iiinova — where your digital self keeps evolving

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Betty C. Jung @bettycjung.bsky.social · 25/05/2026

Researchers have identified specific blood-based biomarkers that distinguish inflammatory breast cancer from other subtypes. Science Advances study: Used a novel RNA sequencing method called Thermostable Group II Intron Reverse Transcriptase (TGIRT) sequencing

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Alisa @ibc-advocate.bsky.social · 09/05/2026

I’m very sorry about your friend. F*ck cancer and especially IBC.

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Alisa @ibc-advocate.bsky.social · 08/05/2026

A new target for diagnosing and/or treating inflammatory breast cancer?

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MD Anderson Cancer Center UTHealth Houston Graduate School @mda-uthgrad.bsky.social · 22/04/2026

April’s Paper of the Month highlights new insights into inflammatory breast cancer and the tumor microenvironment. Cancer Biology graduate Lan T. H. Phi uncovered that AXL promotes tumor progression by driving immunosuppressive macrophage polarization via STAT6 signaling. 🔗 loom.ly/wDi85Rs

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Alisa @ibc-advocate.bsky.social · 26/04/2026

At the NBCC Leadership Summit #nbccsummit - looking forward to Lobby Day!

Breast cancer patient advocates holding signs in support of science funding

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Alisa @ibc-advocate.bsky.social · 22/04/2026

Seeing a doctor right away is an excellent idea. Adding that MRI is the best tool for detecting IBC, though subtle signs may be detectable from an ultrasound or mammogram.

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Alisa @ibc-advocate.bsky.social · 22/04/2026

Speed is very important - thanks for educating. I would add that MRI is generally the best tool for detecting IBC, though subtle signs may be detectable from an ultrasound or mammogram.

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Alisa @ibc-advocate.bsky.social · 22/04/2026

Thank you for educating and raising awareness.

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Alisa @ibc-advocate.bsky.social · 18/03/2026

Thank you very much for the hope in sharing her 25-year survival. There was so much less knowledge then and fewer treatment options. But we still have a long way to go in making sure it is diagnosed timely and treated correctly.

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Alisa @ibc-advocate.bsky.social · 18/03/2026

Well I definitely thank you as both an IBC survivor and patient advocate. Yes, one of the difficulties is that mammograms usually don’t catch it. Sometimes a mammogram can show signs suspicious of IBC (like trabecular distortion) to someone IBC-knowledgeable, but breast MRI is by far better.

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Alisa @ibc-advocate.bsky.social · 18/03/2026

Thank you for raising awareness.

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Alisa @ibc-advocate.bsky.social · 18/03/2026

Agreed. Clare was an amazing woman in so many ways, from her love story to her work with underserved communities. Inflammatory breast cancer is such a cruel thief. #IBC

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Alisa @ibc-advocate.bsky.social · 17/02/2026

Thank you for doing this life-saving research.

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The National Breast Cancer Coalition @nbccstopbc.bsky.social · 28/12/2025

Hone your #advocacy skills and learn the important basics of #breastcancer science, research methodology, and trial design. Apply to attend NBCC’s 2026 Project LEAD Institute today! For more information, visit: nbcc.info/ProjectLEADInstitute

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bioRxiv Cancer Bio @biorxiv-cancer.bsky.social · 13/12/2025

From in silico prediction to experimental validation: Identification of drugs and novel synergistic combinations that inhibit growth of inflammatory breast cancer cells www.biorxiv.org/content/10.64898/20…

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The National Breast Cancer Coalition @nbccstopbc.bsky.social · 14/12/2025

UNITE to help end breast cancer at the #NBCCSummit! Join tireless and talented breast cancer advocates who will help NBCC achieve our mission to end breast cancer for everyone. Nbcc.info/26Summit

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Alisa @ibc-advocate.bsky.social · 13/12/2025

All of this. Especially for MBC but for all patients. #cansky

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ProPublica @propublica.org · 13/12/2025

When ProPublica’s @gingerthompson.bsky.social began talking to people in Albany, GA, she didn’t expect that they would be so fearful to criticize the town’s sole hospital on the record — or how powerless they were to hold that hospital to account. Read our 5-part "Sick in a Hospital Town" series:

projects.propublica.org

Sick in a Hospital Town: As Phoebe Memorial Grew, the Health of Albany, Georgia, Declined

The five-part series, “Sick in a Hospital Town,” pursues one question: Why are people in Albany so sick when its most powerful institution is a hospital?

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@doublewhammied @doublewhammied.bsky.social · 13/12/2025

"New research finds the latest quirk of #GLP-1 receptor agonists is that they may influence the interpretation of oncological #FDG PET/CT scans. 'We noticed unusual uptake in 1 of our pts on a GLP-1 agonist, which prompted a wider review.' The team conducted a retrospective case ..." 1/3 #CanSky

medpagetoday.com

GLP-1s May Throw Off Some Medical Scans

The latest quirk linked to GLP-1 receptor agonists is of more concern to doctors than patients

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GBG @gbg.de · 10/12/2025

📢 Hot from the Press: Now published in #NEJM! We are excited to share that the pivotal DESTINY-Breast05 data „Trastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer“ presented by Sibylle Loibl at #SABCS2025, is now available. 🔗 Read the full NEJM article: www.nejm.org/doi/full/10....

nejm.org

Trastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer | NEJM

Patients with human epidermal growth factor receptor 2 (HER2)–positive early breast cancer and residual disease after neoadjuvant therapy are at high risk for recurrence. In a phase 3, open-label, ...

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Alisa @ibc-advocate.bsky.social · 12/12/2025

MRIs are still the gold standard for inflammatory breast cancer.

