Reposted by AlisaBetty C. Jung @bettycjung.bsky.social · 25/05/2026Researchers have identified specific blood-based biomarkers that distinguish inflammatory breast cancer from other subtypes. Science Advances study: Used a novel RNA sequencing method called Thermostable Group II Intron Reverse Transcriptase (TGIRT) sequencing 131
Alisa @ibc-advocate.bsky.social · 08/05/2026A new target for diagnosing and/or treating inflammatory breast cancer? 010
Reposted by AlisaMD Anderson Cancer Center UTHealth Houston Graduate School @mda-uthgrad.bsky.social · 22/04/2026April’s Paper of the Month highlights new insights into inflammatory breast cancer and the tumor microenvironment. Cancer Biology graduate Lan T. H. Phi uncovered that AXL promotes tumor progression by driving immunosuppressive macrophage polarization via STAT6 signaling. 🔗 loom.ly/wDi85Rs 021
Alisa @ibc-advocate.bsky.social · 26/04/2026At the NBCC Leadership Summit #nbccsummit - looking forward to Lobby Day! 010
Alisa @ibc-advocate.bsky.social · 22/04/2026Seeing a doctor right away is an excellent idea. Adding that MRI is the best tool for detecting IBC, though subtle signs may be detectable from an ultrasound or mammogram. 000
Alisa @ibc-advocate.bsky.social · 18/03/2026Agreed. Clare was an amazing woman in so many ways, from her love story to her work with underserved communities. Inflammatory breast cancer is such a cruel thief. #IBC 011
Reposted by AlisaScience X / Phys.org @sciencex.bsky.social · 29/01/2026Elevated blood levels of soluble E-cadherin are linked to increased risk of brain metastasis in inflammatory breast cancer, highlighting a potential target for therapy and risk assessment.medicalxpress.comBlood biomarker points to increased risk of brain metastasis in patients with inflammatory breast cancerResearchers at The University of Texas MD Anderson Cancer Center have identified a targetable driver of brain metastases in patients with aggressive inflammatory breast cancer. 011
Reposted by AlisaThe National Breast Cancer Coalition @nbccstopbc.bsky.social · 28/12/2025Hone your #advocacy skills and learn the important basics of #breastcancer science, research methodology, and trial design. Apply to attend NBCC’s 2026 Project LEAD Institute today! For more information, visit: nbcc.info/ProjectLEADInstitute 011
Reposted by AlisaAlt CDC (they/them) @altcdc.altgov.info · 19/12/2025More insights on this unethical vaccine study - which is paid for by the CDC and involves experimenting on a vulnerable infant population.drrubin.substack.comWhen Vaccine Research Raises the Wrong QuestionsHow the CDC quietly announced funding a study for global vaccine research that has questionable ethical considerations 920681
Reposted by AlisabioRxiv Cancer Bio @biorxiv-cancer.bsky.social · 13/12/2025From in silico prediction to experimental validation: Identification of drugs and novel synergistic combinations that inhibit growth of inflammatory breast cancer cells www.biorxiv.org/content/10.64898/20… 011
Reposted by AlisaThe National Breast Cancer Coalition @nbccstopbc.bsky.social · 14/12/2025UNITE to help end breast cancer at the #NBCCSummit! Join tireless and talented breast cancer advocates who will help NBCC achieve our mission to end breast cancer for everyone. Nbcc.info/26Summit 001
Alisa @ibc-advocate.bsky.social · 13/12/2025All of this. Especially for MBC but for all patients. #cansky 020
Alisa @ibc-advocate.bsky.social · 13/12/2025Chemo = brain fog. Chemo + hormone suppression = more brain fog. You don’t say. Seriously, though, I am glad to see it’s getting studied. jamanetwork.com/journals/jam...jamanetwork.comUnraveling the Complexity of Cancer-Related Cognitive Impairment in Breast CancerCancer-related cognitive impairment (CRCI) is an important clinical problem that affects many patients with cancer and includes difficulties in memory, attention, processing speed, and executive funct... 000
