iiinova — where your digital self keeps evolving

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Apoorva Mandavilli @apoorvanyt.bsky.social · 26/09/2026

I’ve been reporting on the CDC for years, and have written about many of its troubles over the past year. I was still shocked by the extent of the staff losses and political interference I found when reporting this one. www.nytimes.com/2026/09/26/h...

nytimes.com

‘Zombified’ C.D.C., Hobbled by Cuts, Struggles to Fulfill Scientific Mission (Gift Article)

The agency has lost its independence and nearly a third of its staff, as Health Secretary Robert F. Kennedy Jr. and associates have tightened control.

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Mrs. Betty Bowers @mrsbettybowers.bsky.social · 25/09/2026

And speaking of childish things, I've decided to give Florida a far more accurate and important name—America's Flaccid Dong. Please act accordingly. Thanks in advance . . .

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Emerge Australia @emergeaustralia.bsky.social · 23/09/2026

💙 A gift in your will can help Emerge Australia continue supporting people living with ME/CFS, long COVID and other energy-limiting conditions for generations to come. Every gift can make a lasting difference. Learn more: zurl.co/U14jt #SupportEmerge #GiveHope

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Emerge Australia @emergeaustralia.bsky.social · 24/09/2026

The Australian: 600,000 Patients Risk Losing Care Over $220k Grant emerge.org.au/news/the-aus... @markbutlermp.bsky.social @sophiescott2.bsky.social @traceyspicer.bsky.social @mmissingaus.bsky.social

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Jon Douglas @atranscendedman.bsky.social · 23/09/2026

University of Alabama at Birmingham, 6,364 patients. Worsening cardiometabolic health after COVID was linked to 36% higher odds of Long COVID, with rises in BMI, glucose and triglycerides contributing. www.diabetesresearchclinicalpractice.com/article/S016...

diabetesresearchclinicalpractice.com

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Tom Kindlon @tomkindlon.bsky.social · 23/09/2026

(Melbourne, Australia) Contribute to research hoping to improve the lives of adults with ME/CFS or Long COVID redcap.unimelb.edu.au/surveys/?s=W... #MEcfs #LongCovid #PwME #CFS

Contribute to research hoping to improve the lives of adults with ME/CFS or Long COVID - The University of Melbourne
We are conducting a brain imaging project to investigate potential differences between healthy controls and patients with ME/CFS and/or long COVID with or without Postural Orthostatic Tachycardia Syndrome (POTS).

You or someone you know might be suitable if you/they are:

Female aged 18-70 years old (inclusive)
Diagnosed with ME/CFS or long COVID
Interested in brain imaging, brain blood flow and inflammation
Participation in this research would involve:

5 online questionnaires and 1 cognitive test (~3 hours in total).
2 visits to the Melbourne Brain Centre Imaging Unit with a total participation time of ~8 hour. This will include:
An hour-long MRI brain scan.
2 separate hour-long PET brain and calf scans.
3 venous blood draws.
Providing urine samples
Time spent will be reimbursed at $20/hour.

Interested in participating?

https://redcap.unimelb.edu.au/surveys/?s=WK34J7TR3AX4D9Y3

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The Cathy Wilcox @cathywilcox.bsky.social · 20/09/2026

Good to see this finally get coverage in my old paper. This is the same mob who campaigned against me, but it wasn’t sufficiently newsworthy then.

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Nick Feik @nickfeik.bsky.social · 13/09/2026

Pro tip: if a politician uses the phrase “we’ve been very clear…” it means they’ve been completely incoherent on that policy

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FionaMECFS @fioname.bsky.social · 09/09/2026

10 years ago, Australian #mecfs sufferer Alem Matthees became significantly more unwell because he fought to uncover the truth about the highly flawed 'PACE' trial of graded exercise therapy & cognitive behavioural therapy. 1/2

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Jon Douglas @atranscendedman.bsky.social · 27/08/2026

🧫 Primate gut organoids >1 year post-infection to study viral reservoirs 🦠 SARS-CoV-2 RNA found in gut, skin & bone marrow 🩸 Muscle biopsies showed capillary thickening + impaired oxygen 💊 VSL#3 probiotic 68% fatigue responders + gut/immune shifts islc-pais.org/abstractbook/

islc-pais.org

2026 Conference Abstract Book | ISLC-PAIS

Explore the official Abstract Book for the 2026 Amsterdam ISLC-PAIS Conference, featuring keynote, oral and poster presentations on Long COVID and PAIS.

