Sign in

derringdo.bsky.social

@derringdo.bsky.social
200 followers 712 following 33 posts

#LongCovid since March 2020. Art nature science. Mostly here for #LongCovid & adjacent community & topics.

PostsRepliesMedia
Reposted by @derringdo.bsky.social
Ed Yong is offline @edyong209.bsky.social · 17/09/2026
Briefly popping my head back in to unveil the cover of my upcoming book, LIFE BEYOND MEASURE: Nature's Hidden Wonders at Every Scale. It’ll be out on April 6 in the U.S. and April 29 in the U.K. and you can pre-order it right now! www.penguinrandomhouse.com/books/757705... 1/
A book cover featuring a beautiful closely cropped portrait of an Anna's hummingbird. The cover says LIFE BEYOND MEASURE: Nature's Hidden Wonders at Every Scale, by Ed Yong. The image also says US: 4/06/27 and UK: 4/29/27
271626360 1.6K
Reposted by @derringdo.bsky.social
George Monbiot @georgemonbiot.bsky.social · 18/09/2026
As former Labour minister Tom Watson joins Palantir, please read this devastating exposé by @petergeoghegan.bsky.social & @lucasamin.bsky.social of how the company, with Peter Mandelson's help, wormed its way into the UK government to sell its dire & dangerous products. www.lrb.co.uk/the-paper/v4...
lrb.co.uk
Peter Geoghegan and Lucas Amin · ‘This looks absolutely rubbish’: Palantir and the NHS
A decade ago Palantir was largely unknown in the UK. It now holds public contracts worth hundreds of millions of pounds...
18634441861 3.4K
Reposted by @derringdo.bsky.social
George Monbiot @georgemonbiot.bsky.social · 21/09/2026
While there are horror stories from many countries, the Netherlands and Sweden really stand out. They might be very "civilised" in some respects, but on ME/CFS they seem to be in the Dark Ages.
1521539 215
Reposted by @derringdo.bsky.social
Astrid Meyer-Knutsen @astridmeyerknutsen.bsky.social · 17/07/2026
Wise words: -"I’d like to hear more conversations about the injustices that are at the root of modern-day stress and the actions that will counter them, like joining a union, voting for political parties with progressive policies, or engaging with others who want to change the world for the better,”
0129 12
Reposted by @derringdo.bsky.social
Brian Hughes @bmhughes.bsky.social · 15/10/2025
Brief summary of Greta Thunberg's experience in Israeli captivity freethoughtblogs.com/pharyngula/2...
freethoughtblogs.com
Evil isn’t just banal, it’s also petty and childish
Greta Thunberg has been released from Israeli captivity, and she talks about her capture. What’s surprising is just how childishly stupid and misogynistic the Israeli soldiers were. She was n…
176 7
Reposted by @derringdo.bsky.social
George Monbiot @georgemonbiot.bsky.social · 16/10/2025
Today's column is about the government's huge, unprecedented assault on nature ... and about the eerie, astonishing silence of the big nature groups. The RSPB, National Trust, Wildlife Trusts have 7.5m members between them. A vast force, completely unmobilised. 🧵 www.theguardian.com/commentisfre...
theguardian.com
Wage war on nature to build new homes: that’s Labour’s offer, but it’s a con trick | George Monbiot
The government’s new planning bill is tearing down environmental protections to benefit developers. This nation of nature lovers won’t stand for it, says Guardian columnist George Monbiot
591020472 1K
Reposted by @derringdo.bsky.social
Brian Hughes @bmhughes.bsky.social · 12/09/2025
A man was arrested for causing a public nuisance at Heathrow Airport. He'd released tear gas causing several people to feel suddenly ill IMO the *real* public nuisances were the psych academics who'd claimed the initial symptoms were just "mass psychogenic illness" 🤦 Via @davetuller1.bsky.social
virology.ws
Trial By Error: "Mass Psychogenic Illness" at Heathrow Airport--NOT! | Virology Blog
By David Tuller, DrPH On Monday afternoon, a bunch of people in Terminal 4 at Heathrow, London’s biggest airport, reported feeling ill. The reports led to c ...
47026 70
Reposted by @derringdo.bsky.social
sarah boothby @swastrosarah.bsky.social · 20/08/2025
At the final discharge meeting he said she needed to meet other people in recovery from being so poorly. She was literally being starved to death; and there are no venues or opportunities for meeting other people in recovery from very severe ME anywhere. The man is a narcissist equal to all others.
