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Please sign up to support The Ehlers-Danlos Support UK for free on @easyuk today! It’s completely free and would make a big difference to their fundraising. Once you’ve signed up you can raise free donations for them when you shop online: join.easyfundraising.org.uk/the-ehlers-d...

join.easyfundraising.org.uk

You spend, brands donate to The Ehlers-Danlos Support UK.

Help us when you shop with 7,000+ brands. Join now.

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Hippymum @hippymum.bsky.social · 18h

Support Non-Driving Paramedics in SWAST as a Reasonable Adjustment Protect Paramedic. - Sign the Petition! c.org/DzJPQTqS9Z

c.org

Sign the Petition

Support Non-Driving Paramedics in SWAST as a Reasonable Adjustment Protect Paramedic.

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Hippymum @hippymum.bsky.social · 20h

I’ve joined @DementiaUK’s Campaign Network to stand up for families affected by #dementia and push for better specialist support. Join me and be part of the movement to fix dementia care – it only takes a minute: www.dementiauk.org/get-involved...

dementiauk.org

Join the campaign network

Dementia UK is a charity that provides Admiral Nurses for families affected by dementia. Call our Dementia Helpline to find out how we can support you.

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Hippymum @hippymum.bsky.social · 09/10/2026

I just sent Sainsbury's a message demanding accountability for their plastic packaging commitments. It only takes a minute; you can do the same here: everydayplastic.eaction.org.uk/sainsburyssaga

everydayplastic.eaction.org.uk

The Sainsbury's Saga

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Hippymum @hippymum.bsky.social · 08/10/2026

It's time to Rethink British Chicken - pledge now to fight back against damaging industrial chicken farming. actnow.thehumaneleague.org.uk/page/201599/...

actnow.thehumaneleague.org.uk

It's time to Rethink British Chicken

Pledge now to fight back against damaging industrial chicken farming.

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Hippymum @hippymum.bsky.social · 06/10/2026

Tedros Wants His Win. Say NO to the WHO Pandemic Treaty - Click here: cgo.ac/scpxUHBoc

cgo.ac

CitizenGO

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Hippymum @hippymum.bsky.social · 05/10/2026

MPs word shape attitudes, attitudes shape policy and that shapes how our benefits system shows up for us when we need it. That's why I sent my MP a @turn2us.org.uk guide on how to talk about social security with accuracy and respect. Will you? #ChallengePovertyWeek act.turn2us.org.uk/page/196723/...

act.turn2us.org.uk

Share this guide with your MP

How MPs talk about benefits matters. Their words shape attitudes, attitudes shape policy, and that shapes how the system shows up for us when we face tough times. That's why I sent my MP a Turn2us gui...

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Hippymum @hippymum.bsky.social · 03/10/2026

Treatment for OCD and BDD Shouldn’t Stop When Treatment Doesn’t Work - Sign the Petition! c.org/vDzJVF2KhP

c.org

Sign the Petition

Treatment for OCD and BDD Shouldn’t Stop When Treatment Doesn’t Work

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Reposted by Hippymum

Tom Kindlon @tomkindlon.bsky.social · 01/10/2026

(Santa Rosa, California, USA) "Interested in Helping to Develop a Non-Invasive Way to Measure Blood Flow to the Head?" #MEcfs #PwME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @sunsopeningband.bsky.social

Interested in
Helping to Develop a Non-Invasive Way to Measure Blood Flow to the Head?
If you are a woman between the ages of 18-65 and you have myalgic encephalomyelitis (ME) or you are healthy, you may be eligible to participate in a study.
A Non-Invasive Way to Measure Blood Flow to the Head
If you are eligible and agree to participate in the study, you will answer three questionnaires involving more about you, your signs and symptoms, and how well you can think and pay attention.
This is a two-day test involving two different research sessions. During each session, you will do a maximal cardiopulmonary exercise test involving a stationary cycle. Before each test, you will complete a NASA Lean Test. Throughout the study, you will wear an earpiece that measures the blood going to your head.
An honorarium is available to participants.
For more information, and to participate, please contact info@workwellfoundation.org or tdavenport@pacific.edu.
Location
Workwell Foundation in Santa Rosa, California
Are you eligible?
A woman between the ages of 18-65 years Have ME
Cleared by a medical provider to complete cardiopulmonary exercise testing
If you aren't sure, a screening process is provided as part of the study
If you're unsure if you meet the requirements, call or email the study's principal investigator:
Todd E. Davenport, PT, DPT, PhD, MPH, OCS Professor
Department of Physical Therapy University of the Pacific
(209) 946-3159 tdavenport@pacific.edu

