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Alisa

@ibc-advocate.bsky.social
77 followers 124 following 75 posts

Inflammatory breast cancer #IBC survivor and patient advocate. #thinkibc Loves: science | running | cats | books | chocolate

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Reposted by Alisa
Betty C. Jung @bettycjung.bsky.social · 25/05/2026
Researchers have identified specific blood-based biomarkers that distinguish inflammatory breast cancer from other subtypes. Science Advances study: Used a novel RNA sequencing method called Thermostable Group II Intron Reverse Transcriptase (TGIRT) sequencing
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Alisa @ibc-advocate.bsky.social · 08/05/2026
A new target for diagnosing and/or treating inflammatory breast cancer?
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Alisa @ibc-advocate.bsky.social · 26/04/2026
#nbccsummit #talkibc #inflammatirybreastcancer
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MD Anderson Cancer Center UTHealth Houston Graduate School @mda-uthgrad.bsky.social · 22/04/2026
April’s Paper of the Month highlights new insights into inflammatory breast cancer and the tumor microenvironment. Cancer Biology graduate Lan T. H. Phi uncovered that AXL promotes tumor progression by driving immunosuppressive macrophage polarization via STAT6 signaling. 🔗 loom.ly/wDi85Rs
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Alisa @ibc-advocate.bsky.social · 26/04/2026
At the NBCC Leadership Summit #nbccsummit - looking forward to Lobby Day!
 Breast cancer patient advocates holding signs in support of science funding
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Alisa @ibc-advocate.bsky.social · 22/04/2026
Seeing a doctor right away is an excellent idea. Adding that MRI is the best tool for detecting IBC, though subtle signs may be detectable from an ultrasound or mammogram.
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Alisa @ibc-advocate.bsky.social · 22/04/2026
Thank you for educating and raising awareness.
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Alisa @ibc-advocate.bsky.social · 22/04/2026
Life-saving work!
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Alisa @ibc-advocate.bsky.social · 18/03/2026
Agreed. Clare was an amazing woman in so many ways, from her love story to her work with underserved communities. Inflammatory breast cancer is such a cruel thief. #IBC
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Science X / Phys.org @sciencex.bsky.social · 29/01/2026
Elevated blood levels of soluble E-cadherin are linked to increased risk of brain metastasis in inflammatory breast cancer, highlighting a potential target for therapy and risk assessment.
medicalxpress.com
Blood biomarker points to increased risk of brain metastasis in patients with inflammatory breast cancer
Researchers at The University of Texas MD Anderson Cancer Center have identified a targetable driver of brain metastases in patients with aggressive inflammatory breast cancer.
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Alisa @ibc-advocate.bsky.social · 23/01/2026
This.
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The National Breast Cancer Coalition @nbccstopbc.bsky.social · 28/12/2025
Hone your #advocacy skills and learn the important basics of #breastcancer science, research methodology, and trial design. Apply to attend NBCC’s 2026 Project LEAD Institute today! For more information, visit: nbcc.info/ProjectLEADInstitute
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Alt CDC (they/them) @altcdc.altgov.info · 19/12/2025
More insights on this unethical vaccine study - which is paid for by the CDC and involves experimenting on a vulnerable infant population.
drrubin.substack.com
When Vaccine Research Raises the Wrong Questions
How the CDC quietly announced funding a study for global vaccine research that has questionable ethical considerations
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bioRxiv Cancer Bio @biorxiv-cancer.bsky.social · 13/12/2025
From in silico prediction to experimental validation: Identification of drugs and novel synergistic combinations that inhibit growth of inflammatory breast cancer cells www.biorxiv.org/content/10.64898/20…
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The National Breast Cancer Coalition @nbccstopbc.bsky.social · 14/12/2025
UNITE to help end breast cancer at the #NBCCSummit! Join tireless and talented breast cancer advocates who will help NBCC achieve our mission to end breast cancer for everyone. Nbcc.info/26Summit
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Alisa @ibc-advocate.bsky.social · 13/12/2025
All of this. Especially for MBC but for all patients. #cansky
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Alisa @ibc-advocate.bsky.social · 13/12/2025
Chemo = brain fog. Chemo + hormone suppression = more brain fog. You don’t say. Seriously, though, I am glad to see it’s getting studied. jamanetwork.com/journals/jam...
jamanetwork.com
Unraveling the Complexity of Cancer-Related Cognitive Impairment in Breast Cancer
Cancer-related cognitive impairment (CRCI) is an important clinical problem that affects many patients with cancer and includes difficulties in memory, attention, processing speed, and executive funct...
