MS Sucks 🎗 @itreallydoes.com · 15hUSPS: “We’re broke, stamps need to go up another 20¢.” Also USPS: My package went Providence → Springfield → Providence → Springfield, adding roughly 175 completely unnecessary miles on a tour of New England to its journey. Have we considered just… sending shit toward its destination? 140
MS Sucks 🎗 @itreallydoes.com · 23/09/2026My postage printer is developing a personality and I don’t like it. I like my Rollo printer for the most part, but the self-congratulatory label wasting could go. I bought this thing to print postage, not to watch it stroke its own ego every time it updates. 2112
MS Sucks 🎗 @itreallydoes.com · 14/09/2026 CAR-T for #MS hit an important safety wall www.reuters.com/business/hea...reuters.comNovartis pauses trials of experimental cell therapy after three deathsNovartis said on Tuesday it paused eight clinical trials of an experimental cell therapy, called rap-cel, targeting autoimmune and neurological disorders in late August, after three patients died. 062
MS Sucks 🎗 @itreallydoes.com · 05/08/2026www.youtube.com/watch?v=62vs... by @brandon-beaber.bsky.socialyoutube.comA New Remyelinating Drug For MS: CN045YouTube video by Dr. Brandon Beaber 182
MS Sucks 🎗 @itreallydoes.com · 24/07/2026www.nature.com/articles/s44...nature.comA novel small molecule remyelination therapy for multiple sclerosis - npj Drug Discoverynpj Drug Discovery - A novel small molecule remyelination therapy for multiple sclerosis 060
MS Sucks 🎗 @itreallydoes.com · 08/07/2026I’ve been a little quiet lately. Buried in a project that has evolved a few times and has become my fav project yet. #MS has a way of reminding you that your brain isn’t always playing on the same difficulty level so I set out to build something to eliminate some friction. 🤓 🧡 15220
MS Sucks 🎗 @itreallydoes.com · 20/05/2026Mia had a service training session today. After 45 min she snuck away to find a cool, quiet place to nap under the shrubs. I do the same thing when the #MS fatigue hits. Although, I try to avoid the whole crawling under the shrubs part 😆 3190
Reposted by MS Sucks 🎗Emma Rogan 🇵🇸 @emmadragon.bsky.social · 13/04/2026Please share 🙏🏽 Approx. 50-65% of people living with #MS in Ireland have challenges with cognition. #COB-MS trial was developed with a holistic focus on rehab in MS, through an individualised intervention measured taught through OT participation. Recruitment in #Galway & #Dublin open! #spéirghorm 12419
Reposted by MS Sucks 🎗S C O T T @msandlymphomasux.bsky.social · 01/04/2026A review of PIP is underway in the UK and those of us with #MS have been invited by @mssocietyuk.bsky.social to get involved. If you have the time & energy, please feel free to contribute as you wish 😀 www.mssociety.org.uk/research/new...mssociety.org.ukHave your say: PIP Review and tips for sharing your views and experienceThe Review into Personal Independence Payment (PIP) has started. Have your say today! 121
Reposted by MS Sucks 🎗Wheelie Out There @wheelieoutthere.bsky.social · 30/03/2026My pal Dave got dxed w #MultipleSclerosis while in the Navy. He's a leader in the Illinois MS community & helped me get my life back on track. Here he is in his "Proud uncle of a Marine" cap. Is there a vet in your life who has MS? Find support for #veterans w MS: tinyurl.com/te65xnek #disability 041
Reposted by MS Sucks 🎗ukmsregister @ukmsregister.bsky.social · 19/03/2026Did you know that the UK MS Register host the expression of interest for the Octopus trial? This is a revolutionary trial that will transform the way we test treatments for Progressive Multiple Sclerosis (MS). You can read the latest update from the trial here: blog.msregister.org/octopus-upda...blog.msregister.orgOctopus Update February 2026 - UK MS Register BlogWe know many of you have been waiting a long time. We are very grateful for your patience and for staying with us. Your support helps make this trial possible. Thank you to those of you who gave us fe... 172
