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MS Sucks 🎗

@itreallydoes.com
20K followers 18K following 1.1K posts

Web Developer #Joomla | Beekeeper | Widow Disabled USMC Vet | Living with #DDD & #MS 📓 MS Sucks: a snarky journal for tracking your MS bullshit → mssucks.co/links ☕️ Buy me a coffee ➜ buymeacoffee.com/mssucks

PostsRepliesMedia
MS Sucks 🎗 @itreallydoes.com · 15h
USPS: “We’re broke, stamps need to go up another 20¢.” Also USPS: My package went Providence → Springfield → Providence → Springfield, adding roughly 175 completely unnecessary miles on a tour of New England to its journey. Have we considered just… sending shit toward its destination?
SPS tracking history showing a package accepted in North Kingstown, Rhode Island on Sept. 29, then traveling Providence, RI → Springfield, MA → Providence, RI → Springfield, MA before departing Springfield on Oct. 1. Despite the back-and-forth routing, USPS lists it as “In Transit, Arriving On Time” with expected delivery Oct. 2.
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MS Sucks 🎗 @itreallydoes.com · 23/09/2026
My postage printer is developing a personality and I don’t like it. I like my Rollo printer for the most part, but the self-congratulatory label wasting could go. I bought this thing to print postage, not to watch it stroke its own ego every time it updates.
A white printed label on a wooden surface reads, “Update Complete! They said I couldn’t get better. They were wrong,” followed by checkmarks for faster performance, security updates, and various fixes and improvements.
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MS Sucks 🎗 @itreallydoes.com · 14/09/2026
CAR-T for #MS hit an important safety wall www.reuters.com/business/hea...
reuters.com
Novartis pauses trials of experimental cell therapy after three deaths
Novartis said on Tuesday it ‌paused eight clinical trials of an experimental cell therapy, called rap-cel, targeting autoimmune and neurological disorders in late August, after three patients died.
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MS Sucks 🎗 @itreallydoes.com · 05/08/2026
www.youtube.com/watch?v=62vs... by @brandon-beaber.bsky.social
youtube.com
A New Remyelinating Drug For MS: CN045
YouTube video by Dr. Brandon Beaber
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MS Sucks 🎗 @itreallydoes.com · 24/07/2026
www.nature.com/articles/s44...
nature.com
A novel small molecule remyelination therapy for multiple sclerosis - npj Drug Discovery
npj Drug Discovery - A novel small molecule remyelination therapy for multiple sclerosis
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MS Sucks 🎗 @itreallydoes.com · 08/07/2026
I’ve been a little quiet lately. Buried in a project that has evolved a few times and has become my fav project yet. #MS has a way of reminding you that your brain isn’t always playing on the same difficulty level so I set out to build something to eliminate some friction. 🤓 🧡
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MS Sucks 🎗 @itreallydoes.com · 20/05/2026
Mia had a service training session today. After 45 min she snuck away to find a cool, quiet place to nap under the shrubs. I do the same thing when the #MS fatigue hits. Although, I try to avoid the whole crawling under the shrubs part 😆
Tan-and-white Staffordshire Terrier passed out asleep under arborvitae shrubs after service dog training, stretched out on cool dirt/gravel in the shade with eyes closed and looking completely exhausted.
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Emma Rogan 🇵🇸 @emmadragon.bsky.social · 13/04/2026
Please share 🙏🏽 Approx. 50-65% of people living with #MS in Ireland have challenges with cognition. #COB-MS trial was developed with a holistic focus on rehab in MS, through an individualised intervention measured taught through OT participation. Recruitment in #Galway & #Dublin open! #spéirghorm
Image from the The Cognitive Occupation-Based Programme for Multiple Sclerosis, COB-MS in the University of Galway

The livery of the university in claret red with an illustrated silhouette of a building. Either side is an illustrated side-profile of an intersection of human head with the brain and spinal cord. 