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ProPublica @propublica.org · 13/12/2025
When ProPublica’s @gingerthompson.bsky.social began talking to people in Albany, GA, she didn’t expect that they would be so fearful to criticize the town’s sole hospital on the record — or how powerless they were to hold that hospital to account. Read our 5-part "Sick in a Hospital Town" series:
projects.propublica.org
Sick in a Hospital Town: As Phoebe Memorial Grew, the Health of Albany, Georgia, Declined
The five-part series, “Sick in a Hospital Town,” pursues one question: Why are people in Albany so sick when its most powerful institution is a hospital?
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@doublewhammied @doublewhammied.bsky.social · 13/12/2025
"New research finds the latest quirk of #GLP-1 receptor agonists is that they may influence the interpretation of oncological #FDG PET/CT scans. 'We noticed unusual uptake in 1 of our pts on a GLP-1 agonist, which prompted a wider review.' The team conducted a retrospective case ..." 1/3 #CanSky
medpagetoday.com
GLP-1s May Throw Off Some Medical Scans
The latest quirk linked to GLP-1 receptor agonists is of more concern to doctors than patients
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Alfred Fischer @alfredodistefano.bsky.social · 08/12/2025
Inflammatory breast cancer is very aggressive. The aggressive biology of IBC may override any additional risks imposed by a postpartum diagnosis. pubmed.ncbi.nlm.nih.gov/40938309/
pubmed.ncbi.nlm.nih.gov
Impact of Postpartum Diagnosis on Survival of Women with Inflammatory Breast Cancer - PubMed
Unlike in noninflammatory invasive breast cancer, postpartum diagnosis did not negatively affect prognosis in IBC. These findings highlight the continuing need to identify unique drivers of aggressive biology in IBC.
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GBG @gbg.de · 10/12/2025
📢 Hot from the Press: Now published in #NEJM! We are excited to share that the pivotal DESTINY-Breast05 data „Trastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer“ presented by Sibylle Loibl at #SABCS2025, is now available. 🔗 Read the full NEJM article: www.nejm.org/doi/full/10....
nejm.org
Trastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer | NEJM
Patients with human epidermal growth factor receptor 2 (HER2)–positive early breast cancer and residual disease after neoadjuvant therapy are at high risk for recurrence. In a phase 3, open-label, ...
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Alisa @ibc-advocate.bsky.social · 12/12/2025
MRIs are still the gold standard for inflammatory breast cancer.
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Alisa @ibc-advocate.bsky.social · 11/12/2025
So interesting listening to @tmprowell.bsky.social and other FDA oncologists on an Alamo Advocate panel. Thank you so much for being there and answering patient advocate questions. #sabcs2025
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San Antonio Breast Cancer Symposium @sabcs.bsky.social · 21/11/2025
Partners in Progress: This #SABCS25 Plenary Lecture will showcase how patients and advocates have expanded their roles in every stage of breast cancer research—including clinical trial design. Learn more in SABCS Meeting News: buff.ly/yKwCDRx
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San Antonio Breast Cancer Symposium @sabcs.bsky.social · 10/12/2025
Presenters share the latest cutting-edge research—including data from the ALTERNATE, I-SPY, and MARRES trials—during a Rapid Fire session at #SABCS25.