Reposted by MS Sucks 🎗American Brain Foundation @abfbrain.bsky.social · 17/02/2026By analyzing levels of the protein sNfL in blood serum, researchers at @ucl.ac.uk have identified two distinct subtypes of multiple sclerosis (MS), which appear to progress at different rates and begin in different brain regions. #MultipleSclerosisResearch #MSResearch 0111
Reposted by MS Sucks 🎗brandon-beaber.bsky.social @brandon-beaber.bsky.social · 18/02/2026Multiple Sclerosis Diagnostic Criteria Explained in graphical form youtu.be/GSHrMn9w0lM?...youtu.beMultiple Sclerosis Diagnostic Criteria ExplainedYouTube video by Dr. Brandon Beaber 0103
MS Sucks 🎗 @itreallydoes.com · 06/02/2026Interesting take on Gen-X physiology — feels accurate. Grew up unsupervised taking apart TVs, VCRs, Atari, kitchen appliances… then got yelled at/hit with a belt, wooden spoon, or that wooden beach chair arm that every house seemed to have. Wouldn't trade it for anything 😂 youtu.be/G5YmIqYSqA0youtube.comPsychology of Gen XYouTube video by Psychology Simplified 2181
MS Sucks 🎗 @itreallydoes.com · 29/01/2026Thanks @theabilitytoolbox.bsky.social for adding our MS Sucks journal to your site. Follow them and check out their resources for people with disabilities. theabilitytoolbox.comtheabilitytoolbox.comThe Ability Toolbox: Mental Health, Disability & Chronic Illness Life HacksThe Ability Toolbox is a support community for people with disabilities, chronic illnesses, & mental health conditions to share life hacks. 0152
MS Sucks 🎗 @itreallydoes.com · 22/01/2026FDA Rejects Tolebrutnib by @brandon-beaber.bsky.social www.youtube.com/watch?v=9LFd...youtube.comFDA Rejects Tolebrutnib (MS Drug)YouTube video by Dr. Brandon Beaber 080
MS Sucks 🎗 @itreallydoes.com · 20/01/2026B-Cell Eviction Day! It was 10° F when I left the house this morning. Usually going out in this temp is a big NOPE for me, but I went with enthusiasm because I’m so over this crap gap. 1220
MS Sucks 🎗 @itreallydoes.com · 18/01/2026Downloaded life. Got MS instead. 0/5 stars. Would not recommend. 0153
MS Sucks 🎗 @itreallydoes.com · 16/01/2026multiplesclerosisnewstoday.com/news-posts/2...multiplesclerosisnewstoday.comFind gets new funding for treatment to repair damaged myelinFind Therapeutics secured CA$10 million in funding to continue advancing tasronetide, its treatment to restore damaged myelin. 192
Reposted by MS Sucks 🎗Brian #MSAwareness @stormingb81.bsky.social · 15/01/2026@griffjc.bsky.social Please don’t block! My name is Brian, I’m a veteran and have #MS. I’m FUNDRAISING for the MS Society and doing squares for the CFP Championship game $20 a square. Half to pot half to fundraiser benefiting the MS Society. Would you like any? 052
MS Sucks 🎗 @itreallydoes.com · 15/01/2026New to #MS and your doc just handed you a wad of pamphlets and said “go home, choose one and let me know”? Here’s a plain-English breakdown of the stronger MS treatment options — specifically the CD20 meds — and what they attempt to do. mssucks.co/lmssucks.coMS Meds, Explained Like a Human: Part 1MS Meds Explained Like a Human: How Treatments Work, What to Expect, and the Stuff They Don’t Tell You 2143
MS Sucks 🎗 @itreallydoes.com · 01/01/2026New Year, same symptoms. Same gremlin immune system refusing to read the god damn manual. If you made it to midnight, congrats 🥳. My New Year Eve tradition, like many other days of the year, kicked off around 7PM when I took my meds and crawled under my weighted blanked. #MS still sucks in 2026 2240
Reposted by MS Sucks 🎗brandon-beaber.bsky.social @brandon-beaber.bsky.social · 24/12/2025Does Salt Cause Multiple Sclerosis? youtu.be/bu_kqoKuKSw?...youtu.beDoes Salt Cause Multiple Sclerosis?YouTube video by Dr. Brandon Beaber 162
MS Sucks 🎗 @itreallydoes.com · 24/12/2025MS drug commercials live in a fantasy world. Rooftop DJs. Rock climbers. Endless energy. Zero symptoms. Reality? Fatigue, heat intolerance, brain fog, medical debt, and just trying to make it through the damn day. These ads do no favors for people with #MS mssucks.co/commercialsmssucks.coMS Drug Commercials: Fantasy vs RealityMS drug commercials sell a fantasy that hurts real people. A blunt look at how pharma ads misrepresent multiple sclerosis and make patients less believed. 10379