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Alisa @ibc-advocate.bsky.social · 11/12/2025

So interesting listening to @tmprowell.bsky.social and other FDA oncologists on an Alamo Advocate panel. Thank you so much for being there and answering patient advocate questions. #sabcs2025

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San Antonio Breast Cancer Symposium @sabcs.bsky.social · 21/11/2025

Partners in Progress: This #SABCS25 Plenary Lecture will showcase how patients and advocates have expanded their roles in every stage of breast cancer research—including clinical trial design. Learn more in SABCS Meeting News: buff.ly/yKwCDRx

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San Antonio Breast Cancer Symposium @sabcs.bsky.social · 10/12/2025

Presenters share the latest cutting-edge research—including data from the ALTERNATE, I-SPY, and MARRES trials—during a Rapid Fire session at #SABCS25.

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Alisa @ibc-advocate.bsky.social · 09/12/2025

Excellent talk this afternoon on dormant cell research and ways of targeting those cells to prevent recurrence. Important for all breast cancer survivors, but especially IBC patients. #sabcs2025 #inflammatorybreastcancer

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Alisa @ibc-advocate.bsky.social · 08/12/2025

Excited to be at SABCS, the largest breast cancer symposium in the world #alamoadvocateprogram #sabcs2025 #thinkibc

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Wendy Woodward, MD, PhD @ibcradiation.bsky.social · 14/11/2025

Such wonderful networking and brainstorming today at the IBC Connect and Community - we will create an email distribution to connect clinician and community teams, interested in projects and ideas to improve adherence to guidelines for IBC- Please DM if you would like to join the list! #cansky

Guideline concordant care rates in IBC dropping over time

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Alisa @ibc-advocate.bsky.social · 18/11/2025

“If your doctor first treats the symptoms as an infection and they don’t improve within a week, ask for more tests, such as imaging or a biopsy, to find the cause. If redness or swelling continues, especially if you’re not breastfeeding, ask for a follow-up visit right away.”

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Michele ♒️ @koolbeans25.bsky.social · 12/11/2025

I wish your friend well. Obamacare saved my life. I lost my health insurance in Aug of 2016. Found a lump Oct 2016. Signed up for ACA insurance Jan 2017 and started treatment for my Stage III TN IBC(Triple Negative Inflammatory Breast Cancer) which is also a death sentence without treatment.

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Alisa @ibc-advocate.bsky.social · 14/11/2025

Honored to be a presenter at IBC Community Connect Conference - it’s wonderful to be in the presence of so many brilliant, dedicated people. #IBCCC2025 Thank you @ibcradiation.bsky.social for bringing everyone together.

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JAMA @jama.com · 25/09/2025

💬 Viewpoint: Medical education should shift from pattern recognition to critical thinking and pathophysiological reasoning to reduce diagnostic errors and adapt to #AI advancements. #MedEd ja.ma/46VhjuI

A flow chart comparing illness script-based vs pathophysiological approach to patient diagnosis. It starts with symptoms & lab values, diverges into two approaches, and then converges on potential diagnoses and treatments.

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Alisa @ibc-advocate.bsky.social · 25/09/2025

Looking forward to reading this one.

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Alisa @ibc-advocate.bsky.social · 22/09/2025

Important, evidence-based information about birth control pills.

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Wendy Woodward, MD, PhD @ibcradiation.bsky.social · 31/08/2025

Our inflammatory breast cancer program is raising money to help patients manage out of pocket costs on trials and to find new targets. Every dollar goes to the research. Please help if you can! mdanderson.donordrive.com/participants...

mdanderson.donordrive.com

I'm supporting The University of Texas MD Anderson Cancer Center!

The University of Texas MD Anderson Cancer Center, the global leader in cancer care. Novel discoveries at MD Anderson pave the way for new cancer therapies, making a difference in the outcomes of pati...

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Thiago Carvalho @cyrilpedia.bsky.social · 02/09/2025

'In this review we discuss recent technological advancements and how their application to T cells has the potential to steer the next generation of cellular therapy. We highlight emerging applications and current technological limitations that future tool development aims to overcome.'

cell.com

CRISPR tools for T cells: targeting the genome, epigenome, and transcriptome

T cell therapy has curative potential for many cancers. Despite impressive clinical efficacy in hematological malignancies, current T cell therapy still faces challenges related to sustaining response...

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Alisa @ibc-advocate.bsky.social · 24/08/2025

Done. Nobody who is metastatic should have to wait months for disability benefits they’ve paid into or years to be eligible for Medicare coverage.

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UT MD Anderson Cancer Center @mdanderson.bsky.social · 24/08/2025

When it feels like you’re drowning in intake forms, visit notes, bills and patient education documents, it can be hard to know where to start with organization. MD Anderson leadership practitioner Janice Simon shares expert tips: spr.ly/63328fxWTe #OncSky #EndCancer

spr.ly

6 tips for getting organized during cancer treatment

From file management to maximizing MyChart, these expert-backed tips can help patients and caregivers get organized during cancer treatment.

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@doublewhammied @doublewhammied.bsky.social · 22/08/2025

"Society treats illness as a series of discrete medical events while ignorng the psychological aftermath tht often follows. Whether someone is living w/ #cancer, #MS, ulcerative colitis, #longCovid or anothr autoimmune or chronic illness, the emotional reverberations — marked ..." 1/2 #CanSky #IDSky

statnews.com

The trauma of illness can last long after the body has healed

“The body can heal while the self remains disconnected”: a psychologist on the overlooked trauma of illness.

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Dia VanGunten / Writer @pinkzombierose.bsky.social · 19/08/2025

You’re welcome. I just wanted to alert other women - and the men who love them - as many friends had no idea that purple breasts could indicate IBC or even that inflammatory breast cancer is out there as a different and dangerous form.

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