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ukmsregister

@ukmsregister.bsky.social
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The MS Register is a ground-breaking study designed to increase our understanding of living with MS in the UK. Let's make sense of MS.

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ukmsregister @ukmsregister.bsky.social · 30/09/2026
This summer, Esther joined the UK MS Register through the Health Data Research UK (HDR UK) Black Internship Programme. In our latest blog, Esther reflects on the skills she developed, and how the experience has shaped her future career aspirations: blog.msregister.org/hdr-intern-j...
blog.msregister.org
HDR Intern joins the Team - UK MS Register Blog
Over the summer, Esther Awofadeju joined the Register through the HDR UK Black Internship Programme, marking the third year that the UK MS Register has participated in this valuable initiative. Esther...
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ukmsregister @ukmsregister.bsky.social · 22/09/2026
Octopus Trial Update Webinar 📣 📅 Wednesday 23rd September, 6pm 📍 Online Hear from Professor Jeremy Chataway (Octopus Chief Investigator) and Dr Emma Tallantyre (Octopus Recruitment Lead): www.eventbrite.co.uk/e/octopus-tr...
eventbrite.co.uk
Octopus trial for progressive MS: understanding the interim results
Octopus is a world-first trial for progressive MS. We'll share the results of the interim analysis and what these mean for our community.
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ukmsregister @ukmsregister.bsky.social · 17/09/2026
Octopus is a world-first multi-arm multi-stage clinical trial funded by the MS Society.The UK MS Register hosts the registration of interest platform for this trial. In this video, Professor Jeremy Chataway, chief investigator of the trial, shares the interim results: www.youtube.com/watch?v=Fi2U...
youtube.com
Sharing the interim results of the Octopus clinical trial
YouTube video by MS Society UK
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ukmsregister @ukmsregister.bsky.social · 16/09/2026
📱 How does technology fit into your life with MS? As part of our autumn questionnaires, we've added a new survey exploring technology and social media use. Your experiences can help researchers understand how digital tools affect people living with MS. Read more: blog.msregister.org/new-question...
blog.msregister.org
New Questionnaire on the Register - UK MS Register Blog
A message from Dr Rod Middleton: We recently added a new questionnaire to the Autumn Window of the UK MS Register; it's called the 'Media and Technology Usage Scale'. We wanted to ask this for a few r...
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ukmsregister @ukmsregister.bsky.social · 04/09/2026
🍁 Autumn questionnaires are now ready to complete! If you're part of the UK MS Register, please log in and fill in your latest questionnaires. Thank you for being part of our community: ukmsregister.org/Account/Login
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ukmsregister @ukmsregister.bsky.social · 01/09/2026
The MS Society's latest "Ask the Expert" blog looks at what we know so far about MS risk and prevention, and where science is still searching for answers. Take a look: www.mssociety.org.uk/research/lat...
mssociety.org.uk
Ask the expert: MS risk and prevention
Professor Ruth Dobson is a neurologist and member of our UK MS Prevention Taskforce. We asked her some of your questions about MS risk – and what research into MS prevention could achieve.
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ukmsregister @ukmsregister.bsky.social · 27/08/2026
Work with the UK MS Register! The Register supports research through access to anonymised data, questionnaire hosting, participant recruitment, and input from our PPIE group of people living with MS. Have a research idea? Start the conversation today: 🔗 www.ukmsregister.org/Research/WorkingWithUs
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ukmsregister @ukmsregister.bsky.social · 18/08/2026
We're pleased to share that a UK MS Register letter written by CI Dr Rod Middleton has been published in The BMJ, highlighting the importance of patient-reported data in MS research. Read more about what this means and why it matters: blog.msregister.org/ukmsr-letter...
blog.msregister.org
UKMSR Letter Published in the BMJ - UK MS Register Blog
Back in April the British Medical Journal (BMJ) published an article titled: “Have you noticed any changes?” The article, written by Ayad Marhoon, is a patient perspective from someone living with MS ...
