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ICanCME Canadian Research Network

@icancmeresearch.bsky.social
809 followers 208 following 19 posts

Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)

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Sabrina Poirier @sabrinapoirier.bsky.social · 25/04/2026
Hey everyone! I was invited to write about Myalgic Encephalomyelitis (ME) and our inclusion into much needed clinical trials. Please read, like and share to help us reach more people? 💙
ctontario.ca
Welcoming Myalgic Encephalomyelitis (ME) Into the Clinical Trials Space - Clinical Trials Ontario
This Talk Clinical Trials blog has been written by Sabrina Poirier, a patient advocate for Myalgic Encephalomyelitis (ME) and other complex chronic illnesses, and co-founder of the ICanCME Research Ne...
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Physios For ME @physiosforme.bsky.social · 05/02/2026
New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy. Please share widely. For all the info and survey link, head on over to www.physiosforme.com/o2survey
physiosforme.com
02 Chamber survey | Physiosforme
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 05/02/2026
We would love your support in helping us to increase our reach. Please like, share, and subscribe to the videos on YouTube and on here. 💙
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 30/01/2026
Hey there. Have you watched yet? What are you waiting for? It’s great content, driven by #PwME! #ICanCME2025
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 29/01/2026
For those with questions, we will be hosting SMART Webinars - Thursday, February 5th. 3 pm EST-In English us06web.zoom.us/webinar/regi... 4 pm EST-In French us06web.zoom.us/webinar/regi... You must register to attend, but these are not mandatory webinars required to apply.
us06web.zoom.us
Welcome! You are invited to join a webinar: SMART Grants - English Webinar. After registering, you will receive a confirmation email about joining the webinar.
Please join us for more information on the SMART grants. This webinar will be in English.
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 29/01/2026
For those wishing to apply in French, please view this link to see the French application: icancme.ca/fr/recherche...
icancme.ca
Programme de subventions SMART - ICanCME
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 29/01/2026
Our SMART grants are open for researchers interested in studying Myalgic Encephalomyelitis! Please check out the criteria and deadlines in the application. icancme.ca/research/sma...
icancme.ca
SMART Grant Program - ICanCME
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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · 29/01/2026
@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @uoftmedicine.bsky.social
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 20/01/2026
A big thank you to all those who helped to make this event a reality! It took over a year and a half of planning and work to pull it off and we want it to continue to have a positive impact. So please help us get the word out and share broadly. 💙💙💙
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 20/01/2026
Our AMAZING speakers included leaders and groups such as… @sunsopeningband.bsky.social @virusesimmunity.bsky.social @polybiorf.bsky.social @daniellebeckman.bsky.social @exceedhergrasp1.bsky.social And so many more that I cannot seem to find/tag on here. Check it out.
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 20/01/2026
Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙 The theme of our #Canadian conference was “Nothing About Us Without Us”. Please #subscribe to our channel to help us drive engagement and watch and like our videos too. youtube.com/@icancmerese...
youtube.com
ICanCME Research Network
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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · 20/01/2026
@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @sunsopeningband.bsky.social @uoftmedicine.bsky.social @breathewellphysio.bsky.social
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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · 06/01/2026
@kellyobrien25.bsky.social @drjillcameron.bsky.social @physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @uoftmedicine.bsky.social @apresj20.bsky.social @breathewellphysio.bsky.social
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Wilhelmina Jenkins @wilhelminaj.bsky.social · 07/11/2025
Thank you for the great work!
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Simon Spichak @spichaksimon.bsky.social · 07/11/2025
Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup. simonspichak.beehiiv.com/p/day-3-of-t...
simonspichak.beehiiv.com
Day 3 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis
A brief summary of the presentations.
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 07/11/2025
Thank you for supporting us! 💙
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Wilhelmina Jenkins @wilhelminaj.bsky.social · 06/11/2025
If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 06/11/2025
#ICanCME2025
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Simon Spichak @spichaksimon.bsky.social · 06/11/2025
Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.