Reposted by AlisaProPublica @propublica.org · 13/12/2025When ProPublica’s @gingerthompson.bsky.social began talking to people in Albany, GA, she didn’t expect that they would be so fearful to criticize the town’s sole hospital on the record — or how powerless they were to hold that hospital to account. Read our 5-part "Sick in a Hospital Town" series:projects.propublica.orgSick in a Hospital Town: As Phoebe Memorial Grew, the Health of Albany, Georgia, DeclinedThe five-part series, “Sick in a Hospital Town,” pursues one question: Why are people in Albany so sick when its most powerful institution is a hospital? 423067
Reposted by Alisa@doublewhammied @doublewhammied.bsky.social · 13/12/2025"New research finds the latest quirk of #GLP-1 receptor agonists is that they may influence the interpretation of oncological #FDG PET/CT scans. 'We noticed unusual uptake in 1 of our pts on a GLP-1 agonist, which prompted a wider review.' The team conducted a retrospective case ..." 1/3 #CanSkymedpagetoday.comGLP-1s May Throw Off Some Medical ScansThe latest quirk linked to GLP-1 receptor agonists is of more concern to doctors than patients 101
Reposted by AlisaAlfred Fischer @alfredodistefano.bsky.social · 08/12/2025Inflammatory breast cancer is very aggressive. The aggressive biology of IBC may override any additional risks imposed by a postpartum diagnosis. pubmed.ncbi.nlm.nih.gov/40938309/pubmed.ncbi.nlm.nih.govImpact of Postpartum Diagnosis on Survival of Women with Inflammatory Breast Cancer - PubMedUnlike in noninflammatory invasive breast cancer, postpartum diagnosis did not negatively affect prognosis in IBC. These findings highlight the continuing need to identify unique drivers of aggressive biology in IBC. 001
Reposted by AlisaGBG @gbg.de · 10/12/2025📢 Hot from the Press: Now published in #NEJM! We are excited to share that the pivotal DESTINY-Breast05 data „Trastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer“ presented by Sibylle Loibl at #SABCS2025, is now available. 🔗 Read the full NEJM article: www.nejm.org/doi/full/10....nejm.orgTrastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer | NEJMPatients with human epidermal growth factor receptor 2 (HER2)–positive early breast cancer and residual disease after neoadjuvant therapy are at high risk for recurrence. In a phase 3, open-label, ... 001
Alisa @ibc-advocate.bsky.social · 12/12/2025MRIs are still the gold standard for inflammatory breast cancer. 010
Alisa @ibc-advocate.bsky.social · 11/12/2025So interesting listening to @tmprowell.bsky.social and other FDA oncologists on an Alamo Advocate panel. Thank you so much for being there and answering patient advocate questions. #sabcs2025 110
Reposted by AlisaSan Antonio Breast Cancer Symposium @sabcs.bsky.social · 21/11/2025Partners in Progress: This #SABCS25 Plenary Lecture will showcase how patients and advocates have expanded their roles in every stage of breast cancer research—including clinical trial design. Learn more in SABCS Meeting News: buff.ly/yKwCDRx 033
Reposted by AlisaSan Antonio Breast Cancer Symposium @sabcs.bsky.social · 10/12/2025Presenters share the latest cutting-edge research—including data from the ALTERNATE, I-SPY, and MARRES trials—during a Rapid Fire session at #SABCS25. 031
Alisa @ibc-advocate.bsky.social · 09/12/2025Excellent talk this afternoon on dormant cell research and ways of targeting those cells to prevent recurrence. Important for all breast cancer survivors, but especially IBC patients. #sabcs2025 #inflammatorybreastcancer 000
Reposted by AlisaOncoDaily @oncodaily.bsky.social · 08/12/2025San Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino @ptarantinomd.bsky.social @sabcs.bsky.social oncodaily.com/voices/breas... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #SABCS #SABCS2025oncodaily.comSan Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino - OncoDailySan Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino / Breast Cancer, cancer, Headlines, OncoDaily, Oncology, Paolo 041