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ukmsregister @ukmsregister.bsky.social · 12/08/2026
☀️ With the current UK heatwave, people with MS may notice their symptoms worsening. Understanding how factors like hot weather affect daily life is valuable for research. Through the UK MS Register, you can log your experiences and help build a picture of living with MS: ukmsregister.org/AboutUs
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ukmsregister @ukmsregister.bsky.social · 10/08/2026
We’re delighted to share a video interview with the Register’s CI, Dr Rod Middleton. In the interview, Rod reflects on the importance of the data and contributions from everyone who has helped make the Register such a valuable resource over the past 15 years. www.youtube.com/watch?v=fPDM...
youtube.com
15 Years of the UK MS Register - Q&A with Dr Rod Middleton
YouTube video by UK MS Register
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ukmsregister @ukmsregister.bsky.social · 06/08/2026
Every person who joins the UK MS Register helps build a clearer picture of multiple sclerosis. By sharing your experiences, you can support research, improve understanding of MS, and help shape better care for the future. www.youtube.com/watch?v=2g0U...
youtube.com
Introduction to the UK MS Register
YouTube video by UK MS Register
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ukmsregister @ukmsregister.bsky.social · 28/07/2026
Welcome to the team Esther! Esther joins the UK MS Register as part of the Health Data Research UK (HDR UK) Black Internship Programme🎉 We are so pleased to have Esther on board, and look forward to working together in the coming weeks. #BlackInternProg #HealthDataScience
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ukmsregister @ukmsregister.bsky.social · 23/07/2026
Women living with MS – the University of Leeds wants to hear from you! 📣 Researchers are exploring how Multiple Sclerosis affects women’s everyday lives, including physical activity, wellbeing, and quality of life. Take part here: forms.cloud.microsoft/e/EcC0RmX7MX
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ukmsregister @ukmsregister.bsky.social · 22/07/2026
It's #WorldBrainDay 🧠 The MS Society have shared a fascinating conversation with Dr Antonio Scalfari, Consultant Neurologist, about brain reserve, what it is and what we can do to help protect it. www.mssociety.org.uk/research/lat...
mssociety.org.uk
What is brain reserve and why does it matter?
Our brains have an amazing natural ability to compensate for damage. We asked Dr Antonio Scalfari, Consultant Neurologist at Imperial College Healthcare Trust to tell us more about how this works and ...
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ukmsregister @ukmsregister.bsky.social · 21/07/2026
The Register team have had a fantastic week at Erasmus University Rotterdam, for the International Population Data Linkage Network conference #IPDLN2026 A great opportunity to share our data linkage work through posters and presentations, as well as network with colleagues from across the sector.
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ukmsregister @ukmsregister.bsky.social · 17/07/2026
New MS study from Imperial College London. Recruiting people with relapsing-remitting MS that are not treated with any disease modifying therapy, or those treated with Ocrelizumab, and people without MS or any other autoimmune condition. ⬇️
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ukmsregister @ukmsregister.bsky.social · 02/07/2026
Congrats to Register analyst Sarah, and her friend Bronwen, on completing the MS Society's May 50k! 🎉 🎉 They raised over £700 for the charity which will go towards vital work supporting people affected by multiple sclerosis across the UK. Read more in our blog: blog.msregister.org/sarah-comple...
blog.msregister.org
Sarah Completes the May 50k - UK MS Register Blog
Congratulations to Sarah on Completing the MS Society's May 50k! The UK MS Register team is delighted to celebrate our Data Analyst, Sarah, who recently completed the MS Society’s May 50k challenge. T...
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ukmsregister @ukmsregister.bsky.social · 18/06/2026
The team have travelled to Edinburgh this week to take part in the MS Society's MS Frontiers conference - the UK's largest biennial conference for MS research professionals. We were thrilled to have so many of our abstracts accepted this year, creating a whole avenue of UK MS Register research!
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ukmsregister @ukmsregister.bsky.social · 16/06/2026
Read all about it 🗞️ 📣 The latest UK MS Register newsletter is now available online. Contents include our 15th anniversary celebrations, recent events, and a news of a major Register milestone 🎉 Read here: blog.msregister.org/spring-newsl...
blog.msregister.org
Spring Newsletter 2026 - UK MS Register Blog
Welcome to the Spring ‘26 edition of the UK MS Register newsletter. In this edition we share a very exciting recent publication and news of our 15th anniversary. Firstly we wanted to say a big thank y...
