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Hope Sparks

@hope-sparks.bsky.social
521 followers 108 following 122 posts

Research scientist | Language and reading | Development and disorders | Genes and environments | ADHD academic hope-sparks.github.io

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Hope Sparks @hope-sparks.bsky.social · 13h
Make replying to this potential NIH policy change as important as the proposed change giving OMB more control over funding decisions for all federal grants. The below policy change would change who gets to see impact scores…hint not the people who need them!
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Crystal Lewis @cghlewis.bsky.social · 06/10/2026
Issue 65 of #rdmweekly is out! 📬 It includes: ➡️ Life After OSF: How and Where to Share Data and Materials @syeducation.bsky.social ➡️ Tidy Data @datafrosch.bsky.social ➡️ What Even Are Parquet Files? @niccrane.bsky.social and more! rdmweekly.substack.com/p/rdm-weekly...
rdmweekly.substack.com
RDM Weekly - Issue 065
A weekly roundup of Research Data Management resources.
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Nikki Botting @profnikkibotting.bsky.social · 20/08/2026
We are looking for adults & adolescents (16+) with Developmental Language Disorder to complete our quick 10-15 minute survey on #food, food packaging and #eating preferences. 🥐 🥓 🥗 😋 cityunilondon.eu.qualtrics.com/jfe/form/SV_... Please complete it if you can, and also share widely. Thank you! 🙏
a tasty cheese toasty and salad
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Dr. Nadine Gaab @gaablab.bsky.social · 02/10/2026
Day 2 of @DyslexiaAwarenessMonth! 👇 👇 👇 Help us debunk #dyslexia myths this October. Please share any myths you have encountered or questions you would like us to address! The Gaablab team at @harvardeducation.bsky.social and @harvard.edu More at www.gaablab.com
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Hope Sparks @hope-sparks.bsky.social · 29/09/2026
Diagnosis matters and it is going to matter from childhood through adulthood. DLD doesn't stop at 18 and too many people go undiagnosed
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Word Aware @wordaware.bsky.social · 21/09/2026
To help us get this year's @radld.bsky.social poster on billboards, we need your money. And donation, in any currency helps us reach more people. Please give what you can. #DevLangDis www.zeffy.com/en-GB/donati...
zeffy.com
Make DLD Visible | Billboards for DLD
🌍 Make DLD Visible | Billboards for DLDDevelopmental Language Disorder (DLD) affects 1 in 14 people yet most people have never heard of it. We want to change…
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RADLD-Raising Awareness for Developmental Language Disorder @radld.bsky.social · 20/09/2026
The six RADLD committee members are based in Canada, the USA, Australia and the UK. We work together with people with DLD and their families, RADLD ambassadors and translators and country groups to spread the word about Developmental Language Disorder around the world. Join us! @radld.bsky.social
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Dan Quintana @dsquintana.bsky.social · 19/09/2026
And if you want to see how your OSF repos compare against this corpus in terms of usability try my OSF reusability checker app. This app also provides tips if it flags any potential issues dsquintana.shinyapps.io/osf-reusabil...
Screenshot of a web app called the OSF Reusability Checker. A panel on the left takes OSF project links or IDs, with a checkbox for "Also inspect code" and a Check button. On the right, results for one project, kd6p8: it contains data or code, is documented, and has retrievable code. A percentile chart shows its 21 downloads at the 10th percentile for projects of its age, 0.2 times what a repository that age typically gets. Below, three bars compare it with published psychology projects: documented (30% of 672 projects) — this repo yes; hard-coded path (34% of 333 with code) — no; loads a missing file (40% of 333 with code) — no. A results table lists 21 downloads, age-adjusted percentile 10, reuse score 4 out of 4, cleanup "clean", and "looks good".Screenshot of one row from the OSF Reusability Checker's results table, for project rxphw (one of mine!). It has 1,558 downloads, placing it at the 98th percentile for repositories of its age, but scores only 2 out of 4 on reuse, with the cleanup verdict "needs data/code added". The "what to fix" column reads: 6 scripts hard-code a file path — use here::here(); 6 missing files, including 3 data files — deposit them, or add a data-availability statement if access is restricted.