MS Sucks 🎗 @itreallydoes.com · 15/12/2025Happy Monday. 🌈✨ I’ve officially completed my big achievement for the day: putting on socks and shoes. That heroic feat alone has me ready for a nap. #MSSucksmedia.tenor.comdonald duck is laying in a bed with his eyes closedAlt: donald duck is laying in a bed with his eyes closed 2222
Reposted by MS Sucks 🎗brandon-beaber.bsky.social @brandon-beaber.bsky.social · 03/12/2025Alcohol & Multiple Sclerosis: Can You Drink? youtu.be/mmDyu_GT3aI?...youtu.beAlcohol & Multiple Sclerosis: Can You Drink?YouTube video by Dr. Brandon Beaber 164
MS Sucks 🎗 @itreallydoes.com · 03/12/2025PIPE-307, a “promising” remyelination drug just face-planted in Phase 2. Missed the primary endpoint, missed the secondary endpoint, and basically gave us nothing but a shrug. Hope is great, but data is louder — and this data said “nah.” ir.contineum-tx.com/news-release...ir.contineum-tx.comContineum Therapeutics Reports Topline Data From Its Phase 2 PIPE-307 VISTA Trial for the Treatment of Relapsing-Remitting Multiple Sclerosis (RRMS) | Contineum Therapeutics- PIPE-307 demonstrated an acceptable safety and tolerability profile - PIPE-307 treatment did not result in a significant change in binocular 2.5% low contrast letter acuity (LCLA) SAN DIEGO --(BUSIN... 1100
MS Sucks 🎗 @itreallydoes.com · 03/12/2025youtu.be/HOTDtZQLo2k?...youtu.beThe NEW 2024 MS Diagnostic Criteria Explained (Game-Changer!)YouTube video by Aaron Boster MD 1103
Reposted by MS Sucks 🎗Lixen Blackheart @madcatterteaparty.bsky.social · 10/11/2025Good afternoon- lovely guests of the tea party. I'll be hosting a Charity Stream For Multiple Sclerosis for MSTrust on the 05/12/25 along with friends, Find the details of this invitation below! #CharityStream #MSTrust #twitch #warhammer40k #gaming #Charity #MultipleSclerosis 042
MS Sucks 🎗 @itreallydoes.com · 08/11/2025As a GenX’er this cracks me up because it’s so true 😆 youtu.be/t2uzCYPcE3I?...youtu.beChild Casino & Fight Club - Chuck E. CheeseYouTube video by The Fat Files 190
Reposted by MS Sucks 🎗StarriiBunnii⭐🌟🐰🍉 @starriibunnii.bsky.social · 08/11/2025Hello everybunny! My wife, Dragon will be hosting a charity stream for the MS (Multiple Sclerosis) Society! I'd really appreciate it if friends could join in and watch or even lurk during this time! www.twitch.tv/theclockwork... #twitchstreamer #twitch #pngtuber #vtuber #audhd #disabled #mstwitch.tvTheClockworkDragonTavern - TwitchGameOver MS! Retro Weekender charity stream. !donate 184
MS Sucks 🎗 @itreallydoes.com · 07/11/2025Justice has been served. After years of Facebook tracking my every move, which led me to close the account, I’ve finally been compensated—with a life-changing $4.01. I might retire. Or buy half a latte and reflect on my newfound wealth 🤷🏻♀️ 1181
MS Sucks 🎗 @itreallydoes.com · 01/11/2025Mia’s officially home — 3 months old, cute as hell, and already running the place. She came all the way from Mississippi, thanks to an amazing rescue that literally hopped in a van last night and drove 1037 miles to get her to me. 3382
Reposted by MS Sucks 🎗brandon-beaber.bsky.social @brandon-beaber.bsky.social · 29/10/202510 Strange Things About Multiple Sclerosis youtu.be/FyTTRLjEpjM?...youtu.be10 Strange Things About Multiple SclerosisYouTube video by Dr. Brandon Beaber 082
Reposted by MS Sucks 🎗Chiko | Digital Creator @chikocfm.bsky.social · 22/02/2025📚✨Explore the realities and triumphs of navigating life with an invisible chronic illness. Discover the insights and resilience within these pages. Learn More >>> amzn.to/49kKN4B #Fibromyalgia #InvisibleIllness #SurvivalStoriesamzn.toDiary of A Fibromyalgia Warrior: Unseen Struggles: Navigating Life and Survival with an Invisible Chronic IllnessBuy Diary of A Fibromyalgia Warrior: Unseen Struggles: Navigating Life and Survival with an Invisible Chronic Illness by Matenda, Chiko (ISBN: 9798866136032) from Amazon's Book Store. Everyday low prices and free delivery on eligible orders. 081
MS Sucks 🎗 @itreallydoes.com · 21/10/2025#MS fatigue isn’t “being tired.” It’s your body burning through energy faster than a crackhead through a dime bag. Yeah, I said it. New post → mssucks.co/k #MSSucks #MSFatiguemssucks.coSick and Tired of Being Sick and Tired: MS FatigueMS fatigue isn’t “just being tired.” It’s neurological chaos that drains your battery faster than caffeine can load it. Spoiler: naps don’t fix this. 7324