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ukmsregister @ukmsregister.bsky.social · 29/05/2026
This #WorldMSDay the theme #MyMSDiagnosis reminds us that behind every diagnosis is a unique experience. By sharing data and lived experiences through the UK MS Register, people with MS are helping researchers uncover new insights and shape the future of treatment and support.
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ukmsregister @ukmsregister.bsky.social · 12/05/2026
It's International Nurse's Day! 👩‍⚕️ 👨‍⚕️ 🏆 🏆 Today we acknowledge and celebrate the work of our amazing nursing teams. Read our latest blog to discover more about how the UK MS Register works with nurses to get more people with MS involved in research: blog.msregister.org/internationa...
blog.msregister.org
International Nurse’s Day 2026 - UK MS Register Blog
To mark International Nurse’s Day this year we wanted to shine a spotlight on the amazing work of the MS nurses and NHS research teams we work with. Many of you will have joined the UK MS Register onl...
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ukmsregister @ukmsregister.bsky.social · 07/05/2026
This week Dr Rod Middleton and Dr Richard Nicholas travelled to Birmingham for the Association of British Neurologists (ABN) Annual Meeting 2026. This has been a great opportunity to once again showcase the work of the UK MS Register.
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ukmsregister @ukmsregister.bsky.social · 05/05/2026
New Study: Does your menstrual cycle affect your MS symptoms? This study is funded by the MS Society UK and supported by MS Together. To take part, visit ms-menstrualcycle.co.uk/newcastle-la...
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Ailsa Jane @ailsajanepodmed.bsky.social · 24/04/2026
Great to see @ukmsregister.bsky.social at the #EMSP2026
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ukmsregister @ukmsregister.bsky.social · 28/04/2026
Our colleague Rory at the MS Tissue Bank ran the London Marathon last weekend....dressed as a brain! 🧠 Rory has raised an incredible amount of money for the MS Society UK and there is still time to donate via the JustGiving page 👇 www.justgiving.com/page/brain-r...
justgiving.com
Watch out for that brain!
Help Rory Turkmen Smith raise money to support Multiple Sclerosis Society
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ukmsregister @ukmsregister.bsky.social · 27/03/2026
Researcher Richard Edwards from University of Wolverhampton is currently looking for participants to take part in his study focusing on time to MS diagnosis. Participants can take part remotely. If this sounds of interest to you, please contact Richard for more information: r.c.edwards@wlv.ac.uk
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ukmsregister @ukmsregister.bsky.social · 25/03/2026
The team are in Sheffield today at the EuroQol UK & Ireland Regional Meeting 2026. UK MS Register clinical lead, Dr Richard Nicholas, is presenting the work we have been doing on the EQ-5D questionnaires.
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ukmsregister @ukmsregister.bsky.social · 24/03/2026
The Register team have just returned from the Multiple Sclerosis Trust conference; we were proud to showcase our research though our posters and presentations, and welcomed so many engaged visitors to our stand. 👋 Thank you MS Trust team for another great conference! 🎉
A member of the Register team presents their work on stage in front of an audience.Members of the MS Register and MS Pregnancy Register team stand smiling behind a table covered in merchandise and leaflets.A member of the UK MS Register team stands beside a research poster.A member of the UK MS Register team stands beside a research poster.
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ukmsregister @ukmsregister.bsky.social · 20/03/2026
Congratulations to UK MS Register senior analyst Dr Jeff Rodgers who is today showcasing his work at Brain Conference 2026 in London🙌 Jeff has been studying Register data and is presenting a poster titled 'Emulating a pseudo-trial of Baclofen and Sativex for MS spasticity using the UK MS Register'.
UK MS Register senior analyst Dr Jeff Rodgers stands next to his poster in a conference hall.
