iiinova — where your digital self keeps evolving

Nandini @nandini0306.bsky.social · 02/03/2026

🩵 March marks Long COVID Awareness Month this year Children are living with Long COVID — affecting their health, learning, and futures. Recognition, research, and real supports can’t wait. Join us to raise awareness & show support for our community: covidsociety.ca/priorities/l...

covidsociety.ca

International Long Covid Awareness Month 2026 - Canadian Covid Society

International Long Covid Awareness Month March 2026 Join us to raise awareness and show support for the Long Covid community this March. Schedule of Events This March, we are taking a spec...

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Reposted by Nandini

Forward Canada @forwardcanada.bsky.social · 28/11/2025

ALBERTA: Bill 11 makes healthcare more expensive for everyone by introducing a two-tier system ⚠️ It lets doctors mix public and private work, giving faster access to people who pay while everyone else waits longer. Visit NoTwoTier.ca to advocate against this and FOR Universal Public Healthcare.

notwotier.ca

URGENT – Stop Premier Danielle Smith’s Plan to End Universal Healthcare

Alberta Premier Smith has used the Notwithstanding Clause to pass laws that erase rights and silence the courts.

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Nandini @nandini0306.bsky.social · 09/12/2025

1/ This may look like “just one story” to many, not a dataset, but it crystallizes a pattern that far too many families are bumping into: when the system cannot explain a young person's symptoms, it downgrades them to lifestyle, instead of upgrading the level of curiosity. www.ad.nl/binnenland/m...

ad.nl

‘Mam, ik ga toch niet dood?’: het waren de laatste woorden van Mayke (22)

Met het vwo-diploma op zak volgt Mayke Koopman (net 22) haar passie: schilderen. Bij het toekennen van een internationale kunstprijs wordt haar talent geroemd. Een broze gezondheid sloopt een carrière...

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Nandini @nandini0306.bsky.social · 09/12/2025

Germany just did the thing everyone else keeps pretending is "impossible" or "does not exist". @cmadocs.bsky.social @markcarneyforpm.bsky.social www.nature.com/articles/d41...

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Nandini @nandini0306.bsky.social · 03/12/2025

On this Giving Tuesday, CLCN is showing up for the children with LC who continue to be overlooked. Giving attention, giving voice, and giving our children the recognition they deserve. #GivingTuesdayCanada #LongCOVIDChildren #CLCN #DriveRecognition #StrengthenCare#LCDiagnosis

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Nandini @nandini0306.bsky.social · 01/12/2025

❣️A small gesture from CLCN for Canadian Children with Long COVID with warmth: 1/ As CLCN moves into 2026, our focus remains clear: Keep showing up for Canadian children in every space while driving recognition for Pediatric LC & pushing for biomedical research and treatments for long term recovery

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Nandini @nandini0306.bsky.social · 01/12/2025

@jamapediatrics.com Publishing lifestyle-based pediatric reviews without considering children affected by COVID Infections- including those living unknowingly with Long COVID- it creates an incomplete and potentially unsafe narrative. jamanetwork.com/journals/jam...

jamanetwork.com

Lifestyle Interventions Addressing Blood Pressure in Children

This systematic review assesses the effectiveness of school- or community-based lifestyle interventions to reduce high blood pressure in children and identifies components that support effectiveness.

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Nandini @nandini0306.bsky.social · 01/12/2025

Alberta’s public health care is under attack. Premier Smith wants doctors in both public and private systems — a fast lane for the wealthy, longer waits for everyone else. Our system is already strained. Sign the petition. 💙 notwotier.ca/directmessag...

notwotier.ca

URGENT – Stop Alberta's government from overriding the Charter of Rights

Alberta Premier Smith plans to use the Notwithstanding Clause to pass laws that erase rights and silence the courts.

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Nandini @nandini0306.bsky.social · 22/11/2025

Further to CLCN's communication with the CBC Ombudsman re: Oct interview w Gill Deacon, I am sharing our response back to CBC. To all my fellow Canadian parents know that CLCN will not let this go unresolved.

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Nandini @nandini0306.bsky.social · 22/11/2025

Why did CBC’s Feb 2025 segment on rising school absenteeism not mention COVID once?@mattgalloway.bsky.social Interviewed the Canadian School Attendance Partnership: grp led by psychologists/psychotherapists who continue to frame a medical crisis in kids as a mental-health issue.

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Nandini @nandini0306.bsky.social · 10/11/2025

🚩This was recently shared with us by a parent and it's deeply disturbing. It appears that this hospital has a troubling pattern in its approach to children living with complex illnesses. Also reportedly being separated from parents for extended questioning- serious ethical & safeguarding concerns.

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To my fellow Canadian parents with children living with Long COVID: the Children's Long COVID Network submitted a complaint to the CBC Ombudsman. Please consider sending your own personal letters to CBC to amplify our collective voice.

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@cbcnews.ca @cbcnews-mirror.bsky.social Canadians living w Long COVID, especially children, deserve responsible journalism, not "braining training" pseudoscience on National TV. Whoever endorsed this should be ashamed. Appalling, @ianhanomansing.bsky.social. Complaint escalated to the CBC Ombudsman

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Study compares heart risks of COVID-19 infection and vaccination, and the results may surprise you

Strong & credible study. Issue is when national outlets like @ctvnews-mirror.bsky.social keep turning to @isaacbogoch.bsky.social as the "default expert" even outside his field. This catch-all authority flattens complex science and sidelines those with real expertise. www.ctvnews.ca/health/artic...

ctvnews.ca

The risk of children developing rare but serious heart complications is higher after a COVID-19 infection than after vaccination, according to a new study.