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EngagewithDLD @edldproject.bsky.social · 18/09/2026
Hello E-DLD followers! Dr Michelle St Clair recorded a video of the 2026 E-DLD member consultation update. Please watch to get an update on the project! Watch the video here: youtu.be/T5y9X-AKz7I?... #DevLangDis #DLD #YearlyUpdate
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Hope Sparks @hope-sparks.bsky.social · 18/09/2026
I worked with Ann (& Jason) as a postdoc on cleft palate research. She continued to support my research after that project ended and I moved to Boys Town. I value the time I got to work with and learn from Ann.
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Crystal Lewis @cghlewis.bsky.social · 17/09/2026
Collecting longitudinal data? Know when you should start cleaning it? ❌ Not at the end of your project. ✔️ After every wave of collection See reasons why below. 👇
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Hope Sparks @hope-sparks.bsky.social · 11/09/2026
I'm so excited. Today I got an NoA for my R01 grant on adults with #DevLangDis. I will be working with Kristi Hendrickson and Natalie Parde on developing a community guided and data driven DLD screener for adults. Here is the NIH RePorter link reporter.nih.gov/search/dzggN...
reporter.nih.gov
RePORT ⟩ RePORTER
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Michelle St Clair @michellestclair.bsky.social · 02/09/2026
📣new paper alert! 📣 The @edldproject.bsky.social profile of adults with #DevLangDis, led by @drjennyg.bsky.social. Also @suze-freogirl.bsky.social @profnikkibotting.bsky.social @emilymayjackson.bsky.social journals.sagepub.com/doi/10.1177/...
journals.sagepub.com
Who are Adults with Developmental Language Disorder? Profiles from the Engage with Developmental Language Disorder Project - Jenny L Gibson, Nicola Botting, Ellie Barker, Emily M Jackson, Suze Leitão,...
Background and Aims Although developmental language disorder (DLD) is a lifelong, neurodevelopmental condition, its presentation in adulthood has received scant...
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Word Aware @wordaware.bsky.social · 10/09/2026
DLD is a difference and not a delay. Professionals need to think hard before using 'language delay.' It may be well intentioned but it can also be misinterpreted by families indicating that children can catch up. #DevLangDis
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Simon Fisher @profsimonfisher.bsky.social · 03/09/2026
Help spread the word about the fully funded 4-yr PhD places available at the Max Planck School of Cognition. Pursue a passion for research & advance the understanding of cognition, mentored by a network of world renowned scientists. @maxplanck.de @mps-cognition.bsky.social More info & how to apply:
cognition.maxplanckschools.org
Application
Application; application procedure; FAQs; handbook
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Word Aware @wordaware.bsky.social · 28/08/2026
There are lots and lots of children in every school who are struggling with learning, literacy and mental health because their language needs have not been identified. DLD needs far greater awareness. Be part of the change. Learn about Developmental Language Disorder at radld.org #DevLangDis
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Amanda Van Horne @telllab.bsky.social · 25/08/2026
careers.udel.edu/cw/en-us/job... My lab is hiring a postdoc to help wrap up a clinical trial (data wrangling/data sharing/stats and and analytics /publications related to child psycholinguistics). Position begins immediately. #rstats #slpeeps #childlanguage #DLD please reach out if interested!
careers.udel.edu
University of Delaware - Details - Post Doctoral Researcher, College of Health Sciences
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Hope Sparks @hope-sparks.bsky.social · 19/08/2026
#DevLangDis new genetic findings!