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Alisa @ibc-advocate.bsky.social · 09/12/2025
Excellent talk this afternoon on dormant cell research and ways of targeting those cells to prevent recurrence. Important for all breast cancer survivors, but especially IBC patients. #sabcs2025 #inflammatorybreastcancer
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OncoDaily @oncodaily.bsky.social · 08/12/2025
San Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino @ptarantinomd.bsky.social @sabcs.bsky.social oncodaily.com/voices/breas... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #SABCS #SABCS2025
oncodaily.com
San Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino - OncoDaily
San Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino / Breast Cancer, cancer, Headlines, OncoDaily, Oncology, Paolo
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OncoDaily @oncodaily.bsky.social · 06/12/2025
AACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025 @theaacr.bsky.social @sabcs.bsky.social @stolaney1.bsky.social oncodaily.com/industry/aac... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #AACR #BreastCancer #SABCS #SABCS2025
oncodaily.com
AACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025 - OncoDaily
AACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025 / AACR, Breast Cancer, OncoDaily, onoclogy, SABCS 2025
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Alisa @ibc-advocate.bsky.social · 08/12/2025
Excited to be at SABCS, the largest breast cancer symposium in the world #alamoadvocateprogram #sabcs2025 #thinkibc
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Alisa @ibc-advocate.bsky.social · 30/11/2025
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Wendy Woodward, MD, PhD @ibcradiation.bsky.social · 14/11/2025
Such wonderful networking and brainstorming today at the IBC Connect and Community - we will create an email distribution to connect clinician and community teams, interested in projects and ideas to improve adherence to guidelines for IBC- Please DM if you would like to join the list! #cansky
Guideline concordant care rates in IBC dropping over timeConference attendees at IBCCC
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Alisa @ibc-advocate.bsky.social · 18/11/2025
“If your doctor first treats the symptoms as an infection and they don’t improve within a week, ask for more tests, such as imaging or a biopsy, to find the cause. If redness or swelling continues, especially if you’re not breastfeeding, ask for a follow-up visit right away.”
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Michele ♒️ @koolbeans25.bsky.social · 12/11/2025
I wish your friend well. Obamacare saved my life. I lost my health insurance in Aug of 2016. Found a lump Oct 2016. Signed up for ACA insurance Jan 2017 and started treatment for my Stage III TN IBC(Triple Negative Inflammatory Breast Cancer) which is also a death sentence without treatment.
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Alisa @ibc-advocate.bsky.social · 14/11/2025
Honored to be a presenter at IBC Community Connect Conference - it’s wonderful to be in the presence of so many brilliant, dedicated people. #IBCCC2025 Thank you @ibcradiation.bsky.social for bringing everyone together.
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JAMA @jama.com · 25/09/2025
💬 Viewpoint: Medical education should shift from pattern recognition to critical thinking and pathophysiological reasoning to reduce diagnostic errors and adapt to #AI advancements. #MedEd ja.ma/46VhjuI
A flow chart comparing illness script-based vs pathophysiological approach to patient diagnosis. It starts with symptoms & lab values, diverges into two approaches, and then converges on potential diagnoses and treatments.
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Alisa @ibc-advocate.bsky.social · 25/09/2025
Looking forward to reading this one.
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Alisa @ibc-advocate.bsky.social · 22/09/2025
Important, evidence-based information about birth control pills.
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OncoDaily @oncodaily.bsky.social · 22/09/2025
Epigenetic Modifiers in Cancer Therapy: Unlocking New Treatment Pathways oncodaily.com/oncolibrary/... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #EpigeneticModifiers #CancerTherapy
oncodaily.com
Epigenetic Modifiers in Cancer Therapy: Unlocking New Treatment Pathways - OncoDaily
Epigenetic Modifiers are Drugs that alter gene expression by modifying DNA or histones without changing the sequence and reprogramming cancer
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Wendy Woodward, MD, PhD @ibcradiation.bsky.social · 31/08/2025
Our inflammatory breast cancer program is raising money to help patients manage out of pocket costs on trials and to find new targets. Every dollar goes to the research. Please help if you can! mdanderson.donordrive.com/participants...
mdanderson.donordrive.com
I'm supporting The University of Texas MD Anderson Cancer Center!
The University of Texas MD Anderson Cancer Center, the global leader in cancer care. Novel discoveries at MD Anderson pave the way for new cancer therapies, making a difference in the outcomes of pati...