 The Cognitive Occupation-Based Programme for Multiple Sclerosis, COB-MS in the University of Galway

Join the Research Trial
People with Multiple Sclerosis in
Co. Galway and Co. Dublin, Ireland
The Cognitive Occupation-Based Programme for Multiple Sclerosis, COB-MS
Contact:
Email: cobms@universityofgalway.ie        
Call or WhatsApp: 085 114 6207
www.cob-ms.com

LOGOS:

Multiple Sclerosis Society of Ireland (partner in the project), the QR code and COG-MS logo.
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S C O T T @msandlymphomasux.bsky.social · 01/04/2026
A review of PIP is underway in the UK and those of us with #MS have been invited by @mssocietyuk.bsky.social to get involved. If you have the time & energy, please feel free to contribute as you wish 😀 www.mssociety.org.uk/research/new...
mssociety.org.uk
Have your say: PIP Review and tips for sharing your views and experience
The Review into Personal Independence Payment (PIP) has started. Have your say today!
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Wheelie Out There @wheelieoutthere.bsky.social · 30/03/2026
My pal Dave got dxed w #MultipleSclerosis while in the Navy. He's a leader in the Illinois MS community & helped me get my life back on track. Here he is in his "Proud uncle of a Marine" cap. Is there a vet in your life who has MS? Find support for #veterans w MS: tinyurl.com/te65xnek #disability
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ukmsregister @ukmsregister.bsky.social · 19/03/2026
Did you know that the UK MS Register host the expression of interest for the Octopus trial? This is a revolutionary trial that will transform the way we test treatments for Progressive Multiple Sclerosis (MS). You can read the latest update from the trial here: blog.msregister.org/octopus-upda...
blog.msregister.org
Octopus Update February 2026 - UK MS Register Blog
We know many of you have been waiting a long time. We are very grateful for your patience and for staying with us. Your support helps make this trial possible. Thank you to those of you who gave us fe...
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American Brain Foundation @abfbrain.bsky.social · 17/02/2026
By analyzing levels of the protein sNfL in blood serum, researchers at @ucl.ac.uk have identified two distinct subtypes of multiple sclerosis (MS), which appear to progress at different rates and begin in different brain regions. #MultipleSclerosisResearch #MSResearch
Research Discovery: Multiple sclerosis may have two distinct subtypes.Diseases Affected: Multiple sclerosis (MS).Key Findings: By comparing a blood-based biomarker (a protein called sNfL) and MRI scans and using AI modeling, scientists have identified two separate biological patterns for MS, based on the stage at which the protein is detected in the blood serum. What’s Next? If this discovery is validated in further studies, it could help doctors provide more customized treatment for patients, depending on which subtype of MS they have and the stage of its progression.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 18/02/2026
Multiple Sclerosis Diagnostic Criteria Explained in graphical form youtu.be/GSHrMn9w0lM?...
youtu.be
Multiple Sclerosis Diagnostic Criteria Explained
YouTube video by Dr. Brandon Beaber
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MS Sucks 🎗 @itreallydoes.com · 06/02/2026
Interesting take on Gen-X physiology — feels accurate. Grew up unsupervised taking apart TVs, VCRs, Atari, kitchen appliances… then got yelled at/hit with a belt, wooden spoon, or that wooden beach chair arm that every house seemed to have. Wouldn't trade it for anything 😂 youtu.be/G5YmIqYSqA0