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tonywindsor.bsky.social @tonywindsor.bsky.social · 28/08/2026

Thankyou @cathywilcox.bsky.social for your outstanding work and advocacy for many Australians through your brilliant cartoons. Like many I hope to see you bob up in our media in the future but whatever you do you will always be respected and well remembered. 10.

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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 24/08/2026

2026 Community Symposium on the Molecular Basis of ME/CFS is happening September 11th. Free registration here: stanford.zoom.us/webinar/regi...

Ronald W. Davis
19h • 0
...
2026 Community Symposium on the Molecular Basis of ME/CFS

I am pleased to announce that this year's 10th Annual Stanford Working Group Meeting on the Molecular Basis of ME/CFS will include a virtual Community Symposium again this year, in which patients, caregivers, doctors, and any other interested parties are invited to attend. The closed portion of the meeting will be held September 8 - 10, and the last day, September 11, will be open to the public. It will be held on zoom starting at 8 am PST.

*You must register to be sent a link to gain entrance to the meeting.* The link you are sent can only be used by the email you register with, and cannot be shared.
There is limited capacity so please be sure to register ahead. The agenda will be announced soon. I am excited to be hosting this again, and look forward to seeing you there!
Here is the registration link:

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ME/CFS Science @mecfsscience.org · 14/08/2026

1) 🇦🇹 Interesting study that tested brain blood flow and metabolites under experimentally induced hypoxia (they gave ME/CFS patients less oxygen while lying under the MRI scanner). The idea is that this might reveal brain differences during a stressor.

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Anthony Klan @anthonyklan.bsky.social · 05/08/2026

🚨Networks of bogus “news” pages are being used to spread vast amounts of pro-Hanson and One Nation propaganda on social media — as Hanson bans actual media. Pages aggressively spreading calculated disinformation in mass MAGA attack. Investigation 👇 theklaxon.com.au/i7z3

theklaxon.com.au

Sham pro-Hanson "news" pages flood social media – as One Nation bans actual news - The Klaxon

Networks of sham “news” pages on social media are being used to spread vast amounts of pro-Pauline Hanson and pro-One Nation propaganda — as Hanson bans actual media.

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FionaMECFS @fioname.bsky.social · 29/07/2026

This week marks 16 years since I developed #mecfs. In that time I've worsened from mild-moderate to severe. I'm bedbound 22 hrs/day with rolling, agonising post-exertional malaise (#PEM) that's near-impossible to get rid of. I'm only able to leave the house for essential purposes. 1/5

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David Milner @davemilbo.bsky.social · 24/07/2026

Well, it's nice to be able to provide good news for once, that's exactly what we're doing this week on Sunday Shot. We'll have a 30-minute long chat about disentangling "from the death cult" with @davidshoebridge.bsky.social from outside Pine Gap, totally uncut

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Renegade Research @renegaderesearch.bsky.social · 22/07/2026

Please join us Sat. July 25 at 12 pm ET US for a Community Meeting: "Clinicians with Patients: Clinical Management Focus on Crashes and PEM, PESE & PENE" with Drs @doc4care.bsky.social & Brayden Yellman discussing care issues for #MECFS & #LongCovid Register: us06web.zoom.us/webinar/regi...