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Thiago Carvalho @cyrilpedia.bsky.social · 02/09/2025
'In this review we discuss recent technological advancements and how their application to T cells has the potential to steer the next generation of cellular therapy. We highlight emerging applications and current technological limitations that future tool development aims to overcome.'
cell.com
CRISPR tools for T cells: targeting the genome, epigenome, and transcriptome
T cell therapy has curative potential for many cancers. Despite impressive clinical efficacy in hematological malignancies, current T cell therapy still faces challenges related to sustaining response...
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Alisa @ibc-advocate.bsky.social · 24/08/2025
Done. Nobody who is metastatic should have to wait months for disability benefits they’ve paid into or years to be eligible for Medicare coverage.
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UT MD Anderson Cancer Center @mdanderson.bsky.social · 24/08/2025
When it feels like you’re drowning in intake forms, visit notes, bills and patient education documents, it can be hard to know where to start with organization. MD Anderson leadership practitioner Janice Simon shares expert tips: spr.ly/63328fxWTe #OncSky #EndCancer
spr.ly
6 tips for getting organized during cancer treatment
From file management to maximizing MyChart, these expert-backed tips can help patients and caregivers get organized during cancer treatment.
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@doublewhammied @doublewhammied.bsky.social · 22/08/2025
"Society treats illness as a series of discrete medical events while ignorng the psychological aftermath tht often follows. Whether someone is living w/ #cancer, #MS, ulcerative colitis, #longCovid or anothr autoimmune or chronic illness, the emotional reverberations — marked ..." 1/2 #CanSky #IDSky
statnews.com
The trauma of illness can last long after the body has healed
“The body can heal while the self remains disconnected”: a psychologist on the overlooked trauma of illness.
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Dia VanGunten / Writer @pinkzombierose.bsky.social · 19/08/2025
You’re welcome. I just wanted to alert other women - and the men who love them - as many friends had no idea that purple breasts could indicate IBC or even that inflammatory breast cancer is out there as a different and dangerous form.
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Alisa @ibc-advocate.bsky.social · 23/08/2025
An IBC-specific biomarker would be huge. Thanks to all scientists and clinicians who do life-saving work focused on inflammatory breast cancer. #thinkIBC
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Alt CDC (they/them) @altcdc.altgov.info · 09/08/2025
“The shooting was “just the perfect, terrible metaphor for what public health has endured these past six months — and the past six years,” said Katelyn Jetelina, a public health expert who has worked closely with the C.D.C.”
nytimes.com
Gunman in Deadly C.D.C. Shooting Fixated on Covid Vaccine, Officials Say
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AMA @ama-assn.org · 04/08/2025
For more than a century, NIH-sponsored research has played a critical role in improving the nation’s health. This vital work must continue.
spr.ly
Slashing NIH funding imperils the foundation of medical research
For more than a century, NIH-sponsored research has played a critical role in improving the nation’s health. This vital work must continue. 
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Elizabeth Jacobs, PhD @elizabethjacobs.bsky.social · 02/08/2025
This comes up a lot when I talk with other epidemiologists. The detention centers are perfect launchpads for disease outbreaks. Republicans won’t care because they don’t see the migrants as human. But they should remember that infectious disease won’t stop at the walls of the detention center.
king5.com
Seven suspected tuberculosis cases at Tacoma ICE processing facility
The KING 5 Investigators discovered seven suspected cases of TB at the Northwest ICE Processing Center, confirmed by the Washington State Department of Health.
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Alisa @ibc-advocate.bsky.social · 31/07/2025
Thanks to you and to everyone on the committee for your hard work. A lot of work remains - educating doctors about IBC; getting more IBC-specific research - but this is a great start, especially for getting much-needed data. #thinkibc
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Dana-Farber Cancer Institute @danafarber.bsky.social · 24/07/2025
Filipa Lynce, MD, FASCO, received the Advanced Clinical Research Award in Breast Cancer Research from Conquer Cancer, the @ascocancer.bsky.social Foundation. Lynce's work will focus on deciphering mechanisms of response to novel therapies in HER2 expressing stage III Inflammatory Breast Cancer.
Filipa Lynce, MD, FASCO
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