Reposted by AlisaOncoDaily @oncodaily.bsky.social · 06/12/2025AACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025 @theaacr.bsky.social @sabcs.bsky.social @stolaney1.bsky.social oncodaily.com/industry/aac... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #AACR #BreastCancer #SABCS #SABCS2025oncodaily.comAACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025 - OncoDailyAACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025 / AACR, Breast Cancer, OncoDaily, onoclogy, SABCS 2025 054
Alisa @ibc-advocate.bsky.social · 08/12/2025Excited to be at SABCS, the largest breast cancer symposium in the world #alamoadvocateprogram #sabcs2025 #thinkibc 040
Reposted by AlisaWendy Woodward, MD, PhD @ibcradiation.bsky.social · 14/11/2025Such wonderful networking and brainstorming today at the IBC Connect and Community - we will create an email distribution to connect clinician and community teams, interested in projects and ideas to improve adherence to guidelines for IBC- Please DM if you would like to join the list! #cansky 092
Alisa @ibc-advocate.bsky.social · 18/11/2025“If your doctor first treats the symptoms as an infection and they don’t improve within a week, ask for more tests, such as imaging or a biopsy, to find the cause. If redness or swelling continues, especially if you’re not breastfeeding, ask for a follow-up visit right away.” 022
Reposted by AlisaMichele ♒️ @koolbeans25.bsky.social · 12/11/2025I wish your friend well. Obamacare saved my life. I lost my health insurance in Aug of 2016. Found a lump Oct 2016. Signed up for ACA insurance Jan 2017 and started treatment for my Stage III TN IBC(Triple Negative Inflammatory Breast Cancer) which is also a death sentence without treatment. 092
Alisa @ibc-advocate.bsky.social · 14/11/2025Honored to be a presenter at IBC Community Connect Conference - it’s wonderful to be in the presence of so many brilliant, dedicated people. #IBCCC2025 Thank you @ibcradiation.bsky.social for bringing everyone together. 021
Reposted by AlisaJAMA @jama.com · 25/09/2025💬 Viewpoint: Medical education should shift from pattern recognition to critical thinking and pathophysiological reasoning to reduce diagnostic errors and adapt to #AI advancements. #MedEd ja.ma/46VhjuI 022
Alisa @ibc-advocate.bsky.social · 22/09/2025Important, evidence-based information about birth control pills. 000
Reposted by AlisaOncoDaily @oncodaily.bsky.social · 22/09/2025Epigenetic Modifiers in Cancer Therapy: Unlocking New Treatment Pathways oncodaily.com/oncolibrary/... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #EpigeneticModifiers #CancerTherapyoncodaily.comEpigenetic Modifiers in Cancer Therapy: Unlocking New Treatment Pathways - OncoDailyEpigenetic Modifiers are Drugs that alter gene expression by modifying DNA or histones without changing the sequence and reprogramming cancer 042
Reposted by AlisaWendy Woodward, MD, PhD @ibcradiation.bsky.social · 31/08/2025Our inflammatory breast cancer program is raising money to help patients manage out of pocket costs on trials and to find new targets. Every dollar goes to the research. Please help if you can! mdanderson.donordrive.com/participants...mdanderson.donordrive.comI'm supporting The University of Texas MD Anderson Cancer Center!The University of Texas MD Anderson Cancer Center, the global leader in cancer care. Novel discoveries at MD Anderson pave the way for new cancer therapies, making a difference in the outcomes of pati... 072
Reposted by AlisaThiago Carvalho @cyrilpedia.bsky.social · 02/09/2025'In this review we discuss recent technological advancements and how their application to T cells has the potential to steer the next generation of cellular therapy. We highlight emerging applications and current technological limitations that future tool development aims to overcome.'cell.comCRISPR tools for T cells: targeting the genome, epigenome, and transcriptomeT cell therapy has curative potential for many cancers. Despite impressive clinical efficacy in hematological malignancies, current T cell therapy still faces challenges related to sustaining response... 064