Reposted by MS Sucks 🎗Paul Langer @paullanger.bsky.social · 18/10/2025Today I'm marching in NYC - No Kings! Tomorrow I'm riding 30 miles circling Manhattan to raise money to find a cure for Multiple Sclerosis I've been living with MS since '87 & I am extremely lucky to still be able to ride a bike Help us find a cure events.nationalmssociety.org/participant/...events.nationalmssociety.orgI'm participating in Bike MS: New York City 2025!I’m participating in Bike MS: New York City 2025 to raise funds for the National Multiple Sclerosis Society. Nearly one million people in the US are living with the challenges and uncertainty of mult... 2131
MS Sucks 🎗 @itreallydoes.com · 10/10/2025For this #MSFriday some light reading and coffee. Glad it’s the last day here. Woke up this morning and my immune system choose vilonece. Ready to go back home to my own bed. 1241
MS Sucks 🎗 @itreallydoes.com · 08/10/2025www.youtube.com/watch?v=oxd3... Dr. Beaber always does a great job translating the data for us medically challenged. Follow him if you already don't: @brandon-beaber.bsky.socialyoutube.comMultiple Sclerosis Starts Years Before Symptom OnsetYouTube video by Dr. Brandon Beaber 0194
Reposted by MS Sucks 🎗Kevin Byrne @kevjbyrne.bsky.social · 07/10/2025Rest stop 1: 25 miles Please share this special message and link: mssociety.donordrive.com/participant/... I will personally match every donation received today to my fight, up to $10,000! #NeverStopNeverQuitForThem #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon 173
Reposted by MS Sucks 🎗Tina Meyer 🕊🫂#resist🇺🇦 4 democracy @tinameyer.bsky.social · 07/10/2025Interesting 👇 Yes, the need to tackle a root cause of the #MS worsening is still unmet ... As well as #remylination FYI @itreallydoes.com www.biospace.com/drug-develop...biospace.comBeyond BTK Inhibitors: Next Gen MS Treatments Could Transcend Symptom ManagementWhile Bruton’s tyrosine kinase inhibitors are often hailed as the next big breakthrough in multiple sclerosis, Immunic Therapeutics and others are leveraging neuroprotective targets and remyelination ... 1103
MS Sucks 🎗 @itreallydoes.com · 07/10/2025Few days in Bermuda. The sea is calm, the sky is dramatic, and my MS is currently pretending to behave. Let’s see how long that lasts, it’s early 😆 #MSLife #MSSucks 1150
MS Sucks 🎗 @itreallydoes.com · 04/10/2025I bet I've hidden more dead bodies than you have. New Blog Post: When #MS becomes your crappy boss. Read ⮕ mssucks.co/j 0130
Reposted by MS Sucks 🎗Paula Krebs @paulakrebs.bsky.social · 28/09/2025Just $70 short of my goal, in case Multiple Sclerosis research is a cause you support. #BikeMS events.nationalmssociety.org/participants... 281
Reposted by MS Sucks 🎗PinkTweets @pinktweets.bsky.social · 26/09/2025@itreallydoes.com @elizabethjacobs.bsky.social @vivianofthesierras.bsky.social www.theguardian.com/society/2025...theguardian.com‘Exciting’ clinical results offer hope for new class of MS therapiesCambridge trial suggests diabetes drug with antihistamine can partially repair damage in the nervous system 4125
Reposted by MS Sucks 🎗brandon-beaber.bsky.social @brandon-beaber.bsky.social · 24/09/2025Best Multiple Sclerosis Medicine for Preventing Disability youtu.be/3wstm5izx2o?...youtu.beBest Multiple Sclerosis Medicine for Preventing DisabilityYouTube video by Dr. Brandon Beaber 342
Reposted by MS Sucks 🎗Kevin Byrne @kevjbyrne.bsky.social · 24/09/2025Please support my fight against the devastating effects of multiple sclerosis. I WILL every donation with my blood, sweat, and smiles! #NeverStopNeverQuitForThem #NSNQFT #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon mssociety.donordrive.com/participant/...mssociety.donordrive.comI'm participating in Bike MS: Oregon 2025!I’m participating in Bike MS: Oregon 2025 to raise funds for the National Multiple Sclerosis Society. Nearly one million people in the US are living with the challenges and uncertainty of multiple sc... 021