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ukmsregister @ukmsregister.bsky.social · 19/03/2026
Did you know that the UK MS Register host the expression of interest for the Octopus trial? This is a revolutionary trial that will transform the way we test treatments for Progressive Multiple Sclerosis (MS). You can read the latest update from the trial here: blog.msregister.org/octopus-upda...
blog.msregister.org
Octopus Update February 2026 - UK MS Register Blog
We know many of you have been waiting a long time. We are very grateful for your patience and for staying with us. Your support helps make this trial possible. Thank you to those of you who gave us fe...
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ukmsregister @ukmsregister.bsky.social · 04/03/2026
🌸 Our Spring questionnaires are now live on the UK MS Register! If you’re living with MS, your experiences matter. By taking part, you’re helping to shape research, improve understanding, and make a real difference to the MS community. Log into your account here: ukmsregister.org/Account/Login
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ukmsregister @ukmsregister.bsky.social · 11/02/2026
This International Day of Women and Girls in Science we celebrate the women and girls shaping the future of science. 🔬✨ At The Register, we’re committed to highlighting the groundbreaking work being carried out by women, and supporting the next generation of female researchers 🙌 #IDWGS2026
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ukmsregister @ukmsregister.bsky.social · 06/02/2026
Help shape the future of MS research in the UK. Join the UK MS Register if you: ✅ Live in the UK ✅ Are 18 or over ✅ Have a confirmed MS diagnosis Find out more: ukmsregister.org/Account/Regi...
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ukmsregister @ukmsregister.bsky.social · 26/01/2026
New study from researchers at University of Birmingham looking into the experiences of pregnant women with MS. More details below 👇
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ukmsregister @ukmsregister.bsky.social · 21/01/2026
In December 2025, the UK MS Register hosted a Campus Research Day at Swansea University which brought together researchers and supporters of the MS Society UK. blog.msregister.org/campus-resea...
blog.msregister.org
Campus Research Day Dec ’25 - UK MS Register Blog
In December 2025, the Register team were delighted to host a Campus Research Day bringing together researchers and supporters of the MS Society for an engaging and inspiring visit. This event was the ...
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Population Data Science at Swansea University @popdatascisu.bsky.social · 20/01/2026
The @ukmsregister.bsky.social hosted a Campus Research Day in December, @swanseauni.bsky.social, bringing together researchers and supporters of the @mssocietyuk.bsky.social, to see how their fundraising activities support important MS research in Wales. 👉 popdatasci.swan.ac.uk/uk-ms-regist...
popdatasci.swan.ac.uk
UK MS Register Campus Research Day Dec ’25 - Population Data Science
UK MS Register News. Published 1/14/2026. In December 2025, the Register team were delighted to host a Campus Research Day bringing together researchers and supporters of the MS Society for an engagin...
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ukmsregister @ukmsregister.bsky.social · 16/01/2026
📣 We are pleased to share that the Register are now part of the NIHR (National Institute for Health and Care Research) Associate PI Scheme 🎉 Read more about the scheme, and how to be involved, in our blog: lnkd.in/e5tBExBJ blog.msregister.org/nihr-associa... @nihr.bsky.social
blog.msregister.org
NIHR Associate PI Scheme Now Available Through the UK MS Register - UK MS Register Blog
Unlocking Research Potential — The NIHR Associate PI Scheme Now Available Through the UK MS Register At the UK MS Register, we are committed not only to driving high-quality Multiple Sclerosis researc...
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ukmsregister @ukmsregister.bsky.social · 08/12/2025
Congrats to Jess Smith and the team at Convey Law for raising over £6k for the MS Society 👏 🙌 We were delighted to welcome Jess and her father Mike to Swansea University back in August as part of an MS research visit, in partnership with the MS Society Cymru. businessnewswales.com/law-firm-rai...
businessnewswales.com
Law Firm Raises More Than £6,600 for MS Society Cymru
Convey Law have raised a £6,609 for MS Society Cymru following months of fundraising activity, including their August Waggy Tails Walk at Kenfig Nature
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ukmsregister @ukmsregister.bsky.social · 27/11/2025
There's a fantastic new blog post available on the MS Society website written by volunteer Susan Crane. Susan is a participant on the UK MS Register, and a valued member of our Patient and Public Involvement group - the Brainstormers. Read Susan's blog here 👇 www.mssociety.org.uk/support-and-...
mssociety.org.uk
Finding purpose in volunteering: My journey with MS
Susan reflects on the variety of volunteering she’s done with us, at both a local and national level. And shares the thrill of her recent skydive in aid of our Stop MS Appeal.