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Nandini @nandini0306.bsky.social · 07/11/2025

@spichaksimon.bsky.social thank you for holding @ianhanomansing.bsky.social CBC accountable on this. They have a lot to answer on this. It's deeply disappointing when a National broadcaster watched by millions undermines its own credibility.

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Powerful piece by a pediatrician reminding us of a truth often neglected by Canadian school systems: accommodations aren't privileges-they are rights. Equity means meeting children where they are- but for those with complex illnesses like Long COVID, it often isn't. kevinmd.com/2025/08/why-...

kevinmd.com

Why accommodations aren't special treatment but essential for equity

Disabled students and professionals continue to face systemic discrimination and exclusion, especially in education and medicine, where outdated attitudes and resistance to accommodations hinder equit...

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Nandini @nandini0306.bsky.social · 07/11/2025

Day3 reflection: "Keeping up with Long COVID and ME/CFS patients means keeping up with the emerging science of Complex Chronic illnesses"- adopting new ways of continuous monitoring, testing. Thank you @icancmeresearch.bsky.social for hosting a groundbreaking conference every clinician should hear.

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Nandini @nandini0306.bsky.social · 06/11/2025

Day 2 reflections: "Who is driving and who is the passenger"- Symptoms don't exist in isolation; they collide, overlap, and amplify each other. For those living with ME/CFS, LC, managing life is about navigating the unpredictable system when the "driver" role constantly shifts

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Nandini @nandini0306.bsky.social · 05/11/2025

This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry. Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social

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Nandini @nandini0306.bsky.social · 04/11/2025

Phenomenal Canadian scientific conference on the emerging research on Long COVID & ME/CFS.

Nandini @nandini0306.bsky.social · 30/10/2025

Recent data showing that re-infections increase the risk of Long COVID and serious complications in children. 🚩Profound fatigue, PEM, and cognitive challenges www.medscape.com/viewarticle/...

medscape.com

Long COVID in Kids: What Pediatricians Need to Know

New research suggests that children and teens who get COVID a second time face twice the risk for developing long COVID.

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Nandini @nandini0306.bsky.social · 29/10/2025

@gilldeacon.bsky.social Framing Long COVID as psychological is propaganda! It misleads the public and harms patients- especially children (our future generation) still suffering without biomedical care. Please stop spreading this dangerous misinformation! Who is promoting you to spread this?

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Nandini @nandini0306.bsky.social · 28/10/2025

@gilldeacon.bsky.social Respecting your courage in speaking on your Long COVID journey, but promoting a "recovery" narrative based on psychological and mind-body interventions in your CBC interview of Oct 26th gravely misrepresented Long COVID in public discourse.

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Nandini @nandini0306.bsky.social · 21/10/2025

The power of patient agency- physicians bring expertise, patients bring agency, lived experience, and questions. True partnership is key! An insightful and timely read - kevinmd.com/2025/07/why-...

kevinmd.com

Why agency and partnership are vital in modern health care

Effective health care requires agency, responsibility, advocacy, and partnership to ensure humane, personal, and positive outcomes for patients and providers alike.

Nandini @nandini0306.bsky.social · 17/10/2025

Being punished for being sick. Marked truant. Denied support. Misdiagnosed by our system. New report out on how schools are failing a generation. www.rollingstone.com/culture/cult...

rollingstone.com

Long Covid Is Real -- And It's Changing an Entire Generation

Long Covid is affecting hundreds of thousands of kids in America, and many doctors and schools refuse to recognize their illness.

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Nandini @nandini0306.bsky.social · 12/10/2025

4 years ago I took my daughter to Germany - she tested positive for microclots. I brought the results back to Canada hoping our peds docs would help- no! they refused to even dabble into the unknown. Time for change! Sign the CLCN petition - c.org/m9pRcrhMBX

c.org

Have you seen this petition yet?

Demand Federal Action on Biomedical Care for Children Living with Long COVID

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Nandini @nandini0306.bsky.social · 08/10/2025

When bias becomes a diagnosis, care disappears! Stigmatizing language in medical records can mean the difference between care & neglect. For Children with #LongCOVID, these labels replace investigation with dismissal. Sign & share the Petition: chng.it/7ZSzLXnp5n

Demand Federal Action on Biomedical Care for Children Living with Long COVID

Sign the Petition

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Nandini @nandini0306.bsky.social · 06/10/2025

How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them? It's time to act. Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n

Demand Federal Action on Biomedical Care for Children Living with Long COVID

Sign the Petition

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Nandini @nandini0306.bsky.social · 03/10/2025

Which is exactly why we stand united to bring to the forefront issues like Long COVID in children & youth that is NOT a mental health issue but a biomedical one. @cmadocs.bsky.social will be held accountable to respond. If you are with me- pls sign & share: chng.it/T4yHRxPX6S

Have you seen this petition yet?

Demand Federal Action on Biomedical Care for Children Living with Long COVID

Nandini @nandini0306.bsky.social · 03/10/2025

This is what I thought it was going to be. Sadly, it was a political agenda that was directed instead of listening to the public. I am ashamed to see @cmadocs.bsky.social who claim to be the Docs speaking in the interest of the people,instead taking orders from the minister.

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Nandini @nandini0306.bsky.social · 02/10/2025

October is #DysautonomiaAwarenessMonth💙 Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness. The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada. Sign & Share: chng.it/7ZSzLXnp5n #CLCN #AdvocacyMeetsResearch

Demand Federal Action on Biomedical Care for Children Living with Long COVID

Sign the Petition