youtube.com
Psychology of Gen X
YouTube video by Psychology Simplified
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MS Sucks 🎗 @itreallydoes.com · 29/01/2026
Thanks @theabilitytoolbox.bsky.social for adding our MS Sucks journal to your site. Follow them and check out their resources for people with disabilities. theabilitytoolbox.com
theabilitytoolbox.com
The Ability Toolbox: Mental Health, Disability & Chronic Illness Life Hacks
The Ability Toolbox is a support community for people with disabilities, chronic illnesses, & mental health conditions to share life hacks.
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MS Sucks 🎗 @itreallydoes.com · 22/01/2026
FDA Rejects Tolebrutnib by @brandon-beaber.bsky.social www.youtube.com/watch?v=9LFd...
youtube.com
FDA Rejects Tolebrutnib (MS Drug)
YouTube video by Dr. Brandon Beaber
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MS Sucks 🎗 @itreallydoes.com · 21/01/2026
Senile President of the United States, Donald Trump on stage at the 2025 Davos Annual meeting telling nothing but lies.
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MS Sucks 🎗 @itreallydoes.com · 20/01/2026
B-Cell Eviction Day! It was 10° F when I left the house this morning. Usually going out in this temp is a big NOPE for me, but I went with enthusiasm because I’m so over this crap gap.
Briumvi infusion bag hanging from an IV pole beside infusion pumps, sunlight coming through a hospital window.
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MS Sucks 🎗 @itreallydoes.com · 18/01/2026
Downloaded life. Got MS instead. 0/5 stars. Would not recommend.
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MS Sucks 🎗 @itreallydoes.com · 16/01/2026
multiplesclerosisnewstoday.com/news-posts/2...
multiplesclerosisnewstoday.com
Find gets new funding for treatment to repair damaged myelin
Find Therapeutics secured CA$10 million in funding to continue advancing tasronetide, its treatment to restore damaged myelin.
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Brian #MSAwareness @stormingb81.bsky.social · 15/01/2026
@griffjc.bsky.social Please don’t block! My name is Brian, I’m a veteran and have #MS. I’m FUNDRAISING for the MS Society and doing squares for the CFP Championship game $20 a square. Half to pot half to fundraiser benefiting the MS Society. Would you like any?
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MS Sucks 🎗 @itreallydoes.com · 15/01/2026
New to #MS and your doc just handed you a wad of pamphlets and said “go home, choose one and let me know”? Here’s a plain-English breakdown of the stronger MS treatment options — specifically the CD20 meds — and what they attempt to do. mssucks.co/l
mssucks.co
MS Meds, Explained Like a Human: Part 1
MS Meds Explained Like a Human: How Treatments Work, What to Expect, and the Stuff They Don’t Tell You
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MS Sucks 🎗 @itreallydoes.com · 01/01/2026
New Year, same symptoms. Same gremlin immune system refusing to read the god damn manual. If you made it to midnight, congrats 🥳. My New Year Eve tradition, like many other days of the year, kicked off around 7PM when I took my meds and crawled under my weighted blanked. #MS still sucks in 2026
Vintage cartoon illustration of a woman joyfully tossing a paper in the air against a pink background, next to text saying she has no New Year’s resolutions and plans to stay awkward, sarcastic, and foul-mouthed.