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Karen Hargrave @karenlhargrave.bsky.social · 01/10/2026

When will ME get the political attention it needs and deserves? Pleased to see @theguardian.com publish our letter in response to last week’s piece from @georgemonbiot.bsky.social

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Hippymum @hippymum.bsky.social · 03/10/2026

I'm still getting "Access Denied".

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Hippymum @hippymum.bsky.social · 01/10/2026

Increase support and recognition for unpaid carers - Sign the Petition! c.org/TWSSpPpjhT

c.org

Sign the Petition

Increase support and recognition for unpaid carers

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Reposted by Hippymum

Carole Bruce @cabruce.bsky.social · 29/09/2026

Please do continue to share this far and wide to break the indifference to the treatment and life-threatening illness that is #ME. It’s a two fold problem, being so ill and still not being believed. Grim beyond belief. www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Hippymum @hippymum.bsky.social · 29/09/2026

Make ME/CFS learning mandatory for NHS staff - Sign the Petition! c.org/6cVyG5vpm2

c.org

Sign the Petition

Make ME/CFS learning mandatory for NHS staff

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Reposted by Hippymum

Eleanor Fielding @meownersclub.bsky.social · 29/09/2026

Make the NHS modules on #ME compulsory instead of voluntary c.org/TGcmGtvN98a

c.org

Sign the Petition

Make ME/CFS learning mandatory for NHS staff

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Hippymum @hippymum.bsky.social · 29/09/2026

We are advocating for stronger measures to ensure newly registered nurses are supported - Sign the Petition! c.org/pMtvxJd229

c.org

Sign the Petition

We are advocating for stronger measures to ensure newly registered nurses are supported

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Hippymum @hippymum.bsky.social · 28/09/2026

I wish someone would teach my GP about parathyroid glands. Hypercalcaemia is no fun on top of severe ME, POTS, COPD, Fibromyalgia, Osteoarthritis and hypermobile Ehlers Danlos Syndrome to name but a few. Sick of being sick.

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BladeoftheSun @bladeofthes.bsky.social · 28/09/2026

After WW2 with the highest ever debt, twice as high as now. Clement Attlee took over as UK PM. He nationalised Healthcare, Housing, Rail, Energy, Steel, Mining and created 2m jobs. The blueprint is there. Why not do it?

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Hippymum @hippymum.bsky.social · 28/09/2026

Implementing a standardised software system across all NHS trust’s. - Sign the Petition! c.org/FddVCTpLvy

c.org

Sign the Petition

Implementing a standardised software system across all NHS trust’s.

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Reposted by Hippymum

Dan Wyke @danwyke.bsky.social · 27/09/2026

We need to recognise the mistreatment and neglect of people with Myalgic Encephalomyelitis as an act of political violence, perpetrated by so-called medical professionals on behalf of financial (insurance companies) and governmental (DWP) institutions...

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Hippymum @hippymum.bsky.social · 26/09/2026

I've just emailed my MP urging a Fuel Duty cut in the Oct 28 Budget. D MPs must hear it directly from us. FairFuelUK supporters have helped freeze Fuel Duty for 16 years. This tactic works. fairfueluk.eaction.org.uk/Budget-Oct-28 #FairFuelUK #FuelDuty #PumpWatch

fairfueluk.eaction.org.uk

Fuel Duty Reform and PumpWatch: The Economic Case MPs Cannot Ignore

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Hippymum @hippymum.bsky.social · 19/09/2026

Implement urgent alerts for missing children - Sign the Petition! c.org/qM64yYM2jK

c.org

Sign the Petition

Implement urgent alerts for missing children

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Hippymum @hippymum.bsky.social · 18/09/2026