Alisa @ibc-advocate.bsky.social · 24/08/2025Done. Nobody who is metastatic should have to wait months for disability benefits they’ve paid into or years to be eligible for Medicare coverage. 001
Reposted by AlisaUT MD Anderson Cancer Center @mdanderson.bsky.social · 24/08/2025When it feels like you’re drowning in intake forms, visit notes, bills and patient education documents, it can be hard to know where to start with organization. MD Anderson leadership practitioner Janice Simon shares expert tips: spr.ly/63328fxWTe #OncSky #EndCancerspr.ly6 tips for getting organized during cancer treatmentFrom file management to maximizing MyChart, these expert-backed tips can help patients and caregivers get organized during cancer treatment. 051
Reposted by Alisa@doublewhammied @doublewhammied.bsky.social · 22/08/2025"Society treats illness as a series of discrete medical events while ignorng the psychological aftermath tht often follows. Whether someone is living w/ #cancer, #MS, ulcerative colitis, #longCovid or anothr autoimmune or chronic illness, the emotional reverberations — marked ..." 1/2 #CanSky #IDSkystatnews.comThe trauma of illness can last long after the body has healed“The body can heal while the self remains disconnected”: a psychologist on the overlooked trauma of illness. 35012
Reposted by AlisaDia VanGunten / Writer @pinkzombierose.bsky.social · 19/08/2025You’re welcome. I just wanted to alert other women - and the men who love them - as many friends had no idea that purple breasts could indicate IBC or even that inflammatory breast cancer is out there as a different and dangerous form. 131
Alisa @ibc-advocate.bsky.social · 23/08/2025An IBC-specific biomarker would be huge. Thanks to all scientists and clinicians who do life-saving work focused on inflammatory breast cancer. #thinkIBC 000
Reposted by AlisaAlt CDC (they/them) @altcdc.altgov.info · 09/08/2025“The shooting was “just the perfect, terrible metaphor for what public health has endured these past six months — and the past six years,” said Katelyn Jetelina, a public health expert who has worked closely with the C.D.C.”nytimes.comGunman in Deadly C.D.C. Shooting Fixated on Covid Vaccine, Officials Say 4411103
Reposted by AlisaAMA @ama-assn.org · 04/08/2025For more than a century, NIH-sponsored research has played a critical role in improving the nation’s health. This vital work must continue. spr.lySlashing NIH funding imperils the foundation of medical researchFor more than a century, NIH-sponsored research has played a critical role in improving the nation’s health. This vital work must continue. 0127
Reposted by AlisaElizabeth Jacobs, PhD @elizabethjacobs.bsky.social · 02/08/2025This comes up a lot when I talk with other epidemiologists. The detention centers are perfect launchpads for disease outbreaks. Republicans won’t care because they don’t see the migrants as human. But they should remember that infectious disease won’t stop at the walls of the detention center.king5.comSeven suspected tuberculosis cases at Tacoma ICE processing facilityThe KING 5 Investigators discovered seven suspected cases of TB at the Northwest ICE Processing Center, confirmed by the Washington State Department of Health. 23272141
Alisa @ibc-advocate.bsky.social · 31/07/2025Thanks to you and to everyone on the committee for your hard work. A lot of work remains - educating doctors about IBC; getting more IBC-specific research - but this is a great start, especially for getting much-needed data. #thinkibc 021
Reposted by AlisaDana-Farber Cancer Institute @danafarber.bsky.social · 24/07/2025Filipa Lynce, MD, FASCO, received the Advanced Clinical Research Award in Breast Cancer Research from Conquer Cancer, the @ascocancer.bsky.social Foundation. Lynce's work will focus on deciphering mechanisms of response to novel therapies in HER2 expressing stage III Inflammatory Breast Cancer. 131