3235 23
Reposted by @derringdo.bsky.social
My IRL friends call me Chris @christyceeck.bsky.social · 12/07/2025
I'm sure many I know here remember Sheila from our days on X. I'm so sad to read this news. Her advocacy influenced my thinking and was part of the inspiration for my pollinators' garden. What a loss to her family, community, bumblebees and science. #GiftLink 🎁 www.thestar.com/news/gta/she...
Colla died on Sunday of mesothelioma, a rare and aggressive form of cancer, at the age of 43. She is being remembered as both a brilliant scientist and a fierce advocate. 

As she published papers unravelling the mystery of why species like the rusty-patched bumblebee were disappearing, she took her fight to save wild bees directly to politicians and to the public at large. She was instrumental in helping create programs like the City of Toronto’s wildly popular pollinator garden grants, and fought for the rusty-patched bumblebee to become the first bee listed as an endangered species in Canada. 

Colla’s early death is a tragedy for conservation science, her colleagues say, and for her friends and family. She leaves behind a husband and two children.

They also say her legacy endures as an example of how scientists can fight beyond the lab to expand the reach of their work.
38624 86
Reposted by @derringdo.bsky.social
George Monbiot @georgemonbiot.bsky.social · 23/06/2025
Do not use Premier Inn. I booked (it was a rush, don't ask), a 3-bed room in Cardiff. Here's what they sold me. Here's what I got. Despite a long argument, all they will offer is a 19% refund. Their reason? "Room size and set up can vary based on the hotel and the number of guests."
Spacious hotel room, three beds set well apart.Tiny room, three beds crammed together.
5830756 307
Reposted by @derringdo.bsky.social
Sally Bourliakas @sallybourliakas.bsky.social · 12/06/2025
🧪 @sunny-rae1.bsky.social @johnmcdonnellmp.bsky.social Thank you Rae for the briefing on #LongCovid you gave John and John for putting it forward in today’s debate on the Pandemic
43516 35
Reposted by @derringdo.bsky.social
Patient-Led Research Collaborative @patientled.bsky.social · 22/05/2025
Grateful to @putrinolab.bsky.social and the clinicians, researchers, & PLRC members who authored this response piece in the BMJ yesterday. There are countless biological findings in severe ME, and people with severe ME need to be treated with effective therapies! #pwME www.bmj.com/content/389/...
bmj.com
Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.
18432 84
Reposted by @derringdo.bsky.social
Prof Danny Altmann @daltmann.bsky.social · 21/05/2025
A new departure for us as an immunology journal, emphasising the role of patient-led research. Send us submissions 👇
0105 10
Reposted by @derringdo.bsky.social
Putrino Lab @putrinolab.bsky.social · 21/05/2025
Thank you to some amazing colleagues who took time and precious energy to craft this rapid response to the recent @bmj_latest piece. When people try to hijack #LongCOVID, #MECFS and other complex illness as psychosomatic it is important we strike back: www.bmj.com/content/389/... 1/
bmj.com
Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.
13287111 287
Reposted by @derringdo.bsky.social
Disabled Doctor @disableddoctor.bsky.social · 08/05/2025
I mean aside from even what it can mean for care, physicians have such a hard time recognizing what a diagnosis can mean for a human who has been struggling damn near their entire life: answers, community, relief, the ability to finally process what is going on in their bodies. It has so much value
1122 12
Reposted by @derringdo.bsky.social
Elke Hausmann @drelke.bsky.social · 05/04/2025
Are there any more GPs with Long Covid out there who would be interested in reading my article in the British Journal of General Practice (BJGPlife) and maybe comment on it? #LongCovid bjgplife.com/suzanne-osul...
43318 33
Reposted by @derringdo.bsky.social
Miles W. Griffis @mileswgriffis.bsky.social · 28/03/2025
🚨 BREAKING: Long COVID research grants rescinded earlier this week have been restored, according to researchers & patient reps. Advocates organized quickly yesterday in response to the news, helping reverse the decision. Exclusive in @thesicktimes.bsky.social thesicktimes.org/2025/03/28/u...
thesicktimes.org
UPDATE: RECOVER Long COVID pathobiology grants restored - The Sick Times
Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, accord...
