public health issue, but only 7% feel very confident diagnosing it. This highlights the urgent need for better training and research so doctors can better support patients, especially children and families navigating Long COVID.
roi-nj.com
National expert: Study shows doctors not comfortable treating long COVID | ROI-NJ
As COVID cases continue to hit the area – and the country – the lasting impact of previous diagnosis remains. A study conducted by the global data intelligence company Morning Consult on behalf of the...
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Jess Badger @jesshoneybadger.bsky.social · 21/02/2025
How many of you are #disabled and use #medicare? It looks like Medicare is going to end most #telehealth on March 31, 2025. None of my doctors are aware and based on my phone call today (details coming), they are clueless. Anyone have info?
medicare.gov
Telehealth
Use telehealth insurance coverage through Medicare to get consultation & medical health services from care providers who aren't at your location.
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Jess Badger @jesshoneybadger.bsky.social · 20/02/2025
How you guys holding up today? Like really really?
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Jess Badger @jesshoneybadger.bsky.social · 18/02/2025
Nothing makes you want to do dishes more than NOT BEING ABLE TO DO DISHES. #mecfs #disability
evilwriter37
I'm so sick and tired of people thinking that disabled people are lazy. Like, I want to do the chores around the house, I want to go out with friends, I want a job. My body literally just will not let me.
Having a job would probably kill me.
It's not fun hanging around on the couch or in bed all day, knowing there are things you want to do but cant.
Stop calling us lazy.
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Jess Badger @jesshoneybadger.bsky.social · 18/02/2025
Does he know that illegal immigrants can’t vote or am I making the mistake of applying logic again?
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Jess Badger @jesshoneybadger.bsky.social · 17/02/2025
@whitneydafoe.bsky.social is able to eat again after 11 years! Fellow ME/CFS folks, this is a big deal. How wonderful to see improvement in quality of life in one of our own! Happy Monday!
whitneydafoe.com
I Started Eating Food Again in 2024...What Will 2025 Bring?
I started eating real food again in 2024!...I have now stopped the Peptamen food formula completely, and get all my calories from real food!...It has come time that I feel stable enough with this new ...
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Jess Badger @jesshoneybadger.bsky.social · 17/02/2025
“My name is all the way Ray May. I don’t do nothing halfway.” Eddie Murphy got me good on SNL. 😂😂😂
A photo of Eddie Murphy dressed in khaki outfit with half of his hair in braids.
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