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Isabel Jordan (she/her)

@seastarbatita.bsky.social
1.8K followers 548 following 329 posts

New platform. New bio. Nerd. Disabled. Honesty is kindness. Even when it’s hard. #PatientsIncluded #ItDoesntHaveToHurt #PatientPartnership #PatientEngagement (avatar by @blackmudpuppy)

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Isabel Jordan (she/her) @seastarbatita.bsky.social · 21/02/2025
So, southern coast friends… don’t know if feeling nauseous after an earthquake is a thing? Feeling weirdly nauseous/dizzy after this earthquake (5.1 - prob the biggest I’ve felt)
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 12/02/2025
Fantastic paper on the need for culture change to emphasize the importance of pain relief in pediatric procedures. 'One-off' events can accumulate & increase trauma & fear - not just of the specific procedure but of healthcare interactions in general. bmcmedicine.biomedcentral.com/articles/10....
bmcmedicine.biomedcentral.com
Moments that matter: childhood pain treatment shapes pain for life—we can do better every time in every child - BMC Medicine
Background Needle procedures, such as vaccinations, blood draws, and intravenous cannulation, are the most frequent source of childhood pain, causing fear and reducing the uptake of medical procedures...
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 05/02/2025
💥🎤
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 05/02/2025
ICYMI, I recently posted about the controversy around language in patient partnership. I'm very much in the camp of using the terminology #PatientPartner over other options & I'm curious how others feel. #PatientPartnership #PatientEngagement modelingchange.blogspot.com/2025/01/what...
modelingchange.blogspot.com
What's in a name?
"What's in a name? That which we call a rose by any other name would smell as sweet"     William Shakespeare     Romeo and Juliet, Act II, ...
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Solutions for Kids in Pain @kidsinpain.bsky.social · 30/01/2025
Thank you @dalhousieu.bsky.social for featuring SKIP in Dal Solutions & for highlighting the importance of Canada’s first Pediatric Pain Management health standard (tinyurl.com/a2bbs5r2) in improving children's pain! #ItDoesntHaveToHurt @seastarbatita.bsky.social Read more: tinyurl.com/jvpj6vc3
Dal Solutions logo and header image of the article titled "One in five kids endure chronic pain. A new pain standard will soothe it" with a child getting an IV
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 03/02/2025
Holy cow — it takes a long time to shop when you’re checking every product to make sure it’s not from the US. #WorthIt
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 23/01/2025
It's been *waaay* to long in coming, but I've been wanting to write this piece on #PatientPartnership language for well over a year (2 years maybe?). In it I describe why I use the language I do. #PatientEngagement #PatientOrientedResearch modelingchange.blogspot.com/2025/01/what...
modelingchange.blogspot.com
What's in a name?
"What's in a name? That which we call a rose by any other name would smell as sweet"     William Shakespeare     Romeo and Juliet, Act II, ...
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 09/01/2025
lol re ‘mandatory masking’ in bc healthcare facilities. Was in the ER last night and nobody was wearing a mask except for one healthcare provider. Not. A. Soul. Greeaaaat 🫤
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 31/12/2024
I’ve got a hankering to binge read all of Cory Doctorow’s catalogue. Staring with the ones that I’ve missed and then going back to the ones that I’ve already read
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 26/12/2024
My new robe kinda makes me look like Darth Sidious and I’m not mad about it
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David Fisman. @dfisman.bsky.social · 21/12/2024
Jaysus, this place is turning into twitter Stop fighting with each other over bullshit, thanks Go interact with your loved ones or pets.
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Dr Rehaminator's Monster Cock @drrehaminator.bsky.social · 18/12/2024
Lmao rip bozos
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Kelly @broadwaybabyto.bsky.social · 18/12/2024
TMS for a Cure have an incredible resource for patients including an emergency room guide. If you have MCAS or another mast cell disease - it’s a great guide to bring with you anytime you need the hospital: tmsforacure.org/wp-content/u...
tmsforacure.org
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 19/12/2024
Fantastic piece. Really appreciate @lollardfish.bsky.social’s thoughtful commentary
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Trish Greenhalgh @trishgreenhalgh.bsky.social · 19/12/2024
Here we go again
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 19/12/2024
So does everyone else have a favourite pair of pants and shoes to wear when they go to the ER with a family member?
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 14/12/2024
Driving through four-way stops in my town, honestly makes me go into rage mode I mean, there are rules to these things. They’re not supposed to be a free for all.