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fibrocanada.bsky.social @fibrocanada.bsky.social · 06/11/2025
@icancmeresearch.bsky.social #ICANCME2025 Wow what an agenda for Day # 3
Menu for Day # 3 #ICANCME Conference
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Sammie McFarland @sammiemc.bsky.social · 06/11/2025
It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience. Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social 👉#Blog bit.ly/3LwLXCp @icancmeresearch.bsky.social
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 06/11/2025
Are you registered? If so, please join us for our last day together! 💙
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Long Covid Kids @longcovidkids.bsky.social · 05/11/2025
We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME. Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs. #ICanCME2025 #Paediatric #Children
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Jeffery Smith @jefferysmithme.bsky.social · 05/11/2025
@icancmeresearch.bsky.social thank you so deeply for bringing together the most dedicated and brilliant minds to share their care which we so deeply lack. Thank you Sabrina for your advocacy that I continually feel is a calling. 🩵💙🩵
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Simon Spichak @spichaksimon.bsky.social · 06/11/2025
I'll be back live tweeting/skeeting the @icancmeresearch.bsky.social conference tomorrow. Will try to get it going on BlueSky AND X simultaneously. #ICanCME
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#MEAction Network @meactnet.bsky.social · 05/11/2025
We are excited and ready for day 2 of @icancmeresearch.bsky.social! #MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon! #ICanCME2025 #pwME #MECFS
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Hazie @hazie.bsky.social · 05/11/2025
Excited for day two of the excellent @icancmeresearch.bsky.social conference! Starting now! #ICanCME2025
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 05/11/2025
It was so lovely having you there Nandini! Thank you for your kind words and the support.
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Nandini @nandini0306.bsky.social · 05/11/2025
This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry. Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
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Simon Spichak @spichaksimon.bsky.social · 05/11/2025
And coverage for Day 1 of the #ICanCMEConference by the @icancmeresearch.bsky.social. Features a link to my live tweets. simonspichak.beehiiv.com/p/icancme-da...
simonspichak.beehiiv.com
Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis
A brief summary of the presentations.
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#MEAction Network @meactnet.bsky.social · 04/11/2025
Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME). Huge shout-out for the respect for lived experience! Wonderful start! #ICanCME2025 #NothingAboutUsWithoutUs @icancmeresearch.bsky.social, applause to planning team!
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 04/11/2025
Thank you so much!
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just a cow's opinion @allmoopoints.bsky.social · 04/11/2025
Thoroughly enjoying learning about ME at the @icancmeresearch.bsky.social conference. Thank you for putting this all together.
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Simon Spichak @spichaksimon.bsky.social · 04/11/2025
Covering the @icancmeresearch.bsky.social live over on the other app. Will be posting a brief summary of the day's talks as well. x.com/SpichakSimon...
x.com
Simon Spichak on X: "A little late to the party but following the @ICanCMEResearch conference. First keynote coming on" / X
A little late to the party but following the @ICanCMEResearch conference. First keynote coming on
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ME/CFS Science @mecfsscience.org · 02/10/2025
1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November. The main presentations take place at: 1 pm - 5 pm Eastern Time 6 pm - 10 pm London Time 7 pm - 11 pm Brussels Time #ICanCME2025
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 04/11/2025
We’re thrilled to have you! Your book was a really meaningful one, that is still often passed on to people newly suffering with chronic illnesses to help them learn more about the context of women’s health and research.
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Sabrina Poirier @sabrinapoirier.bsky.social · 03/11/2025
#ICanCME2025 is happening this week! This was an initiative driven by people with ME and their loved ones with the support of many along the way! We’re so thankful for everyone’s support so far. And please be patient with us this week if we run into any issues. 🤞💙
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Maya Dusenbery @mayadusenbery.bsky.social · 04/11/2025
Honored to be speaking about ME, gender bias in medicine, and women's "unexplained" chronic illness at the #ICanCME2025 conference this afternoon. Thanks @icancmeresearch.bsky.social! icancme.ca/research/202...
icancme.ca
2025 ME Conference - ICanCME
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 03/11/2025
The more I think about public education, climate change, science funding, the more I realize that Republican policy is predicated on the illusion that you can harm others in your environment without harming yourself.