562044605 2K
Reposted by @derringdo.bsky.social
Billy Hanlon @bhanlon15.bsky.social · 27/03/2025
CE&N: 'NIH cancels RECOVER grants for long COVID projects' 'all grants for pathobiology studies that RECOVER funded in 2022 and 2023 were canceled this week' “For a lot of the researchers on the call, they kind of felt like this was a death knell for RECOVER entirely" cen.acs.org/policy/resea...
cen.acs.org
NIH cancels grants through flagship long COVID initiative
Termination ‘a waste of the money we’ve spent already’
45523 55
Reposted by @derringdo.bsky.social
Ed Yong is offline @edyong209.bsky.social · 24/03/2025
I’ve had a several dozen requests to write or be interviewed about the 5th anniversary of Covid and said no to all of them… except this one with @alexis-madrigal.bsky.social. Here’s our chat on the things we’ve memory-holed, and where we go from here. www.kqed.org/forum/201010...
kqed.org
Ed Yong on the Pandemic’s Legacy on Science Research and Reporting | KQED
As part of our series looking at the legacy of the pandemic five years on, we talk to Ed Yong about how COVID changed our relationship with health news, reporting and research.
231485398 1.5K
Reposted by @derringdo.bsky.social
Cohen Center for Recovery from Complex Chronic Illness @coresinai.bsky.social · 13/03/2025
Our upcoming trial will evaluate the feasibility of Microtesla Magnetic Therapy (MMT) for addressing cognitive challenges in individuals with #LongCOVID. We are studying those with moderate to severe cognitive impairment. For inquiries email coreresearch@mountsinai.org.
Participants Needed
Are you experiencing brain fog, memory problems, or thinking problems from Long Covid?
THIS STUDY INVOLVES:
8 WEEKS
Using the device (pictured above) at home for 4 of the 8 weeks
SURVEYS
Complete online questionnaires about your health throughout your participation
7 VIDEO STUDY VISITS Attend 7 virtual study visits at specified times
YOU MAY BE ELIGIBLE IF:
POTENTIAL COMPENSATION Compensation possible up to $400 for completing all aspect of the trial
3 IN PERSON STUDY VISITS Attend 3 in person study visits at specified times
You have Long COVID
• You have Cognitive Dysfunction associated with Long COVID • You are over 18 years old • You are fluent in English
Please reach out to
IRB Approved
CoreResearch@mountsinai.org
212-241-8454
Effective Date: 11/18/2024
End Date: 11/11/2025
STUDY 24-01276
Principal Investigator: David Putrino,PT, PhD Site: The Cohen Center for Recover from Complex Chronic Illnesses (CORE)
187 8
Reposted by @derringdo.bsky.social
Eric Topol @erictopol.bsky.social · 05/03/2025
The new issue of Science Advances (open-access) has multiple papers on women's health. These 2 are related to menopause, hormone replacement and brain health www.science.org/toc/sciadv/c...
714436 144
Reposted by @derringdo.bsky.social
Trish Greenhalgh @trishgreenhalgh.bsky.social · 27/02/2025
Anyone want to see our latest paper on #masks? #healthpolicy 🧪 www.bmj.com/content/388/...
bmj.com
The role of masks and respirators in preventing respiratory infections in healthcare and community settings
The covid-19 pandemic saw frequent changes and conflicts in mask policies and politicization of masks. On reviewing the evidence, including studies published after the pandemic, the data suggest respi...
32602268 602
Reposted by @derringdo.bsky.social
David Tuller @davetuller1.bsky.social · 02/03/2025
More propaganda about the Lightning Process, this time in the form of a New Zealand marketing effort cosplaying as an academic paper. virology.ws/2025/03/02/t...
virology.ws
Trial By Error: New Hyped-Up Lightning Process Study from New Zealand | Virology Blog
By David Tuller, DrPH In January, the Journal of Family Medicine and Primary Care published a paper from New Zealand called “An audit of 12 cases of long CO ...
56821 68
Reposted by @derringdo.bsky.social
Liz Highleyman @lizhighleyman.bsky.social · 28/02/2025
Important line of research to follow up on — & another example of how there’s not a clear dividing line between infectious & chronic diseases. alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
alz-journals.onlinelibrary.wiley.com
Human herpesvirus‐associated transposable element activation in human aging brains with Alzheimer's disease
INTRODUCTION Human herpesvirus (HHV) has been linked to Alzheimer's disease (AD), but the underlying mechanisms remain unknown. METHODS We leveraged functional genomics data from Religious Orders ...