Which is correct, because New Year’s resolutions are mostly fake promises we make while drunk, exhausted, or emotionally held hostage by a calendar. Nothing magically resets at midnight, my immune system didn’t sure a shit don’t and pretending otherwise is a scam. If resolutions worked, none of us would still be dealing with this bullshit they call MS.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 24/12/2025
Does Salt Cause Multiple Sclerosis? youtu.be/bu_kqoKuKSw?...
youtu.be
Does Salt Cause Multiple Sclerosis?
YouTube video by Dr. Brandon Beaber
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MS Sucks 🎗 @itreallydoes.com · 24/12/2025
MS drug commercials live in a fantasy world. Rooftop DJs. Rock climbers. Endless energy. Zero symptoms. Reality? Fatigue, heat intolerance, brain fog, medical debt, and just trying to make it through the damn day. These ads do no favors for people with #MS mssucks.co/commercials
mssucks.co
MS Drug Commercials: Fantasy vs Reality
MS drug commercials sell a fantasy that hurts real people. A blunt look at how pharma ads misrepresent multiple sclerosis and make patients less believed.
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MS Sucks 🎗 @itreallydoes.com · 15/12/2025
Happy Monday. 🌈✨ I’ve officially completed my big achievement for the day: putting on socks and shoes. That heroic feat alone has me ready for a nap. #MSSucks
media.tenor.com
donald duck is laying in a bed with his eyes closed
Alt: donald duck is laying in a bed with his eyes closed
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 03/12/2025
Alcohol & Multiple Sclerosis: Can You Drink? youtu.be/mmDyu_GT3aI?...
youtu.be
Alcohol & Multiple Sclerosis: Can You Drink?
YouTube video by Dr. Brandon Beaber
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MS Sucks 🎗 @itreallydoes.com · 03/12/2025
PIPE-307, a “promising” remyelination drug just face-planted in Phase 2. Missed the primary endpoint, missed the secondary endpoint, and basically gave us nothing but a shrug. Hope is great, but data is louder — and this data said “nah.” ir.contineum-tx.com/news-release...
ir.contineum-tx.com
Contineum Therapeutics Reports Topline Data From Its Phase 2 PIPE-307 VISTA Trial for the Treatment of Relapsing-Remitting Multiple Sclerosis (RRMS) | Contineum Therapeutics
- PIPE-307 demonstrated an acceptable safety and tolerability profile - PIPE-307 treatment did not result in a significant change in binocular 2.5% low contrast letter acuity (LCLA) SAN DIEGO --(BUSIN...
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MS Sucks 🎗 @itreallydoes.com · 03/12/2025
youtu.be/HOTDtZQLo2k?...
youtu.be
The NEW 2024 MS Diagnostic Criteria Explained (Game-Changer!)
YouTube video by Aaron Boster MD
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Lixen Blackheart @madcatterteaparty.bsky.social · 10/11/2025
Good afternoon- lovely guests of the tea party. I'll be hosting a Charity Stream For Multiple Sclerosis for MSTrust on the 05/12/25 along with friends, Find the details of this invitation below! #CharityStream #MSTrust #twitch #warhammer40k #gaming #Charity #MultipleSclerosis
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MS Sucks 🎗 @itreallydoes.com · 08/11/2025
As a GenX’er this cracks me up because it’s so true 😆 youtu.be/t2uzCYPcE3I?...
youtu.be
Child Casino & Fight Club - Chuck E. Cheese
YouTube video by The Fat Files
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StarriiBunnii⭐🌟🐰🍉 @starriibunnii.bsky.social · 08/11/2025
Hello everybunny! My wife, Dragon will be hosting a charity stream for the MS (Multiple Sclerosis) Society! I'd really appreciate it if friends could join in and watch or even lurk during this time! www.twitch.tv/theclockwork... #twitchstreamer #twitch #pngtuber #vtuber #audhd #disabled #ms
twitch.tv
TheClockworkDragonTavern - Twitch
GameOver MS! Retro Weekender charity stream. !donate
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MS Sucks 🎗 @itreallydoes.com · 07/11/2025
Justice has been served. After years of Facebook tracking my every move, which led me to close the account, I’ve finally been compensated—with a life-changing $4.01. I might retire. Or buy half a latte and reflect on my newfound wealth 🤷🏻‍♀️
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MS Sucks 🎗 @itreallydoes.com · 01/11/2025
Mia’s officially home — 3 months old, cute as hell, and already running the place. She came all the way from Mississippi, thanks to an amazing rescue that literally hopped in a van last night and drove 1037 miles to get her to me.
Mia, a 3-month-old wheat-and-white Staffordshire Terrier puppy with light blue eyes, running through the grass mid-stride. Her mouth is open in a playful grin, one paw lifted, tail up, and pure joy all over her face.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 29/10/2025
10 Strange Things About Multiple Sclerosis youtu.be/FyTTRLjEpjM?...
youtu.be
10 Strange Things About Multiple Sclerosis
YouTube video by Dr. Brandon Beaber
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Chiko | Digital Creator @chikocfm.bsky.social · 22/02/2025
📚✨Explore the realities and triumphs of navigating life with an invisible chronic illness. Discover the insights and resilience within these pages. Learn More >>> amzn.to/49kKN4B #Fibromyalgia #InvisibleIllness #SurvivalStories
amzn.to
Diary of A Fibromyalgia Warrior: Unseen Struggles: Navigating Life and Survival with an Invisible Chronic Illness
Buy Diary of A Fibromyalgia Warrior: Unseen Struggles: Navigating Life and Survival with an Invisible Chronic Illness by Matenda, Chiko (ISBN: 9798866136032) from Amazon's Book Store. Everyday low prices and free delivery on eligible orders.