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MU-Peter Shimon 🀄 @mu-peter.bsky.social · 17/07/2026

The glymphatic system: A recently discovered brain waste clearance system that's mostly active during sleep and disengaged during wakefulness Disrupted glymphatic function and its relationship with sleep and cognitive impairment in ME/CFS assessed via DTI-ALPS🧪 www.frontiersin.org/journals/neu...

frontiersin.org

Frontiers | Disrupted glymphatic function and its relationship with sleep and cognitive impairment in ME/CFS assessed via DTI-ALPS

The glymphatic system is a recently discovered brain waste clearance system that is mostly active during sleep and disengaged during wakefulness. Impaired gl...

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Tim Stephens @proftimstephens.bsky.social · 16/07/2026

"One Nation leader Pauline Hanson has taken a break from her speaking tour of England to spend time with her benefactor, billionaire Gina Rinehart, at a luxury resort in Sicily." Grifters. www.smh.com.au/politics/fed...

smh.com.au

Aussie battler: Hanson joins Gina poolside on White Lotus holiday in Sicily

Photos posted to Instagram show Hanson spending time poolside at the Grand Hotel San Pietro in the resort town of Taormina, while Rinehart swims.

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Anthony Klan @anthonyklan.bsky.social · 09/07/2026

🚨Australian Jewish News published an article condemning the vile, pro-Israel lobby attacks against Sarah Schwartz…then deleted it. Plus more unethical work by The Australian: but Schwartz “overwhelmed” by support… theklaxon.com.au/1tw4

theklaxon.com.au

"My evidence seems to have struck a chord": Jewish Council boss - The Klaxon

Jewish Council of Australia boss Sarah Schwartz has been “overwhelmed” with support after detailing attacks on her by the pro-Israel lobby.

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Anthony Klan @anthonyklan.bsky.social · 16/07/2026

Self-proclaimed champion of the "battler" Pauline Hanson has been caught at a luxury Italian resort with billionaire Gina Rinehart. theklaxon.com.au/l49s

theklaxon.com.au

MAGA by the Mediterranean - The Klaxon

Self-proclaimed champion of the "battler" Pauline Hanson has been caught meeting at a luxury Italian resort with billionaire Gina Rinehart.

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tonywindsor.bsky.social @tonywindsor.bsky.social · 05/06/2026

The Government will ignore this rhetoric to its peril. A strategic alignment

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tonywindsor.bsky.social @tonywindsor.bsky.social · 25/05/2026

Don’t do it Independents. Maintain your current status and integrity,work together when needed and remember each electorate’s constituency is the driving force and they have voted against the centralised control of a party. Ignore Racist Nation and do the work as you have proven in spades.

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Denise Difficult-Shrivell @deniseshrivell.bsky.social · 24/05/2026

This! ‘There's this recognition that on so many of these big challenges we are facing, it's not necessarily left versus right, it's actually vested interests and their stranglehold on the major parties versus the Australian people." #auspol #insiders www.abc.net.au/news/2026-05...

abc.net.au

Pocock open to party of independents as One Nation support climbs

The independent senator says Australians are frustrated with a political system that "does not work for them".

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ME/CFS San Diego @mecfssd.bsky.social · 23/05/2026

BMJ Rapid Response: Experts reject dangerous psychosomatic claims in BMJ, framing severe ME/CFS as a biological multi-system illness. PEM is a measurable reality, not a belief. Patients need biomedical science. bmj.com/content/389/...

bmj.com

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FionaMECFS @fioname.bsky.social · 18/05/2026

This guy has MS but has made a pretty bloody accurate (and funny) video of what #mecfs is really like: www.instagram.com/reel/DYcl4xN...

instagram.com

Instagram

Create an account or log in to Instagram - Share what you're into with the people who get you.

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tonywindsor.bsky.social @tonywindsor.bsky.social · 14/05/2026

Now that trump is in love with China where will Barnaby Joyce and his war with China go? Scrap AUKUS.