063 6
Reposted by @derringdo.bsky.social
Liz Highleyman @lizhighleyman.bsky.social · 23/02/2025
It's remarkable that an 83-year-old is probably generating the most energy in resisting Trumpism, with the exception of AOC.
0144 14
Reposted by @derringdo.bsky.social
Eric Topol @erictopol.bsky.social · 21/02/2025
Waste clearance from the brain relies on glymphatics, driven by arterial blood flow. What happens in atrial fibrillation? Evidence for impaired glymphatic and cognition function. Open-access @escardio.bsky.social academic.oup.com/eurheartj/ad...
Comparison of normal rhythm and atrial fibrillation for glymphatic function and waste clearance form the brain
016232 162
Reposted by @derringdo.bsky.social
Liz Highleyman @lizhighleyman.bsky.social · 21/02/2025
I don't know if SARS-CoV-2 can cause cancer. Most reports of rising cancer rates predate COVID. But evidence shows that SARS-CoV-2 persists in at least some people & other persistent viruses (HPV, EBV, hep B & C) do trigger cancer. I'm waiting for forthcoming data. 1/
162 6
Reposted by @derringdo.bsky.social
George Monbiot @georgemonbiot.bsky.social · 21/02/2025
There's a common path in the development of authoritarian or totalitarian regimes, regardless of whether they are overseen by Catholic Inquisitors, Protestant enforcers, monarchists, fascists, Nazis, Stalinists, Maoists .... First they eliminate words. Then they eliminate people.
33968428 968
Reposted by @derringdo.bsky.social
Danilo Buonsenso @buonsenso.bsky.social · 17/02/2025
Dear All, please find the new version of the International Pediatric Long Covid meeting in Rome , this time including @sammiemc.bsky.social from @longcovidkids.bsky.social perspective (from 2:52:40 for about ten minutes, for those that have already seen the rest) www.youtube.com/watch?v=lhbp...
youtube.com
LONG COVID IN CHILDREN MEETING IN ROME - INCLUDING LONGCOVID KIDS UK TALK FROM SAMMIE
YouTube video by BUONSENSO & THE KIDS_
2209 20
Reposted by @derringdo.bsky.social
Neurologist Mom @neurologistmom.bsky.social · 12/02/2025
COVID-related conditions should be integrated into medical education rather than being left to so-called ‘Long COVID clinics.’ When those in charge lack a real understanding of the condition, these clinics end up becoming gaslighting centers. Physician education must come first.
1132 13
Reposted by @derringdo.bsky.social
Putrino Lab @putrinolab.bsky.social · 16/02/2025
Funny how when a real scientist responds to an ideologue about their dated beliefs the cracks start to show re: #LongCOVID. Initially I was annoyed that Nature even legitimized such a weak response from Garner et al, but now all the world can see that the emperor has no clothes.
09222 92
Reposted by @derringdo.bsky.social
Putrino Lab @putrinolab.bsky.social · 12/02/2025
@RobWust appreciation post: tldr: post-exertional malaise (PEM) is NOT a choice. In 2024, an amazing paper was published showing us some key features unlocking the physiology PEM in #LongCOVID. Curious minds would read a paper like this and view 1/
1026880 268
Reposted by @derringdo.bsky.social
Karen West @karenwestphysio.bsky.social · 12/02/2025
Rob Wust's article has been very useful in helping one of my patients to slow down. I'm very grateful to him.
051 5
Reposted by @derringdo.bsky.social
Kelly Meiners PT, PhD @kellymeiners.bsky.social · 12/02/2025
As a PT I’ve tried and failed over a 100 times to gently return to exercise from a severe state. If it was possible I’d be cured by now. I decline every single time I attempt to push myself. It’s not mindset or a “preference” issue but completely physiological.
0293 29
Reposted by @derringdo.bsky.social
Putrino Lab @putrinolab.bsky.social · 12/02/2025
their brilliant work and a reminder to everyone who is studying, treating or experiencing a PEM: PEM IS NOT A CHOICE. PEM IS NOT DECONDITIONING. PEM IS NOT ‘EFFORT PREFERENCE’ . PEM is a physiological disease process. PEM occurs in bodies that are experiencing metabolic 4/
314242 142
Reposted by @derringdo.bsky.social
Olenka Sayko @osayko.bsky.social · 11/02/2025
I’m on day 5 of Sofosbuvir. The first two days I only took one pill, but have been taking 2 the other two days. Very up and down but the ups are very up. My nervous system feels very calm on those days.