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MS Sucks 🎗 @itreallydoes.com · 21/10/2025
#MS fatigue isn’t “being tired.” It’s your body burning through energy faster than a crackhead through a dime bag. Yeah, I said it. New post → mssucks.co/k #MSSucks #MSFatigue
mssucks.co
Sick and Tired of Being Sick and Tired: MS Fatigue
MS fatigue isn’t “just being tired.” It’s neurological chaos that drains your battery faster than caffeine can load it. Spoiler: naps don’t fix this.
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Paul Langer @paullanger.bsky.social · 18/10/2025
Today I'm marching in NYC - No Kings! Tomorrow I'm riding 30 miles circling Manhattan to raise money to find a cure for Multiple Sclerosis I've been living with MS since '87 & I am extremely lucky to still be able to ride a bike Help us find a cure events.nationalmssociety.org/participant/...
events.nationalmssociety.org
I'm participating in Bike MS: New York City 2025!
I’m participating in Bike MS: New York City 2025 to raise funds for the National Multiple Sclerosis Society. Nearly one million people in the US are living with the challenges and uncertainty of mult...
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MS Sucks 🎗 @itreallydoes.com · 10/10/2025
For this #MSFriday some light reading and coffee. Glad it’s the last day here. Woke up this morning and my immune system choose vilonece. Ready to go back home to my own bed.
A paper cup of Starbucks coffee labeled “Sam ♥” sits on a small white table next to a book titled Close Encounters of the WTF Kind. Through the large window behind them, a sunny marina with boats, docks, and a crane is visible, with the ocean and blue sky in the distance.
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MS Sucks 🎗 @itreallydoes.com · 08/10/2025
www.youtube.com/watch?v=oxd3... Dr. Beaber always does a great job translating the data for us medically challenged. Follow him if you already don't: @brandon-beaber.bsky.social
youtube.com
Multiple Sclerosis Starts Years Before Symptom Onset
YouTube video by Dr. Brandon Beaber
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Kevin Byrne @kevjbyrne.bsky.social · 07/10/2025
Rest stop 1: 25 miles Please share this special message and link: mssociety.donordrive.com/participant/... I will personally match every donation received today to my fight, up to $10,000! #NeverStopNeverQuitForThem #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon
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Tina Meyer 🕊🫂#resist🇺🇦 4 democracy @tinameyer.bsky.social · 07/10/2025
Interesting 👇 Yes, the need to tackle a root cause of the #MS worsening is still unmet ... As well as #remylination FYI @itreallydoes.com www.biospace.com/drug-develop...
biospace.com
Beyond BTK Inhibitors: Next Gen MS Treatments Could Transcend Symptom Management
While Bruton’s tyrosine kinase inhibitors are often hailed as the next big breakthrough in multiple sclerosis, Immunic Therapeutics and others are leveraging neuroprotective targets and remyelination ...
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MS Sucks 🎗 @itreallydoes.com · 07/10/2025
Few days in Bermuda. The sea is calm, the sky is dramatic, and my MS is currently pretending to behave. Let’s see how long that lasts, it’s early 😆 #MSLife #MSSucks
A cloudy Bermuda harbor with turquoise water, stone fort walls, and white-roofed buildings. Several tour buses line the dock while a pink and white ferry waits at the pier. The scene contrasts dark storm clouds with patches of sunlight breaking through.
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MS Sucks 🎗 @itreallydoes.com · 04/10/2025
I bet I've hidden more dead bodies than you have. New Blog Post: When #MS becomes your crappy boss. Read ⮕ mssucks.co/j
A close-up of a person digging into the dirt at night with a shovel. Only their boots, hands, and part of their legs are visible, lit by a spotlight against a dark background.
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Paula Krebs @paulakrebs.bsky.social · 28/09/2025
Just $70 short of my goal, in case Multiple Sclerosis research is a cause you support. #BikeMS events.nationalmssociety.org/participants...
Paula at rest stop of City to Shore ride
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PinkTweets @pinktweets.bsky.social · 26/09/2025
@itreallydoes.com @elizabethjacobs.bsky.social @vivianofthesierras.bsky.social www.theguardian.com/society/2025...
theguardian.com
‘Exciting’ clinical results offer hope for new class of MS therapies
Cambridge trial suggests diabetes drug with antihistamine can partially repair damage in the nervous system
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 24/09/2025
Best Multiple Sclerosis Medicine for Preventing Disability youtu.be/3wstm5izx2o?...
youtu.be
Best Multiple Sclerosis Medicine for Preventing Disability
YouTube video by Dr. Brandon Beaber
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Kevin Byrne @kevjbyrne.bsky.social · 24/09/2025
Please support my fight against the devastating effects of multiple sclerosis. I WILL every donation with my blood, sweat, and smiles! #NeverStopNeverQuitForThem #NSNQFT #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon mssociety.donordrive.com/participant/...
mssociety.donordrive.com
I'm participating in Bike MS: Oregon 2025!
I’m participating in Bike MS: Oregon 2025 to raise funds for the National Multiple Sclerosis Society. Nearly one million people in the US are living with the challenges and uncertainty of multiple sc...
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