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ME Association @meassociation.org.uk · 13/05/2026

On 26th May, Action For ME are hosting a webinar on Sequence ME and Long Covid, including a Q&A session with Professor Chris Ponting, lead researcher. When: 26 May, 14:30-15:30pm GMT Sign up to join here: us02web.zoom.us/webinar/register/WN… #pwME

IMAGE DESCRIPTION: Photo of a laptop showing a group video call. Action for ME and Decode ME logos. Heading - 'Action for ME: Sequence ME and Long Covid Webinar'

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FionaMECFS @fioname.bsky.social · 12/05/2026

It's #mecfs Awareness Day. It's also federal Budget day in Australia - an excellent time to pull #mecfs out of its eternal lousy funding vacuum & INVEST IN OUR SCIENTISTS. 1/2

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FionaMECFS @fioname.bsky.social · 12/05/2026

It's #MEAwarenessDay - and federal Budget day in #Australia. #mecfs costs Australia up to $10 billion a year - yet federal govts haven't even given $10 million over 25 years❗️Will you be the one to tackle this egregious case of false economy @jimchalmers.bsky.social❓️

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FionaMECFS @fioname.bsky.social · 12/05/2026

Today is #MEAwarenessDay, in recognition of millions worldwide who suffer for decades, with no diagnostic tests or treatments. It's also federal Budget day. What a great opportunity to finally fund research at a level that will get us out of bed & back to life! @jimchalmers.bsky.social

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FionaMECFS @fioname.bsky.social · 06/05/2026

What do ppl think about this? Is Sam Maiden shooting the breeze, making a mountain out of a molehill, or really onto something? (In any case, her presumption that Labor's left faction still has any power, let alone a lot of power, makes me laugh😏) #auspol #auspol2026 www.news.com.au/national/pol...

news.com.au

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Chantzy @chantzy.bsky.social · 05/05/2026

LeAnn Rimes has cancelled several shows after Covid led to severe laryngitis. So many still refer to the pandemic in past tense but it's still disrupting lives, careers & health www.hellomagazine.com/celebrities/...

hellomagazine.com

Emotional LeAnn Rimes shares difficult health update amid cancelled shows: 'It breaks my heart'

LeAnn Rimes has revealed the real reason why she was forced to cancel her Spokane and Seattle shows, revealing she has Covid and "severe laryngitis"

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FionaMECFS @fioname.bsky.social · 05/05/2026

The life-altering chronic disease #mecfs has a range of triggers. Sometimes anaesthetics are the likely culprit, as this story from Aoteoroa New Zealand shows: www.nzherald.co.nz/nz/hdc-anaes...

nzherald.co.nz

Woman had one request before surgery - but it was ignored and no one told her

The anaesthetist said he didn't think it was important enough to tell her about the drug.

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Anthony Klan @anthonyklan.bsky.social · 02/05/2026

🚨A big shout-out: Tomorrow The Klaxon kicks off its annual fundraising campaign as part of the Local and Independent News Association (LINA). From 7am AEST (Sunday) LINA will double all donations for a short period of time. If you could support us it would be hugely appreciated!

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Fiona Katauskas @fionakatauskas.bsky.social · 02/05/2026

Props to a brave and courageous woman who should never have had to fight this battle

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Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social · 30/04/2026

Since 2013 I’ve raised £20,000+ for ME research charities. This year I’m raising money for Sequence ME & Long Covid as I think this is our best chance of understanding the causes and mechanisms of ME/CFS, which will lead to the development of effective treatments: www.justgiving.com/page/robafme

justgiving.com

Rob’s birthday fundraiser for Sequence ME & Long Covid

Help Robert Saunders raise money to support Action for M.E.

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Long COVID Signal @longcovidsignal.bsky.social · 27/04/2026

Exercise tests show 66% of severe post-infection patients can't work, with ME/CFS patients most affected 92 patients tested: those with ME/CFS had 16% lower oxygen uptake, 18% less power output vs others. Test results matched disability levels reported #LongCovid

pubmed.ncbi.nlm.nih.gov

https://pubmed.ncbi.nlm.nih.gov/42043742/

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Science for ME (S4ME) @s4me.info · 26/04/2026

🧵 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum. 20 - 26 Apr 2026

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tonywindsor.bsky.social @tonywindsor.bsky.social · 27/04/2026

Hi Bluesky Would someone let my X followers know that I have been suspended by twitter.I will be more active on this site. I will explain the suspension at a later date as it is an intriguing story that’s not devoid of politics. Many thanks.