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Hope Sparks @hope-sparks.bsky.social · 11/08/2026
To any doctoral students out there in #DevLangDis or #dyslexia or related areas, Boys Town National Research Hospital has an open cycle postdoctoral T32 grant. Check it out! www.boystownresearch.org/careers-and-...
boystownresearch.org
Postdoctoral Training | Boys Town Research
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Hope Sparks @hope-sparks.bsky.social · 11/08/2026
Big news for people in the data management / open science / science in general world!! Get ready to make a shift. If you are in the learning research & #childdevelopment world consider LDbase (ldbase.org)! But check out re3data for all your options (www.re3data.org)
ldbase.org
LDbase: A Learning & Development Data Repository
LDbase is an open science resource for the educational and developmental science scientific communities, providing a secure place to store and access data, as well access materials about aspects of da...
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Dorothy Bishop @deevybee.bsky.social · 11/08/2026
i feel seen
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Center for Open Science @cos.io · 30/07/2026
COS is working with a committee of experts through the Coalition for Resilient Research Data Infrastructure to develop a strategic plan for strengthening federally funded research data infrastructure. We want to hear from you! The draft plan is open to feedback until Sept 30:
cos.io
Announcing the Coalition for Resilient Research Data Infrastructure (CRRDI) Strategic Plan
The Center for Open Science collaborated with research data infrastructure experts on a strategic plan for the Coalition for Resilient Research Data Infrastructure—a coalition working to build a more resilient ecosystem for federally funded research data. The draft is available for community comment.
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ASHA Journals @ashajournals.bsky.social · 23/07/2026
July is National Cleft and Craniofacial Awareness Month! Check out new ideas and research on working with infants, children, and adults with cleft and craniofacial conditions on Context! academy.pubs.asha.org/2026/07/new-r…
academy.pubs.asha.org
New Resources on Cleft and Craniofacial Conditions - ASHA Journals Academy
There’s a good chance you’ve worked with people with cleft lip and/or palate or other craniofacial conditions. In hospitals, clinics, and schools, ASHA members play a critical role in helping these in...
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Hope Sparks @hope-sparks.bsky.social · 07/07/2026
@cghlewis.bsky.social
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Gregg Gonsalves @gregggonsalves.bsky.social · 25/06/2026
This is a tremendous piece by Judy Stone at @forbes.com. This new OMB rule is going to hurt communities from coast to coast. Federal grants are not just about research! www.forbes.com/sites/judyst...
forbes.com
How The OMB Rule Could Hurt You And Your Town
The OMB proposal threatens scientific research and ALL federal funding for states, cities, and nonprofits. It politicizes ALL funding. Call your reps and write an objection.
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elizabethginexi.bsky.social @elizabethginexi.bsky.social · 16/06/2026
Please click, act, and share this link widely! actionnetwork.org/letters/oppo...
actionnetwork.org
Oppose OMB Proposal to Put ALL Federal Government Funding Decisions in the Hands of Political Appointees
On May 29, 2026, the Office of Management and Budget issued a Notice of Proposed Rulemaking (NPRM), OMB-2026-0034, Regulation for Federal Financial Assistance. The scope of this proposed regulation is...
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elizabethginexi.bsky.social @elizabethginexi.bsky.social · 11/06/2026
READ: My Public Comment on Proposed OMB Rule: Regulation for Federal Financial Assistance elizabethginexi.substack.com/p/my-public-...
elizabethginexi.substack.com
My Public Comment on Proposed OMB Rule: Regulation for Federal Financial Assistance
Submitted by: Elizabeth Ginexi, PhD, Former NIH Scientific Program Official (2003–2025)
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elizabethginexi.bsky.social @elizabethginexi.bsky.social · 11/06/2026
The White House budget office is a powerful agency called OMB most Americans have never heard of. On May 29, 2026 OMB proposed a new rule that would give White House appointees complete control to approve or cancel every grant program created by Congress. elizabethginexi.substack.com/p/a-rule-nob...
elizabethginexi.substack.com
A Rule Nobody Voted On Could Cut Federal Funding to Your Community
The White House budget office is a powerful agency called OMB that most Americans have never heard of.