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ukmsregister @ukmsregister.bsky.social · 24/11/2025
PhD researcher Hannah Hollinger, from the University of Highlands and Islands, is currently recruiting to her study. If you have RRMS and currently use a method of cooling yourself please contact hannah.hollinger@uhi.ac.uk directly if you would like more information. Please also feel free to share.
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ukmsregister @ukmsregister.bsky.social · 21/11/2025
Register PI Dr Rod Middleton is in London today at the National meeting of the ACORD Collaboration. The ACORD Collaboration consists of a variety of groups currently developing, running and reporting MAMS platform trials in neurodegenerative conditions : lnkd.in/geKi-Kpu
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ukmsregister @ukmsregister.bsky.social · 19/11/2025
Earlier this month Rod from the Register joined MS-UK @ms-uk.bsky.social for an online information session. You can read more about the event, or sign up to watch the recording, by following the link below. Thank you MS-UK for inviting us along! www.ms-uk.org/ms-register-...
ms-uk.org
How the MS Register helps everyone with MS
Our MS Register introduction session will explain how it works, and share how this valuable resource is helping shape the future of MS.
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ukmsregister @ukmsregister.bsky.social · 31/10/2025
In our most recent blog we hear from Professor Klaus Schmierer at Queen Mary University of London about the AttackMS trial which has recently reopened. This trial is the first study to treat individuals with suspected MS at the first demyelinating event. blog.msregister.org/attack-is-ba...
blog.msregister.org
Attack is Back! - UK MS Register Blog
A UK clinical trial is testing whether rapid treatment with a highly effective multiple sclerosis (MS) drug (within just two weeks of the first presentation) could change the course of the disease. Th...
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ukmsregister @ukmsregister.bsky.social · 21/10/2025
The MS Society 2026 grant rounds are now open for applications! 📣 Did you know that you can apply for any of these Awards with a research project that's using the UK MS Register? Find out more here: www.mssociety.org.uk/research/res...
mssociety.org.uk
Funding for researchers
We're the largest charitable funder of MS research in the UK. Find out more about our application and review process.
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Population Data Science at Swansea University @popdatascisu.bsky.social · 16/10/2025
Want to take your research to the next level?🚀 Sign up for the @ukmsregister.bsky.social's free one-day workshop and learn how to manipulate and analyse synthetic data from the MS Register using the R statistical programming environment. 👉https://popdatasci.swan.ac.uk/uk-ms-register-data-workshop/
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ukmsregister @ukmsregister.bsky.social · 26/09/2025
📣 Today we’re at ECTRIMS Patient Day in Barcelona! The Register are proud to be a supporting partners of this important event, which brings people affected by MS together with researchers, clinicians, and organisations from across the world 🌍
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ukmsregister @ukmsregister.bsky.social · 26/09/2025
The Register is at #ECTRIMS in Barcelona this week. Our team has been busy presenting research highlighting the importance of real-world data. Special congratulations to Imogen Collier, who won a prize for her poster on menopause and MS based on data collected through the Register 🏆
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ukmsregister @ukmsregister.bsky.social · 25/09/2025
🎉 What a whirlwind first day at #ECTRIMS2025 in Barcelona! The Register team has been incredibly busy – sharing our research, connecting with global MS experts, and showcasing how patient-powered data is driving real change. 📊 Huge thank you to everyone who has stopped by our stand (N14) so far!
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ukmsregister @ukmsregister.bsky.social · 16/09/2025
🎉 We're exhibiting at #ECTRIMS2025 24th - 26th September! Visit us at Stand N14, NPO Village, to learn more about how we're driving forward MS research through real-world data and collaboration.
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ukmsregister @ukmsregister.bsky.social · 15/09/2025
Could a citrus extract improve Cognition and Fatigue in Multiple Sclerosis? A team from Swansea Uni are conducting research on the effects of citrus extract supplementation on people with RRMS. Register your interest to take part in this study: research.sc/participant/...
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