Petition to demand urgent mental health services - Sign the Petition! c.org/LDCpRcRp9V

c.org

Sign the Petition

Petition to demand urgent mental health services

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Hippymum @hippymum.bsky.social · 18/09/2026

Amend blue badge criteria for disabled people - Sign the Petition! c.org/MXTmDDkG8D

c.org

Sign the Petition

Amend blue badge criteria for disabled people

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Hippymum @hippymum.bsky.social · 18/09/2026

Guarantee no mid-cycle rule changes in medical training recruitment - Sign the Petition! c.org/MkskQv5pFQ

c.org

Sign the Petition

Guarantee no mid-cycle rule changes in medical training recruitment

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Reposted by Hippymum

EndMalnutritioninME @malnutritionme.bsky.social · 17/09/2026

The Severe ME Inquiry Report found that "People with severe and very severe #ME are exposed to clinical risks because existing systems often fail to respond appropriately to the realities of the illness." #WorldPatientSafetyDay #SevereME 25megroup.org/wp-content/u...

25megroup.org

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EndMalnutritioninME @malnutritionme.bsky.social · 17/09/2026

People with #ME are at risk of relapse after admission to hospital. Help them by: 🔹Not altering their daily medication and supplement intake. 🔹Reducing sensory stimuli and contact to the bare minimum. 🔹Providing artificial nutrition at an early stage. #WorldPatientSafetyDay

meassociation.org.uk

Hospital Support Pack - The ME Association

This pack was designed to help you explain the care […]

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FunkisHen @funkishen.bsky.social · 17/09/2026

I'm one of them. I'm 37, got sick at around the age of 13 (mild then). I'm one of the "elders" in my support group. Not always in age, but in diagnosis (2013) and knowledge. Seeing how many new people get sick, among them children, while the world ignores us, is truly devastating 💔

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Hippymum @hippymum.bsky.social · 18/09/2026

Enable Mental Health Support for Self-Employed Construction Workers - Sign the Petition! c.org/TCXnpTMFNK

c.org

Sign the Petition

Enable Mental Health Support for Self-Employed Construction Workers

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Reposted by Hippymum

Clive Lewis MP @labourlewis.bsky.social · 14/09/2026

For me, it comes down to this: when compounding crises threaten our water supply, do we want corporations and billionaires in control of it?

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Hippymum @hippymum.bsky.social · 13/09/2026

💷 10,000+ people have signed this petition already. A windfall tax on banks to fund a social tariff would cut typical bills by up to £520 a year. I’ve signed. Will you? 👇 www.megaphone.org.uk/petitions/ta...

megaphone.org.uk

Tax the banks — cut our bills!

Getting banks to pay more tax on their profits to help us with the cost of living is common sense. They’re raking in billions while the rest of us are struggling. We've seen this pattern before. The h...

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Hippymum @hippymum.bsky.social · 10/09/2026

I’ve just signed @foecymrucydd.bsky.social’s petition about pollution left behind by Wales’s industrial past. Forever chemicals and heavy metals can harm people and wildlife, and thousands of sites could still be contaminated. Demand action now: action.friendsoftheearth.uk/petition/dem...

action.friendsoftheearth.uk

Demand action on contaminated land in Wales

Add my name We should have the right to know if contaminated land is putting our health and nature at risk. Communities shouldn’t have to live with pollution they didn’t create – or pay the price for ...

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Carole Bruce @cabruce.bsky.social · 06/09/2026

Most #ME patients experience no accommodation for their ME related needs within the NHS and any engagement sets us back rather than helping. @tessamunt.bsky.social has written to minister Karin Smyth MP asking that the new Single Patient Record includes information on such needs.

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EndMalnutritioninME @malnutritionme.bsky.social · 07/09/2026

We can #EndMalnutritioninME with: 🔹Social care support 🔹Early recognition of nutrition and hydration problems 🔹Early intervention 🔹Artificial feeding 🔹Home Enteral Nutrition Service #Dietitians

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Hippymum @hippymum.bsky.social · 07/09/2026

Brixton Market is being sold. Help Elaine stop it. the.organise.network/campaigns/ne...

the.organise.network

Protect Brixton Market and its traders!

Add your name:

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