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NAPLIC @naplic.bsky.social · 10/06/2026
Two children in every UK classroom have Developmental Language Disorder. Yet most people have never heard of it. We’re proud to launch #VoicesForDLD, a movement making sure people with DLD are understood, supported and heard. Join us and demand change > speechandlanguage.org.uk/get-involved...
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Crystal Lewis @cghlewis.bsky.social · 09/06/2026
Never forget. 🌟 cghlewis.com/talks/uc_ope...
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Jeremy Berg @jeremymberg.bsky.social · 09/06/2026
My quote of the day Bethesda Declaration (June 9, 2025)
For staff across the National Institutes of Health (NIH), we dissent to Administration policies that undermine the NIH mission, waste public resources, and harm the health of Americans and people across the globe. Keeping NIH at the forefront of biomedical research requires our stalwart commitment to continuous improvement. But the life-and-death nature of our work demands that changes be thoughtful and vetted. We are compelled to speak up when our leadership prioritizes political momentum over human safety and faithful stewardship of public resources.
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Colette Delawalla, PhD @cdelawalla.bsky.social · 05/06/2026
THE OFFICIAL @standupforscience.net GUIDE FOR TALKING TO ANYONE ABOUT THE OMB RULE PROPOSAL!! www.standupforscience.foundation/policy-and-a...
standupforscience.foundation
How To Talk to Anyone About OMB-2026-0034 — Your Site Title
Written By: Colette Delawalla, PhD, CEO
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Chanda Prescod-Weinstein 🌌 @chanda.blacksky.app · 03/06/2026
Striking to me how little reporting there is on this rule proposal, which is maybe the biggest change to American governance in almost a century. And this reporting is … weak. www.npr.org/2026/06/03/n...
npr.org
President Trump seeks control of science funding
The White House Office of Management and Budget is moving to take more control of billions of dollars in federal grants. Critics say the proposed change would jeopardize the integrity of U.S. science.
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CSDisseminate @csdisseminate.bsky.social · 03/06/2026
Are you a department chair in communication sciences & disorders? If so, consider sharing your thoughts with our team in a 15-20 minute survey. No experience using open science practices is necessary to participate. 📝 click the link in our bio to participate! #slp #aud @ashajournals.bsky.social
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Alt-NIHscience4ALL @alt-nihscience4all.altgov.info · 30/05/2026
#AltCitizen Task alert!!!!!!! A guide for responding to the recent OMB RFI.
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EngagewithDLD @edldproject.bsky.social · 26/05/2026
Hello E-DLD followers! Today we have an exciting research opportunity to advertise. The link for the study is in the linktree in our bio! This project is part of a larger international study. For more information click here: ucc.ie/en/ticld/ #DevLangDis #DLD #TICLD #Recruitment
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Hope Sparks @hope-sparks.bsky.social · 25/05/2026
🌱a lovely start to the season in the Midwest!
A garden bed with marigolds, calendula, tomatoes, strawberries, basil, nasturtium, chives, and cucumbers.
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Crystal Lewis @cghlewis.bsky.social · 19/05/2026
Issue 45 of #rdmweekly is out! 📬 ➡️ Open Science Center Self-Learning Course Catalog @lmu-osc.bsky.social ➡️ README Generator @mcmasteruniversity.bsky.social ➡️ Working Smarter in R: Tips, Tricks & Real-World Lessons @rladiesremote.bsky.social and more! rdmweekly.substack.com/p/rdm-weekly...
rdmweekly.substack.com
RDM Weekly - Issue 045
A weekly roundup of Research Data Management resources.