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 03/11/2025
bsky.app/profile/sabr...
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 03/11/2025
bsky.app/profile/sabr...
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 03/11/2025
Yay! We were locked out of this account because we forgot the password. Who can relate? 🙋🏻‍♀️ But we’re back! And ready to butterfly it up on here for the next few days of #ICanCME2025, our conference starting tomorrow.
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Sabrina Poirier @sabrinapoirier.bsky.social · 15/01/2025
Please join @putrinolab.bsky.social and I for this free webinar on Tuesday where we will be talking about increasing accessibility and collaboration in research. 👇 Thanks for hosting us and this discussion @solveme.bsky.social and @batemanhornecenter.bsky.social ! 💙
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Lawrence (Larry) Mróz @drmroz.bsky.social · 01/12/2024
The BMJ will remunerate patient and public reviewers | The BMJ www.bmj.com/content/387/... #PatientEngagement
bmj.com
The BMJ will remunerate patient and public reviewers
The BMJ will offer £50 for reviews by patients and the public From January 2025 patients and members of the public who complete a review for The BMJ will be offered £50 or a 12 month online subscript...
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valebodi.bsky.social @valebodi.bsky.social · 04/12/2024
Immune cells become exhausted in #MECFS. Read about the latest findings of the PNAS research paper of M. Hanson et al. here: news.cornell.edu/stories/2024...
news.cornell.edu
Immune T cells become exhausted in chronic fatigue syndrome patients | Cornell Chronicle
The study found that key CD8+ T cells showed signs of constant stimulation that lead to an exhausted state, a condition that is well-studied in cancer.
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 03/12/2024
Today, on the International Day for Persons with Disabilities, I am beyond proud that the Canadian Institutes for Health Research have released their Anti-Ableism Action Plan, entitled "From Intention to Impact". 1/3 cihr-irsc.gc.ca/e/54121.html...
cihr-irsc.gc.ca
From Intention to Impact: CIHR Anti-Ableism Action Plan - CIHR
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Sickandtiredaus Jordan Crane @sickandtiredaus.bsky.social · 15/11/2024
You can protect yourself & your loved ones from COVID with these 6 steps: 😷 Wear a respirator mask 🏠 Stay home if sick ⏰ Test if you have symptoms 🌳 Let fresh air in or meet outdoors 💉 Stay up to date with your vaccinations 💡 Talk to your GP about COVID medicines. youtu.be/FlBfq22nxt8?...
youtu.be
Jordan’s long COVID story
YouTube video by Department of Health Victoria
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The Sick Times @thesicktimes.org · 14/11/2024
"Many of our colleagues in the media continue to minimize the disease and the ongoing COVID-19 pandemic — but not The Sick Times." - @mileswgriffis.bsky.social It's our birthday! One year of covering the #LongCOVID crisis without denial, minimizing, or gaslighting. bit.ly/3USv2w6
bit.ly
Press release: The Sick Times announces one year of covering the Long COVID crisis - The Sick Times
“Our reporting on Long COVID remains as vital today as it did when we launched,” executive editor Miles W. Griffis said. “Many of our colleagues in the media continue to minimize the disease and the o...
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 16/11/2024
Hey everyone. Please sign the international list if you haven’t already. Our friends in the US need our support! Canadians benefit greatly from the advocacy and research done in the US too. 💙
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ICanCME Canadian Research Network @icancmeresearch.bsky.social · 14/11/2024
Anyone know how to fix an invalid handle? I’ve noticed a few of us with them.
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