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#MEAction Network @meactnet.bsky.social · 21/04/2026

We’re excited to share a new study about the ME/CFS diagnostic & treatment algorithm that #MEAction’s Scientific Director & Mayo Clinic researcher-clinicians created, as part of the Society to Improve Diagnosis in Medicine grant. www.meaction.net/post/meactio... @exceedhergrasp1.bsky.social

Largely text-based graphic sharing that research paper highlights a new tool enhancing diagnostic accuracy for ME/CFS in clinical settings. Image of paper title, authors, and journal with the QR code and photo of Jaime Seltzer (white woman with long curly hair wearing glasses, green shirt, and black blazer.) Text: Building tools that clinicians actually use—tools that reflect what patients experience—requires lived experience leadership at the table from day one. MEAction Scientific Director Jaime Seltzer is co-first-author with Stephanie Grach, MD.

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MaskTogetherAmerica @togetherwemask.bsky.social · 20/04/2026

EYES: The Window to #LongCOVID Sharing Two 2025 studies: Non-Hospitalized LC Patients Exhibit Reduced Retinal Capillary Perfusion: A Prospective Cohort Study (Journal of Imaging, Feb 16) Ocular Symptoms in LC: A Cross-Sectional Study (Clinical Ophthalmology, Oct 22) www.instagram.com/p/DXWyP6SkTfL/

Visual: The author’s eye
Headline: EYES: The Window to Long COVlD Subhead: Highlighting two key studies on ocular health and Long COVlD
Non-Hospitalized Long COVlD Patients Exhibit Reduced Retinal Capillary Perfusion: A Prospective Cohort Study (Journal of Imaging, Feb 16, 2025)
Ocular Symptoms in Long COVlD: A Cross-Sectional Study (Clinical Ophthalmology, Oct 22, 2025)

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David Milner @davemilbo.bsky.social · 19/04/2026

More upbeat chat than usual this week, on account of a few good things happening! Great guests with @paulbongiorno.bsky.social and @auspoldaily.bsky.social. It's a low bar, but it'll make you less angry/dumb than Insiders.

youtube.com

Courts to the Rescue! - April 19 - Paul Bongiorno, Alex Fein, and Rachel Smith

YouTube video by The Sunday Shot

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Anthony Klan @anthonyklan.bsky.social · 15/04/2026

🚨The ALP's rigging of Victorian "donations" laws – in favour of it and Coalition –– deemed unconstitutional in explosive, unanimous High Court decision. Federally, the "anti-Independents" duopoly stitch-up is also before the courts. Massive ramifications... theklaxon.com.au/labor-party-...

theklaxon.com.au

ALP's rigging of Victoria donation laws "unconstitutional": High Court - The Klaxon

The ALP’s rigging of Victoria’s political “donations” laws — in favour of the ALP and Coalition — is unconstitutional, finds High Court in unanimous decision.

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Larissa Waters @larissawaters.bsky.social · 15/04/2026

Today marks 35 years since the Royal Commission into Aboriginal Deaths in Custody made 339 recommendations to address systemic racism and over-incarceration of First Nations people. Since then, more than 630 First Nations people have died in custody, including 12 so far in 2026.

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Anthony Klan @anthonyklan.bsky.social · 14/04/2026

🚨Australia's MAGA movement –– run by a handful of billionaires –– is preparing to launch an attack ad over surging fuel prices....While failing to mention the cause is MAGA US President Donald Trump's invasion of Iran. Funded by... guess who? theklaxon.com.au/7j6m

theklaxon.com.au

Rinehart's "Advance" preps for MAGA blitz - The Klaxon

Australia’s main “MAGA” group is preparing to launch an attack ad over surging fuel prices — while failing to point out they are caused by Donald Trump’s America and Israel starting a war.

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