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Nikki Bayley @nikkibayley.bsky.social · 14/12/2024
Hey #Vancouver I only have one order next week and I would love to change that. I deliver beautiful cheese & charcuterie boards, gorgeous grazing trays & make one-of-a-kind grazing tables. Perfect gifts for the foodie in your life & for yourself! Love custom orders! Message me boardsofvancouver.ca
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 14/12/2024
😳 checking in on everyone I know that was planning to go ‘The City’ today
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 14/12/2024
Spoke too soon :/ #RareDisease #ChronicIllness
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 13/12/2024
Ahhhh… sitting outside at 8 in the evening wearing a tank top when it’s only 3C. Thanks perimenopause!!🫠
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Family Engagement in Research Training Program @ferprogram.bsky.social · 12/12/2024
✨ New to community research? Wondering how to navigate as a patient partner? We’ve got some encouragement just for you: your presence is already powerful. 🌟 Check out our latest infographic to learn why you don’t need to be a pro in research lingo to make an impact.
Tips For New Research Partners:
You don’t need to wow your 
research team with trying to use 
of scientific lingo right away. Your confidence with that comes with time and mentorship. Your lived experience and unique insights are already a huge asset to the team. 
While learning the lingo is helpful, your value lies in being you.
Confidence grows with time—so lean into your role, ask questions, and remember: your voice matters. ❤️
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Solutions for Kids in Pain @kidsinpain.bsky.social · 10/12/2024
Pain management without discrimination is a fundamental human right. SKIP, with the Health Standards Organization, co-developed the first Pediatric Pain Management standard to ensure equitable care for all kids in Canada. #ItDoesntHaveToHurt #HumanRightsDay Download the standard tinyurl.com/a2bbs5r2
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Solutions for Kids in Pain @kidsinpain.bsky.social · 11/12/2024
➰Check out the December issue of In the LOOP for highlights from our impactful, multi-day ‘Shaping the Future of SKIP’ strategy meeting, exciting new research opportunities, and more! 🌟 Read it here: tinyurl.com/yeym6bv4 Don't miss out - Subscribe at kidsinpain.ca/newsletters/! #ItDoesntHaveToHurt
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 10/12/2024
@kidsinpain.bsky.social you’re here! You’re here!!
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 08/12/2024
Looks like the current storm may be coming to a close
Photo of a wide gravel path with trees along each side. mountain in the background is lit by sun while most of the sky is overcast. A large, bright rain is in the sky
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Erin Biba @erinbiba.bsky.social · 08/12/2024
1 - "disabled" is not a slur or a bad word. It's just what we are. We don't need other words to replace it. If it makes you uncomfortable ask yourself why. 2 - Having a disabled child doesn't make YOU disabled and listening to disabled folks AND YOUR CHILD will help you better support them.
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Cooperstreaming ♿️ @cooperstreaming.bsky.social · 08/12/2024
I am endlessly talking about this. Parents of disabled kids don't get to decide what's best for disabled people. It's important to advocate for your kids, especially when those kids are not capable of advocating for themselves. But talking over actually disabled people? No, you don't get a say.
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 06/12/2024
So much work still to do. Je me souviens 🌹
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 03/12/2024
Today, on the International Day for Persons with Disabilities, I am beyond proud that the Canadian Institutes for Health Research have released their Anti-Ableism Action Plan, entitled "From Intention to Impact". 1/3 cihr-irsc.gc.ca/e/54121.html...
cihr-irsc.gc.ca
From Intention to Impact: CIHR Anti-Ableism Action Plan - CIHR
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 03/12/2024
From @picardonhealth.bsky.social www.theglobeandmail.com/gift/055cb67...
theglobeandmail.com
Are we sleepwalking toward another pandemic?
The bad news about the spread of H5N1 bird flu keeps coming – including massive infection of cattle and a worrisome human case in B.C.
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Chuck Wendig @chuckwendig.bsky.social · 03/12/2024
BECOME UNGOVERNABLE, the goose on the roof cries. Today's #artadventcalendar -- Day Three. Photo by me.
Black and white photo, a pointed shingled roof facing the left of the frame, and to the right of the frame, a partial dome of a silo-like roof cap. There, in the center of frame, on the roof line, stands a single defiant goose, facing left. The cobra snake has its beak open as if it is shouting expletives and invective at the world. As should we all. The goose -- a Canada goose, by the way, though here we call them "Canadian geese" -- is all of us. Stuck on a roof and mad at the world. Photo by me, Chuck Wendig.
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Prof Lisa Schipper 🌍🍉💪 @lisaschipper.bsky.social · 03/12/2024
Yeay @altmetric.com you have formally made Bluesky a good space for academics.
A screenshot of the Altmetric Attention Score for a recent Policy Forum paper in Science that shows that Bluesky is now added as one of the places that counts toward the Attention Score.
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Stephen Quinn @cbcstephenquinn.bsky.social · 02/12/2024
My friendship bracelet is done. Now you can win it by telling us your story of someone being kind to you at a concert. Text us: 236-330-2623 Or email earlyed@cbc.ca It’s one-of-a-kind a priceless.