271 7
Reposted by @derringdo.bsky.social
Long Covid Kids @longcovidkids.bsky.social · 08/02/2025
‘Last year, a neuroscientist diagnosed my son with #LongCovid , and I exhaled. I felt relieved to know the cause of Marty’s crushing fatigue and brain fog. And I figured that when I explained it, other people would get it, too.’ www.psychologytoday.com/us/blog/risk... #LongCovidKids
35112 51
Reposted by @derringdo.bsky.social
Danilo Buonsenso @buonsenso.bsky.social · 07/02/2025
here it is the first updated you asked me about first patient on low dose rapamycine, a talented young neurologist whose life was previously disrupted by long covid it’s in italian, so you have to translate by yourself. but wanted to share as real as it is
287 8
Reposted by @derringdo.bsky.social
Cohen Center for Recovery from Complex Chronic Illness @coresinai.bsky.social · 07/02/2025
We are investigating the presence of certain bacteria in the blood samples of people who have either #LongCOVID, Chronic #TickBorne and #VectorBorne Illnesses, #MECFS, or #EDS. Our clinical trial is currently recruiting!
2103 10
Reposted by @derringdo.bsky.social
Long Covid Advocacy Ireland-LCAI @lcaireland.bsky.social · 07/02/2025
Our next online support meeting for #LongCovid patients (& parents) is next MONDAY 10TH FEBRUARY AT 7PM. No need to register. Just click on the zoom link below Join Zoom Meeting us06web.zoom.us/j/86731632565?… #Ireland #LongCovidKids Meeting ID: 867 3163 2565 Passcode: 931955
us06web.zoom.us
Join our Cloud HD Video Meeting
Zoom is the leader in modern enterprise video communications, with an easy, reliable cloud platform for video and audio conferencing, chat, and webinars across mobile, desktop, and room systems. Zoom Rooms is the original software-based conference room solution used around the world in board, conference, huddle, and training rooms, as well as executive offices and classrooms. Founded in 2011, Zoom helps businesses and organizations bring their teams together in a frictionless environment to get more done. Zoom is a publicly traded company headquartered in San Jose, CA.
064 6
Reposted by @derringdo.bsky.social
Prof. Akiko Iwasaki @virusesimmunity.bsky.social · 02/02/2025
If you have long COVID and live near @coresinai.bsky.social, please consider participating in the clinical trial to test antiviral medications (Truvada, Seizentry). Yale Center for Infection and Immunity will be doing biomarker analysis. Please sign up here and spread the word 📣
29144 91
Reposted by @derringdo.bsky.social
Long Covid Advocacy @longcovidadvoc.com · 02/02/2025
The UK has seen a plethora of these cheap, mass distribution intervention trials for #longcovid that don't help. Millions has been wasted. The answer is not we need more but we need trials on pathology, biomarkers & treatments. /7
24912 49
Reposted by @derringdo.bsky.social
Long Covid Advocacy @longcovidadvoc.com · 02/02/2025
Yet even with this skew it's quite impressive for a subjective outcome based trial to find "null effect" in the primary analysis (or very small & clinically insignificant) /4
1133 13
Reposted by @derringdo.bsky.social
Long Covid Advocacy @longcovidadvoc.com · 02/02/2025
Unsurprisingly the LISTEN #longcovid trial is a dud (although the paper tries to not say this) Another £1.1 million wasted Let's get into the details... 🧵 1/7 bmjmedicine.bmj.com/content/4/1/...
bmjmedicine.bmj.com
Effectiveness of a personalised self-management intervention for people living with long covid (Listen trial): pragmatic, multicentre, parallel group, randomised controlled trial
Objective To evaluate the effectiveness of Listen, a self-management support intervention, for people living with long covid who were not in hospital.Design Pragmatic, multicentre, parallel group, ran...
66934 69
Reposted by @derringdo.bsky.social
cbme-mark.bsky.social @cbme-mark.bsky.social · 02/02/2025
I find it incredibly hard to accept the limits ME opposes and I’m always pushing at them. The result is that I’ve gone from mild to moderate to severely ill and I’m now pretty much housebound. Don’t let it happen to you. Listen to your body and always go for less exertion rather than more.
2173 17