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Esther Lindström @estherlindstrom.bsky.social · 15/05/2026
This project has been keeping me busy!! Resurfacing to say it's so exciting and fortunate to be funded for this work right now. More here: wordsil.uic.edu #reading
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Libby Heeren @libbyheeren.bsky.social · 15/05/2026
The data community is really a mutual admiration society ❤️ and I like it that way. Today on the Hangout, Martin Frigaard recommended @cghlewis.bsky.social's newsletter! I subscribe, and I think you should, too!! It's called RDM Weekly: rdmweekly.substack.com
rdmweekly.substack.com
RDM Weekly | Substack
A weekly roundup of research data management resources, curated by Crystal Lewis. Click to read RDM Weekly, a Substack publication with hundreds of subscribers.
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EngagewithDLD @edldproject.bsky.social · 14/05/2026
Hello E-DLD followers! Today we have an exciting research opportunity to advertise. You can contact the researcher, Emily Parker, at: emily.parker.23@ucl.ac.uk #DevLangDis #DLD #MentalHealth #PsychologicalTherapy #Recruitment
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Crystal Lewis @cghlewis.bsky.social · 12/05/2026
Issue 44 of #rdmweekly is out! 📬 Including: ➡️ psychds - R Package @mekline.bsky.social ➡️ READMEBuilder @eivimeycook.bsky.social ➡️ Citations to Retracted Papers @cosig.net ➡️ Data Curation as Data Literacy Education @mikalarae.bsky.social and more! rdmweekly.substack.com/p/rdm-weekly...
rdmweekly.substack.com
RDM Weekly - Issue 044
A weekly roundup of Research Data Management resources.
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infoDOCKET @infodocket.bsky.social · 11/05/2026
Enhancing Discoverability: Recent Updates to the OSF www.cos.io/blog/enhanci... (via @cos.io) #openscience #libraries
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Simon Fisher @profsimonfisher.bsky.social · 07/05/2026
“Researchers looked at two high-profile AI agent tools developed to help computer scientists in the field of machine learning. Both systems engaged in acts that violate research integrity, including making up data & p-hacking: running an experiment multiple times but only reporting best outcome.” 🧪
science.org
AI agents may be skilled researchers—but not always honest ones
Two high-profile tools have been shown to make up data and “p-hack” their results
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Barack Obama @barackobama.bsky.social · 07/05/2026
State supreme court justices play a critical role in defending your rights and freedoms, which is why the election happening in Georgia right now is so important. Make sure you have a plan to vote for Jen Jordan and Miracle Rankin.
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Crystal Lewis @cghlewis.bsky.social · 05/05/2026
Issue 43 of #rdmweekly is out! 📬 ➡️ Advantage of Big Team Science: Lessons Learned From Cognitive Science ➡️ Developing Principles to Guide AI Use in Ed Research @airinforms.bsky.social ➡️ Exploring Missing Values in naniar @allisonhorst.bsky.social and more! rdmweekly.substack.com/p/rdm-weekly...
rdmweekly.substack.com
RDM Weekly - Issue 043
A weekly roundup of Research Data Management resources.
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Michel Nivard @michelnivard.bsky.social · 28/04/2026
BGA needs people to communicate if their not going to back out/cancel last minute, or will only be present on 1/2 days, so they can allocate spots to our colleagues and friends who otherwise currently cannot attend due to venue capacity.
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Hope Sparks @hope-sparks.bsky.social · 20/04/2026
The agony of being end of day 3 post study section (lcom) and still waiting for scores to post just knowing 1 person hasnt signed a post meeting form or submitted a revised critique. 😭
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Crystal Lewis @cghlewis.bsky.social · 03/04/2026
I recently shared a blog post written by Britt DeVries on how she used ChatGPT to create REDCap data dictionaries. I was so inspired by her post that I wrote my own on my experience using Claude to create a data dictionary draft. cghlewis.com/blog/claude_...
cghlewis.com
Creating data dictionary drafts using Claude | Crystal Lewis
This post walks through an example of the documentation and prompts you can provide to Claude Sonnet 4.6 to get a working draft of a data dictionary for a data collection form.
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