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Paul Fairie @paulisci.bsky.social · 30/11/2024
A List of Things People Blamed on Short Skirts 🧵
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 02/12/2024
When you have painsomnia from caregiving for a family member in a pain crisis. Ahhhh…. The circle of life
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 29/11/2024
Once again, the validity of Indigenous oral stories is reinforced www.cbc.ca/news/canada/...
cbc.ca
Study finds Indigenous people in B.C. cultivated hazelnuts 7,000 years ago, challenging modern assumptions | CBC News
A new study indicates Indigenous peoples in B.C. have been cultivating the beaked hazelnut for thousands of years, challenging assumptions that pre-colonial Indigenous people were only hunter-gatherers.
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 27/11/2024
“There just aren't the things in place to protect disabled students, especially not disabled First Nation students," said Ollie. www.cbc.ca/news/indigen...
cbc.ca
Guardian pulls kids from Vancouver school, saying school staff failed to deal with bullying | CBC News
Advocacy organization Inclusion B.C. says about half of their calls are related to barriers to accessing inclusive education.
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 27/11/2024
Well, it’s been a good run. We’ve had some great, compassionate care. But I guess day 5 is the day that we find a nurse that doesn’t think we deserve care or compassion.
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Pete Fry @ptfry.bsky.social · 27/11/2024
For posterity: some of children’s artwork that Cllr Montague found “intimidating” and ordered removed at today’s Council presentation on his amendment to re-introduce gas to future construction. Imagine how intimidated those lil kids felt coming to City Hall to present about their climate future.
“Iris Orca” - on a red poster board, a smiling cetacean probably enjoying an unpolitical totally not overheated ocean swim“Stop Climate Chage” I mean obviously we want to stop climate change (sic) too, but this awesome typography on a bright green board wins points for style and impactNO MORE GAS Save our only earth!!!!
This is a grim depictions a very sad looking seal sits lonely atop an ice flow - surrounded by dark angry lines, what do they mean? Perhaps they are GhGs, or climate change, or angry dark energy from Councillor Montague - who knows? But that seal looks sad.KEEP GAS out of our buildings - Arthur age 10
The magnificence of this colourful cityscape can’t be accurately captured in a photo - it’s 3-D! Each building a cut  out piece of coloured foam core - great job Arthur!
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Michelle Cyca @michellecyca.com · 26/11/2024
Beyond parody: while debating the motion to re-instate natural gas heating in new buildings, Mayor Sim and Cllr. Brian Montague described the colourful artwork created by children & displayed by Cllrs Fry & Carr "intimidating" to those who express pro-gas opinions. Demand the signs be taken down.
Pete Fry, with a bunch of colourful signs with hand-written slogans by literal children
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The Psychologist @psychmag.bsky.social · 26/11/2024
Maybe this www.bps.org.uk/psychologist... On the second one, Chris Packham is your man!
bps.org.uk
Connective issues | BPS
Emma Barratt (Editor, Research Digest) on emerging links between neurodivergence, hypermobility and more.
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Dr. Jens Foell @jensfoell.de · 27/11/2024
Listen, I get it, we're desperate because we're losing the fight right now, but if we could just *not* - bash people because of their looks - call people "low IQ" - explain "where they come from" by criticizing their parents that would be great. Because those are all complete bullshit arguments.
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 27/11/2024
Excited about all the movement of folks on to here. Thanks to those who added me to starter packs. I love meeting new people online. Sorry if I haven’t followed back or said hi. But I promise I have good reason… 1/3
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Laura D'Olimpio @lauradol4.bsky.social · 26/11/2024
Looks like bluesky is going to be added to altmetrics! #philsky #academicsky
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Tara Moriarty @moriartylab.bsky.social · 25/11/2024
All these people whose kids are now going to get cavities requiring expensive treatment, and complications of those cavities, including serious, sometimes life-threatening infections. Plus a lifetime of problems with teeth that were not protected in childhood.
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 26/11/2024
Preach
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💜 QUOTE POST TO UPLIFT MA! Reposts got nerfed by Bsky @hoydenspark.bsky.social · 24/11/2024
And honestly this is why disability justice needs to be LED 👏🏻 BY 👏🏻 DISABLED 👏🏻 PEOPLE 👏🏻 which is the responsibility of ABLED PEOPLE to *drumroll* enable. Also critical to have disabled people from diverse backgrounds in leadership but are you all ready for that conversation?
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Dr Abolish ICE @pwr2dppl.bsky.social · 24/11/2024
We should collect all of these into a book for kids trying to pick a career path.
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 24/11/2024
It me #relatable
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